Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Hi Chuck, That is terrible what happened to your wife ( and son)! I don't remember such an exposure but for sure it could have happened - there is so much use of poisons that we just don't know about! L has pulmonary hypertension (part of the Fallot's Tetralogy which was dx'd at three months after birth) which is now her biggest problem as she has shortness of breath on moderate exertion. All else has been fixed with surgery. I guess the reason I suspect thyroid is the way I reacted during and after the pregnancy - I got a bunch of symptoms that I now know are thyroid/ adrenal symptoms - I think she bled my body dry of iodine and selenium. After the birth I was still young and healthy enough and my diet was good enough for me to recover in a few months - but I then became really underweight - again something that I had not experienced. Here is some info on Pre-eclampsia that I found - it does not seem to relate to me except for the fluid - but I only had that a few months after the birth. Plus I had very good antenatal care - I am RH negative so they were watching me closely. I always had low blood pressure. " High blood pressure, protein in the urine and in some cases severe swelling (oedema) in the mother and, sometimes, poor growth in the baby - all of which should be detected by routine ante-natal checks. " May I ask why you think it might not have been thyroid related? Kerry Re: Pisceans Hi Kerry, You wrote: > My youngest daughter was born with severe congenital heart disease - I > knew it was a strange pregnancy as it was so different from my first - I > gained weight with no change in my very healthy diet and the birth was > long and difficult - after the birth I puffed up like a jellyfish with > fluid - ... That sounds more like pre-eclampsia, which mainly affects the end stage of pregnancy, although these symptoms could also be side effects of the congenital condition. Most of the fetal heart develops in the first few weeks of the pregnancy. A simple illness of the mother or exposure to an environmental toxin at this stage can cause problems. These are easily missed, which is why the cause for a congenital heart defect is usually a mystery. About 20% are thought to be genetic. When she was about 10 weeks pregnant, my wife was accidentally sprayed by an aircraft dumping defoliants on a cotton field. He over shot the end of the field and sprayed a housing unit. My wife looked up at the planed and got a face full of defoliant. She was quite ill for a week and nearly miscarried. In addition to his Asperger's syndrome, my son also had several cardiac problems, including pulmonary valvular stenosis, atrial septal defect, and shunting. All were eventually repaired, although he still has noticeable regurgitation from mitral prolapse. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Kerry, You wrote: > > ... May I ask why you think it might not have been thyroid related? > That's still a possibility. What I was suggesting was that the problem that caused a congenital heart problem was most likely something present at the beginning of the pregnancy, not the end. Whether it was preeclampsia or hypoT/adrenal, the condition developed with the pregnancy, right? It is unlikely that you were hypoT before the pregnancy, because it would have made conception less likely. BTW, my daughter had the HELLP syndrome for her last pregnancy. This goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme levels, and a Low Platelet count. It is preeclampsia on steroids, although there is evidence it is a distinct sort of syndrome. It led to a premature delivery to save her life. We very nearly lost them both. The condition gradually subsides, but it reached a maximum about a day after the delivery. The doctor that made the decision really cut it close. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 I see what you mean...yes of course it would have developed early in the pregnancy. I wasn't noticeably ill before that pregnancy but I was probably borderline hypothyroid and maybe deficient in iodine and or selenium - the pregnancy just tipped me over the edge. Whether it was the cause of her heart problems we'll never know. But the fact that my older daughter has a dx'd thyroid deficiency at 27 makes me very suspicious that if I had been tested at the time I would have shown hypoT as well. Re: Pregnancy problems and thyroid Kerry, You wrote: > > ... May I ask why you think it might not have been thyroid related? > That's still a possibility. What I was suggesting was that the problem that caused a congenital heart problem was most likely something present at the beginning of the pregnancy, not the end. Whether it was preeclampsia or hypoT/adrenal, the condition developed with the pregnancy, right? It is unlikely that you were hypoT before the pregnancy, because it would have made conception less likely. BTW, my daughter had the HELLP syndrome for her last pregnancy. This goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme levels, and a Low Platelet count. It is preeclampsia on steroids, although there is evidence it is a distinct sort of syndrome. It led to a premature delivery to save her life. We very nearly lost them both. The condition gradually subsides, but it reached a maximum about a day after the delivery. The doctor that made the decision really cut it close. