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Re: Pregnancy problems and thyroid

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Hi Chuck,

That is terrible what happened to your wife ( and son)!

I don't remember such an exposure but for sure it could have happened -

there is so much use of poisons that we just don't know about!

L has pulmonary hypertension (part of the Fallot's Tetralogy which was

dx'd at three months after birth) which is now her biggest problem as

she has shortness of breath on moderate exertion. All else has been

fixed with surgery.

I guess the reason I suspect thyroid is the way I reacted during and

after the pregnancy - I got a bunch of symptoms that I now know are

thyroid/ adrenal symptoms - I think she bled my body dry of iodine and

selenium. After the birth I was still young and healthy enough and my

diet was good enough for me to recover in a few months - but I then

became really underweight - again something that I had not experienced.

Here is some info on Pre-eclampsia that I found - it does not seem to

relate to me except for the fluid - but I only had that a few months

after the birth. Plus I had very good antenatal care - I am RH negative

so they were watching me closely. I always had low blood pressure.

" High blood pressure, protein in the urine and in some cases severe

swelling (oedema) in the mother and, sometimes, poor growth in the baby

- all of which should be detected by routine ante-natal checks. "

May I ask why you think it might not have been thyroid related?

Kerry

Re: Pisceans

Hi Kerry,

You wrote:

> My youngest daughter was born with severe congenital heart disease - I

> knew it was a strange pregnancy as it was so different from my first -

I

> gained weight with no change in my very healthy diet and the birth

was

> long and difficult - after the birth I puffed up like a jellyfish with

> fluid - ...

That sounds more like pre-eclampsia, which mainly affects the end stage

of pregnancy, although these symptoms could also be side effects of the

congenital condition. Most of the fetal heart develops in the first few

weeks of the pregnancy. A simple illness of the mother or exposure to an

environmental toxin at this stage can cause problems. These are easily

missed, which is why the cause for a congenital heart defect is usually

a mystery. About 20% are thought to be genetic.

When she was about 10 weeks pregnant, my wife was accidentally sprayed

by an aircraft dumping defoliants on a cotton field. He over shot the

end of the field and sprayed a housing unit. My wife looked up at the

planed and got a face full of defoliant. She was quite ill for a week

and nearly miscarried.

In addition to his Asperger's syndrome, my son also had several cardiac

problems, including pulmonary valvular stenosis, atrial septal defect,

and shunting. All were eventually repaired, although he still has

noticeable regurgitation from mitral prolapse.

Chuck

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Kerry,

You wrote:

>

> ... May I ask why you think it might not have been thyroid related?

>

That's still a possibility. What I was suggesting was that the problem

that caused a congenital heart problem was most likely something present

at the beginning of the pregnancy, not the end. Whether it was

preeclampsia or hypoT/adrenal, the condition developed with the

pregnancy, right? It is unlikely that you were hypoT before the

pregnancy, because it would have made conception less likely.

BTW, my daughter had the HELLP syndrome for her last pregnancy. This

goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme

levels, and a Low Platelet count. It is preeclampsia on steroids,

although there is evidence it is a distinct sort of syndrome. It led to

a premature delivery to save her life. We very nearly lost them both.

The condition gradually subsides, but it reached a maximum about a day

after the delivery. The doctor that made the decision really cut it close.

Chuck

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I see what you mean...yes of course it would have developed early in the

pregnancy.

I wasn't noticeably ill before that pregnancy but I was probably

borderline hypothyroid and maybe deficient in iodine and or selenium -

the pregnancy just tipped me over the edge. Whether it was the cause of

her heart problems we'll never know. But the fact that my older daughter

has a dx'd thyroid deficiency at 27 makes me very suspicious that if I

had been tested at the time I would have shown hypoT as well.

Re: Pregnancy problems and thyroid

Kerry,

You wrote:

>

> ... May I ask why you think it might not have been thyroid related?

>

That's still a possibility. What I was suggesting was that the problem

that caused a congenital heart problem was most likely something present

at the beginning of the pregnancy, not the end. Whether it was

preeclampsia or hypoT/adrenal, the condition developed with the

pregnancy, right? It is unlikely that you were hypoT before the

pregnancy, because it would have made conception less likely.

