Re: Boy, am I confused.....and boy can I relate!!!!!

[Guest guest]

Hi Ellana, Gracia and Val,

I tried to make my yearly appointment yesterday with my endo and he is booked

out three months! So I went in this morning to see the nurse practioner. I

told her that I am " just not right " and that I am afraid that because I don't

have a functioning thyroid, I am burning out my adrenal glands. She nodded her

head in agreement and felt that was a valid concern. I told her that I have

only had my period twice since October and while it has always been off, this is

not normal even for me! I told her that I thought I needed additional support

and mentioned Cytomel and she said that she had heard that Cytomel is not

consistent and that one of the patients there tried to take it and they went off

of it. I told her that the medical community has to understand that just

because something didn't work for someone, does not mean it won't work for the

next and that having a thyroid problem means that we have to take a combination

of things sometimes to be able to function. I asked that my

T4 be ran and she looked at my file and said, " well if you had your thyroid shut

down, you don't need that run, your a TSH girl " . Why is it that when a patient

asks for something to be done that is not consistent with what a doctor does,

you feel like you have been backhanded by your mom for being a smartypants?

When I told her that I wanted to have children and was afraid that I couldn't

because of this, she asked if I thought of adoption.......Not really what I was

looking for in a response. And I am not trying to offend anyone, there is

nothing wrong with adoption, but I was wanting her to say was " we'll do what we

can to make it a possibility for you to have children " . I am really frustrated

and feel like no one is listening to us out there that are desperately trying to

make sense out of this mess that we've been dealt.

My husband does not understand that my endo is not treating me correctly. He

believes that if you go to a doctor, they fix you. I am trying to make him

understand that I believe endos have tunnel vision and they do not EVER think

outside of the box. With the exception of a few around the country, we are

stuck with what we get sometimes and maybe we resort to fending for ourselves

and finding out what works for us. You may see him on here because I am going

to make him read these emails so that he gets a much clearer perspective of how

things really are and that I am not just making things up.

Robin

Ellana <eclarke@...> wrote:CORTEF??? I can't find that on that website.

Ellana

[Guest guest]

Just get Armour, don't mess around with mix and match. Just tell NP you

will let her know what dose is good, no more mickey mouse stuff. TSH on

Armour will be very very low, so don't go by that.

Gracia

>

> Hi Ellana, Gracia and Val,

>

> I tried to make my yearly appointment yesterday with my endo and he is

booked out three months! So I went in this morning to see the nurse

practioner. I told her that I am " just not right " and that I am afraid that

because I don't have a functioning thyroid, I am burning out my adrenal

glands.

[Guest guest]

I tried Armour and didn't feel much of a difference, in fact I think it made me

feel more tired. I wish I could find the right answer for me.

Gracia <circe@...> wrote:

Just get Armour, don't mess around with mix and match. Just tell NP you

will let her know what dose is good, no more mickey mouse stuff. TSH on

Armour will be very very low, so don't go by that.

Gracia

>

> Hi Ellana, Gracia and Val,

>

> I tried to make my yearly appointment yesterday with my endo and he is

booked out three months! So I went in this morning to see the nurse

practioner. I told her that I am " just not right " and that I am afraid that

because I don't have a functioning thyroid, I am burning out my adrenal

glands.

[Guest guest]

Dear Robin,

I do hope you slapped that flaming nurse!! How dare she talk to you like

that about a valid concern about your fertility.

Val

Re: Boy, am I confused.....and boy can I

relate!!!!!

>

> Hi Ellana, Gracia and Val,

>

> I tried to make my yearly appointment yesterday with my endo and he is

booked out three months! So I went in this morning to see the nurse

practioner. I told her that I am " just not right " and that I am afraid that

because I don't have a functioning thyroid, I am burning out my adrenal

glands. She nodded her head in agreement and felt that was a valid concern.

I told her that I have only had my period twice since October and while it

has always been off, this is not normal even for me! I told her that I

thought I needed additional support and mentioned Cytomel and she said that

she had heard that Cytomel is not consistent and that one of the patients

there tried to take it and they went off of it. I told her that the medical

community has to understand that just because something didn't work for

someone, does not mean it won't work for the next and that having a thyroid

problem means that we have to take a combination of things sometimes to be

able to function. I asked that my

> T4 be ran and she looked at my file and said, " well if you had your

thyroid shut down, you don't need that run, your a TSH girl " . Why is it

that when a patient asks for something to be done that is not consistent

with what a doctor does, you feel like you have been backhanded by your mom

for being a smartypants? When I told her that I wanted to have children and

was afraid that I couldn't because of this, she asked if I thought of

adoption.......Not really what I was looking for in a response. And I am

not trying to offend anyone, there is nothing wrong with adoption, but I was

wanting her to say was " we'll do what we can to make it a possibility for

you to have children " . I am really frustrated and feel like no one is

listening to us out there that are desperately trying to make sense out of

this mess that we've been dealt.

>

> My husband does not understand that my endo is not treating me correctly.

He believes that if you go to a doctor, they fix you. I am trying to make

him understand that I believe endos have tunnel vision and they do not EVER

think outside of the box. With the exception of a few around the country,

we are stuck with what we get sometimes and maybe we resort to fending for

ourselves and finding out what works for us. You may see him on here

because I am going to make him read these emails so that he gets a much

clearer perspective of how things really are and that I am not just making

things up.

>

> Robin

>

> Ellana <eclarke@...> wrote:CORTEF??? I can't find that on that

website.

