Jumping in

[Guest guest]

Melinda

Welcome to our group. I to am diabetic.

With several other things wrong with me.

I just got back from having a sonar of my left breast. Next week i have

to have a doplar of my left foot, i woke up Sunday and the toe nails on

two toes are purple and the toes hurt. If you feel you want to talk,

email the loop or email me at the above address. Believe me when i say

i know what you are going through as, do many on this list.

Donna

[Guest guest]

OH gosh get those toes taken care of. Im afraid about my feet and have my hubby rub them alot with cream lol. Hey its a great excuse. Besides that my mom has diabetes and she has neropathy and her feet are suffering. I still have hair on my toes.lol my doctor says thats great, i think its yucky!Melinda

Re: Jumping inMelindaWelcome to our group. I to am diabetic.With several other things wrong with me.I just got back from having a sonar of my left breast. Next week i haveto have a doplar of my left foot, i woke up Sunday and the toe nails ontwo toes are purple and the toes hurt. If you feel you want to talk,email the loop or email me at the above address. Believe me when i sayi know what you are going through as, do many on this list.Donna ------------------------------------------------------------------------Get a NextCard Visa, in 30 seconds!1. Fill in the brief application2. Receive approval decision within 30 seconds3. Get rates as low as 2.9% Intro or 9.9% Fixed APR1/6631/6/_/817445/_/963519593/------------------------------------------------------------------------The Being Sick CommunityChat RoomDaily Chat at # on IRC DALnethttp://www.elderwyn.com/members/chat.htmlMemorial Pagehttp://www.elderwyn.com/members/inlovingmemory.htmlMembers Lounge*FREE counselling via email*Daily Horoscopes*FREE psychic/tarot readings via email*Daily cartoons*Medical Resources and more....http://www.elderwyn.com/members Members Profiles, locations and birthdaysMessage Archivesmessages/Upload your PictureTo subscribe or unsubscribesubscribe/ ~~~~~~~~~~~~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer

[Guest guest]

Hi Donna,

Did you get your results from the mammogram? Is everything ok? And what is a dopolar on your foot??

*HUGS*

Love A.

[Guest guest]

I am not new to the group but have been a lurker reading and this is

my first post. Tonight I purchased the coconut oil, sea salt and

Stevia. I will be starting the diet as soon as I do a bit more

reading. I read something on the list about cea. I am an insulin

dependent diabetic, I have severve fibromyalgia and I am disabled and

in the last few years have developed rosacea. Can the cea be

caused by the candida? In the dry desert environment my face very

often feels like a severe case of wind burn. I am sure this is only

the first of many questions but I am most curious about the rosacea.

Well off to look at the grocery list and make plans for the diet. My

husband is also diabetic but on oral meds. He is also a status post 5

coronaries and open heart surgery. I am hoping I can persuade him to

give this a try also.

Gena, Phoenix AZ

[Guest guest]

Hi Gena!

Glad to see you decided to give this a try. I'll keep my fingers crossed

that Jim will join you on the program.

Hugs,

Ellen

----- Original Message -----

From: " Gena " <jrl91@...>

>I am not new to the group but have been a lurker reading and this is

> my first post. Tonight I purchased the coconut oil, sea salt and

> Stevia. I will be starting the diet as soon as I do a bit more

> reading. I read something on the list about cea. I am an insulin

> dependent diabetic, I have severve fibromyalgia and I am disabled and

> in the last few years have developed rosacea. Can the cea be

> caused by the candida? In the dry desert environment my face very

> often feels like a severe case of wind burn. I am sure this is only

> the first of many questions but I am most curious about the rosacea.

> Well off to look at the grocery list and make plans for the diet. My

> husband is also diabetic but on oral meds. He is also a status post 5

> coronaries and open heart surgery. I am hoping I can persuade him to

> give this a try also.

>

> Gena, Phoenix AZ

>

>

>

>

>

>

>

> Please trim your messages - see the Candida Group Information Folder.

>

[Guest guest]

>

> I am not new to the group but have been a lurker reading and this

is

> my first post. Tonight I purchased the coconut oil, sea salt and

> Stevia. I will be starting the diet as soon as I do a bit more

> reading. I read something on the list about cea. I am an

insulin dependent diabetic, I have severve fibromyalgia and I am

disabled and in the last few years have developed rosacea. Can the

cea be caused by the candida?

==>Hi. Welcome to our group Gena! Yes rosacea can be caused by

candida; the body externalizes healing to the skin in order to

protect vital inner organs. cea is one of the ways it is

manifest.

> In the dry desert environment my face very often feels like a

severe case of wind burn. I am sure this is only the first of many

questions but I am most curious about the rosacea. Well off to look

at the grocery list and make plans for the diet.

