Re: to introduce myself

May 9, 1999

:

The good thing about not drinking is that alot and I mean ALOT OF MY FAMILY

HAVE DRINKING PROBLEMS. My father had a big one and he died at 93 1/2 still

drinkup up to about six months before he passed away in 1996. I have a

sister that is not drinking now but has a problem falling of the wagon. But

she has been sober for 10 years now. One sister who drinks all the time and

another sister that seems to be doing alot of it lately too. So I guess if I

could drink I probably be just like them.

Sue AIH

Wisonsin

May 10, 1999

Dear Elena,

I hope your biopsy results went ok! I can totally relate to you. I've only

been with this list a couple of days. I get my biopsy results tomorrow, and

I was totally hoping they'd say " It's all a big mistake! You're absolutely

fine! " Somehow I think you're right that this isn't going to happen...

Anyways, take care!

>From: ELENA PHEASANT <brit71@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] To introduce myself

>Date: Mon, 10 May 1999 12:14:14 -0700 (PDT)

>

>From: ELENA PHEASANT <brit71@...>

>

>Hello Patti,

>Welcome to the list. I am new to the list too. I am getting the results

>from my biopsy today! This is after a very very long weekend. It was

>bad, waiting certainly is torture. Im hoping that the doctor will look

>at me and say " Its all a mistake, your perfectly fine " Somehow, I dont

>think he is going to say that. We know our body and know when something

>is not right.

>Looking forward to getting to know you.

>Elena

>

>--- B/P <schnase@...> wrote:

> > Hello all, my name is Patti. I am 32, married to a

> > wonderful man and have a 3-yr.old son. I was just

> > diagnosed with PBC. I have had to go through 2

> > previous doctors who did not even attempt to

> > diagnose me. That was over a year ago. Then I found

> > a very good one who referred me to one specialist,

> > from there I had blood tests, and then on to another

> > specialist, who finally came up with a

> > conclusion!!Very frustrating. The waiting time

> > inbetween my biopsy to final diagnosis was the

> > longest in my life. I knew I had a liver disease,

> > but the end result now has just blown my mind. I am

> > very scared and know I have to face whatever lies

> > ahead, but it will take awhile for this to sink in.

> > I hope to meet some wonderful new friends to help me

> > build up my courage again. Hope to hear from you

> > soon! Happy Mother's Day to all.. XXPATTIXX

> >

><HR>

><!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " >

><HTML>

><HEAD>

>

><META content=text/html;charset=iso-8859-1 http-equiv=Content-Type>

><META content=' " MSHTML 4.72.3110.7 " ' name=GENERATOR>

></HEAD>

><BODY bgColor=#ffffff>

><DIV><FONT color=#000000>Hello all, my name is Patti. I am 32, married

>to a

>wonderful man and have a 3-yr.old son. I was just diagnosed with PBC. I

>have had

>to go through 2 previous doctors who did not even attempt to diagnose

>me. That

>was over a year ago. Then I found a very good one who referred me to

>one

>specialist, from there I had blood tests, and then on to another

>specialist, who

>finally came up with a conclusion!!Very frustrating. The waiting time

>inbetween

>my biopsy to final diagnosis was the longest in my life. I knew I had a

>liver

>disease, but the end result now has just blown my mind. I am very

>scared and

>know I have to face whatever lies ahead, but it will take awhile for

>this to

>sink in. I hope to meet some wonderful new friends to help me build up

>my

>courage again. Hope to hear from you soon! Happy Mother's Day to all..

>XXPATTIXX</FONT></DIV></BODY></HTML>

>

>===

>Elena Pheasant

>

>_________________________________________________________

>

May 10, 1999

Hi Dorthi

My dad says I have a lot of talent but I just say I am looking for things to

do.

I have two sisters on with dibetes and one is legally blind. My mom has

anemia(iron diffencitnecy) and my dad is normal. we are very close. My

sisters and I are more like best friends. I really love my life.

I don't have much time other wise I would wright more but I have to go

shopping with my mom.

Take care

>From: Dorothy.Sawyer@...

>Reply- onelist

> onelist

>Subject: Re: [ ] To introduce myself

>Date: Mon, 10 May 1999 14:41:39 -0400

>

>From: Dorothy.Sawyer@...