>

> Ellana

>

>

[Guest guest]

Yeah......it has all kind of sunk in very slowly that what she said was not

appropriate. I know that she was having a " conversation " with me, but I do

think that people in her position need to be extra careful about what they are

saying. My husband is VERY upset that she said that to me. I think that having

this condition makes you kind of dull to some of the harshness of the world.

I'm upset, but maybe not as upset as I would be if I didn't feel so blah about

everything.

<veetee@...> wrote:Dear Robin,

I do hope you slapped that flaming nurse!! How dare she talk to you like

that about a valid concern about your fertility.

Val

Re: Boy, am I confused.....and boy can I

relate!!!!!

>

> Hi Ellana, Gracia and Val,

>

> I tried to make my yearly appointment yesterday with my endo and he is

booked out three months! So I went in this morning to see the nurse

practioner. I told her that I am " just not right " and that I am afraid that

because I don't have a functioning thyroid, I am burning out my adrenal

glands. She nodded her head in agreement and felt that was a valid concern.

I told her that I have only had my period twice since October and while it

has always been off, this is not normal even for me! I told her that I

thought I needed additional support and mentioned Cytomel and she said that

she had heard that Cytomel is not consistent and that one of the patients

there tried to take it and they went off of it. I told her that the medical

community has to understand that just because something didn't work for

someone, does not mean it won't work for the next and that having a thyroid

problem means that we have to take a combination of things sometimes to be

able to function. I asked that my

> T4 be ran and she looked at my file and said, " well if you had your

thyroid shut down, you don't need that run, your a TSH girl " . Why is it

that when a patient asks for something to be done that is not consistent

with what a doctor does, you feel like you have been backhanded by your mom

for being a smartypants? When I told her that I wanted to have children and

was afraid that I couldn't because of this, she asked if I thought of

adoption.......Not really what I was looking for in a response. And I am

not trying to offend anyone, there is nothing wrong with adoption, but I was

wanting her to say was " we'll do what we can to make it a possibility for

you to have children " . I am really frustrated and feel like no one is

listening to us out there that are desperately trying to make sense out of

this mess that we've been dealt.

>

> My husband does not understand that my endo is not treating me correctly.

He believes that if you go to a doctor, they fix you. I am trying to make

him understand that I believe endos have tunnel vision and they do not EVER

think outside of the box. With the exception of a few around the country,

we are stuck with what we get sometimes and maybe we resort to fending for

ourselves and finding out what works for us. You may see him on here

because I am going to make him read these emails so that he gets a much

clearer perspective of how things really are and that I am not just making

things up.

>

> Robin

>

> Ellana <eclarke@...> wrote:CORTEF??? I can't find that on that

website.

>

> Ellana

>

>

[Guest guest]

True, being hypo does make you feel blah. We hypo's dont need to go on

expensive courses that teach us not to sweat the 'small' stuff, we often

don't sweat the small stuff because we have not got the energy to! Maybe

your husband could go along when you see your doc, so he can get a better

understanding of your condition? You are after all in this together if you

plan to have children. Another good reason to have him along is when you get

the brain fog, good to have a second pair of ears and a fully working mouth

to ask questions!

Good Health.

Val

Re: Boy, am I confused.....and boy can I

> relate!!!!!

>

>

> >

> > Hi Ellana, Gracia and Val,

> >

> > I tried to make my yearly appointment yesterday with my endo and he is

> booked out three months! So I went in this morning to see the nurse

> practioner. I told her that I am " just not right " and that I am afraid

that

> because I don't have a functioning thyroid, I am burning out my adrenal

> glands. She nodded her head in agreement and felt that was a valid

concern.

> I told her that I have only had my period twice since October and while it

> has always been off, this is not normal even for me! I told her that I

> thought I needed additional support and mentioned Cytomel and she said

that

> she had heard that Cytomel is not consistent and that one of the patients

> there tried to take it and they went off of it. I told her that the

medical

> community has to understand that just because something didn't work for

> someone, does not mean it won't work for the next and that having a

thyroid

> problem means that we have to take a combination of things sometimes to be

> able to function. I asked that my

> > T4 be ran and she looked at my file and said, " well if you had your

> thyroid shut down, you don't need that run, your a TSH girl " . Why is it

> that when a patient asks for something to be done that is not consistent

> with what a doctor does, you feel like you have been backhanded by your

mom

> for being a smartypants? When I told her that I wanted to have children

and

> was afraid that I couldn't because of this, she asked if I thought of

> adoption.......Not really what I was looking for in a response. And I am

> not trying to offend anyone, there is nothing wrong with adoption, but I

was

> wanting her to say was " we'll do what we can to make it a possibility for

> you to have children " . I am really frustrated and feel like no one is

> listening to us out there that are desperately trying to make sense out of

> this mess that we've been dealt.

> >

> > My husband does not understand that my endo is not treating me

correctly.

> He believes that if you go to a doctor, they fix you. I am trying to make

> him understand that I believe endos have tunnel vision and they do not

EVER

> think outside of the box. With the exception of a few around the country,

> we are stuck with what we get sometimes and maybe we resort to fending for

> ourselves and finding out what works for us. You may see him on here

> because I am going to make him read these emails so that he gets a much

> clearer perspective of how things really are and that I am not just making

> things up.

> >

> > Robin

> >

> > Ellana <eclarke@...> wrote:CORTEF??? I can't find that on that

> website.

> >

> > Ellana

> >

> >

[Guest guest]

Robin,

Not all people can take Armour, so I have gathered from this site. Some do

well on a combination of synthetics of T4 and T3. I am on the latter.

incidentally, I have just been told by an ENT doc that my dose of 200mgs of

T4 is too high!? I feel relatively fine on this dose I am also on 20mgs of

T3

Val

Re: Boy, am I confused.....and boy can I

relate!!!!!

