Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Greetings everyone, It has been a while since I last asked for help. Just to remind you, I was recently diagnosed as hypo back in Oct 2K and was put on 50mcg Thyroxine a day. 6 weeks later I had another blood test done to check if this was the correct dosage, and it was (according to my doctor). However, I have not felt any difference at all in regards to my Chronic Fatigue, 'foggyness' on the brain including forgetfulness, or my permanent sore throat which makes my voice sound hoarse. Should I realistically be feeling some difference by now? When I put this question to my doctor before the 2nd blood test, he said that the body has to get used to the thyroxine and it would take time,(but how long?!!?) Also, after reading some of the suggestions about Kelp on this group, I am confused at the opposite replies. I too have been recommended to take a kelp supplement by a alternative medicine practitioner, with the thyroxine. If someone can make any sense of the above, I should be grateful. Yours hopefully Biloo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Your doctor is correct. It takes a month for your body to adjust to the dosage. I know, i go through this all the time. It drives me crazy when they either increase or decrease the dosage. Because it feels like my body is going through a tailspin. If you do not feel better in a month or more, then i suggest you go talk to him. But i would not recommend using supplements. You can be doing more harm than good. I listen to what your doctor has to say and then from there see what happens. Just give it some time. I know, i have been there and done that. Ruth Smitycrochet@...Smitycrochet@... Still suffering Greetings everyone,It has been a while since I last asked for help.Just to remind you, I was recently diagnosed as hypo back in Oct 2K and was put on 50mcg Thyroxine a day. 6 weeks later I had another blood test done to check if this was the correct dosage, and it was (according to my doctor).However, I have not felt any difference at all in regards to my Chronic Fatigue, 'foggyness' on the brain including forgetfulness, or my permanent sore throat which makes my voice sound hoarse.Should I realistically be feeling some difference by now?When I put this question to my doctor before the 2nd blood test, he said that the body has to get used to the thyroxine and it would take time,(but how long?!!?)Also, after reading some of the suggestions about Kelp on this group, I am confused at the opposite replies. I too have been recommended to take a kelp supplement by a alternative medicine practitioner, with the thyroxine.If someone can make any sense of the above, I should be grateful.Yours hopefullyBiloo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Hello, I'm not sure about the effects of the medication that you are taking as I'm on 150mg of Synthroid. Still, it took almost 3 yrs or so (lost track actually) before my thryroid levels stablilized and I began to feel effects from the medication. Well, limited effects. I tend to swing up and down. My blood tests tend to swing with the effects I feel. Now, I am told I have stablized with the blood tests and did well for a few months. Felt stronger, better healthy. Then started to spiral again. Now I'm being investigated for 's Syndrome. I realize I'm not giving you a concrete answer. Just want to say, trust your body signals, its saying more than the blood tests. Bev ---------------------------------------------- Original Message From: " " <Biloo70@...> Subject: Still suffering Date: Tue, 09 Jan 2001 12:59:03 -0000 >Greetings everyone, > >It has been a while since I last asked for help. > >Just to remind you, I was recently diagnosed as hypo back in Oct 2K >and was put on 50mcg Thyroxine a day. 6 weeks later I had another >blood test done to check if this was the correct dosage, and it was >(according to my doctor). > >However, I have not felt any difference at all in regards to my >Chronic Fatigue, 'foggyness' on the brain including forgetfulness, or >my permanent sore throat which makes my voice sound hoarse. > >Should I realistically be feeling some difference by now? > >When I put this question to my doctor before the 2nd blood test, he >said that the body has to get used to the thyroxine and it would take >time,(but how long?!!?) > >Also, after reading some of the suggestions about Kelp on this group, >I am confused at the opposite replies. I too have been recommended >to take a kelp supplement by a alternative medicine practitioner, >with the thyroxine. > >If someone can make any sense of the above, I should be grateful. > >Yours hopefully > >Biloo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 hello, i have been following this thread with interest because i am taking cytomel for a low level of t3. this was (finally)diagnosed in august 2000. all other levels (tsh, t4) are within normal range, so the doctor only has me taking cytomel, 50 mcg. my last doctor visit