Debra

[Guest guest]

Debra-I have them on my neck they start out like little brown spots and then

gow little

stems is the only way I can put it. I don't know what causes them, but I do

know they have to be surgically removed. They are unattractive and a

nusiance. Hope this helps a little. Hugs,

[Guest guest]

On Tue, 19 Sep 2000 22:15:06 -0000, egroups wrote:

> Dear Debra,

>

> So glad you got the SSI. Beleive it or not Iam surviving on SSI and I

> have medi-cal(Californias version of medicaid). We need to stay in

> touch. Listen I know there is a way for you to get SSDI and medicaire

> as well as SSI(medicaid). I have a good friend in Minnesota

> (Rochester). She has both medicaid and medicaire. She is on SSDI

> only. Did you know that you can get both??. She is in wonderful hands

> over at Mayo clinic. She is fully covered. What Iam running into here

> with medicaid is that it seems there is a lot of run around in

> getting a specialist. This is very scary to me. Look, I know the

> reality is that Iam not going to be covered by any insurance provider

> out there now that I have these liver elevations. Iam on the verge of

> being diagnosed with either PBC or one of the other auto immune

> disorders. Surely my 4 years of elevated tests could not be a natural

> phenomenon. I have an appointment with a hepatolagist at the end of

> the month but they told me that if I have medi-cal covered by Blue

> Cross of California they would need a referral. What does it take to

> get that? screaming and crying and getting on my knees to beg?. I

> feel as if it is a cost cutting tactic or something. Let me know how

> you are doing with the SSI and your treatment thru medicaid.

> Along the way perhaps we can be of help to each other. I feel so

> alone in all of this. Iam going to try and get SSDI if I can. If you

> have worked at all in your life you are eligible for SSDI. It may

> take a lawyer to get it but its worth it to me.

>

> Keep the faith!

>

> Andi

>

Andi once my disability begins oct3 for the month of sept I will recieve too

much money to qualify for both. That is why the SSDI will be stopped. I

didn't have to do anything the hospital I was in handled everything I just

signed my name. I almost feel guilty for accepting disability cause I don't

really feel that sick and only take prednisone 5mg every other day. But it

is good to have someone to tal to , Thank you.

Debra

your gentle friend

God Bless

_______________________________________________________

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[Guest guest]

In a message dated 9/27/00 11:56:20 PM Eastern Daylight Time,

Chan_lace_@... writes:

<< I don't think that I am ready for my life to

change. I am so afraid. I breezed thru 2 different malignant cancers and

never changed, why am I so afraid of this particular dragon. The tears have

started and I don't want to stop

them.

>>

It is so hard,Debra. I spent days sitting in my chais staring at the walls

and crying until my face hurt. I, too, have breezed through cancer, but

somehow, this is so scary. The liver affects so many functions of our bodies.

It is controlable.

When I got ill, I owned two small businesses. I was constantly on the go

and doing something. Very active with my Grandchildren,also. It took me

months to come to grip with this new life of mine. I now have a greater

appreciation of life. I no longer take the little things for granted. I am

what I am.

The roads that we travel in our lives are full of detours. Some of them

lead to great and wonderful new adventures. Some are not so great, but we

learn to cope.

You will emerge, Debra. Time is all you need. You have a lot of changes to

deal with. Give yourself time.

Lots of love,

GINGER

[Guest guest]

Hi all,

Laying low for a couple of days. The hep just told me that I am rather

stabilized with the pbs and that the fatique is probably from the chemo and

radiation....which was quiet a bit past.....They are going to start me on

Procrit......For energy build-up. Anyway, I felt good about what he

said......I will be on 7mg prednisome, actigall and lost of vitamins. Let's

see how I feel after the procrit....Does anyone out there have ringing in the

ears? What's that all about? When I first join this group I was a basket

case......I m still a case.....but no basket( joke)

thanks guys.

[Guest guest]

Thanks so much for remembering Hunt. I am very worried about him right now.

