Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 hi lacretia i agree! thanks for the input. i will definitely be weaning off today.... LaCretia Mozingo wrote: > Shana... > 20mg 4x a day is WAY too much to take. Folks that have full blown > 's > which their adrenals don't work at all only take a max of 30mg total for > full replacement. Just thought I would tell you that. It's very bad to > overdose on Cortef...you can actually damage the adrenals more from over > medicating. Hope this helps! > > Regards, > LaCretia > > > > >i just want to say that you (and any others that feel they benefit from > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > >january and feel nothing. i am going to the doc today and insist that i > >start weaning off. there is no point to being on a steriod if there is > >no apparent positive result! i have thyroid cancer (had a total > >thryoidectomy), graves antiboidies and have been on thryoid replacement > >for about 3 years. nothing seems to help! i am still debilitated - walk > >with a cane, can't make it through a day without resting and sleeping, > >etc... ugh. > > > >thanks from shana > > > >Gracia wrote: > > > > > > > > DHEA is really marvelous for immune issues, some women take up to 50mg > > > but I > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > stronger. > >I > > > think on 10mg you will see imrovement with libido! > > > I don't know why they put some of that stufff in that insert, well > > > actually > > > if you are too thin you will gain weight on cortef. Cortef made me > >feel > > > hungry and for the first time in a long while craving and tolerating > > > carbs. > > > I just went with it and my appetite settled down after a few weeks. > > > After > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, peaceful, > > > tranquil and strong. After all the years of suffering and > struggling, > >it > > > was cosmic. > > > Gracia > > > > > > > Yes I have been reading about DHEA, and started to take some today > >with > > > it. > > > > Only 5mgs to start though..it seems that the jury is still out as to > > > whether > > > > it > > > > is really a good idea for women to take it, but you can't believe > > > everything > > > > that you read I guess, and I will start small for sure. > > > > I feel like I can use a little testosterone anyway..I have > pretty poor > > > muscle > > > > tone this year despite exercising when I can, and I have absolutely > >ZERO > > > > libido. (that has been a major issue in my house) > > > > > > > > The only thing about the cortef that concerns me really was the > >package > > > > insert that warned about weight gain..at my age I don't need > anymore > >of > > > that! > > > > So far the 10mgs has helped me to feel amazingly better! > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > thanks again for all of the info that you have provided! > > > > you have been great. > > > > christina. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 I don't know how long you have been on this dose but you have to wean very slow. I have been on adrenal treatment for one year under a doctors care and have had a few 's crisis and had to go to the ER. If you wean too fast you could cause yourself to have an 's crisis even though you may not have the full blown disease...you are on the same treatment as a person with 's disease. It's VERY dangerous to just quite. I have been trying to wean off since Feb. and I was only on 20mg a day total for 1 year. Each time I get to 5mg to 2.5mg I got into a crisis. I have had two in two weeks and they are not fun! I'm not trying to scare anyone...just sharing my expierience. The dose you have been taking I would say is hurting your adrenals more than helping them. I do hope you are careful when you wean off. The longer you are on a dose the harder it is to get the body's adrenals to come back on. A dose as high as you are taking will surpress the adrenals completly and cause them to shrink and atrophy over time. I have been reducing by 5mg every two weeks until the last 5mg and then you go to 2.5 for two weeks until weaned. Hope this helps! LaCretia > >hi lacretia > >i agree! thanks for the input. i will definitely be weaning off today.... > >LaCretia Mozingo wrote: > > > Shana... > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > 's > > which their adrenals don't work at all only take a max of 30mg total for > > full replacement. Just thought I would tell you that. It's very bad to > > overdose on Cortef...you can actually damage the adrenals more from over > > medicating. Hope this helps! > > > > Regards, > > LaCretia > > > > > > > >i just want to say that you (and any others that feel they benefit from > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > >january and feel nothing. i am going to the doc today and insist that >i > > >start weaning off. there is no point to being on a steriod if there is > > >no apparent positive result! i have thyroid cancer (had a total > > >thryoidectomy), graves antiboidies and have been on thryoid replacement > > >for about 3 years. nothing seems to help! i am still debilitated - >walk > > >with a cane, can't make it through a day without resting and sleeping, > > >etc... ugh. > > > > > >thanks from shana > > > > > >Gracia wrote: > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up to >50mg > > > > but I > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > stronger. > > >I > > > > think on 10mg you will see imrovement with libido! > > > > I don't know why they put some of that stufff in that insert, well > > > > actually > > > > if you are too thin you will gain weight on cortef. Cortef made me > > >feel > > > > hungry and for the first time in a long while craving and tolerating > > > > carbs. > > > > I just went with it and my appetite settled down after a few weeks. > > > > After > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, >peaceful, > > > > tranquil and strong. After all the years of suffering and > > struggling, > > >it > > > > was cosmic. > > > > Gracia > > > > > > > > > Yes I have been reading about DHEA, and started to take some today > > >with > > > > it. > > > > > Only 5mgs to start though..it seems that the jury is still out as >to > > > > whether > > > > > it > > > > > is really a good idea for women to take it, but you can't believe > > > > everything > > > > > that you read I guess, and I will start small for sure. > > > > > I feel like I can use a little testosterone anyway..I have > > pretty poor > > > > muscle > > > > > tone this year despite exercising when I can, and I have >absolutely > > >ZERO > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > The only thing about the cortef that concerns me really was the > > >package > > > > > insert that warned about weight gain..at my age I don't need > > anymore > > >of > > > > that! > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > you have been great. > > > > > christina. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 LaCretia, What are the symptoms of an crisis? Val Re: adrenal support/Shana > I don't know how long you have been on this dose but you have to wean very > slow. I have been on adrenal treatment for one year under a doctors care > and have had a few 's crisis and had to go to the ER. If you wean > too fast you could cause yourself to have an 's crisis even though > you may not have the full blown disease...you are on the same treatment as a > person with 's disease. It's VERY dangerous to just quite. I have > been trying to wean off since Feb. and I was only on 20mg a day total for 1 > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have had two > in two weeks and they are not fun! I'm not trying to scare anyone...just > sharing my expierience. The dose you have been taking I would say is > hurting your adrenals more than helping them. I do hope you are careful > when you wean off. The longer you are on a dose the harder it is to get the > body's adrenals to come back on. A dose as high as you are taking will > surpress the adrenals completly and cause them to shrink and atrophy over > time. I have been reducing by 5mg every two weeks until the last 5mg and > then you go to 2.5 for two weeks until weaned. Hope this helps! > > LaCretia > > > > >hi lacretia > > > >i agree! thanks for the input. i will definitely be weaning off today.... > > > >LaCretia Mozingo wrote: > > > > > Shana... > > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > > 's > > > which their adrenals don't work at all only take a max of 30mg total for > > > full replacement. Just thought I would tell you that. It's very bad to > > > overdose on Cortef...you can actually damage the adrenals more from over > > > medicating. Hope this helps! > > > > > > Regards, > > > LaCretia > > > > > > > > > > >i just want to say that you (and any others that feel they benefit from > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > > >january and feel nothing. i am going to the doc today and insist that > >i > > > >start weaning off. there is no point to being on a steriod if there is > > > >no apparent positive result! i have thyroid cancer (had a total > > > >thryoidectomy), graves antiboidies and have been on thryoid replacement > > > >for about 3 years. nothing seems to help! i am still debilitated - > >walk > > > >with a cane, can't make it through a day without resting and sleeping, > > > >etc... ugh. > > > > > > > >thanks from shana > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up to > >50mg > > > > > but I > > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > > stronger. > > > >I > > > > > think on 10mg you will see imrovement with libido! > > > > > I don't know why they put some of that stufff in that insert, well > > > > > actually > > > > > if you are too thin you will gain weight on cortef. Cortef made me > > > >feel > > > > > hungry and for the first time in a long while craving and tolerating > > > > > carbs. > > > > > I just went with it and my appetite settled down after a few weeks. > > > > > After > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > >peaceful, > > > > > tranquil and strong. After all the years of suffering and > > > struggling, > > > >it > > > > > was cosmic. > > > > > Gracia > > > > > > > > > > > Yes I have been reading about DHEA, and started to take some today > > > >with > > > > > it. > > > > > > Only 5mgs to start though..it seems that the jury is still out as > >to > > > > > whether > > > > > > it > > > > > > is really a good idea for women to take it, but you can't believe > > > > > everything > > > > > > that you read I guess, and I will start small for sure. > > > > > > I feel like I can use a little testosterone anyway..I have > > > pretty poor > > > > > muscle > > > > > > tone this year despite exercising when I can, and I have > >absolutely > > > >ZERO > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > The only thing about the cortef that concerns me really was the > > > >package > > > > > > insert that warned about weight gain..at my age I don't need > > > anymore > > > >of > > > > > that! > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > you have been great. > > > > > > christina. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Hi LaCretia, After cushings I was on predinsone for a year and the doctor weaned me off the med. even slower than that ,If recall. It scares me,, my doctors said I should be scared. take care Bev LaCretia Mozingo <lacretiamo@...> wrote: I don't know how long you have been on this dose but you have to wean very slow. I have been on adrenal treatment for one year under a doctors care and have had a few 's crisis and had to go to the ER. If you wean too fast you could cause yourself to have an 's crisis even though you may not have the full blown disease...you are on the same treatment as a person with 's disease. It's VERY dangerous to just quite. I have been trying to wean off since Feb. and I was only on 20mg a day total for 1 year. Each time I get to 5mg to 2.5mg I got into a crisis. I have had two in two weeks and they are not fun! I'm not trying to scare anyone...just sharing my expierience. The dose you have been taking I would say is hurting your adrenals more than helping them. I do hope you are careful when you wean off. The longer you are on a dose the harder it is to get the body's adrenals to come back on. A dose as high as you are taking will surpress the adrenals completly and cause them to shrink and atrophy over time. I have been reducing by 5mg every two weeks until the last 5mg and then you go to 2.5 for two weeks until weaned. Hope this helps! LaCretia > >hi lacretia > >i agree! thanks for the input. i will definitely be weaning off today.... > >LaCretia Mozingo wrote: > > > Shana... > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > 's > > which their adrenals don't work at all only take a max of 30mg total for > > full replacement. Just thought I would tell you that. It's very bad to > > overdose on Cortef...you can actually damage the adrenals more from over > > medicating. Hope this helps! > > > > Regards, > > LaCretia > > > > > > > >i just want to say that you (and any others that feel they benefit from > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > >january and feel nothing. i am going to the doc today and insist that >i > > >start weaning off. there is no point to being on a steriod if there is > > >no apparent positive result! i have thyroid cancer (had a total > > >thryoidectomy), graves antiboidies and have been on thryoid replacement > > >for about 3 years. nothing seems to help! i am still debilitated - >walk > > >with a cane, can't make it through a day without resting and sleeping, > > >etc... ugh. > > > > > >thanks from shana > > > > > >Gracia wrote: > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up to >50mg > > > > but I > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > stronger. > > >I > > > > think on 10mg you will see imrovement with libido! > > > > I don't know why they put some of that stufff in that insert, well > > > > actually > > > > if you are too thin you will gain weight on cortef. Cortef made me > > >feel > > > > hungry and for the first time in a long while craving and tolerating > > > > carbs. > > > > I just went with it and my appetite settled down after a few weeks. > > > > After > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, >peaceful, > > > > tranquil and strong. After all the years of suffering and > > struggling, > > >it > > > > was cosmic. > > > > Gracia > > > > > > > > > Yes I have been reading about DHEA, and started to take some today > > >with > > > > it. > > > > > Only 5mgs to start though..it seems that the jury is still out as >to > > > > whether > > > > > it > > > > > is really a good idea for women to take it, but you can't believe > > > > everything > > > > > that you read I guess, and I will start small for sure. > > > > > I feel like I can use a little testosterone anyway..I have > > pretty poor > > > > muscle > > > > > tone this year despite exercising when I can, and I have >absolutely > > >ZERO > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > The only thing about the cortef that concerns me really was the > > >package > > > > > insert that warned about weight gain..at my age I don't need > > anymore > > >of > > > > that! > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > you have been great. > > > > > christina. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 misinformation with tragic consequences. How's your health now? Good? Gracia > Hi LaCretia, > After cushings I was on predinsone for a year and the doctor weaned me off the med. even slower than that ,If recall. It scares me,, my doctors said I should be scared. > take care > Bev > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Bev, How long did it take to wean off? So far I have been weaning for 3 months. My health is okay...just can't take any stress right now. It sends me into an 's crisis. I have had two in the past two weeks and with 1 ER trip. I am hoping to get through this soon as I am an adrenal junky and can't do any of the activities I want to do. Gracia, You can say this is misinformation, but I am posting what I have been through which is a fact of the disease. Please post a link or information that supports your statement. I'm just sharing with others what I have gone through while being on Cortisone treatment. I think it's important to share the negatives and the positives. I will say that getting on it improved my life greatly...just remember that adrenal fatigue is temporary and at some point you have to wean off of it. This process can make one quite sick very suddenly if you encounter stress during your weaning period. If you don't catch it early enough after you expierience stress...you can going into an 's crisis. I do hope that in the end, my adrenals come back on and work properly. We just don't know yet if they will. Thanks! LaCretia > > >misinformation with tragic consequences. How's your health now? Good? >Gracia > > > Hi LaCretia, > > After cushings I was on predinsone for a year and the doctor weaned me >off the med. even slower than that ,If recall. It scares me,, my doctors >said I should be scared. > > take care > > Bev > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Symptoms may include nausea and/or vomiting, dizziness and confusion often accompanied by low blood pressure, drowsiness eventually progressing to coma, and severe headache akin to migraine. The patient may also complain of extreme weakness, bodily pain and/or tenderness, and of feeling feverish, & may be found to have tachycardia (fast heart rate), bradycardia (slow heart rate), or an irregular heart rate (palpitations). My last crisis...I felt like I had the flu very suddenly...throwing up, diarrhea, internal shaking, severe muscle weakness to the point I felt I could not walk, labored breathing. What was interesting was my blood pressure started dropping and then suddenly went VERY high...150/90 (this is when I left work for the ER)...it was 115/80 something earlier that morning.... Within mintues of getting a Cortisone shot, I started getting relief... in an hour, I felt normal again. LaCretia >LaCretia, > >What are the symptoms of an crisis? > >Val > Re: adrenal support/Shana > > > > I don't know how long you have been on this dose but you have to wean >very > > slow. I have been on adrenal treatment for one year under a doctors >care > > and have had a few 's crisis and had to go to the ER. If you >wean > > too fast you could cause yourself to have an 's crisis even >though > > you may not have the full blown disease...you are on the same treatment >as >a > > person with 's disease. It's VERY dangerous to just quite. I >have > > been trying to wean off since Feb. and I was only on 20mg a day total >for >1 > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have had >two > > in two weeks and they are not fun! I'm not trying to scare >anyone...just > > sharing my expierience. The dose you have been taking I would say is > > hurting your adrenals more than helping them. I do hope you are careful > > when you wean off. The longer you are on a dose the harder it is to get >the > > body's adrenals to come back on. A dose as high as you are taking will > > surpress the adrenals completly and cause them to shrink and atrophy >over > > time. I have been reducing by 5mg every two weeks until the last 5mg >and > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > LaCretia > > > > > > > >hi lacretia > > > > > >i agree! thanks for the input. i will definitely be weaning off >today.... > > > > > >LaCretia Mozingo wrote: > > > > > > > Shana... > > > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > > > 's > > > > which their adrenals don't work at all only take a max of 30mg total >for > > > > full replacement. Just thought I would tell you that. It's very >bad >to > > > > overdose on Cortef...you can actually damage the adrenals more from >over > > > > medicating. Hope this helps! > > > > > > > > Regards, > > > > LaCretia > > > > > > > > > > > > > >i just want to say that you (and any others that feel they benefit >from > > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > > > >january and feel nothing. i am going to the doc today and insist >that > > >i > > > > >start weaning off. there is no point to being on a steriod if >there >is > > > > >no apparent positive result! i have thyroid cancer (had a total > > > > >thryoidectomy), graves antiboidies and have been on thryoid >replacement > > > > >for about 3 years. nothing seems to help! i am still debilitated - > > >walk > > > > >with a cane, can't make it through a day without resting and >sleeping, > > > > >etc... ugh. > > > > > > > > > >thanks from shana > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up >to > > >50mg > > > > > > but I > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > > > stronger. > > > > >I > > > > > > think on 10mg you will see imrovement with libido! > > > > > > I don't know why they put some of that stufff in