was 3 months ago at which point my blood levels indicated that the 25 mcg i was taking was not enough, so i was increased to 50. prior to the diagnosis of thryroid disease, i had been diagnosed as having fibromyalgia, but i never believed that diagnosis. all of my mother's side of the family has hypothyroidism. my problems started about three years ago when i gained 25 pounds over a 7 week period after 20 years of being a size 4 (all of my adult life), and i started feeling awful. the 25 pounds kept increasing until i had gained fully 50 pounds, my hair was falling out, i wasn't sleeping properly, and i ached all over. at first the doctor said i was just overeating and he put me on a diet...anyway, long story shourt, i finally got the diagnosis i thought should have been made at the beginning. when i first started the cytomel, i started feeling so so much better, i couldn't believe it! and, i dropped about 17 pound in 2 months. my hairdresser (who didn't know about the thyroid disease) asked me what i was doing differently because my hair started looking normal and healthy again. for about the last month though, i have been feeling worse again. i'm not feeling as bad as i did to start, but i'm definitely feeling worse. my weight loss has completely stopped and my hair has started coming out again. i'm wondering what wilson's disease is. i'm also wondering if there is anyone else on here with only a low t3 level. i really don't understand how i could have this low t3 and a normal tsh. also, for the person taking cytomel and synthroid, why are you taking both and what is your diagnosis? thank you, jody Still suffering > Date: Tue, 09 Jan 2001 12:59:03 -0000 > > >Greetings everyone, > > > >It has been a while since I last asked for help. > > > >Just to remind you, I was recently diagnosed as hypo back in Oct 2K > >and was put on 50mcg Thyroxine a day. 6 weeks later I had another > >blood test done to check if this was the correct dosage, and it was > >(according to my doctor). > > > >However, I have not felt any difference at all in regards to my > >Chronic Fatigue, 'foggyness' on the brain including forgetfulness, or > >my permanent sore throat which makes my voice sound hoarse. > > > >Should I realistically be feeling some difference by now? > > > >When I put this question to my doctor before the 2nd blood test, he > >said that the body has to get used to the thyroxine and it would take > >time,(but how long?!!?) > > > >Also, after reading some of the suggestions about Kelp on this group, > >I am confused at the opposite replies. I too have been recommended > >to take a kelp supplement by a alternative medicine practitioner, > >with the thyroxine. > > > >If someone can make any sense of the above, I should be grateful. > > > >Yours hopefully > > > >Biloo > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 Biloo: Please read the data on www.thyrodine.com One simply can't take a synthetic drug and expect it to correct any bodily function. Drugs are for suppressing symptoms. Thyroid does not need " replacing " with anything. Thyroid function needs 2 things... 1-elimination of any auto-immune problem, like herpes, Epstein-Barr virus, Candida, the fluke or mercury. 2-the crucial nutrients required for the thyroid to make T4 and convert whatever is needed to T3. The Thyroid regeneration protocol does all of those needed processes. Earl Still suffering Greetings everyone, It has been a while since I last asked for help. Just to remind you, I was recently diagnosed as hypo back in Oct 2K and was put on 50mcg Thyroxine a day. 6 weeks later I had another blood test done to check if this was the correct dosage, and it was (according to my doctor). However, I have not felt any difference at all in regards to my Chronic Fatigue, 'foggyness' on the brain including forgetfulness, or my permanent sore throat which makes my voice sound hoarse. Should I realistically be feeling some difference by now? When I put this question to my doctor before the 2nd blood test, he said that the body has to get used to the thyroxine and it would take time,(but how long?!!?) Also, after reading some of the suggestions about Kelp on this group, I am confused at the opposite replies. I too have been recommended to take a kelp supplement by a alternative medicine practitioner, with the thyroxine. If someone can make any sense of the above, I should be grateful. Yours hopefully Biloo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Hi Christy, I am so sorry to hear about your current condition. I have also undergone aspirin desensitization and currently take 1300mg daily. My case seems to be the opposite of yours. Although the desensitization has greatly reduced the growth of polyps for me, I still deal with chronic sinus infections. I am grateful for the reduction in polyp growth, but have to admit that I am disappointed that my infection frequency hasn't changed much at all. I think it is just another example of how Samter's patients react differently