==>Good for you! Please refer to a new article I put in the files

last weekend " Candida, How to Get Started " which is in the very

first folder along with my article.

> My husband is also diabetic but on oral meds. He is also a status

post 5 coronaries and open heart surgery. I am hoping I can persuade

him to give this a try also.

==>Hopefully your husband will join you. You can both review many

great articles on heart disease and diabetes at:

http://www.cybernaut.com.au/optimal_nutrition/ and

http://homodiet.netfirms.com/ which is The Optimal Diet by Dr. Jan

Kwasniewski, who is doctor in Poland who has been curing people of

diabetes, heart disease, etc. - The ratios of protein to fat to

carbs that he recommends is also what I recommend on this candida

diet. I feel all candida sufferers are borderline diabetes, and

when they must lower their carbs so as not to feed candida, they

must also raise their good fats to obtain the energy required.

==>There's more information on heart disease at www.westonaprice.org

and www.thincs.org (The International Network of Cholesterol

Skeptics) which is a steadily growing group of scientists,

physicians, other academicians and science writers from various

countries. Members of this group represent different views about the

causation of atherosclerosis and cardiovascular disease, some of

them are in conflict with others, but this is a normal part of

science. What we all oppose is that animal fat and high cholesterol

play a role. The aim with this website is to inform our colleagues

and the public that this idea is not supported by scientific

evidence; in fact, for many years a huge number of scientific

studies have directly contradicted it.

Bee

[Guest guest]

Hi Sandy! Welcome to this awesome board! We are a group of parents

who all love our babies, do the best we can for them, and we are all

dealing with similar situations.

I'm also somewhat new here, too, so there is a lot that I'm still

learning, but I can say for sure that you should definitely get

's x-rays and other medical information sent ASAP to a doctor

that does casting. With the large curve degree in , I'm

absolutely shocked that your current ortho said to wait another 6

months! My daughter was diagnosed at 9 months with a 45o curve and I

didn't even want to wait 1 more month for fear that it would

progress. My daughter also has a " rib deformity " on her curve side. I

am looking forward to getting more information about that, since I

haven't read too much during my research.

I think (and again, I'm new here) that " congenital " means that there

is some type of deformity in the actual vertebrae. If his x-rays

turned out to only show the scoliosis and no other bone deformity,

there still could be other " conditions " (neuromuscular, for example),

but there is also the good chance that it's just " idiopathic " .

Do lots of research...read as much as you can. There are great

documents and information you can find through the " Links "

and " Files " links on the left here. Also, read the stories of the

other kids. It's very helpful to get information from and know that

you're not alone.

If you mention on here where you live, the others may know of a doc

who casts that may be close to you. If not, it's still worth taking

the trip if is considered a good candidate for casting. If

you send 's info to a casting doc, they will look it over and

give you an initial assessment over the phone. They will help to

guide you as to what you should do next. For instance, Dr.

told us that needed to get an MRI and see a neurologist to

rule out any neuromuscular disorders before she can be casted. We're

in Michigan, but will be traveling to PA to see him. There are

wonderful organizations out there who can help to get you there by

plane. Also, our local Shriners has a van/bus that will actually

drive us there for free if we need!

I don't know much at all about bracing or plagiocephaly, but I'm sure

you'll get some others on here with more info. Remember that

infantile scoliosis is quite rare (I think I read somewhere that only

2-3 out of 10,000 babies have it and of those, 80-90% are smaller,

non-progressive curves). This means that many of the orthos out there

haven't dealt with too many cases of progressive infantile scoliosis,

so make sure you talk to a doctor who is very familiar with similar

cases as 's (which a casting doctor would be).

Best of luck to you! Remember that you are doing the best thing that

you can for your sweet baby and that he is still absolutely beautiful

and perfect! You as his parents are the most important advocates for

your baby. Educate yourselves so that the doctors take you seriously

and let you partially " guide " your son's treatment. You can do it!

Remember that time is critical!

Ask us any questions you have...we are all in this together!

~ : )

Mommy to ~ ~ ~ AND

(8/18/06) ~ diagnosed at 9m with 45o curve ~ MRI came

back " normal " ~ scheduled for 1st cast with Dr. on 8/22/07

(Our pics are in the " " album on the last page of the photos)

[Guest guest]

Thanks, .

I failed to mention - he did have an MRI that showed nothing out of

the ordinary. It was " clean " - so, as far as we know. there's nothing

else going on. This is quite an anomaly, from what I understand.

I am looking at my options right now to see what's out there. The

surgeon basically said that he can't/won't do anything this young.

But, I'm concerned enough to want another x-ray to see if we're

progressing or not.

Thanks!

Sandi

[Guest guest]

Thanks, .

I failed to mention - he did have an MRI that showed nothing out of

the ordinary. It was " clean " - so, as far as we know. there's nothing

else going on. This is quite an anomaly, from what I understand.

