Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 No Armour is for life, that's for my Hashi's disease. My doctor is having me stop the adrenal treatment....slowly by weaning off the Cortef. She feels I have had enough time on the medication to allow my adrenals to heal. The adrenals should come back on one I'm off the meds. She said I would only need stress dosing occationally. LaCretia > >WHY??? Are you stopping Armour too??? b/c you are " healed " ? >YEOW >Gracia > > > That's the same I have been doing except at the end I'm on 2.5 mg for >two > > weeks then off! One more week and I'm off! We'll see if I make it >without > > a crisis! > > > > LaCretia > > > > > > > >hi - i have been taking cortef since january. i am going down 5 mg > > >every 2 weeks.... > > > > > >LaCretia Mozingo wrote: > > > > > > > Bev, > > > > How long have you been taking it and what is your reduction >schedule? > > > > > > > > LaCretia > > > > > > > > >hi > > > > > > > > > >i just realized that i made a mistake in the way i stated my dose >of > > > > >cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the > > > > >weaning process nonetheless. i wish it helped me as it seems to >have > > > > >for others. > > > > > > > > > >thanks! > > > > > > > > > >bev wrote: > > > > > > > > > > > Hi LaCretia, > > > > > > After cushings I was on predinsone for a year and the doctor >weaned > > > > > > me off the med. even slower than that ,If recall. It scares >me,, > > >my > > > > > > doctors said I should be scared. > > > > > > take care > > > > > > Bev > > > > > > > > > > > > LaCretia Mozingo <lacretiamo@...> wrote: > > > > > > I don't know how long you have been on this dose but you have to > > >wean > > > > > > very > > > > > > slow. I have been on adrenal treatment for one year under a >doctors > > > > >care > > > > > > and have had a few 's crisis and had to go to the ER. If >you > > > > >wean > > > > > > too fast you could cause yourself to have an 's crisis >even > > > > >though > > > > > > you may not have the full blown disease...you are on the same > > > > > > treatment as a > > > > > > person with 's disease. It's VERY dangerous to just >quite. > > >I > > > > > > have > > > > > > been trying to wean off since Feb. and I was only on 20mg a day > > >total > > > > > > for 1 > > > > > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I >have > > > > > > had two > > > > > > in two weeks and they are not fun! I'm not trying to scare > > > > >anyone...just > > > > > > sharing my expierience. The dose you have been taking I would >say > > >is > > > > > > hurting your adrenals more than helping them. I do hope you are > > > > careful > > > > > > when you wean off. The longer you are on a dose the harder it >is >to > > > > > > get the > > > > > > body's adrenals to come back on. A dose as high as you are >taking > > > > will > > > > > > surpress the adrenals completly and cause them to shrink and >atrophy > > > > >over > > > > > > time. I have been reducing by 5mg every two weeks until the >last > > >5mg > > > > >and > > > > > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > > > > > > > > > LaCretia > > > > > > > > > > > > > > > > > > > >hi lacretia > > > > > > > > > > > > > >i agree! thanks for the input. i will definitely be weaning >off > > > > > > today.... > > > > > > > > > > > > > >LaCretia Mozingo wrote: > > > > > > > > > > > > > > > Shana... > > > > > > > > 20mg 4x a day is WAY too much to take. Folks that have full > > >blown > > > > > > > > 's > > > > > > > > which their adrenals don't work at all only take a max of >30mg > > > > > > total for > > > > > > > > full replacement. Just thought I would tell you that. It's > > >very > > > > > > bad to > > > > > > > > overdose on Cortef...you can actually damage the adrenals >more > > > > > > from over > > > > > > > > medicating. Hope this helps! > > > > > > > > > > > > > > > > Regards, > > > > > > > > LaCretia > > > > > > > > > > > > > > > > > > > > > > > > > >i just want to say that you (and any others that feel they > > > > > > benefit from > > > > > > > > >cortef) are very lucky. i have been on 20 mg (4 times a >day) > > > > since > > > > > > > > >january and feel nothing. i am going to the doc today and > > >insist > > > > > > that > > > > > > >i > > > > > > > > >start weaning off. there is no point to being on a steriod >if > > > > > > there is > > > > > > > > >no apparent positive result! i have thyroid cancer (had a > > >total > > > > > > > > >thryoidectomy), graves antiboidies and have been on thryoid > > > > > > replacement > > > > > > > > >for about 3 years. nothing seems to help! i am still > > > > debilitated - > > > > > > >walk > > > > > > > > >with