to treatments. I have decided to continue with aspirin desensitization, as the reduction in polyps is beneficial. But, I have just had to accept the fact that it is probably not going to help me with one of my most frustrating symptoms-- chronic sinus infections. In your case, it might be beneficial to talk with your ENT and see if removing polyps via surgery to get to a clean slate for the aspirin desensitization would be worthwhile. Best of luck to you! Debbie > > So. I went in early June for my big aspirin desense. The process overall was not too bad. I reacted at 81mg and that was it. I now am on 1300 mg a day. Right after desense they put me on Predisone to shrink existing polyps. It was great. I could breath and smell for the first time in well over a year (I had surgery last summer and was full of polyps within 3 weeks). I felt great and was on top of the world! > > Well, the prednisone stopped and I filled up again within days. The polyps were creeping back down my nostrils, completely blocking my nose. I continued to take my aspirin (plus Nasonex, Symbocort, and nasal irrigation, even though it was hard to get anything up there.) I didn't sleep much in June or July. I always though aspirin was supposed to slow polyp growth. > > We are leaving on vacation and I am doing another round of prednisone. I really want to be able to smell the ocean. I live in St. Louis and don't get near the ocean very often. Within three days on prednisone, my sinuses are open. The polyps have shrunk way up. I have gotten more gunk out of my nose than I can have ever imagined. My sense of smell is returning. It's the prednisone, not the aspirin that is making a difference. I am pretty sure when I stop taking it, I will swell up again within a few days. > > I was so hopeful for aspirin desense, but I don't think it's made a difference at all. Has anyone dealt with this? Anyone have insanely fast growing polyps? Should I consider stopping aspirin, having another surgery, and then re-desensitizing? I am going to beg my doctor for Pulmicort Respules to drop into my nose. I am seeing Dr. Slavin on Aug. 11. > > By the way, I very rarely get sinus infections. I haven't had one in years. I asked for an antibiotic about 6 months ago, just in case, but noticed no difference after taking it. > > Any advice or ideas you could provide would be amazing. > Thanks! > Christy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Christy, I had my desense in April 2008. I still have some polyps but nothing like I had before. It's been six months since my last dose of prednisone. That is the longest period without it in 6 years. I am experiencing some sinus problems now but not enough(yet) to go back on prednisone or antibiotics. I am on singulair, Advair and also I ProAir HFA with an adapter so instead of inhaling I use it in my nose. My aspirin dose is 650mg a day. Overall a success. Still Suffering So. I went in early June for my big aspirin desense. The process overall was not too bad. I reacted at 81mg and that was it. I now am on 1300 mg a day. Right after desense they put me on Predisone to shrink existing polyps. It was great. I could breath and smell for the first time in well over a year (I had surgery last summer and was full of polyps within 3 weeks). I felt great and was on top of the world! Well, the prednisone stopped and I filled up again within days. The polyps were creeping back down my nostrils, completely blocking my nose. I continued to take my aspirin (plus Nasonex, Symbocort, and nasal irrigation, even though it was hard to get anything up there.) I didn't sleep much in June or July. I always though aspirin was supposed to slow polyp growth. We are leaving on vacation and I am doing another round of prednisone. I really want to be able to smell the ocean. I live in St. Louis and don't get near the ocean very often. Within three days on prednisone, my sinuses are open. The polyps have shrunk way up. I have gotten more gunk out of my nose than I can have ever imagined. My sense of smell is returning. It's the prednisone, not the aspirin that is making a difference. I am pretty sure when I stop taking it, I will swell up again within a few days. I was so hopeful for aspirin desense, but I don't think it's made a difference at all. Has anyone dealt with this? Anyone have insanely fast growing polyps? Should I consider stopping aspirin, having another surgery, and then re-desensitizing? I am going to beg my doctor for Pulmicort Respules to drop into my nose. I am seeing Dr. Slavin on Aug. 11. By the way, I very rarely get sinus infections. I haven't had one in years. I asked for an antibiotic about 6 months ago, just in case, but noticed no difference after taking it. Any advice or ideas you could provide would be amazing. Thanks! Christy A bad credit score is 600 below. Checking won't affect your score. See now! Quote Link to comment Share on other sites More sharing options...
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