that insert, >well > > > > > > actually > > > > > > if you are too thin you will gain weight on cortef. Cortef >made >me > > > > >feel > > > > > > hungry and for the first time in a long while craving and >tolerating > > > > > > carbs. > > > > > > I just went with it and my appetite settled down after a few >weeks. > > > > > > After > > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > > >peaceful, > > > > > > tranquil and strong. After all the years of suffering and > > > > struggling, > > > > >it > > > > > > was cosmic. > > > > > > Gracia > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to take some >today > > > > >with > > > > > > it. > > > > > > > Only 5mgs to start though..it seems that the jury is still out >as > > >to > > > > > > whether > > > > > > > it > > > > > > > is really a good idea for women to take it, but you can't >believe > > > > > > everything > > > > > > > that you read I guess, and I will start small for sure. > > > > > > > I feel like I can use a little testosterone anyway..I have > > > > pretty poor > > > > > > muscle > > > > > > > tone this year despite exercising when I can, and I have > > >absolutely > > > > >ZERO > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > The only thing about the cortef that concerns me really was >the > > > > >package > > > > > > > insert that warned about weight gain..at my age I don't need > > > > anymore > > > > >of > > > > > > that! > > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > > you have been great. > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 hi i just realized that i made a mistake in the way i stated my dose of cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the weaning process nonetheless. i wish it helped me as it seems to have for others. thanks! bev wrote: > Hi LaCretia, > After cushings I was on predinsone for a year and the doctor weaned > me off the med. even slower than that ,If recall. It scares me,, my > doctors said I should be scared. > take care > Bev > > LaCretia Mozingo <lacretiamo@...> wrote: > I don't know how long you have been on this dose but you have to wean > very > slow. I have been on adrenal treatment for one year under a doctors care > and have had a few 's crisis and had to go to the ER. If you wean > too fast you could cause yourself to have an 's crisis even though > you may not have the full blown disease...you are on the same > treatment as a > person with 's disease. It's VERY dangerous to just quite. I > have > been trying to wean off since Feb. and I was only on 20mg a day total > for 1 > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have > had two > in two weeks and they are not fun! I'm not trying to scare anyone...just > sharing my expierience. The dose you have been taking I would say is > hurting your adrenals more than helping them. I do hope you are careful > when you wean off. The longer you are on a dose the harder it is to > get the > body's adrenals to come back on. A dose as high as you are taking will > surpress the adrenals completly and cause them to shrink and atrophy over > time. I have been reducing by 5mg every two weeks until the last 5mg and > then you go to 2.5 for two weeks until weaned. Hope this helps! > > LaCretia > > > > >hi lacretia > > > >i agree! thanks for the input. i will definitely be weaning off > today.... > > > >LaCretia Mozingo wrote: > > > > > Shana... > > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > > 's > > > which their adrenals don't work at all only take a max of 30mg > total for > > > full replacement. Just thought I would tell you that. It's very > bad to > > > overdose on Cortef...you can actually damage the adrenals more > from over > > > medicating. Hope this helps! > > > > > > Regards, > > > LaCretia > > > > > > > > > > >i just want to say that you (and any others that feel they > benefit from > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > > >january and feel nothing. i am going to the doc today and insist > that > >i > > > >start weaning off. there is no point to being on a steriod if > there is > > > >no apparent positive result! i have thyroid cancer (had a total > > > >thryoidectomy), graves antiboidies and have been on thryoid > replacement > > > >for about 3 years. nothing seems to help! i am still debilitated - > >walk > > > >with a cane, can't make it through a day without resting and > sleeping, > > > >etc... ugh. > > > > > > > >thanks from shana > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up to > >50mg > > > > > but I > > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > > stronger. > > > >I > > > > > think on 10mg you will see imrovement with libido! > > > > > I don't know why they put some of that stufff in that insert, well > > > > > actually > > > > > if you are too thin you will gain weight on cortef. Cortef > made me > > > >feel > > > > > hungry and for the first time in a long while craving and > tolerating > > > > > carbs. > > > > > I just went with it and my appetite settled down after a few > weeks. > > > > > After > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > >peaceful, > > > > > tranquil and strong. After all the years of suffering and > > > struggling, > > > >it > > > > > was cosmic. > > > > > Gracia > > > > > > > > > > > Yes I