>

> I tried Armour and didn't feel much of a difference, in fact I think it

made me feel more tired. I wish I could find the right answer for me.

>

> Gracia <circe@...> wrote:

> Just get Armour, don't mess around with mix and match. Just tell NP you

> will let her know what dose is good, no more mickey mouse stuff. TSH on

> Armour will be very very low, so don't go by that.

> Gracia

> >

> > Hi Ellana, Gracia and Val,

> >

> > I tried to make my yearly appointment yesterday with my endo and he is

> booked out three months! So I went in this morning to see the nurse

> practioner. I told her that I am " just not right " and that I am afraid

that

> because I don't have a functioning thyroid, I am burning out my adrenal

> glands.

>

>

>

>

>

[Guest guest]

Hi Val,

same with me - my doc reluctantly lets me stay on 200mcg t4 but wants me

to decrease - each time I try I feel more tired so up it goes aain. I

don't feel great on it bit better than off it. I take 40 mcg of T3 time

release as well.

Kerry

Re: Boy, am I confused.....and boy can I

relate!!!!!

Robin,

Not all people can take Armour, so I have gathered from this site. Some

do

well on a combination of synthetics of T4 and T3. I am on the latter.

incidentally, I have just been told by an ENT doc that my dose of 200mgs

of

T4 is too high!? I feel relatively fine on this dose I am also on 20mgs

of

T3

Val

Re: Boy, am I confused.....and boy can I

relate!!!!!

>

> I tried Armour and didn't feel much of a difference, in fact I think

it

made me feel more tired. I wish I could find the right answer for me.

>

> Gracia <circe@...> wrote:

> Just get Armour, don't mess around with mix and match. Just tell NP

you

> will let her know what dose is good, no more mickey mouse stuff. TSH

on

> Armour will be very very low, so don't go by that.

> Gracia

> >

> > Hi Ellana, Gracia and Val,

> >

> > I tried to make my yearly appointment yesterday with my endo and he

is

> booked out three months! So I went in this morning to see the nurse

> practioner. I told her that I am " just not right " and that I am

afraid

that

> because I don't have a functioning thyroid, I am burning out my

adrenal

> glands.

>

>

>

>

>

[Guest guest]

Hi Kerry,

Unless the docs can give me empirical evidence such a dose is doing me harm,

then I will do my own research to find out if I should go with my own

instincts and knowledge, and stick it.

As I said I feel relatively okay, but like you not totally 100%. I can still

tire very easily with very little effort, and find myself in that 'twilight

zone' asleep in a chair for hours at a time. At the moment, I am trying to

break financial ties with a vengeful ex-husband, and sell the former marital

home.

I just moved a few boxes yesterday and found myself in the evening almost

prostrate with lower back pain, and more sleeping for hours and hours once I

stopped working. Also, I notice that if I stick at a physical activity for a

couple of hours or so, I begin to feel dizzy and light-headed. Do you ever

get like that?

Val

Re: Boy, am I confused.....and boy can I

> relate!!!!!

>

>

> >

> > I tried Armour and didn't feel much of a difference, in fact I think

> it

> made me feel more tired. I wish I could find the right answer for me.

> >

> > Gracia <circe@...> wrote:

> > Just get Armour, don't mess around with mix and match. Just tell NP

> you

> > will let her know what dose is good, no more mickey mouse stuff. TSH

> on

> > Armour will be very very low, so don't go by that.

> > Gracia

> > >

> > > Hi Ellana, Gracia and Val,

> > >

> > > I tried to make my yearly appointment yesterday with my endo and he

> is

> > booked out three months! So I went in this morning to see the nurse

> > practioner. I told her that I am " just not right " and that I am

> afraid

> that

> > because I don't have a functioning thyroid, I am burning out my

> adrenal

> > glands.

> >

> >

> >

> >

> >

[Guest guest]

yes Val that is about the same for me too with exertion - it has seemed

to get worse over the last year in spite of all the hormones I am taking

- puzzling really! It must be adrenal I figure but I am afraid to start

cortef again mainly because of the opinions expressed on a few of these

forums - and into the bargain I honestly could not say I felt any better

in the nine months I was on Cortef - yet I still feel my adrenals are in

need of help...........anywway I am just continuing on my healing regime

- hormones, IV vitamins loads of supplements. mercury detox and R & R

and hopefully it will come good in the end.

Kerry

Re: Boy, am I confused.....and boy can I

relate!!!!!

Hi Kerry,

Unless the docs can give me empirical evidence such a dose is doing me

harm,

then I will do my own research to find out if I should go with my own

instincts and knowledge, and stick it.

As I said I feel relatively okay, but like you not totally 100%. I can

still

tire very easily with very little effort, and find myself in that

'twilight

zone' asleep in a chair for hours at a time. At the moment, I am trying

to

break financial ties with a vengeful ex-husband, and sell the former

marital

home.

I just moved a few boxes yesterday and found myself in the evening

almost

prostrate with lower back pain, and more sleeping for hours and hours

once I

stopped working. Also, I notice that if I stick at a physical activity

for a

couple of hours or so, I begin to feel dizzy and light-headed. Do you

ever

get like that?

Val

Re: Boy, am I confused.....and boy can I

> relate!!!!!

>

>

> >

> > I tried Armour and didn't feel much of a difference, in fact I think

> it

> made me feel more tired. I wish I could find the right answer for me.

> >

> > Gracia <circe@...> wrote:

> > Just get Armour, don't mess around with mix and match. Just tell NP

> you

> > will let her know what dose is good, no more mickey mouse stuff.