a cane, can't make it through a day without resting >and > > > > > > sleeping, > > > > > > > > >etc... ugh. > > > > > > > > > > > > > > > > > >thanks from shana > > > > > > > > > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women > > > > take up > > > > >to > > > > > > >50mg > > > > > > > > > > but I > > > > > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it > > >feels > > > > > > > > stronger. > > > > > > > > >I > > > > > > > > > > think on 10mg you will see imrovement with libido! > > > > > > > > > > I don't know why they put some of that stufff in that > > >insert, > > > > >well > > > > > > > > > > actually > > > > > > > > > > if you are too thin you will gain weight on cortef. >Cortef > > > > > > made me > > > > > > > > >feel > > > > > > > > > > hungry and for the first time in a long while craving >and > > > > > > tolerating > > > > > > > > > > carbs. > > > > > > > > > > I just went with it and my appetite settled down after a >few > > > > > > weeks. > > > > > > > > > > After > > > > > > > > > > 1 week on 20mg cortef I suddenly realized I felt >wonderful, > > > > > > >peaceful, > > > > > > > > > > tranquil and strong. After all the years of suffering >and > > > > > > > > struggling, > > > > > > > > >it > > > > > > > > > > was cosmic. > > > > > > > > > > Gracia > > > > > > > > > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to >take > > >some > > > > > > today > > > > > > > > >with > > > > > > > > > > it. > > > > > > > > > > > Only 5mgs to start though..it seems that the jury is >still > > > > > > out as > > > > > > >to > > > > > > > > > > whether > > > > > > > > > > > it > > > > > > > > > > > is really a good idea for women to take it, but you >can't > > > > > > believe > > > > > > > > > > everything > > > > > > > > > > > that you read I guess, and I will start small for >sure. > > > > > > > > > > > I feel like I can use a little testosterone anyway..I >have > > > > > > > > pretty poor > > > > > > > > > > muscle > > > > > > > > > > > tone this year despite exercising when I can, and I >have > > > > > > >absolutely > > > > > > > > >ZERO > > > > > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > > > > > > > > > The only thing about the cortef that concerns me >really > > >was > > > > >the > > > > > > > > >package > > > > > > > > > > > insert that warned about weight gain..at my age I >don't > > >need > > > > > > > > anymore > > > > > > > > >of > > > > > > > > > > that! > > > > > > > > > > > So far the 10mgs has helped me to feel amazingly >better! > > > > > > > > > > > I'm just sorry that I waited so long to give it a >try... > > > > > > > > > > > > > > > > > > > > > > thanks again for all of the info that you have >provided! > > > > > > > > > > > you have been great. > > > > > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Hi LaCretia, A tumor on my left adrenal gland was causing Cushings Syndrome which was literally killing me, so they removed the left adrenal gland. The sugery was in Dec. 1991 and they start you on predisone emediately during surgery and from that time they start weaning you off of it and it takes one year to do that. It's been so long I really can't remember the exact schedule. Just that after he would lower my dose he would monitor me for a period of time to make sure I wasn't going to go into crisis. Each time he would lower it I do remember I would feel worse and worse until I feel like I do now. Not good.! I can't even work. Bev LaCretia Mozingo <lacretiamo@...> wrote: Bev, Sorry to get back to you so late. Did I understand that right...1 year to wean off? What was your weaning schedule like? I'm curious...I'm down to 2.5 now and doing ok this week. Why did they remove your adrenals? It seems that you were on the same treatment but, I didn't understand why they removed them? I have had two crisis in the past 3 wks though. Now I'm having cracked lips which is a sign of low B12 and I'm constantly going to the bathroom... low salt I suspect. I drank a large helping of salt water this morning and it really helped! LaCretia > >Hi LaCretia, >The normal time is one year and that's what the docs. had me do, one year. >I think I might have some insuffiency but the test don't show it. But, I'm >going to have my doc. give me a blood work paper for when I have the >attacks to go into the ER and have them take blood & test it to see if it's >just when I have the attacks. I had one this past weekend, what a doosy it >was, felt like I was going to die. If I would just show up at the ER they >would not test for what I need to be tested for is why I don't even bother >going there now. Boy, I know what you mean about being an adrenal junky, I >used to be to and it has been very hard adjusting to doing not very much at >all. WHEW!!!!!!! I really don't believe I'm adjusted yet & it has been >since 1991 since I had my adrenal gland taken out. > >take care >Bev > >LaCretia Mozingo <lacretiamo@...