His labs had been just perfect foa a bit and they were lowering his

prednisone. They have had him on 20mgs of prednisone and 100 imuran for the

last 2 weeks and then suddenly BAM.. ast and alt's go back up. Now he is on

30mgs AGAIN. They said in 2 weeks time they would check his labs again and

talk about adding a new med or just rethink the whole situation. I know that

his nurse asked him if he had been drinking and he said no. I do not think he

has or if he has not much at all. I know that he has been studying alot and

trying hard.. Maybe as you found, it is just too much stress that is doing

it. I just do not know. I am thinking about trying another dr. The one he has

is suppose to be the best one at Duke BUT i have not found him open to

learning at new things or even listening to them. He is retiring in 3 years

and i guess he knows all he wants to know. Someone on here named Gay told me

of a dr that she goes to in the city that Hunt is in college at. I am

thinkiing of making an apt and just telling the situation and see what he

things.. HIs present dr has not even told us of the side effects of imuran

and i think that was kinda important., It was like Hunt;s numbers went up so

he called Hunt, told him to start a new med , get labs every week for a while

and that was it.. Now they talk on phone about labs and dr tells him if he

needs to readjust or stay like he is but that is that.. I don;t even know

what type of AIH he has. Is it important to know the type? I am just worried

again as normal. Hunt says that he is very very tired and coming down with a

cold. Do you think he should have a flu shot.? . seems sensible to me .

I am so sorry that you had to drop out of school. I am only begining to know

how disabilitating this disease can be. I hope that you soon come to terms

with it and i really hope that you adjust to the new meds quickly.. What are

the new drugs? Are you still vomitting for them? Sounds like you really need

some rest also. How long did you say that you have had AIH Debra? Please

contnue to pray for Hunt. I pray for all of you as well and think of all that

ya'll have given to me.. It is much appreciated. Like i said.. THANKS soo

much for remembering him.. I REALLY needed that today. God is listening to

our prayers. I can tell that..He sent you to me today.

Love and God Bless

Rosemary

[Guest guest]

Take care of me????????? Afraid i don;t do a good job there. I have diabetes

and have not been doing very good with that.. Seems that i worry about Hunt

more than myself. I am not insulin dependent and i do take my meds but i

don;t eat like i should. I do honestly appreciate you telling me to take care

of me.

I talked to Hunt while ago. He has had a long weekend and his cold is

worse. He is also very nauseated and has been all day. He gets out for fall

break Friday so maybe that will do him some good. I am gonna call our family

dr and see if he can get his fu shot here next week.

I do hope that you are taking care of yourself. How many kids do you have

and how old are they? I know that kids can drive you ragged but you love

letting them do it.. Been there -done that and LOVED it. Almost wish i would

have another one. I did get pregnant a few years back, by accident, they were

TWINS and i was gonna be 41 when they arrived... I did loose them and it

about killed me but TWINS,, that would have been hard for me to handle.. LOL

TAKE CARE OF YOU TOO

Rosemary

[Guest guest]

Hi Deb, you will love being a grandmother. I have a grandson named Colton,

he's 2 1/2. We are so blessed to have him, now that Jodi has AIH the doctors

say her getting pregnant would be very bad news. They were married almost 6

yrs. before they had him. I told my son, Matt that he would have to give me

my granddaughter. He said I'm not having anything but boys, I told him he

will have all girls with that attitude. LOL Someone once told me that

grandchildren are why we don't kill our kids. LOL Smart person. Take care

and God bless. Genny/Jodi's Mom/AIH

[Guest guest]

Hi Deb, thanks for the info. and the well wishes for Jodi. God bless and

have a good day. Genny

[Guest guest]

Debra-Thank you for your thoughts and it is a terrible feeling it just aches

and aches

enough to get your nerves going. Thanks, Hug's,

[Guest guest]

Debra,

I have been thinking about you? Are you feeling better since you dropped out

of school? How is your stress level? You are so busy girl. I don;t eve know

how you stayed in school as long as you did with all you have going on. Is

your liver still swollen? How about your labs?

By the way, do you remember the girl that was posting that was in school, Emi

Lou or something like that? I have not read any post from her lately and

wondered how she is going.

Hope you are doing so much better

Rosemary

[Guest guest]

Debra, just please keep us in your prayers. I almost feel if we could get

Hunt feeling better about himself that everything else would be much easier

to deal with. His girlfriends sees a psychologist for family problems so i am

hoping that she can get hunt to consider seeing someone for himself. I know

Hunt, the idea coming from me would not be good at all.

By the way, he is dropping his english class that was putting so much stress

on him so hopefully that will help a little.