TSH

> on

> > Armour will be very very low, so don't go by that.

> > Gracia

> > >

> > > Hi Ellana, Gracia and Val,

> > >

> > > I tried to make my yearly appointment yesterday with my endo and

he

> is

> > booked out three months! So I went in this morning to see the nurse

> > practioner. I told her that I am " just not right " and that I am

> afraid

> that

> > because I don't have a functioning thyroid, I am burning out my

> adrenal

> > glands.

> >

> >

> >

> >

> >

[Guest guest]

you have to get the right dose, or else you have to treat adrenals first.

GRacia

>

> I tried Armour and didn't feel much of a difference, in fact I think it

made me feel more tired. I wish I could find the right answer for me.

>

> >

> > To subscribe: hypothyroidism-subscribe

>

> Have a nice day !

>

>

>

[Guest guest]

Since I am already on 150 mg of Synthroid should I call my doctor and ask him to

prescribe hydrocortisone? do you need to get it from a doc or is at the

pharmacy?

Gracia <circe@...> wrote:

you have to get the right dose, or else you have to treat adrenals first.

GRacia

>

> I tried Armour and didn't feel much of a difference, in fact I think it

made me feel more tired. I wish I could find the right answer for me.

>

> >

> > To subscribe: hypothyroidism-subscribe

>

> Have a nice day !

>

>

>

[Guest guest]

Val and Kerry,

I wish that I was going to a doc. that understood the importance of finding a

balance for EACH patient and not assuming that everone is doing the same thing

with the same medication.

It's funny, when I lift heavy things now, I get a shooting pain in my back that

will last for a few days, I have only gotten this in the last two years. I get

very tired if I do too muchand it is not a tired that I have ever felt before

becoming Hypo. I think if I am feeling really good, I go with it and do lots of

things and then find that I can't move because of the exhaustion. You mentioned

" Twilight Zone " , how appropriate...I often wonder where the time goes???? Does

it seem like it flies for anyone else? I can sit in a meeting and completely

space out. The dizzyness and lightheadedness have always been a problem for me.

You mentioned that you are going to an ENT? Ear Nose and Throat??

<veetee@...> wrote:

Hi Kerry,

Unless the docs can give me empirical evidence such a dose is doing me harm,

then I will do my own research to find out if I should go with my own

instincts and knowledge, and stick it.

As I said I feel relatively okay, but like you not totally 100%. I can still

tire very easily with very little effort, and find myself in that 'twilight

zone' asleep in a chair for hours at a time. At the moment, I am trying to

break financial ties with a vengeful ex-husband, and sell the former marital

home.

I just moved a few boxes yesterday and found myself in the evening almost

prostrate with lower back pain, and more sleeping for hours and hours once I

stopped working. Also, I notice that if I stick at a physical activity for a

couple of hours or so, I begin to feel dizzy and light-headed. Do you ever

get like that?

Val

Re: Boy, am I confused.....and boy can I

> relate!!!!!

>

>

> >

> > I tried Armour and didn't feel much of a difference, in fact I think

> it

> made me feel more tired. I wish I could find the right answer for me.

> >

> > Gracia <circe@...> wrote:

> > Just get Armour, don't mess around with mix and match. Just tell NP

> you

> > will let her know what dose is good, no more mickey mouse stuff. TSH

> on

> > Armour will be very very low, so don't go by that.

> > Gracia

> > >

> > > Hi Ellana, Gracia and Val,

> > >

> > > I tried to make my yearly appointment yesterday with my endo and he

> is

> > booked out three months! So I went in this morning to see the nurse

> > practioner. I told her that I am " just not right " and that I am

> afraid

> that

> > because I don't have a functioning thyroid, I am burning out my

> adrenal

> > glands.

> >

> >

> >

> >

> >

[Guest guest]

Hi Robin,

Val here. Yes, twilight zone was the best description I could come up with.

It sums up that feeling that unlike everyone else who watched a bit of T.V.

in the evening. or visited a friend, I was sleeping my life away. if I did

watch any T.V. don't ask me what I saw because overnight I would instantly

forget. No matter how hard I tried to remember it just would not come back

to me. I find this a very frustrating aspect of being hypo because I have

always had a good memory. Daily, I try to do crosswords in books or

newspapers to keep my mind active.

Another thing I notice is when I lay down and raise my arms above my head,

like when you rest your head on your hands, the agony! Immediately my

muscles go into some sort of spasm and it is painful to move my hands from

behind my head. I get the same thing with my hips. If fall asleep in an

awkward position it will wake me up, and the pain will be excrutiating to

put my leg back flat on my bed.

Some things I guess will always be with us whatever our level of treatment.

Val

Re: Boy, am I confused.....and boy can I

> > relate!!!!!

> >

> >

> > >

> > > I tried Armour and didn't feel much of a difference, in fact I think

> > it

> > made me feel more tired. I wish I could find the right answer for me.

> > >

> > > Gracia <circe@...> wrote:

> > > Just get Armour, don't mess around with mix and match. Just tell NP

> > you

> > > will let her know what dose is good, no more mickey mouse stuff. TSH

> > on

> > > Armour will be very very low, so don't go by that.

> > > Gracia

> > > >

> > > > Hi Ellana, Gracia and Val,

> > > >

> > > > I tried to make my yearly appointment yesterday with my endo and he

> > is

> > > booked out three months! So I went in this morning to see the nurse

> > > practioner. I told her that I am " just not right " and that I am

> > afraid

> > that

> > > because I don't have a functioning thyroid, I am burning out my

> > adrenal

> > > glands.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

you are probably undertreated and need T3 and/or adrenal support.