> wrote: >Bev, >How long did it take to wean off? So far I have been weaning for 3 months. >My health is okay...just can't take any stress right now. It sends me into >an 's crisis. I have had two in the past two weeks and with 1 ER >trip. I am hoping to get through this soon as I am an adrenal junky and >can't do any of the activities I want to do. > >Gracia, >You can say this is misinformation, but I am posting what I have been >through which is a fact of the disease. Please post a link or information >that supports your statement. I'm just sharing with others what I have >gone >through while being on Cortisone treatment. I think it's important to >share >the negatives and the positives. I will say that getting on it improved my >life greatly...just remember that adrenal fatigue is temporary and at some >point you have to wean off of it. This process can make one quite sick >very >suddenly if you encounter stress during your weaning period. If you don't >catch it early enough after you expierience stress...you can going into an >'s crisis. I do hope that in the end, my adrenals come back on and >work properly. We just don't know yet if they will. > >Thanks! > >LaCretia > > > > > > >misinformation with tragic consequences. How's your health now? Good? > >Gracia > > > > > Hi LaCretia, > > > After cushings I was on predinsone for a year and the doctor weaned >me > >off the med. even slower than that ,If recall. It scares me,, my >doctors > >said I should be scared. > > > take care > > > Bev > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Bev, That would mean you have 's disease now no? How much steroid replacement are you taking? I've heard of cushings being caused by a pituitary tumor but, not by the adrenals. Can you explain more about what they found your adrenals to be doing? I find this intersting Hope you don't mind me probing you like I am. It's always nice to understand all aspects of the endocrine... cushings, addison's...all I have to run home now...leaving work so, it will take me about hour before you will see me back online. Take care LaCretia >Hi LaCretia, >A tumor on my left adrenal gland was causing Cushings Syndrome which was >literally killing me, so they removed the left adrenal gland. The sugery >was in Dec. 1991 and they start you on predisone emediately during surgery >and from that time they start weaning you off of it and it takes one year >to do that. It's been so long I really can't remember the exact schedule. >Just that after he would lower my dose he would monitor me for a period of >time to make sure I wasn't going to go into crisis. Each time he would >lower it I do remember I would feel worse and worse until I feel like I do >now. Not good.! I can't even work. >Bev > >LaCretia Mozingo <lacretiamo@...> wrote: >Bev, >Sorry to get back to you so late. Did I understand that right...1 year to >wean off? What was your weaning schedule like? I'm curious...I'm down to >2.5 now and doing ok this week. Why did they remove your adrenals? It >seems that you were on the same treatment but, I didn't understand why they >removed them? I have had two crisis in the past 3 wks though. Now I'm >having cracked lips which is a sign of low B12 and I'm constantly going to >the bathroom... low salt I suspect. I drank a large helping of salt water >this morning and it really helped! > >LaCretia > > > > >Hi LaCretia, > >The normal time is one year and that's what the docs. had me do, one >year. > >I think I might have some insuffiency but the test don't show it. But, >I'm > >going to have my doc. give me a blood work paper for when I have the > >attacks to go into the ER and have them take blood & test it to see if >it's > >just when I have the attacks. I had one this past weekend, what a doosy >it > >was, felt like I was going to die. If I would just show up at the ER they > >would not test for what I need to be tested for is why I don't even >bother > >going there now. Boy, I know what you mean about being an adrenal junky, >I > >used to be to and it has been very hard adjusting to doing not very much >at > >all. WHEW!!!!!!! I really don't believe I'm adjusted yet & it has been > >since 1991 since I had my adrenal gland taken out. > > > >take care > >Bev > > > >LaCretia Mozingo <lacretiamo@...