>

>,

>

> Hello to you!!! I also love to write poetry--it helps me to express

>myself. Sounds as if you were diagnosed early. I am sure all of this has

>not been easy for you. It isn't easy at any age, but learning to cope is a

>big part of it. You said you enjoys singing-----I also love it, but

>confine

>it to my car or my house because I would hurt your ears

>otherwise-------LOL.

>You sound like a very well rounded person. Take care!!!!! Looking forward

>to hearing more about you soon.

>

>Dorothy

>

> > Re: [ ] To introduce myself

> > >Date: Sat, 8 May 1999 13:00:46 EDT

> > >

> > >From: Chollyfam@...

> > >

> > >Hi all! What is PBC? I keep seeing it in the e-mails.

> > >

> > >Thanks!

> > >

> > >Tami

> > >

> >

> >------------------------------------------------------------------------

> > >Do you know how many communities live at ONElist?

> > >http://www.ONElist.com

> > >More than 140,000 with nearly 1,000 new ones joining each day!

> >

> >------------------------------------------------------------------------

> > >Please support the American Liver Foundation!

> > >

> > >1.) To subscribe send e-mail to -subscribeonelist

> > >2.) To UNsubscribe send to -unsubscribeonelist

> > >3.) Digest e-mail format send to -digestonelist

> > >4.) Normal e-mail format send to -normalonelist

> >

> > _______________________________________________________________

> > Get Free Email and Do More On The Web. Visit http://www.msn.com

> >

> > ------------------------------------------------------------------------

> > Give back to your community through " Grow to Give. "

> >

> > See homepage for details.

> > ------------------------------------------------------------------------

> > Please support the American Liver Foundation!

> >

> > 1.) To subscribe send e-mail to -subscribeonelist

> > 2.) To UNsubscribe send to -unsubscribeonelist

> > 3.) Digest e-mail format send to -digestonelist

> > 4.) Normal e-mail format send to -normalonelist

>

>------------------------------------------------------------------------

>Having difficulty getting " in synch " with list members?

>

>Try ONElist's Shared Calendar to organize events, meetings and more!

>------------------------------------------------------------------------

>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

>

_______________________________________________________________

Get Free Email and Do More On The Web. Visit http://www.msn.com

May 10, 1999

Hello and

I was diagnosed when I was 23 years old and now am 26!! The Drinking

thing was a huge challenge especially in the beginning. I hit remission

in the first year, but I did not change my life style very much! I

started drinking wine *(because i told my self it was not a real drink)

lol

Any ways in the second year I became ill again and stayed that way till

recently ( high liver emymies) I quit drinking for the last year, until

this month when I got all that bad news!! I KNOW IT DOES NOT SOLVE

PROBLEMS) But I wanted too escapee. I had three shots of tequila, and

4 vodka coolers!! 3 weeks ago!! I did not tell my doctor, but i've been

on that new med for two months and my liver test have never been better.

This drinking thing certainly is not going to be a habit, and when I

became ill my doctor said a beer once in a while won't hurt!! Just not

every night!! and not in large amounts!!

]

It's hard when the past few years you spent parting with your friends

and now your the premanted d & d!!

But you no what I did everything right this past year, watched my diet,

did not drink, etc... and I was the sickest!!! I stop being so paranoid

and just live and I'm now doing well!!

Just live!!

May 10, 1999

Patti,

Welcome to the group. I am sure you will find everyone here so

helpful. I know I did. I am 27 and was diagnosed almost 2 years ago. The

beginning of all of this for me was the worst because I had to deal with all

of the questions from friends and family. What is it and how did you get

it---can we get if from you? All the ones I am sure you have heard. I felt

so alone and scared. The biopsy for me was very hard. I don't think I was

prepared for that.

I will try to keep this very brief, but wanted to welcome you.