Gracia

>

> Hi Everyone!

>

> I can so agree with the comments made. I moved home 6

> weeks ago and we have since redecorated the whole

> place! and I am dead on my feet!

>

> I take 100mcg Thyroxine, but feel back at square one-

>

[Guest guest]

Hi Val,

I don't have the pain that you are talking about, but I have one in my hip, that

if I walk on it wrong...it really hurts. It feels like my ball and socket are

rubbing together, but then it goes away????

I don't know how to make my friends, family understand that I forget things and

it isn't because I am being insensitive, I just forget!!! And they can have big

things going on their lives, but I forget and then a month later realize that I

haven't said Thank You, or Congratulations! It's just not right for me to be

like that and I can't help it. I try to lay down and take naps, but then I feel

like I am wasting a good day and can't fall asleep. My husband makes fun of me,

I can say that I am going to go take a nap and he just laughs.

Hopefully I can get back on track and not have to feel like I am missing out on

my life.

<veetee@...> wrote:

Hi Robin,

Val here. Yes, twilight zone was the best description I could come up with.

It sums up that feeling that unlike everyone else who watched a bit of T.V.

in the evening. or visited a friend, I was sleeping my life away. if I did

watch any T.V. don't ask me what I saw because overnight I would instantly

forget. No matter how hard I tried to remember it just would not come back

to me. I find this a very frustrating aspect of being hypo because I have

always had a good memory. Daily, I try to do crosswords in books or

newspapers to keep my mind active.

Another thing I notice is when I lay down and raise my arms above my head,

like when you rest your head on your hands, the agony! Immediately my

muscles go into some sort of spasm and it is painful to move my hands from

behind my head. I get the same thing with my hips. If fall asleep in an

awkward position it will wake me up, and the pain will be excrutiating to

put my leg back flat on my bed.

Some things I guess will always be with us whatever our level of treatment.

Val

Re: Boy, am I confused.....and boy can I

> > relate!!!!!

> >

> >

> > >

> > > I tried Armour and didn't feel much of a difference, in fact I think

> > it

> > made me feel more tired. I wish I could find the right answer for me.

> > >

> > > Gracia <circe@...> wrote:

> > > Just get Armour, don't mess around with mix and match. Just tell NP

> > you

> > > will let her know what dose is good, no more mickey mouse stuff. TSH

> > on

> > > Armour will be very very low, so don't go by that.

> > > Gracia

> > > >

> > > > Hi Ellana, Gracia and Val,

> > > >

> > > > I tried to make my yearly appointment yesterday with my endo and he

> > is

> > > booked out three months! So I went in this morning to see the nurse

> > > practioner. I told her that I am " just not right " and that I am

> > afraid

> > that

> > > because I don't have a functioning thyroid, I am burning out my

> > adrenal

> > > glands.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

My sister in law who is not hypo says 'keep a diary Val so you does not

forget things'. Sounds great if you are just 'normal' forgetful. Being hypo

we would have to remember to write in it, and then remember to read what it

is we are not supposed to forget - way too much brain power expended!!!!

You 'ask permission' for a nap?! (Only joking!) I am often spark out,

sleeping at every family function these days, and find the usual small talk

irritating, whereas before I would join in. I can't keep my eyes open some

times. Please don't be offended but besides your husband having a laugh at

you when you say you are going to take a nap, I hope he is supportive as

well. I am divorced and live at home with my youngest children aged 13 and

12. They did not really have me as their mother before I got treated. For

almost three years I supervised them exhausted from an arm chair and would

fall asleep mid sentence talking to them. They have been my rock.

Val

Re: Boy, am I confused.....and boy can I

> > > relate!!!!!

> > >

> > >

> > > >

> > > > I tried Armour and didn't feel much of a difference, in fact I think

> > > it

> > > made me feel more tired. I wish I could find the right answer for me.

> > > >

> > > > Gracia <circe@...> wrote:

> > > > Just get Armour, don't mess around with mix and match. Just tell NP

> > > you

> > > > will let her know what dose is good, no more mickey mouse stuff.

TSH

> > > on

> > > > Armour will be very very low, so don't go by that.

> > > > Gracia

> > > > >

> > > > > Hi Ellana, Gracia and Val,

> > > > >

> > > > > I tried to make my yearly appointment yesterday with my endo and

he

> > > is

> > > > booked out three months! So I went in this morning to see the nurse

> > > > practioner. I told her that I am " just not right " and that I am

> > > afraid

> > > that

> > > > because I don't have a functioning thyroid, I am burning out my

> > > adrenal

> > > > glands.

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Val,

You make me laugh! I can completely relate to having to " remember to write in

it then remember to read it " !!

I didn't mean to make it look like my husband is making fun of me....I do enough

of that myself. He is now finding out that I am not being overly sensitive to

the condition and has come to be just as frustrated with my endo as I have. He

wants me to get some good sleep, but for some reason....I just can't. I will

say that I am going to sleep in and we'll both chuckle, because I am up at the

crack of dawn watching FoodTV, sending him to the store and making really

unhealthy things! My mother is Hypo as well, but I think for her, she doesn't

really let it bother her that she might not be treated correctly, only because I

think she is chalking her symptoms up to her age.

I got my results yesterday...

..5 was what I came back as and the range he is giving me is .4 to 5.5

He said that I am too high and is decreasing my Synthroid to 1.88 mcgs. My

husband is really upset that they did not test the T4 like I had asked them to.