BTW, my daughter had the HELLP syndrome for her last pregnancy. This

goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme

levels, and a Low Platelet count. It is preeclampsia on steroids,

although there is evidence it is a distinct sort of syndrome. It led to

a premature delivery to save her life. We very nearly lost them both.

The condition gradually subsides, but it reached a maximum about a day

after the delivery. The doctor that made the decision really cut it

close.

Chuck

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My son also has a heart valve defect which I am quite sure was caused by

partial thyroidectomy which left me even more hypo and untreated. I never

got pregnant again. I have also read that pre eclampsia is hypothyroid.

Really so much misery in not understanding hormones.

gracia

> Kerry,

>

> You wrote:

>>

>> ... May I ask why you think it might not have been thyroid related?

>>

>

> That's still a possibility. What I was suggesting was that the problem

> that caused a congenital heart problem was most likely something present

> at the beginning of the pregnancy, not the end. Whether it was

> preeclampsia or hypoT/adrenal, the condition developed with the

> pregnancy, right? It is unlikely that you were hypoT before the

> pregnancy, because it would have made conception less likely.

>

> BTW, my daughter had the HELLP syndrome for her last pregnancy. This

> goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme

> levels, and a Low Platelet count. It is preeclampsia on steroids,

> although there is evidence it is a distinct sort of syndrome. It led to

> a premature delivery to save her life. We very nearly lost them both.

> The condition gradually subsides, but it reached a maximum about a day

> after the delivery. The doctor that made the decision really cut it close.

>

> Chuck

>

>

>

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My son has kidney problems since in utero. He also has Cerebal Palsy and is

deaf.

I showed no signs of thyroid problems prior to pregnancy. I got on the scale

2 weeks after having him and I weighed 12 lbs. less than when I got pregnant!!!

After that I went completely Hypo... all my hair started falling out, my skin

looked like a crocodile, I had my period for 3 mo. straight and I was losing my

vision as well as ability to walk upright and use my limbs.

They diagnosed me with Postpartum depression and put me on strong anti

depressants.

I felt like I was dying and was so overwhelmed with my son. I could not make

breast milk, it was all falling apart.

That is when i started passing out, unconscience.

Bye the time the doc figured out I had Hashimoto's Thyroiditis, I was at risk

for organ failure.

He said it was the worst case he had ever seen in his career and did not know

how i was alive. My TSH was 100+ (their tests only go to 100)...

I have never been sick my entire life. Now I am plagued with illness, pain

and fatigue (5 years now). I had to let my son go with his father as after 2

years of it being he and I. I could not longer care for him properly. This

hurts worse than any body pain I have or could ever have.

I just thought I would share...

Be well,

Pamela

Gracia <circe@...> wrote:

My son also has a heart valve defect which I am quite sure was caused by

partial thyroidectomy which left me even more hypo and untreated. I never

got pregnant again. I have also read that pre eclampsia is hypothyroid.

Really so much misery in not understanding hormones.

gracia

> Kerry,

>

> You wrote:

>>

>> ... May I ask why you think it might not have been thyroid related?

>>

>

> That's still a possibility. What I was suggesting was that the problem

> that caused a congenital heart problem was most likely something present

> at the beginning of the pregnancy, not the end. Whether it was

> preeclampsia or hypoT/adrenal, the condition developed with the

> pregnancy, right? It is unlikely that you were hypoT before the

> pregnancy, because it would have made conception less likely.

>

> BTW, my daughter had the HELLP syndrome for her last pregnancy. This

> goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme

> levels, and a Low Platelet count. It is preeclampsia on steroids,

> although there is evidence it is a distinct sort of syndrome. It led to

> a premature delivery to save her life. We very nearly lost them both.

> The condition gradually subsides, but it reached a maximum about a day

> after the delivery. The doctor that made the decision really cut it close.

>

> Chuck

>

>

>

--

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Version: 7.1.385 / Virus Database: 268.2.5/284 - Release Date: 3/17/2006

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Kerry,

Hello. I noticed you mentioned low bp and RH negative. I am the same. Is it

the norm for these to go hand in hand???

Thank you,

Pamela

Kerry Ann Faithfull <kerry@...> wrote:

Hi Chuck,

That is terrible what happened to your wife ( and son)!