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 My son also has a heart valve defect which I am quite sure was caused by partial thyroidectomy which left me even more hypo and untreated. I never got pregnant again. I have also read that pre eclampsia is hypothyroid. Really so much misery in not understanding hormones. gracia > Kerry, > > You wrote: >> >> ... May I ask why you think it might not have been thyroid related? >> > > That's still a possibility. What I was suggesting was that the problem > that caused a congenital heart problem was most likely something present > at the beginning of the pregnancy, not the end. Whether it was > preeclampsia or hypoT/adrenal, the condition developed with the > pregnancy, right? It is unlikely that you were hypoT before the > pregnancy, because it would have made conception less likely. > > BTW, my daughter had the HELLP syndrome for her last pregnancy. This > goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme > levels, and a Low Platelet count. It is preeclampsia on steroids, > although there is evidence it is a distinct sort of syndrome. It led to > a premature delivery to save her life. We very nearly lost them both. > The condition gradually subsides, but it reached a maximum about a day > after the delivery. The doctor that made the decision really cut it close. > > Chuck > > > -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.5/284 - Release Date: 3/17/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 My son has kidney problems since in utero. He also has Cerebal Palsy and is deaf. I showed no signs of thyroid problems prior to pregnancy. I got on the scale 2 weeks after having him and I weighed 12 lbs. less than when I got pregnant!!! After that I went completely Hypo... all my hair started falling out, my skin looked like a crocodile, I had my period for 3 mo. straight and I was losing my vision as well as ability to walk upright and use my limbs. They diagnosed me with Postpartum depression and put me on strong anti depressants. I felt like I was dying and was so overwhelmed with my son. I could not make breast milk, it was all falling apart. That is when i started passing out, unconscience. Bye the time the doc figured out I had Hashimoto's Thyroiditis, I was at risk for organ failure. He said it was the worst case he had ever seen in his career and did not know how i was alive. My TSH was 100+ (their tests only go to 100)... I have never been sick my entire life. Now I am plagued with illness, pain and fatigue (5 years now). I had to let my son go with his father as after 2 years of it being he and I. I could not longer care for him properly. This hurts worse than any body pain I have or could ever have. I just thought I would share... Be well, Pamela Gracia <circe@...> wrote: My son also has a heart valve defect which I am quite sure was caused by partial thyroidectomy which left me even more hypo and untreated. I never got pregnant again. I have also read that pre eclampsia is hypothyroid. Really so much misery in not understanding hormones. gracia > Kerry, > > You wrote: >> >> ... May I ask why you think it might not have been thyroid related? >> > > That's still a possibility. What I was suggesting was that the problem > that caused a congenital heart problem was most likely something present > at the beginning of the pregnancy, not the end. Whether it was > preeclampsia or hypoT/adrenal, the condition developed with the > pregnancy, right? It is unlikely that you were hypoT before the > pregnancy, because it would have made conception less likely. > > BTW, my daughter had the HELLP syndrome for her last pregnancy. This > goes beyond preeclampsia to include Hemolysis, Elevated Liver enzyme > levels, and a Low Platelet count. It is preeclampsia on steroids, > although there is evidence it is a distinct sort of syndrome. It led to > a premature delivery to save her life. We very nearly lost them both. > The condition gradually subsides, but it reached a maximum about a day > after the delivery. The doctor that made the decision really cut it close. > > Chuck > > > -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.5/284 - Release Date: 3/17/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Kerry, Hello. I noticed you mentioned low bp and RH negative. I am the same. Is it the norm for these to go hand in hand??? Thank you, Pamela Kerry Ann Faithfull <kerry@...