I am looking at my options right now to see what's out there. The

surgeon basically said that he can't/won't do anything this young.

But, I'm concerned enough to want another x-ray to see if we're

progressing or not.

Thanks!

Sandi

[Guest guest]

Hi Sandi,

I am so thankful you have found this group. They have been a family to my

family through these last years of Moriah's struggles. There is no one in

Kansas. Mo has a rather long story posted on the website. She was prematurely

fused because everyone was scared to be agressive with her scoliosis due to her

heart defect. She endured two halo tractions and now is having success finally

with the VEPTR implants. We went first to Denver, because of her heart. They

were not doing Early Treatment or the VEPTRs at the time. Thanks to and

ISOP we go to San for the VEPTRs. We have always driven wherever we had

to. I can understand your concerns with traveling and childcare, finances. Mo

has a brother we also have never left with anyone else. It has been humbling

and amazing to see how God brought family and members of our church together to

provide what we needed during these trips. We have had donations, people bring

us meals, people let us borrow their

car, friends and family watch her brother, often coming on the trip with us so

we could all still be together. Whenever we thought we weren't going to make it

through the month, we always did. God is faithful. More than we can imagine.

The most important thing is to have seen by a doc who knows what

he/she is doing. If he is not congenital there are things that can be done! 70

degrees infantile is a big deal, but at least a great deal of it should be able

to be reversed. 70 degrees congenital means you get the best correction you

can, put metal in to fight the progression, and hope it doesn't move. Be

hopeful. Pray your eyes out, and move forward. I bet will see your

posts soon and respond. She would know the most about Dr. Sturm and Chicago. I

have only heard good things from her about them. She is swamped at the office

today working on upcoming ETPs.

I will be praying for you and your family. Let me know if you have any more

questions.

Oh, and as a side note. I hope to eventually get Kansas City on board with

Early Treatment. They currently do the VEPTR and can do Halo Traction. I think

it would be beneficial to our mid-west region. Hopefully one day every region

will have several sites practicing Early Treatment. I don't know when the door

will be opened for that when I can go and advocate for it, but I will.

Shellie

" *\\o/* San *\\o/* " wrote:

Shellie,

I asked the same thing - why congenital - they said " because of his

age " which made no sense to me.

Being in Kansas, where did you go?

Thanks

Sandi

---------------------------------

Pinpoint customers who are looking for what you sell.

[Guest guest]

A lady I work with has a son that's forehead started to protrude. It

was because the two plates in his forehead had fused to soon. He was

only a few months old. Now I think he is 6 months maybe. What your

talking about could be sometthing completely different, but I wanted

to mention this. They had to do some type of surgery (MAY BE GRAPHIC)

where they had to pull back his skin on his forehead and opperate on

the bones. She was told that it was very rare.

~

Mother to

a (8YRS)- Super Sister

Chastain (5YRS)- Down Syndrome

Ethan (13MONTHS)- 34 degree (out of cast) 13 degree (in cast)

-- In infantile scoliosis treatment , " madisonskyjaepi "

wrote:

>

> Hi,

> I'm Sandi. My son, , was recently diagnosed with what we're

told is " congenital "

> scoliosis. He has a seventy degree right thoracic curve. He is 11

months old now.

>

> We are being treated at St. Louis Children's Hospital and were

referred to an excellent

> pediatric spinal surgeon here. We had our first consult with him a

couple weeks ago and

> he basically wants to take a wait and see approach. He said there

is a small chance this

> could resolve on its own, but after looking at the deformity of his

ribs, said if he was a

> betting man, he'd guess this will progress. We go back there in

six months.

>

> We were told that it's congenital based on his age (but, from what

I read it sounds more

> like idiopathic early onset). He was braced with a semi-rigid

underarm brace and was

> supposed to wear it 16 hours a day. However, the surgeon said he

doesn't brace before

> two years because the bones have not hardened and it can cause more

malformations than

> do good. When looking at his x-ray, it's clear that he already has

significant bending of

> the ribs on that side and he said to only use the brace 4-6 hours a

day.

>

> He also has plagiocephaly, which we are helmeting for now and is

not going well (for the

> baby - he hates it).

>

> The surgeon wants us to see a geneticist because of the fact that

his forehead is

> " protruding " (ever so slightly from the plagiocephaly). We see

them in September. Any

> speculation on what they might be thinking as far as that is

concerned?

>

> So, that's us - in a nutshell. I keep reading the stories here

(and elsewhere) and

> wondering if plaster casting is even an option with Jack. He seems

so much more severe

> than what I'm reading.

>

> I'd love to hear your input, experience, and opinions. I wish I

could sit down and talk to a

> pro-casting doctor, but I think they're all quite far away.

>

> Thank you

> Sandi

>