<veetee@...> wrote:

My sister in law who is not hypo says 'keep a diary Val so you does not

forget things'. Sounds great if you are just 'normal' forgetful. Being hypo

we would have to remember to write in it, and then remember to read what it

is we are not supposed to forget - way too much brain power expended!!!!

You 'ask permission' for a nap?! (Only joking!) I am often spark out,

sleeping at every family function these days, and find the usual small talk

irritating, whereas before I would join in. I can't keep my eyes open some

times. Please don't be offended but besides your husband having a laugh at

you when you say you are going to take a nap, I hope he is supportive as

well. I am divorced and live at home with my youngest children aged 13 and

12. They did not really have me as their mother before I got treated. For

almost three years I supervised them exhausted from an arm chair and would

fall asleep mid sentence talking to them. They have been my rock.

Val

Re: Boy, am I confused.....and boy can I

> > > relate!!!!!

> > >

> > >

> > > >

> > > > I tried Armour and didn't feel much of a difference, in fact I think

> > > it

> > > made me feel more tired. I wish I could find the right answer for me.

> > > >

> > > > Gracia <circe@...> wrote:

> > > > Just get Armour, don't mess around with mix and match. Just tell NP

> > > you

> > > > will let her know what dose is good, no more mickey mouse stuff.

TSH

> > > on

> > > > Armour will be very very low, so don't go by that.

> > > > Gracia

> > > > >

> > > > > Hi Ellana, Gracia and Val,

> > > > >

> > > > > I tried to make my yearly appointment yesterday with my endo and

he

> > > is

> > > > booked out three months! So I went in this morning to see the nurse

> > > > practioner. I told her that I am " just not right " and that I am

> > > afraid

> > > that

> > > > because I don't have a functioning thyroid, I am burning out my

> > > adrenal

> > > > glands.

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I meant to say that they did not test my T3 levels.

robin johnston <ralligoo@...> wrote:Val,

You make me laugh! I can completely relate to having to " remember to write in

it then remember to read it " !!

I didn't mean to make it look like my husband is making fun of me....I do enough

of that myself. He is now finding out that I am not being overly sensitive to

the condition and has come to be just as frustrated with my endo as I have. He

wants me to get some good sleep, but for some reason....I just can't. I will

say that I am going to sleep in and we'll both chuckle, because I am up at the

crack of dawn watching FoodTV, sending him to the store and making really

unhealthy things! My mother is Hypo as well, but I think for her, she doesn't

really let it bother her that she might not be treated correctly, only because I

think she is chalking her symptoms up to her age.

I got my results yesterday...

..5 was what I came back as and the range he is giving me is .4 to 5.5

He said that I am too high and is decreasing my Synthroid to 1.88 mcgs. My

husband is really upset that they did not test the T4 like I had asked them to.

<veetee@...> wrote:

My sister in law who is not hypo says 'keep a diary Val so you does not

forget things'. Sounds great if you are just 'normal' forgetful. Being hypo

we would have to remember to write in it, and then remember to read what it

is we are not supposed to forget - way too much brain power expended!!!!

You 'ask permission' for a nap?! (Only joking!) I am often spark out,

sleeping at every family function these days, and find the usual small talk

irritating, whereas before I would join in. I can't keep my eyes open some

times. Please don't be offended but besides your husband having a laugh at

you when you say you are going to take a nap, I hope he is supportive as

well. I am divorced and live at home with my youngest children aged 13 and

12. They did not really have me as their mother before I got treated. For

almost three years I supervised them exhausted from an arm chair and would

fall asleep mid sentence talking to them. They have been my rock.

Val

Re: Boy, am I confused.....and boy can I

> > > relate!!!!!

> > >

> > >

> > > >

> > > > I tried Armour and didn't feel much of a difference, in fact I think

> > > it

> > > made me feel more tired. I wish I could find the right answer for me.

> > > >

> > > > Gracia <circe@...> wrote:

> > > > Just get Armour, don't mess around with mix and match. Just tell NP

> > > you

> > > > will let her know what dose is good, no more mickey mouse stuff.

TSH

> > > on

> > > > Armour will be very very low, so don't go by that.

> > > > Gracia

> > > > >

> > > > > Hi Ellana, Gracia and Val,

> > > > >

> > > > > I tried to make my yearly appointment yesterday with my endo and

he

> > > is

> > > > booked out three months! So I went in this morning to see the nurse

> > > > practioner. I told her that I am " just not right " and that I am

> > > afraid

> > > that

> > > > because I don't have a functioning thyroid, I am burning out my

> > > adrenal

> > > > glands.

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Robin,

Glad you were not offended! A sense of humour has kept me sane I can tell

you. As for the T.V. watching I could describe every episode of some long

forgotten soap or drama that runs at 4.00a.m. Taking a trip back to

nostalgia all by myself. Funny thing is no one else that's 'normal' will

have watched them, because they would actually have made it into their own

beds! Funny, I still fancy Roy Thinnes in The Invaders, he still looks drop

dead gorgeous to me 30 odd years later! He's even better in colour!

Val

Re: Boy, am I confused.....and boy can I

> > > > relate!!!!!

> > > >

> > > >

> > > > >

> > > > > I tried Armour and didn't feel much of a difference, in fact I

think

> > > > it

> > > > made me feel more tired. I wish I could find the right answer for

me.

> > > > >

> > > > > Gracia <circe@...> wrote:

> > > > > Just get Armour, don't mess around with mix and match. Just tell

NP

> > > > you

> > > > > will let her know what dose is good, no more mickey mouse stuff.

> TSH

> > > > on

> > > > > Armour will be very very low, so don't go by that.