> wrote: Hi Chuck, That is terrible what happened to your wife ( and son)! I don't remember such an exposure but for sure it could have happened - there is so much use of poisons that we just don't know about! L has pulmonary hypertension (part of the Fallot's Tetralogy which was dx'd at three months after birth) which is now her biggest problem as she has shortness of breath on moderate exertion. All else has been fixed with surgery. I guess the reason I suspect thyroid is the way I reacted during and after the pregnancy - I got a bunch of symptoms that I now know are thyroid/ adrenal symptoms - I think she bled my body dry of iodine and selenium. After the birth I was still young and healthy enough and my diet was good enough for me to recover in a few months - but I then became really underweight - again something that I had not experienced. Here is some info on Pre-eclampsia that I found - it does not seem to relate to me except for the fluid - but I only had that a few months after the birth. Plus I had very good antenatal care - I am RH negative so they were watching me closely. I always had low blood pressure. " High blood pressure, protein in the urine and in some cases severe swelling (oedema) in the mother and, sometimes, poor growth in the baby - all of which should be detected by routine ante-natal checks. " May I ask why you think it might not have been thyroid related? Kerry Re: Pisceans Hi Kerry, You wrote: > My youngest daughter was born with severe congenital heart disease - I > knew it was a strange pregnancy as it was so different from my first - I > gained weight with no change in my very healthy diet and the birth was > long and difficult - after the birth I puffed up like a jellyfish with > fluid - ... That sounds more like pre-eclampsia, which mainly affects the end stage of pregnancy, although these symptoms could also be side effects of the congenital condition. Most of the fetal heart develops in the first few weeks of the pregnancy. A simple illness of the mother or exposure to an environmental toxin at this stage can cause problems. These are easily missed, which is why the cause for a congenital heart defect is usually a mystery. About 20% are thought to be genetic. When she was about 10 weeks pregnant, my wife was accidentally sprayed by an aircraft dumping defoliants on a cotton field. He over shot the end of the field and sprayed a housing unit. My wife looked up at the planed and got a face full of defoliant. She was quite ill for a week and nearly miscarried. In addition to his Asperger's syndrome, my son also had several cardiac problems, including pulmonary valvular stenosis, atrial septal defect, and shunting. All were eventually repaired, although he still has noticeable regurgitation from mitral prolapse. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Kerry, You wrote: > I see what you mean...But the fact that my older daughter > has a dx'd thyroid deficiency at 27 makes me very suspicious that if I > had been tested at the time I would have shown hypoT as well. Could well be, since at least temporary hypoT is common with pregnancy. My daughter was briefly on Armour following her last child, but she's not on anything now. Pregnancy is evidently also a common trigger for permanent hypoT. Any large challenge to the system would be. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Gracia, You wrote: > > ... I have also read that pre eclampsia is hypothyroid. ... HypoT definitely increasing the risk of preeclampsia, but it is possible to have one without the other. Lots of recent references on this you can click on in PUBMED in: http://www.indianjmedsci.org/article.asp?issn=0019-5359;year=2005;volume=59;issu\ e=2;spage=57;epage=63;aulast=Kumar Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Pamela that is so sad..........what a difficult time you have had. I hope you are not blaming yourself for all of this? Life just throws the book at us sometimes. Many of us here know how it feels to have your old life suddenly " taken away " - it is like a death in a way and we mourn the people we used to be. And then we get up and realise that life is there to be lived and maybe find a group like this and start educating ourselves - there are answers and you will feel better as you find them. You know after my pregnancy with my youngest - I wonder if carrying children with physical problems is especially hard on the mothers? Our bodies must have to work so hard to bring them to term - no wonder you were in such a state after the birth! Have you found a new doc yet?...I am concerned that you really need some good help. Did you look on the Top Doc's list or search in your area for an Osteopath. Kerry Re: Pregnancy problems and thyroid My son has kidney problems since in utero. He also has Cerebal Palsy and is deaf. I showed no signs of thyroid problems prior to