I don't remember such an exposure but for sure it could have happened -

there is so much use of poisons that we just don't know about!

L has pulmonary hypertension (part of the Fallot's Tetralogy which was

dx'd at three months after birth) which is now her biggest problem as

she has shortness of breath on moderate exertion. All else has been

fixed with surgery.

I guess the reason I suspect thyroid is the way I reacted during and

after the pregnancy - I got a bunch of symptoms that I now know are

thyroid/ adrenal symptoms - I think she bled my body dry of iodine and

selenium. After the birth I was still young and healthy enough and my

diet was good enough for me to recover in a few months - but I then

became really underweight - again something that I had not experienced.

Here is some info on Pre-eclampsia that I found - it does not seem to

relate to me except for the fluid - but I only had that a few months

after the birth. Plus I had very good antenatal care - I am RH negative

so they were watching me closely. I always had low blood pressure.

" High blood pressure, protein in the urine and in some cases severe

swelling (oedema) in the mother and, sometimes, poor growth in the baby

- all of which should be detected by routine ante-natal checks. "

May I ask why you think it might not have been thyroid related?

Kerry

Re: Pisceans

Hi Kerry,

You wrote:

> My youngest daughter was born with severe congenital heart disease - I

> knew it was a strange pregnancy as it was so different from my first -

I

> gained weight with no change in my very healthy diet and the birth

was

> long and difficult - after the birth I puffed up like a jellyfish with

> fluid - ...

That sounds more like pre-eclampsia, which mainly affects the end stage

of pregnancy, although these symptoms could also be side effects of the

congenital condition. Most of the fetal heart develops in the first few

weeks of the pregnancy. A simple illness of the mother or exposure to an

environmental toxin at this stage can cause problems. These are easily

missed, which is why the cause for a congenital heart defect is usually

a mystery. About 20% are thought to be genetic.

When she was about 10 weeks pregnant, my wife was accidentally sprayed

by an aircraft dumping defoliants on a cotton field. He over shot the

end of the field and sprayed a housing unit. My wife looked up at the

planed and got a face full of defoliant. She was quite ill for a week

and nearly miscarried.

In addition to his Asperger's syndrome, my son also had several cardiac

problems, including pulmonary valvular stenosis, atrial septal defect,

and shunting. All were eventually repaired, although he still has

noticeable regurgitation from mitral prolapse.

Chuck

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Kerry,

You wrote:

> I see what you mean...But the fact that my older daughter

> has a dx'd thyroid deficiency at 27 makes me very suspicious that if I

> had been tested at the time I would have shown hypoT as well.

Could well be, since at least temporary hypoT is common with pregnancy.

My daughter was briefly on Armour following her last child, but she's

not on anything now. Pregnancy is evidently also a common trigger for

permanent hypoT. Any large challenge to the system would be.

Chuck

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Gracia,

You wrote:

>

> ... I have also read that pre eclampsia is hypothyroid. ...

HypoT definitely increasing the risk of preeclampsia, but it is possible

to have one without the other. Lots of recent references on this you can

click on in PUBMED in:

http://www.indianjmedsci.org/article.asp?issn=0019-5359;year=2005;volume=59;issu\

e=2;spage=57;epage=63;aulast=Kumar

Chuck

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Pamela that is so sad..........what a difficult time you have had. I

hope you are not blaming yourself for all of this? Life just throws the

book at us sometimes.

Many of us here know how it feels to have your old life suddenly " taken

away " - it is like a death in a way and we mourn the people we used to

be.

And then we get up and realise that life is there to be lived and maybe

find a group like this and start educating ourselves - there are answers

and you will feel better as you find them.

You know after my pregnancy with my youngest - I wonder if carrying

children with physical problems is especially hard on the mothers? Our

bodies must have to work so hard to bring them to term - no wonder you

were in such a state after the birth!

Have you found a new doc yet?...I am concerned that you really need some

good help. Did you look on the Top Doc's list or search in your area for

an Osteopath.

Kerry

Re: Pregnancy problems and thyroid

My son has kidney problems since in utero. He also has Cerebal Palsy

and is deaf.