> wrote: > >Bev, > >How long did it take to wean off? So far I have been weaning for 3 >months. > >My health is okay...just can't take any stress right now. It sends me >into > >an 's crisis. I have had two in the past two weeks and with 1 ER > >trip. I am hoping to get through this soon as I am an adrenal junky and > >can't do any of the activities I want to do. > > > >Gracia, > >You can say this is misinformation, but I am posting what I have been > >through which is a fact of the disease. Please post a link or >information > >that supports your statement. I'm just sharing with others what I have > >gone > >through while being on Cortisone treatment. I think it's important to > >share > >the negatives and the positives. I will say that getting on it improved >my > >life greatly...just remember that adrenal fatigue is temporary and at >some > >point you have to wean off of it. This process can make one quite sick > >very > >suddenly if you encounter stress during your weaning period. If you >don't > >catch it early enough after you expierience stress...you can going into >an > >'s crisis. I do hope that in the end, my adrenals come back on >and > >work properly. We just don't know yet if they will. > > > >Thanks! > > > >LaCretia > > > > > > > > > > >misinformation with tragic consequences. How's your health now? >Good? > > >Gracia > > > > > > > Hi LaCretia, > > > > After cushings I was on predinsone for a year and the doctor weaned > >me > > >off the med. even slower than that ,If recall. It scares me,, my > >doctors > > >said I should be scared. > > > > take care > > > > Bev > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 LaCretia, I still have one adrenal. The docs. seem to think I'm doing fine,(I don't) My test come back just a little low, so they don't give me replacement meds. Just synthyroid for hypo. I'm tryingj to find a doc. to test for when I have episodes , but haven't been successful yet with any kind of testing I think I need, like the Free T3. I still looking for the right doc. So, I'm in limbo feeling nasty all of time. Yes, you're right about the pituitary, but it's called cushings disease and with adrenals it called cushing syndrome. LaCretia Mozingo <lacretiamo@...> wrote: Bev, That would mean you have 's disease now no? How much steroid replacement are you taking? I've heard of cushings being caused by a pituitary tumor but, not by the adrenals. Can you explain more about what they found your adrenals to be doing? I find this intersting Hope you don't mind me probing you like I am. It's always nice to understand all aspects of the endocrine... cushings, addison's...all I have to run home now...leaving work so, it will take me about hour before you will see me back online. Take care LaCretia >Hi LaCretia, >A tumor on my left adrenal gland was causing Cushings Syndrome which was >literally killing me, so they removed the left adrenal gland. The sugery >was in Dec. 1991 and they start you on predisone emediately during surgery >and from that time they start weaning you off of it and it takes one year >to do that. It's been so long I really can't remember the exact schedule. >Just that after he would lower my dose he would monitor me for a period of >time to make sure I wasn't going to go into crisis. Each time he would >lower it I do remember I would feel worse and worse until I feel like I do >now. Not good.! I can't even work. >Bev > >LaCretia Mozingo <lacretiamo@...> wrote: >Bev, >Sorry to get back to you so late. Did I understand that right...1 year to >wean off? What was your weaning schedule like? I'm curious...I'm down to >2.5 now and doing ok this week. Why did they remove your adrenals? It >seems that you were on the same treatment but, I didn't understand why they >removed them? I have had two crisis in the past 3 wks though. Now I'm >having cracked lips which is a sign of low B12 and I'm constantly going to >the bathroom... low salt I suspect. I drank a large helping of salt water >this morning and it really helped! > >LaCretia > > > > >Hi LaCretia, > >The normal time is one year and that's what the docs. had me do, one >year. > >I think I might have some insuffiency but the test don't show it. But, >I'm > >going to have my doc. give me a blood work paper for when I have the > >attacks to go into the ER and have them take blood & test it to see if >it's > >just when I have the attacks. I had one this past weekend, what a doosy >it > >was, felt like I was going to die. If I would just show up at the ER they > >would not test for what I need to be tested for is why I don't even >bother > >going there now. Boy, I know what you mean about being an adrenal junky, >I > >used to be to and it has been very hard adjusting to doing not very much >at > >all. WHEW!!!!!!! I really don't believe I'm adjusted yet & it has been > >since 1991 since I had my adrenal gland taken out. > > > >take care > >Bev > > > >LaCretia Mozingo <lacretiamo@...