Dorothy

> [ ] To introduce myself

>

> Hello all, my name is Patti. I am 32, married to a wonderful man and have

> a 3-yr.old son. I was just diagnosed with PBC. I have had to go through 2

> previous doctors who did not even attempt to diagnose me. That was over a

> year ago. Then I found a very good one who referred me to one specialist,

> from there I had blood tests, and then on to another specialist, who

> finally came up with a conclusion!!Very frustrating. The waiting time

> inbetween my biopsy to final diagnosis was the longest in my life. I knew

> I had a liver disease, but the end result now has just blown my mind. I am

> very scared and know I have to face whatever lies ahead, but it will take

> awhile for this to sink in. I hope to meet some wonderful new friends to

> help me build up my courage again. Hope to hear from you soon! Happy

> Mother's Day to all.. XXPATTIXX

May 10, 1999

,

Hello to you!!! I also love to write poetry--it helps me to express

myself. Sounds as if you were diagnosed early. I am sure all of this has

not been easy for you. It isn't easy at any age, but learning to cope is a

big part of it. You said you enjoys singing-----I also love it, but confine

it to my car or my house because I would hurt your ears otherwise-------LOL.

You sound like a very well rounded person. Take care!!!!! Looking forward

to hearing more about you soon.

Dorothy

> Re: [ ] To introduce myself

> >Date: Sat, 8 May 1999 13:00:46 EDT

> >

> >From: Chollyfam@...

> >

> >Hi all! What is PBC? I keep seeing it in the e-mails.

> >

> >Thanks!

> >

> >Tami

> >

> >------------------------------------------------------------------------

> >Do you know how many communities live at ONElist?

> >http://www.ONElist.com

> >More than 140,000 with nearly 1,000 new ones joining each day!

> >------------------------------------------------------------------------

> >Please support the American Liver Foundation!

> >

> >1.) To subscribe send e-mail to -subscribeonelist

> >2.) To UNsubscribe send to -unsubscribeonelist

> >3.) Digest e-mail format send to -digestonelist

> >4.) Normal e-mail format send to -normalonelist

>

> _______________________________________________________________

> Get Free Email and Do More On The Web. Visit http://www.msn.com

>

> ------------------------------------------------------------------------

> Give back to your community through " Grow to Give. "

>

> See homepage for details.

> ------------------------------------------------------------------------

> Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

May 10, 1999

Hello Patti,

Welcome to the list. I am new to the list too. I am getting the results

from my biopsy today! This is after a very very long weekend. It was

bad, waiting certainly is torture. Im hoping that the doctor will look

at me and say " Its all a mistake, your perfectly fine " Somehow, I dont

think he is going to say that. We know our body and know when something

is not right.

Looking forward to getting to know you.

Elena

--- B/P <schnase@...> wrote:

> Hello all, my name is Patti. I am 32, married to a

> wonderful man and have a 3-yr.old son. I was just

> diagnosed with PBC. I have had to go through 2

> previous doctors who did not even attempt to

> diagnose me. That was over a year ago. Then I found

> a very good one who referred me to one specialist,

> from there I had blood tests, and then on to another

> specialist, who finally came up with a

> conclusion!!Very frustrating. The waiting time

> inbetween my biopsy to final diagnosis was the

> longest in my life. I knew I had a liver disease,

> but the end result now has just blown my mind. I am

> very scared and know I have to face whatever lies

> ahead, but it will take awhile for this to sink in.

> I hope to meet some wonderful new friends to help me

> build up my courage again. Hope to hear from you

> soon! Happy Mother's Day to all.. XXPATTIXX

>

<HR>

<!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " >

<HTML>

<HEAD>

</HEAD>

<DIV><FONT color=#000000>Hello all, my name is Patti. I am 32, married

to a

wonderful man and have a 3-yr.old son. I was just diagnosed with PBC. I

have had

to go through 2 previous doctors who did not even attempt to diagnose

me. That

was over a year ago. Then I found a very good one who referred me to

one

specialist, from there I had blood tests, and then on to another

specialist, who

finally came up with a conclusion!!Very frustrating. The waiting time

inbetween

my biopsy to final diagnosis was the longest in my life. I knew I had a

liver

disease, but the end result now has just blown my mind. I am very

scared and

know I have to face whatever lies ahead, but it will take awhile for

this to

sink in. I hope to meet some wonderful new friends to help me build up

my

courage again. Hope to hear from you soon! Happy Mother's Day to all..

XXPATTIXX</FONT></DIV></BODY></HTML>

===

Elena Pheasant

_________________________________________________________

May 11, 1999

Thank you for your kind words

Elena

--- emily simpson <esimpson7@...> wrote:

> From: " emily simpson " <esimpson7@...>

>

> Dear Elena,

>

> I hope your biopsy results went ok! I can totally

> relate to you. I've only

> been with this list a couple of days. I get my

> biopsy results tomorrow, and

> I was totally hoping they'd say " It's all a big

> mistake! You're absolutely

> fine! " Somehow I think you're right that this isn't

> going to happen...

