Re: ~Remicade & Arava & Prednisone

[Guest guest]

Rainy Sue,

I'm soooo happy for you. Since you're in the mood to clean, come on down, my

house sure could use some help.

How long was it before you noticed any changes when you started Remicade?

Thanks. Tery

[Guest guest]

Rainy Sue:

You and I are neck to neck with our tapering of Prednisone. Tomorrow I will

drop down to 9mg. I went back up to 10mg. for another week or so because I

was not feel very well. I think I am ready now for the next step. We can

taper together ok?

Jeannette

[Guest guest]

Tery:

How did your first Remicade infusion go on Thursday? I was going to ask last

night but it slipped my fog brain. I hope it went well. Tell us all about

it. I am anxious to hear.

Jeannette

[Guest guest]

Wow, Rainy. Even your post sounded way up there! *G* I am just the

opposite right now . Still battling that bursitis - going to bed early

tonight. My sister had her baby this morning so I was up most of the

night with her 2 yo, trying to keep her asleep. Anyway, I am pooped.

Jenna

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[Guest guest]

Great report, Rainy Sue! I'm so happy for your success with Remicade. Keep

up the good work (take it easy on the vacuuming!)!

May I suggest www.chocolate.com?

----- Original Message -----

From: <Rysu19@...>

< egroups>

Sent: Friday, September 22, 2000 7:03 PM

Subject: [ ] ~Remicade & Arava & Prednisone

> Hello Everyone,

>

> I wanted to check in really quick and let you know how I am doing. As you

> know I had my 6th Remicade treatment on Monday, the 18th. Of course, the

next

> day I was feeling it's fantastic effects. Today, however, I feel so

> wonderful! I can't believe it! It's truly amazing. I know some of you will

> remember that awful flare I was going through when I stopped the Arava to

try

> the MTX with the Remicade. You'll remember that as soon as I started the

> Arava again, I was on my way to heaven. I am only taking the Arava every

> other day and when I started back on it, it was only 6 days later, 3

pills,

> and I was headed to heaven. Even though I had such a horrible time with

that

> flare and being sick bcs of the MTX, it was worth it bcs I know for sure

that

> the MTX just isn't my drug and I know for certain that the Arava was

working

> when I wasn't sure it was or not.

>

> I just vacuumed my office and it wasn't so much of a chore as it usually

is.

> Usually I can barely move the vacuum back and forth. Today I was flipping

it

> around here and there, wa-la! I LOVE to clean. I wish I could do it more

> often.

>

> Today I also lowered my Prednisone by 1 mg. I was on 10 mg, I am now down

to

> 9 mg. We'll see how that goes. If I notice a huge change I will take 9 mg

> every other day until I adjust then go 9 mg every day, etc.

>

> BOY, I just can't tell you all how VERY GOOD I FEEL! I want this every

day! I

> will enjoy it today and hope for just as good tomorrow. If not, I will

have

> today to look back on. hehe..

>

> I am truly content today. Now if I had some chocolate. =)

> ~Rainy Sue

[Guest guest]

Rainy Sue,

It is an inspiration to read your post. I wish you many more good

days like that.

Regards,

Sylvia

> Hello Everyone,

>

> I wanted to check in really quick and let you know how I am doing.

As you

> know I had my 6th Remicade treatment on Monday, the 18th. Of

course, the next

> day I was feeling it's fantastic effects. Today, however, I feel so

> wonderful! I can't believe it! It's truly amazing. I know some of

you will

> remember that awful flare I was going through when I stopped the

Arava to try

> the MTX with the Remicade. You'll remember that as soon as I

started the

> Arava again, I was on my way to heaven. I am only taking the Arava

every

> other day and when I started back on it, it was only 6 days later,

3 pills,

> and I was headed to heaven. Even though I had such a horrible time

with that

> flare and being sick bcs of the MTX, it was worth it bcs I know for

sure that

> the MTX just isn't my drug and I know for certain that the Arava

was working

> when I wasn't sure it was or not.

>

> I just vacuumed my office and it wasn't so much of a chore as it

usually is.

> Usually I can barely move the vacuum back and forth. Today I was

flipping it

> around here and there, wa-la! I LOVE to clean. I wish I could do it

more

> often.

>

> Today I also lowered my Prednisone by 1 mg. I was on 10 mg, I am

now down to

> 9 mg. We'll see how that goes. If I notice a huge change I will

take 9 mg

> every other day until I adjust then go 9 mg every day, etc.

>

> BOY, I just can't tell you all how VERY GOOD I FEEL! I want this

every day! I

> will enjoy it today and hope for just as good tomorrow. If not, I

will have

> today to look back on. hehe..

>

> I am truly content today. Now if I had some chocolate. =)

> ~Rainy Sue

[Guest guest]

YIIPPPEEEE Rainy Sue..........hope it continues!!!!

p.s. Mom said you can come here and clean if you would like

~Esther & Carol~

''To get out of a difficulty, one

usually must go through it.''

" Never look down on anybody

unless you are helping them up. "

----- Original Message -----

From: <Rysu19@...>

< egroups>

Sent: Friday, September 22, 2000 8:03 PM

Subject: [ ] ~Remicade & Arava & Prednisone

>

> Hello Everyone,

>

> I wanted to check in really quick and let you know how I am doing. As you

> know I had my 6th Remicade treatment on Monday, the 18th. Of course, the

next

> day I was feeling it's fantastic effects. Today, however, I feel so

> wonderful! I can't believe it! It's truly amazing. I know some of you will

> remember that awful flare I was going through when I stopped the Arava to

try

> the MTX with the Remicade. You'll remember that as soon as I started the

> Arava again, I was on my way to heaven. I am only taking the Arava every

> other day and when I started back on it, it was only 6 days later, 3

pills,

> and I was headed to heaven. Even though I had such a horrible time with

that

> flare and being sick bcs of the MTX, it was worth it bcs I know for sure

that

> the MTX just isn't my drug and I know for certain that the Arava was

working

> when I wasn't sure it was or not.

>

> I just vacuumed my office and it wasn't so much of a chore as it usually

is.

> Usually I can barely move the vacuum back and forth. Today I was flipping

it

> around here and there, wa-la! I LOVE to clean. I wish I could do it more

> often.

>

> Today I also lowered my Prednisone by 1 mg. I was on 10 mg, I am now down

to

> 9 mg. We'll see how that goes. If I notice a huge change I will take 9 mg

> every other day until I adjust then go 9 mg every day, etc.

>

> BOY, I just can't tell you all how VERY GOOD I FEEL! I want this every

day! I

> will enjoy it today and hope for just as good tomorrow. If not, I will

have

> today to look back on. hehe..

>

> I am truly content today. Now if I had some chocolate. =)

> ~Rainy Sue

>

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