pregnancy. I got on the scale 2 weeks after having him and I weighed 12 lbs. less than when I got pregnant!!! After that I went completely Hypo... all my hair started falling out, my skin looked like a crocodile, I had my period for 3 mo. straight and I was losing my vision as well as ability to walk upright and use my limbs. They diagnosed me with Postpartum depression and put me on strong anti depressants. I felt like I was dying and was so overwhelmed with my son. I could not make breast milk, it was all falling apart. That is when i started passing out, unconscience. Bye the time the doc figured out I had Hashimoto's Thyroiditis, I was at risk for organ failure. He said it was the worst case he had ever seen in his career and did not know how i was alive. My TSH was 100+ (their tests only go to 100)... I have never been sick my entire life. Now I am plagued with illness, pain and fatigue (5 years now). I had to let my son go with his father as after 2 years of it being he and I. I could not longer care for him properly. This hurts worse than any body pain I have or could ever have. I just thought I would share... Be well, Pamela Gracia <circe@...> wrote: My son also has a heart valve defect which I am quite sure was caused by partial thyroidectomy which left me even more hypo and untreated. I never got pregnant again. I have also read that pre eclampsia is hypothyroid. Really so much misery in not understanding hormones. gracia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 I don't understand why a simple thyroid test shouldn't be mandatory prenatal and postpartum followup. So much suffering could be avoided if they would just catch this sooner. It is so typical to blame it on postpartum depression. But the labs alone would have caught that. Really, the docs should be looking at depression and anxiety as symptoms, not disorders. Sherry > > My son also has a heart valve defect which I am quite sure was caused by > > partial thyroidectomy which left me even more hypo and untreated. I > never > got pregnant again. I have also read that pre eclampsia is > hypothyroid. > Really so much misery in not understanding hormones. > gracia > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 High Five on that. Once I get my health in order I am going to start something to try to make this happen. I went thru hell, the deepest darkest parts of hell, all with a baby in my arms!!! It is now way to start a new life for him or me!!! not to mention as soon as they got my " numbers " in order... I was hit by a car going 40mph and it pushed me into another car. I have 2 compression fractures and permanent neck damage!!! I also have premature oestoarthritis. So there is no way I am able to take care of my baby... I am weak, my back is bad and I am in constant pain. I have wanted to give up so many times... But he keeps me going!!! I have not seen him for a long time, but I spend every single day doing something to get my health back in whatever way possible!!! I stopped beating myself up with guilt. I cannot control this... but I can steer it in a better direction instead of helping it drive itself into the ground. If this helps anyone feeling hopeless, than that helps me too!!! We don't go thru all of this not to share our story and help others!!! Be well, Pamela Sherry <hary722001@...> wrote: I don't understand why a simple thyroid test shouldn't be mandatory prenatal and postpartum followup. So much suffering could be avoided if they would just catch this sooner. It is so typical to blame it on postpartum depression. But the labs alone would have caught that. Really, the docs should be looking at depression and anxiety as symptoms, not disorders. Sherry > > My son also has a heart valve defect which I am quite sure was caused by > > partial thyroidectomy which left me even more hypo and untreated. I > never > got pregnant again. I have also read that pre eclampsia is > hypothyroid. > Really so much misery in not understanding hormones. > gracia > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Absolutely! Re: Pregnancy problems and thyroid I don't understand why a simple thyroid test shouldn't be mandatory prenatal and postpartum followup. So much suffering could be avoided if they would just catch this sooner. It is so typical to blame it on postpartum depression. But the labs alone would have caught that. Really, the docs should be looking at depression and anxiety as symptoms, not disorders. Sherry > > My son also has a heart valve defect which I am quite sure was caused by > > partial thyroidectomy which left me even more hypo and untreated. I > never > got pregnant again. I have also read that pre eclampsia is > hypothyroid. > Really so much misery in not understanding hormones. > gracia > > > > > Quote Link to comment Share on other sites More sharing options...
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