> wrote: > >Bev, > >How long did it take to wean off? So far I have been weaning for 3 >months. > >My health is okay...just can't take any stress right now. It sends me >into > >an 's crisis. I have had two in the past two weeks and with 1 ER > >trip. I am hoping to get through this soon as I am an adrenal junky and > >can't do any of the activities I want to do. > > > >Gracia, > >You can say this is misinformation, but I am posting what I have been > >through which is a fact of the disease. Please post a link or >information > >that supports your statement. I'm just sharing with others what I have > >gone > >through while being on Cortisone treatment. I think it's important to > >share > >the negatives and the positives. I will say that getting on it improved >my > >life greatly...just remember that adrenal fatigue is temporary and at >some > >point you have to wean off of it. This process can make one quite sick > >very > >suddenly if you encounter stress during your weaning period. If you >don't > >catch it early enough after you expierience stress...you can going into >an > >'s crisis. I do hope that in the end, my adrenals come back on >and > >work properly. We just don't know yet if they will. > > > >Thanks! > > > >LaCretia > > > > > > > > > > >misinformation with tragic consequences. How's your health now? >Good? > > >Gracia > > > > > > > Hi LaCretia, > > > > After cushings I was on predinsone for a year and the doctor weaned > >me > > >off the med. even slower than that ,If recall. It scares me,, my > >doctors > > >said I should be scared. > > > > take care > > > > Bev > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 you do no need more testing, you need a brighter doc or you will end up dead. Gracia > LaCretia, > I still have one adrenal. The docs. seem to think I'm doing fine,(I don't) My test come back just a little low, so they don't give me replacement meds. Just synthyroid for hypo. I'm tryingj to find a doc. to test for when I have episodes , but haven't been successful yet with any kind of testing I think I need, like the Free T3. I still looking for the right doc. So, I'm in limbo feeling nasty all of time. Yes, you're right about the pituitary, but it's called cushings disease and with adrenals it called cushing syndrome. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 What do they measure to see it's low? Cortisol by blood? If so, how low were you? I have times where I was just at the low end and I mean the very low end of the range and felt like poop. Just curious how low... LaCretia > >LaCretia, >I still have one adrenal. The docs. seem to think I'm doing fine,(I don't) > My test come back just a little low, so they don't give me replacement >meds. Just synthyroid for hypo. I'm tryingj to find a doc. to test for >when I have episodes , but haven't been successful yet with any kind of >testing I think I need, like the Free T3. I still looking for the right >doc. So, I'm in limbo feeling nasty all of time. Yes, you're right about >the pituitary, but it's called cushings disease and with adrenals it called >cushing syndrome. > >LaCretia Mozingo <lacretiamo@...> wrote: >Bev, >That would mean you have 's disease now no? How much steroid >replacement are you taking? I've heard of cushings being caused by a >pituitary tumor but, not by the adrenals. Can you explain more about what >they found your adrenals to be doing? I find this intersting Hope you >don't mind me probing you like I am. It's always nice to understand all >aspects of the endocrine... cushings, addison's...all I have to run >home >now...leaving work so, it will take me about hour before you will see me >back online. Take care > >LaCretia > > >Hi LaCretia, > >A tumor on my left adrenal gland was causing Cushings Syndrome which was > >literally killing me, so they removed the left adrenal gland. The sugery > >was in Dec. 1991 and they start you on predisone emediately during >surgery > >and from that time they start weaning you off of it and it takes one year > >to do that. It's been so long I really can't remember the exact >schedule. > >Just that after he would lower my dose he would monitor me for a period >of > >time to make sure I wasn't going to go into crisis. Each time he would > >lower it I do remember I would feel worse and worse until I feel like I >do > >now. Not good.! I can't even work. > >Bev > > > >LaCretia Mozingo <lacretiamo@...