I showed no signs of thyroid problems prior to pregnancy. I got on

the scale 2 weeks after having him and I weighed 12 lbs. less than when

I got pregnant!!!

After that I went completely Hypo... all my hair started falling out,

my skin looked like a crocodile, I had my period for 3 mo. straight and

I was losing my vision as well as ability to walk upright and use my

limbs.

They diagnosed me with Postpartum depression and put me on strong anti

depressants.

I felt like I was dying and was so overwhelmed with my son. I could

not make breast milk, it was all falling apart.

That is when i started passing out, unconscience.

Bye the time the doc figured out I had Hashimoto's Thyroiditis, I was

at risk for organ failure.

He said it was the worst case he had ever seen in his career and did

not know how i was alive. My TSH was 100+ (their tests only go to

100)...

I have never been sick my entire life. Now I am plagued with illness,

pain and fatigue (5 years now). I had to let my son go with his father

as after 2 years of it being he and I. I could not longer care for him

properly. This hurts worse than any body pain I have or could ever

have.

I just thought I would share...

Be well,

Pamela

Gracia <circe@...> wrote:

My son also has a heart valve defect which I am quite sure was caused by

partial thyroidectomy which left me even more hypo and untreated. I

never

got pregnant again. I have also read that pre eclampsia is

hypothyroid.

Really so much misery in not understanding hormones.

gracia

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I don't understand why a simple thyroid test shouldn't be mandatory

prenatal and postpartum followup. So much suffering could be avoided

if they would just catch this sooner. It is so typical to blame it

on postpartum depression. But the labs alone would have caught

that. Really, the docs should be looking at depression and anxiety

as symptoms, not disorders.

Sherry

>

> My son also has a heart valve defect which I am quite sure was

caused by

>

> partial thyroidectomy which left me even more hypo and untreated.

I

> never

> got pregnant again. I have also read that pre eclampsia is

> hypothyroid.

> Really so much misery in not understanding hormones.

> gracia

>

>

>

>

>

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High Five on that. Once I get my health in order I am going to start something

to try to make this happen. I went thru hell, the deepest darkest parts of

hell, all with a baby in my arms!!! It is now way to start a new life for him

or me!!! not to mention as soon as they got my " numbers " in order... I was hit

by a car going 40mph and it pushed me into another car. I have 2 compression

fractures and permanent neck damage!!! I also have premature oestoarthritis.

So there is no way I am able to take care of my baby... I am weak, my back is

bad and I am in constant pain.

I have wanted to give up so many times...

But he keeps me going!!! I have not seen him for a long time, but I spend

every single day doing something to get my health back in whatever way

possible!!!

I stopped beating myself up with guilt. I cannot control this... but I can

steer it in a better direction instead of helping it drive itself into the

ground.

If this helps anyone feeling hopeless, than that helps me too!!! We don't go

thru all of this not to share our story and help others!!!

Be well,

Pamela

Sherry <hary722001@...> wrote:

I don't understand why a simple thyroid test shouldn't be mandatory

prenatal and postpartum followup. So much suffering could be avoided

if they would just catch this sooner. It is so typical to blame it

on postpartum depression. But the labs alone would have caught

that. Really, the docs should be looking at depression and anxiety

as symptoms, not disorders.

Sherry

>

> My son also has a heart valve defect which I am quite sure was

caused by

>

> partial thyroidectomy which left me even more hypo and untreated.

I

> never

> got pregnant again. I have also read that pre eclampsia is

> hypothyroid.

> Really so much misery in not understanding hormones.

> gracia

>

>

>

>

>

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Absolutely!

Re: Pregnancy problems and thyroid

I don't understand why a simple thyroid test shouldn't be mandatory

prenatal and postpartum followup. So much suffering could be avoided

if they would just catch this sooner. It is so typical to blame it

on postpartum depression. But the labs alone would have caught

that. Really, the docs should be looking at depression and anxiety

as symptoms, not disorders.

Sherry

>

> My son also has a heart valve defect which I am quite sure was

caused by

>

> partial thyroidectomy which left me even more hypo and untreated.

I

> never

> got pregnant again. I have also read that pre eclampsia is

> hypothyroid.

> Really so much misery in not understanding hormones.

> gracia

>

>

>

>

>

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