Hope you are doing fine.. Thanks for remembering us

Rosemary

[Guest guest]

Hi Debra, its nice to hear from you. How are you and your family doing? My

mother has been started on 40 mg of Prednisone, her second go round. Her

platelets went from 39,000 to 230,000 in one week. At first it didn't make

her hyper but as the days went by she can't sit still again. She and my

stepdad are in Alabama right now for some R & R but she will be back to have

her labs done again Friday. The oncologist wants to see those before talking

in detail about the removal of her spleen. I'm so glad your son did well

with that. I hope she will do as well if it comes to taking it out. As for

Jodi I had her in the ER last night as you might have seen from a previous

post. She feels much better today, thank you so much for asking. Better go

for now, will talk to you soon. Take care, and God bless. Genny

[Guest guest]

It's not just you Deb, I don't have AIH and have to write down names and

family members to keep up. My list is growing very long. Hang in there

girl. Love, Genny

[Guest guest]

Debra, we are thinking of you too. Feel better soon! Genny/Jodi's Mom

[Guest guest]

My Dear Debra,

Thank you for posting your experience with us. You are so right. We are our

own worst enemy.

I am so sorry you had to go through such a tough time. I went through the

same thing last year. We do get trough it and learn from it.

Debra is right, you guys. We need to listen to our bodies and take heed. We

have to learn to take care of ourselves first. All the reat just does not

matter.

Much love, Ginger

Ginger-gehud119@...

[Guest guest]

Hi Debra,

I just read your mail. Gosh girl, you have been going through a lot and not letting us know. You do not have a thing to feel guilty about. Think of all you have done for you family over the years. You have been there whenever they needed you. As for shcool. Debra, i know that you wanted to finish but just don't worry about it. YOUr health and sanity are worth so much more. You already have the stress of having a family, you really didn;t need the stress from school. I think you are a wonderful person just like you are. And i am sure your husband and kids do too. They could care less if that house is clean, so sit back and relax and just enjoy what you have.

God Bless You

Rosemary

[Guest guest]

Hi Debra, sorry to hear your having such a hard time. My prayers are with

you. Please take care and God bless and heal you. Genny/Jodi' Mom

[Guest guest]

Hi Debra, i am so glad that you are doing better. RIght now Hunt is feeling fine, but then he is still taking 40mgs of pred.. It seems that it takes the high dosages of meds to make him feel fine. His alt's were down to 222 and 750 which are still high but they are coming down. He has had a hard week with 2 tests and a paper but his spirits are up. I hope he did well or it will really frustrate him cause he studied so hard for them. His skin seems to have improved some, i think due to the tea oil, so he is feeling a little better with his appearance. Hunt is usually a person that is really really up or really really down.

As for me, i am fine except for my gallbladder which has to come out. We were just relieved that it was not myu liver which is what they at first suspected. That almost freaked Hunt out.

Thanks for asking about us. You are in my prayers.

Rosemary

[Guest guest]

Debra, Jerry and I were just talking about you. Thank goodness your OK.

Sounds like you have had a rough time. Glad things are better now. Love,

Genny

[Guest guest]

Debra - pleasee let me knoe how you keep your stress level down, mine is unreal.

Thank you, (mhe3053904@...)

[Guest guest]

Oh Debra that is great, I bet your on cloud 9 and with good reason. There is

nothing like grandkids, you know that's why we don't kill our kids don't you?

LOL Debra, God knows when we need something special to come into our

life's. I felt the same way when Colt was born. You give Mason a big fat

hug from me and tell him welcome to this world. I couldn't be happier for

you, what a Christmas present. You take care and don't spoil that baby to

much. Love, Genny

[Guest guest]

We are so sorry to hear about Debra. In this time of sadness, we hope you find the strength to remember the good times, her laughter, and the good she did in this world. We are thinking and praying for you.

Cheryl & Randy McCullough

[Guest guest]

Wait...what did I miss?? Somebody clue me in!!

Don

Terradon Unlimited

www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

-----Original Message-----From: cheryl722@... [mailto:cheryl722@...]Sent: Sunday, January 21, 2001 12:44 PM egroupsSubject: Re: [ ] DebraWe are so sorry to hear about Debra. In this time of sadness, we hope you find the strength to remember the good times, her laughter, and the good she did in this world. We are thinking and praying for you. Cheryl & Randy McCullough

[Guest guest]

Hi Debra: I am so happy to read about your good report. Keep up the good

work and take care. Genny/Jodi's Mom

[Guest guest]

Hi Debra...

Still trying to thank everyone for there caring and concern about Tyler...He is feeling better and hoping to get back to school and doing lots of catch up work....Lots and Lots...

I know that all these prayers and candles have helped him get thru this yet again....

Thanks to all of you again....

Luanne Ty's mom