> > > > > Gracia

> > > > > >

> > > > > > Hi Ellana, Gracia and Val,

> > > > > >

> > > > > > I tried to make my yearly appointment yesterday with my endo and

> he

> > > > is

> > > > > booked out three months! So I went in this morning to see the

nurse

> > > > > practioner. I told her that I am " just not right " and that I am

> > > > afraid

> > > > that

> > > > > because I don't have a functioning thyroid, I am burning out my

> > > > adrenal

> > > > > glands.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

hi Robin

for sleep there are afew things that work for me - valerian is one,

passifloria another but by far the best is melatonin. I began taking one

tablet 3mg per night - it sends me into a deep sleep and I simply can't

wake up to early - now I only need a quarter of a tab to achieve the

same effect. I'm just like you normally " tired and wired " - but this has

been a lifesaver - if you don't get rest your adrenals just will not

heal!

Kerry

Re: Boy, am I confused.....and boy can I

relate!!!!!

Val,

You make me laugh! I can completely relate to having to " remember to

write in it then remember to read it " !!

I didn't mean to make it look like my husband is making fun of me....I

do enough of that myself. He is now finding out that I am not being

overly sensitive to the condition and has come to be just as frustrated

with my endo as I have. He wants me to get some good sleep, but for

some reason....I just can't. I will say that I am going to sleep in and

we'll both chuckle, because I am up at the crack of dawn watching

FoodTV, sending him to the store and making really unhealthy things!

My mother is Hypo as well, but I think for her, she doesn't really let

it bother her that she might not be treated correctly, only because I

think she is chalking her symptoms up to her age.

I got my results yesterday...

..5 was what I came back as and the range he is giving me is .4 to 5.5

He said that I am too high and is decreasing my Synthroid to 1.88 mcgs.

My husband is really upset that they did not test the T4 like I had

asked them to.

<veetee@...> wrote:

My sister in law who is not hypo says 'keep a diary Val so you does not

forget things'. Sounds great if you are just 'normal' forgetful. Being

hypo

we would have to remember to write in it, and then remember to read what

it

is we are not supposed to forget - way too much brain power expended!!!!

You 'ask permission' for a nap?! (Only joking!) I am often spark out,

sleeping at every family function these days, and find the usual small

talk

irritating, whereas before I would join in. I can't keep my eyes open

some

times. Please don't be offended but besides your husband having a laugh

at

you when you say you are going to take a nap, I hope he is supportive as

well. I am divorced and live at home with my youngest children aged 13

and

12. They did not really have me as their mother before I got treated.

For

almost three years I supervised them exhausted from an arm chair and

would

fall asleep mid sentence talking to them. They have been my rock.

Val

Re: Boy, am I confused.....and boy can I

> > > relate!!!!!

> > >

> > >

> > > >

> > > > I tried Armour and didn't feel much of a difference, in fact I

think

> > > it

> > > made me feel more tired. I wish I could find the right answer for

me.

> > > >

> > > > Gracia <circe@...> wrote:

> > > > Just get Armour, don't mess around with mix and match. Just

tell NP

> > > you

> > > > will let her know what dose is good, no more mickey mouse stuff.

TSH

> > > on

> > > > Armour will be very very low, so don't go by that.

> > > > Gracia

> > > > >

> > > > > Hi Ellana, Gracia and Val,

> > > > >

> > > > > I tried to make my yearly appointment yesterday with my endo

and

he

> > > is

> > > > booked out three months! So I went in this morning to see the

nurse

> > > > practioner. I told her that I am " just not right " and that I am

> > > afraid

> > > that

> > > > because I don't have a functioning thyroid, I am burning out my

> > > adrenal

> > > > glands.

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Back in the years when I was told I had " Fibromyalgia " and " Chronic

Fatigue " I also tried various things, including Melatonin, which only

helped me for a few months (maybe three), then I had to go off it for

a month before it would work for me again. I was sent by my doctor to

a " Fibromyalgia clinic " at the hospital a few years ago, and we had a

pharmacist for one of our sessions. He asked each of us what we took

for sleep, I told him about my experience with Melatonin. He just

nodded and said that's what he would have expected. I didn't ask why,

as I don't have the brain for sciences.:-) But for the past five

years I have been taking a seasickness pill every night at bedtime

(50 mg Dimenhydrinate) and that has worked for me very consistently.

I was told by a nurse, that that is what nurses on shiftwork take, in

order to get their sleep. Anyway, that's what has worked best for me.

I also find it's really important for me to go to bed at the same

time every night, and get up the same time every morning.

Unfortunately, if I don't get 10 hours' sleep, I will fall asleep

during the day, just by sitting down. I'm hoping at some point that I

won't have to sleep so much!

Gail

> hi Robin

> for sleep there are afew things that work for me - valerian is one,

> passifloria another but by far the best is melatonin. I began

taking one

> tablet 3mg per night - it sends me into a deep sleep and I simply

can't

> wake up to early - now I only need a quarter of a tab to achieve the

> same effect. I'm just like you normally " tired and wired " - but

this has

> been a lifesaver - if you don't get rest your adrenals just will not

> heal!

> Kerry

>

> Re: Boy, am I confused.....and boy can I

> relate!!!!!

>

>

> Val,

>

> You make me laugh! I can completely relate to having to " remember

to

> write in it then remember to read it " !!