> wrote: > >Bev, > >Sorry to get back to you so late. Did I understand that right...1 year >to > >wean off? What was your weaning schedule like? I'm curious...I'm down >to > >2.5 now and doing ok this week. Why did they remove your adrenals? It > >seems that you were on the same treatment but, I didn't understand why >they > >removed them? I have had two crisis in the past 3 wks though. Now I'm > >having cracked lips which is a sign of low B12 and I'm constantly going >to > >the bathroom... low salt I suspect. I drank a large helping of salt >water > >this morning and it really helped! > > > >LaCretia > > > > > > > >Hi LaCretia, > > >The normal time is one year and that's what the docs. had me do, one > >year. > > >I think I might have some insuffiency but the test don't show it. But, > >I'm > > >going to have my doc. give me a blood work paper for when I have the > > >attacks to go into the ER and have them take blood & test it to see if > >it's > > >just when I have the attacks. I had one this past weekend, what a doosy > >it > > >was, felt like I was going to die. If I would just show up at the ER >they > > >would not test for what I need to be tested for is why I don't even > >bother > > >going there now. Boy, I know what you mean about being an adrenal >junky, > >I > > >used to be to and it has been very hard adjusting to doing not very >much > >at > > >all. WHEW!!!!!!! I really don't believe I'm adjusted yet & it has been > > >since 1991 since I had my adrenal gland taken out. > > > > > >take care > > >Bev > > > > > >LaCretia Mozingo <lacretiamo@...> wrote: > > >Bev, > > >How long did it take to wean off? So far I have been weaning for 3 > >months. > > >My health is okay...just can't take any stress right now. It sends me > >into > > >an 's crisis. I have had two in the past two weeks and with 1 >ER > > >trip. I am hoping to get through this soon as I am an adrenal junky >and > > >can't do any of the activities I want to do. > > > > > >Gracia, > > >You can say this is misinformation, but I am posting what I have been > > >through which is a fact of the disease. Please post a link or > >information > > >that supports your statement. I'm just sharing with others what I have > > >gone > > >through while being on Cortisone treatment. I think it's important to > > >share > > >the negatives and the positives. I will say that getting on it >improved > >my > > >life greatly...just remember that adrenal fatigue is temporary and at > >some > > >point you have to wean off of it. This process can make one quite sick > > >very > > >suddenly if you encounter stress during your weaning period. If you > >don't > > >catch it early enough after you expierience stress...you can going into > >an > > >'s crisis. I do hope that in the end, my adrenals come back on > >and > > >work properly. We just don't know yet if they will. > > > > > >Thanks! > > > > > >LaCretia > > > > > > > > > > > > > > >misinformation with tragic consequences. How's your health now? > >Good? > > > >Gracia > > > > > > > > > Hi LaCretia, > > > > > After cushings I was on predinsone for a year and the doctor >weaned > > >me > > > >off the med. even slower than that ,If recall. It scares me,, my > > >doctors > > > >said I should be scared. > > > > > take care > > > > > Bev > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 HI LaCretia, They drew blood. The am low was 5.90 and the AM normal range is (10.4 -26.4) Have any thoughts on this? Bev LaCretia Mozingo <lacretiamo@...> wrote: What do they measure to see it's low? Cortisol by blood? If so, how low were you? I have times where I was just at the low end and I mean the very low end of the range and felt like poop. Just curious how low... LaCretia > >LaCretia, >I still have one adrenal. The docs. seem to think I'm doing fine,(I don't) > My test come back just a little low, so they don't give me replacement >meds. Just synthyroid for hypo. I'm tryingj to find a doc. to test for >when I have episodes , but haven't been successful yet with any kind of >testing I think I need, like the Free T3. I still looking for the right >doc. So, I'm in limbo feeling nasty all of time. Yes, you're right about >the pituitary, but it's called cushings disease and with adrenals it called >cushing syndrome. > >LaCretia Mozingo <lacretiamo@...