> Anyways, take care!

>

> >From: ELENA PHEASANT <brit71@...>

> >Reply- onelist

> > onelist

> >Subject: Re: [ ] To introduce myself

> >Date: Mon, 10 May 1999 12:14:14 -0700 (PDT)

> >

> >From: ELENA PHEASANT <brit71@...>

> >

> >Hello Patti,

> >Welcome to the list. I am new to the list too. I am

> getting the results

> >from my biopsy today! This is after a very very

> long weekend. It was

> >bad, waiting certainly is torture. Im hoping that

> the doctor will look

> >at me and say " Its all a mistake, your perfectly

> fine " Somehow, I dont

> >think he is going to say that. We know our body and

> know when something

> >is not right.

> >Looking forward to getting to know you.

> >Elena

> >

> >--- B/P <schnase@...> wrote:

> > > Hello all, my name is Patti. I am 32, married to

> a

> > > wonderful man and have a 3-yr.old son. I was

> just

> > > diagnosed with PBC. I have had to go through 2

> > > previous doctors who did not even attempt to

> > > diagnose me. That was over a year ago. Then I

> found

> > > a very good one who referred me to one

> specialist,

> > > from there I had blood tests, and then on to

> another

> > > specialist, who finally came up with a

> > > conclusion!!Very frustrating. The waiting time

> > > inbetween my biopsy to final diagnosis was the

> > > longest in my life. I knew I had a liver

> disease,

> > > but the end result now has just blown my mind. I

> am

> > > very scared and know I have to face whatever

> lies

> > > ahead, but it will take awhile for this to sink

> in.

> > > I hope to meet some wonderful new friends to

> help me

> > > build up my courage again. Hope to hear from you

> > > soon! Happy Mother's Day to all.. XXPATTIXX

> > >

> ><HR>

> ><!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " >

> ><HTML>

> ><HEAD>

> >

> ><META content=text/html;charset=iso-8859-1

> http-equiv=Content-Type>

> ><META content=' " MSHTML 4.72.3110.7 " '

> name=GENERATOR>

> ></HEAD>

> ><BODY bgColor=#ffffff>

> ><DIV><FONT color=#000000>Hello all, my name is

> Patti. I am 32, married

> >to a

> >wonderful man and have a 3-yr.old son. I was just

> diagnosed with PBC. I

> >have had

> >to go through 2 previous doctors who did not even

> attempt to diagnose

> >me. That

> >was over a year ago. Then I found a very good one

> who referred me to

> >one

> >specialist, from there I had blood tests, and then

> on to another

> >specialist, who

> >finally came up with a conclusion!!Very

> frustrating. The waiting time

> >inbetween

> >my biopsy to final diagnosis was the longest in my

> life. I knew I had a

> >liver

> >disease, but the end result now has just blown my

> mind. I am very

> >scared and

> >know I have to face whatever lies ahead, but it

> will take awhile for

> >this to

> >sink in. I hope to meet some wonderful new friends

> to help me build up

> >my

> >courage again. Hope to hear from you soon! Happy

> Mother's Day to all..

> >XXPATTIXX</FONT></DIV></BODY></HTML>

> >

> >===

> >Elena Pheasant

> >

> >_________________________________________________________

> >

July 14, 2004

,

I am so sorry if some of the things I have written have freaked you

out. I just thought it would be better for people to get input from

others so they have an idea of what to expect or at least the

ability to compare what they are going through with others. I'm also

sorry to hear about your recent diagnosis. Maybe you will not

require treatment right away. I hope your biopsy goes okay and turns

out for the best for you. Welcome to this group. I don't always

post, but I always read and that helps me too. Best wishes.

> Man I have been reading some scary stuff, maybe i should have

waited

> until my treatment begins. LOL no just kidding but I am searching

for

> some kind of support. I have just been diagnosised with Hep C. I

go

> to the gastroen whatever doctor next he has already ordered a

biopsy.

>

> So I am kinda freaking out. But finding this place helps a lot. I

see

> some people respond and others don't. Well I don't know what geno

> type I have yet but it is chronic.