>

> I didn't mean to make it look like my husband is making fun of

me....I

> do enough of that myself. He is now finding out that I am not being

> overly sensitive to the condition and has come to be just as

frustrated

> with my endo as I have. He wants me to get some good sleep, but for

> some reason....I just can't. I will say that I am going to sleep

in and

> we'll

[Guest guest]

Hi Gail,

I guess I've been lucky with the melatonin - i've been taking it for

about 6 months on and off and it still works well - but then I've also

made a lot of other changes which are supporting me getting rest instead

of always depleting my precious energy reserves - I still waste my

energy but I've learned a lot and don't do it nearly as unconsciously

and stupidly as I did before.

It is such a mystery how we all have the same condition but so many

things only work for some and not others.......I am always open to

trying anything that seems promising but most things I take like this

don't deliver in the glowing way the person who recomends it

promised........it makes me feel that there is an invisible factor in

getting well that is even hidden to the person themself so that they

think it is this or that hormone or pill when in reality it is something

less tangible.....oh well just raving - I'm glad you get some sleep no

matter the method.

Kerry

Re: Boy, am I confused.....and boy can I

> relate!!!!!

>

>

> Val,

>

> You make me laugh! I can completely relate to having to " remember

to

> write in it then remember to read it " !!

>

> I didn't mean to make it look like my husband is making fun of

me....I

> do enough of that myself. He is now finding out that I am not being

> overly sensitive to the condition and has come to be just as

frustrated

> with my endo as I have. He wants me to get some good sleep, but for

> some reason....I just can't. I will say that I am going to sleep

in and

> we'll

[Guest guest]

Kerry,

I myself have trouble coming to grips with all the different ways

people on the lists present with hypoT. When I decided ten months ago

that I have it, I really was optimistic that it would just be a

matter of a couple of months or so taking T4, and I would be pretty

much all better again. Boy oh boy, was I ever mistaken! :-) I read

all the things people have tried, and that have worked, or not

worked, for them, and it certainly is interesting (Ok, I find it

depressing, because there are no simple answers) because I know now

that it's going to be a very long time before I get even semi-better

again. I'm still, after all these months, at the point of just

wishing I could walk without pain, or bend over without putting my

sacro-iliac out. I know when the relatively good couple of hours are,

around noon, and today I used them to do laundry (my husband brings

the hamper downstairs for me, as I can't do that). I was thinking

last spring, that I would be running my dogs around a dogshow ring

again by autumn, and cross-country skiing by this past winter. Now

I'm starting to wonder if any of that will happen, ever. I haven't

given up at all, I still have hope. But not as much anymore.

Gail

- In hypothyroidism , " Kerry Ann Faithfull "

<kerry@o...> wrote:

> Hi Gail,

> I guess I've been lucky with the melatonin - i've been taking it for

> about 6 months on and off and it still works well - but then I've

also

> made a lot of other changes which are supporting me getting rest

instead

> of always depleting my precious energy reserves - I still waste my

> energy but I've learned a lot and don't do it nearly as

unconsciously

> and stupidly as I did before.

> It is such a mystery how we all have the same condition but so many

> things only work for some and not others.......I am always open to

> trying anything that seems promising but most things I take like

this

> don't deliver in the glowing way the person who recomends it

> promised........it makes me feel that there is an invisible factor

in

> getting well that is even hidden to the person themself so that they

> think it is this or that hormone or pill when in reality it is

something

> less tangible.....oh well just raving - I'm glad you get some sleep

no

> matter the method.

> Kerry

>

>

[Guest guest]

I don't think it is so hard to get well, although it is not just about

thyroid hormone! I really need my adrenal hormones in the right amounts.

Gail get the Hormone Solution book, it is helpful. For sure estrogen,

progesterone, testosterone, cortisol and DHEA are woooooooonderful.

Gracia

>

>

> Kerry,

> I myself have trouble coming to grips with all the different ways

> people on the lists present with hypoT. When I decided ten months ago

> that I have it, I really was optimistic that it would just be a

> matter of a couple of months or so taking T4, and I would be pretty

> much all better again. Boy oh boy, was I ever mistaken! :-) I read

> all the things people have tried, and that have worked, or not

> worked, for them, and it certainly is interesting (Ok, I find it

> depressing, because there are no simple answers) because I know now

> that it's going to be a very long time before I get even semi-better

> again. I'm still, after all these months, at the point of just

> wishing I could walk without pain, or bend over without putting my

> sacro-iliac out. I know when the relatively good couple of hours are,

> around noon, and today I used them to do laundry (my husband brings

> the hamper downstairs for me, as I can't do that). I was thinking

> last spring, that I would be running my dogs around a dogshow ring

> again by autumn, and cross-country skiing by this past winter. Now

> I'm starting to wonder if any of that will happen, ever. I haven't

> given up at all, I still have hope. But not as much anymore.

> Gail

>

>

> - In hypothyroidism , " Kerry Ann Faithfull "

> <kerry@o...> wrote:

> > Hi Gail,

> > I guess I've been lucky with the melatonin - i've been taking it for

> > about 6 months on and off and it still works well - but then I've

> also

> > made a lot of other changes which are supporting me getting rest

> instead

> > of always depleting my precious energy reserves - I still waste my

> > energy but I've learned a lot and don't do it nearly as

> unconsciously

> > and stupidly as I did before.

> > It is such a mystery how we all have the same condition but so many

> > things only work for some and not others.......I am always open to

> > trying anything that seems promising but most things I take like

> this

> > don't deliver in the glowing way the person who recomends it

> > promised........it makes me feel that there is an invisible factor

> in

> > getting well that is even hidden to the person themself so that they

> > think it is this or that hormone or pill when in reality it is

> something

> > less tangible.....oh well just raving - I'm glad you get some sleep

> no

> > matter the method.

> > Kerry

> >

> >

>

>

>

>

>

>

>