> wrote: >Bev, >That would mean you have 's disease now no? How much steroid >replacement are you taking? I've heard of cushings being caused by a >pituitary tumor but, not by the adrenals. Can you explain more about what >they found your adrenals to be doing? I find this intersting Hope you >don't mind me probing you like I am. It's always nice to understand all >aspects of the endocrine... cushings, addison's...all I have to run >home >now...leaving work so, it will take me about hour before you will see me >back online. Take care > >LaCretia > > >Hi LaCretia, > >A tumor on my left adrenal gland was causing Cushings Syndrome which was > >literally killing me, so they removed the left adrenal gland. The sugery > >was in Dec. 1991 and they start you on predisone emediately during >surgery > >and from that time they start weaning you off of it and it takes one year > >to do that. It's been so long I really can't remember the exact >schedule. > >Just that after he would lower my dose he would monitor me for a period >of > >time to make sure I wasn't going to go into crisis. Each time he would > >lower it I do remember I would feel worse and worse until I feel like I >do > >now. Not good.! I can't even work. > >Bev > > > >LaCretia Mozingo <lacretiamo@...> wrote: > >Bev, > >Sorry to get back to you so late. Did I understand that right...1 year >to > >wean off? What was your weaning schedule like? I'm curious...I'm down >to > >2.5 now and doing ok this week. Why did they remove your adrenals? It > >seems that you were on the same treatment but, I didn't understand why >they > >removed them? I have had two crisis in the past 3 wks though. Now I'm > >having cracked lips which is a sign of low B12 and I'm constantly going >to > >the bathroom... low salt I suspect. I drank a large helping of salt >water > >this morning and it really helped! > > > >LaCretia > > > > > > > >Hi LaCretia, > > >The normal time is one year and that's what the docs. had me do, one > >year. > > >I think I might have some insuffiency but the test don't show it. But, > >I'm > > >going to have my doc. give me a blood work paper for when I have the > > >attacks to go into the ER and have them take blood & test it to see if > >it's > > >just when I have the attacks. I had one this past weekend, what a doosy > >it > > >was, felt like I was going to die. If I would just show up at the ER >they > > >would not test for what I need to be tested for is why I don't even > >bother > > >going there now. Boy, I know what you mean about being an adrenal >junky, > >I > > >used to be to and it has been very hard adjusting to doing not very >much > >at > > >all. WHEW!!!!!!! I really don't believe I'm adjusted yet & it has been > > >since 1991 since I had my adrenal gland taken out. > > > > > >take care > > >Bev > > > > > >LaCretia Mozingo <lacretiamo@...> wrote: > > >Bev, > > >How long did it take to wean off? So far I have been weaning for 3 > >months. > > >My health is okay...just can't take any stress right now. It sends me > >into > > >an 's crisis. I have had two in the past two weeks and with 1 >ER > > >trip. I am hoping to get through this soon as I am an adrenal junky >and > > >can't do any of the activities I want to do. > > > > > >Gracia, > > >You can say this is misinformation, but I am posting what I have been > > >through which is a fact of the disease. Please post a link or > >information > > >that supports your statement. I'm just sharing with others what I have > > >gone > > >through while being on Cortisone treatment. I think it's important to > > >share > > >the negatives and the positives. I will say that getting on it >improved > >my > > >life greatly...just remember that adrenal fatigue is temporary and at > >some > > >point you have to wean off of it. This process can make one quite sick > > >very > > >suddenly if you encounter stress during your weaning period. If you > >don't > > >catch it early enough after you expierience stress...you can going into > >an > > >'s crisis. I do hope that in the end, my adrenals come back on > >and > > >work properly. We just don't know yet if they will. > > > > > >Thanks! > > > > > >LaCretia > > > > > > > > > > > > > > >misinformation with tragic consequences. How's your health now? > >Good? > > > >Gracia > > > > > > > > > Hi LaCretia, > > > > > After cushings I was on predinsone for a year and the doctor >weaned > > >me > > > >off the med. even slower than that ,If recall. It scares me,, my > > >doctors > > > >said I should be scared. > > > > > take care > > > > > Bev > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 Do YOU have any thoughts on this??????? What does this tell YOU?????? Remember these blood tests are very inaccurate. Usually people are told they are normal when they are very sick. so to fail one of these tests you have to be very sick. What does this say about the quality of care you are receiving???? Gracia > HI LaCretia, > They drew blood. The am low was 5.90 and the AM normal range is (10.4 -26.4) Have any thoughts on this? > Bev > > Quote Link to comment Share on other sites More sharing options...
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