>

> My name is I am a Veit Nam Era veteran , although I did not

go

> to Nam. Almost, but spent my time in NATO. I play guitar and write

> songs. I love nature, and I am a Pagan in my faith and beliefs.

>

> Hope to make some frineds...............................Kos

July 14, 2004

Kos, this is a great place to come to for support. I joined a little over 2

years ago when I was first diagnosed. There is a whole rainbow of people on

this list. This disease and the treatment for it affects everybody in different

ways.

I was terrified when I first joined this group. The listers explained to me

that Hep C is a slow-moving virus for most people. And I don't know if you've

heard this, but you may not have to take the treatment right now, if ever,

depending on what your biopsy tells you. The wonderful people here explained to

me that treatment was my decision to make, and a lot of them knew a lot more

about Hep C than my doctor was telling me.

Somebody will correct me if I am wrong, but I think all Hepatitis C is chronic.

It's important to know your genotype, so you will have all the information you

need when you decide whether or not to take treatment. I am genotype 1B, not a

type that responds very well to treatment. My viral load is low (350,000), and

my biopsy showed no damage, just slight inflammation. My doctor insisted that I

take treatment, but I decided against it. The people on this list helped

explain to me that there is no urgency to do it at this time if I didn't want

to. I decided the virus hadn't progressed to a point where treatment was

necessary, and I didn't want to put myself at risk for the sometimes permanent

side effects that treatment can cause.

If I was a different genotype than type 1, I would probably chance the treatment

to try to clear the virus. Other genotypes respond better to it, so it's worth

the kind of crap you may go through doing it. Also, if you have liver

involvement, your choices are slimmer.

I'm in my mid-50's, and probably contracted Hep C from a blood transfusion when

I was 10. I've had it for a lot of years now. I have a new hepatologist who

would like me to take treatment, but for now, he's going along with me and

monitoring my blood every six months. I'll have another biopsy done 3-5 years

from the time I had the first one done, and see what it tells me. I plan to

die of old age long before Hepatitis C ever gets me!

Also, in the spirit of a support group, a lot of people who come to the list to

vent about how crappy they feel do it because they know there are others here

who understand. Probably a good deal of us don't have people to go to who are

willing to listen to us gripe, because they don't have a clue what we are

talking about. And it's hard to get sympathy from others when we " look "

healthy. I'm so glad they can come here and know they are among friends who

care.

This is a scary disease, and it is scary to hear what people are going through

to treat it. But every single time I read a post about someone really having a

rough time of it, I marvel at the courage they have to continue on and to be

brave enough to save their own lives.

I wish you the best,

Marilyn

To introduce myself

Man I have been reading some scary stuff, maybe i should have waited

until my treatment begins. LOL no just kidding but I am searching for

some kind of support. I have just been diagnosised with Hep C. I go

to the gastroen whatever doctor next he has already ordered a biopsy.

So I am kinda freaking out. But finding this place helps a lot. I see

some people respond and others don't. Well I don't know what geno

type I have yet but it is chronic.

My name is I am a Veit Nam Era veteran , although I did not go

to Nam. Almost, but spent my time in NATO. I play guitar and write

songs. I love nature, and I am a Pagan in my faith and beliefs.

Hope to make some frineds...............................Kos

July 14, 2004

Welcome, !

Hep C is not nearly as scary as it first appears. The fear is

natural and we all go through it. But you are doing the best:

gaining knowledge. Knowledge gives us power. That is why we come

here and help each other. Let us know what else you find out.

I just finished treatment (TX) in April, and it is working so far.

I too got it during the VietEra, in Germany. You are never alone.

Hugs and prayers, Suzy

> Man I have been reading some scary stuff, maybe i should have

waited

> until my treatment begins. LOL no just kidding but I am searching

for

> some kind of support. I have just been diagnosised with Hep C. I

go

> to the gastroen whatever doctor next he has already ordered a

biopsy.

>

> So I am kinda freaking out. But finding this place helps a lot. I

see

> some people respond and others don't. Well I don't know what geno

> type I have yet but it is chronic.

>

> My name is I am a Veit Nam Era veteran , although I did not

go

> to Nam. Almost, but spent my time in NATO. I play guitar and write

> songs. I love nature, and I am a Pagan in my faith and beliefs.

>

> Hope to make some frineds...............................Kos

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