have been reading about DHEA, and started to take some > today > > > >with > > > > > it. > > > > > > Only 5mgs to start though..it seems that the jury is still > out as > >to > > > > > whether > > > > > > it > > > > > > is really a good idea for women to take it, but you can't > believe > > > > > everything > > > > > > that you read I guess, and I will start small for sure. > > > > > > I feel like I can use a little testosterone anyway..I have > > > pretty poor > > > > > muscle > > > > > > tone this year despite exercising when I can, and I have > >absolutely > > > >ZERO > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > The only thing about the cortef that concerns me really was the > > > >package > > > > > > insert that warned about weight gain..at my age I don't need > > > anymore > > > >of > > > > > that! > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > you have been great. > > > > > > christina. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Bev, How long have you been taking it and what is your reduction schedule? LaCretia >hi > >i just realized that i made a mistake in the way i stated my dose of >cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the >weaning process nonetheless. i wish it helped me as it seems to have >for others. > >thanks! > >bev wrote: > > > Hi LaCretia, > > After cushings I was on predinsone for a year and the doctor weaned > > me off the med. even slower than that ,If recall. It scares me,, my > > doctors said I should be scared. > > take care > > Bev > > > > LaCretia Mozingo <lacretiamo@...> wrote: > > I don't know how long you have been on this dose but you have to wean > > very > > slow. I have been on adrenal treatment for one year under a doctors >care > > and have had a few 's crisis and had to go to the ER. If you >wean > > too fast you could cause yourself to have an 's crisis even >though > > you may not have the full blown disease...you are on the same > > treatment as a > > person with 's disease. It's VERY dangerous to just quite. I > > have > > been trying to wean off since Feb. and I was only on 20mg a day total > > for 1 > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have > > had two > > in two weeks and they are not fun! I'm not trying to scare >anyone...just > > sharing my expierience. The dose you have been taking I would say is > > hurting your adrenals more than helping them. I do hope you are careful > > when you wean off. The longer you are on a dose the harder it is to > > get the > > body's adrenals to come back on. A dose as high as you are taking will > > surpress the adrenals completly and cause them to shrink and atrophy >over > > time. I have been reducing by 5mg every two weeks until the last 5mg >and > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > LaCretia > > > > > > > >hi lacretia > > > > > >i agree! thanks for the input. i will definitely be weaning off > > today.... > > > > > >LaCretia Mozingo wrote: > > > > > > > Shana... > > > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > > > 's > > > > which their adrenals don't work at all only take a max of 30mg > > total for > > > > full replacement. Just thought I would tell you that. It's very > > bad to > > > > overdose on Cortef...you can actually damage the adrenals more > > from over > > > > medicating. Hope this helps! > > > > > > > > Regards, > > > > LaCretia > > > > > > > > > > > > > >i just want to say that you (and any others that feel they > > benefit from > > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > > > >january and feel nothing. i am going to the doc today and insist > > that > > >i > > > > >start weaning off. there is no point to being on a steriod if > > there is > > > > >no apparent positive result! i have thyroid cancer (had a total > > > > >thryoidectomy), graves antiboidies and have been on thryoid > > replacement > > > > >for about 3 years. nothing seems to help! i am still debilitated - > > >walk > > > > >with a cane, can't make it through a day without resting and > > sleeping, > > > > >etc... ugh. > > > > > > > > > >thanks from shana > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up >to > > >50mg > > > > > > but I > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > > > stronger. > > > > >I > > > > > > think on 10mg you will see imrovement with libido! > > > > > > I don't know why they put some of that stufff in that insert, >well > > > > > > actually > > > > > > if you are too thin you will gain weight on cortef. Cortef > > made me > > > > >feel > > > > > > hungry and for the first time in a long while craving and > > tolerating > > > > > > carbs. > > > > > > I just went with it and my appetite settled down after a few > > weeks. > > > > > > After > > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > > >peaceful, > > > > > > tranquil and strong. After all the years of suffering and > > > > struggling, > > > > >it > > > > > > was cosmic. > > > > > > Gracia > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to take some > > today > > > > >with > > > > > > it. > > > > > > > Only 5mgs to start though..it seems that the jury is still > > out as > > >to > > > > > > whether > > > > > > > it > > > > > > > is really a good idea for women to take it, but you can't > > believe > > > > > > everything > > > > > > > that you read I guess, and I will start small for sure. > > > > > > > I feel like I can use a little testosterone anyway..I have > > > > pretty poor > > > > > > muscle > > > > > > > tone this year despite exercising when I can, and I have > > >absolutely > > > > >ZERO > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > The only thing about the cortef that concerns me really was >the > > > > >package > > > > > > > insert that warned about weight gain..at my age I don't need > > > > anymore > > > > >of > > > > > > that! > > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > > you have been great. > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Hi LaCretia, The normal time is one year and that's what the docs. had me do, one year. I think I might have some insuffiency but the test don't show it. But, I'm going to have my doc. give me a blood work paper for when I have the attacks to go into the ER and have them take blood & test it to see if it's just when I have the attacks. I had one this past weekend, what a doosy it was, felt like I was going to die. If I would just show up at the ER they would not test for what I need to be tested for is why I don't even bother going there now. Boy, I know what you mean about being an adrenal junky, I used to be to and it has been very hard adjusting to doing not very much at all. WHEW!!!!!!! I really don't believe I'm adjusted yet & it has been since 1991 since I had my adrenal gland taken out. take care Bev LaCretia Mozingo <lacretiamo@...> wrote: Bev, How long did it take to wean off? So far I have been weaning for 3 months. My health is okay...just can't take any stress right now. It sends me into an 's crisis. I have had two in the past two weeks and with 1 ER trip. I am hoping to get through this soon as I am an adrenal junky and can't do any of the activities I want to do. Gracia, You can say this is misinformation, but I am posting what I have been through which is a fact of the disease. Please post a link or information that supports your statement. I'm just sharing with others what I have gone through while being on Cortisone treatment. I think it's important to share the negatives and the positives. I will say that getting on it improved my life greatly...just remember that adrenal fatigue is temporary and at some point you have to wean off of it. This process can make one quite sick very suddenly if you encounter stress during your weaning period. If you don't catch it early enough after you expierience stress...you can going into an 's crisis. I do hope that in the end, my adrenals come back on and work properly. We just don't know yet if they will. Thanks! LaCretia > > >misinformation with tragic consequences. How's your health now? Good? >Gracia > > > Hi LaCretia, > > After cushings I was on predinsone for a year and the doctor weaned me >off the med. even slower than that ,If recall. It scares me,, my doctors >said I should be scared. > > take care > > Bev > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 LacCretia, I have never taken cortef. When I had the surgery for the cushings and only had one adrenal gland left they stared me on predinsone right away. I was on the highest does(I can't remember what it was now, been too long ago) for a couple of months to see if I was ok, then he would reduce the amount every couple of months , always making sure I was going to be ok, and like you said the mg. got so low I had to break the med. in half then quarters and then I was off of it. I had the surgery in 12-1991. I went to a addisons support group and started reading and you were right. I read some pretty nasty things that I don't want to go through. thanks take care Bev LaCretia Mozingo <lacretiamo@...> wrote: Bev, How long have you been taking it and what is your reduction schedule? LaCretia >hi > >i just realized that i made a mistake in the way i stated my dose of >cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the >weaning process nonetheless. i wish it helped me as it seems to have >for others. > >thanks! > >bev wrote: > > > Hi LaCretia, > > After cushings I was on predinsone for a year and the doctor weaned > > me off the med. even slower than that ,If recall. It scares me,, my > > doctors said I should be scared. > > take care > > Bev > > > > LaCretia Mozingo <lacretiamo@...> wrote: > > I don't know how long you have been on this dose but you have to wean > > very > > slow. I have been on adrenal treatment for one year under a doctors >care > > and have had a few 's crisis and had to go to the ER. If you >wean > > too fast you could cause yourself to have an 's crisis even >though > > you may not have the full blown disease...you are on the same > > treatment as a > > person with 's disease. It's VERY dangerous to just quite. I > > have > > been trying to wean off since Feb. and I was only on 20mg a day total > > for 1 > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have > > had two > > in two weeks and they are not fun! I'm not trying to scare >anyone...just > > sharing my expierience. The dose you have been taking I would say is > > hurting your adrenals more than helping them. I do hope you are careful > > when you wean off. The longer you are on a dose the harder it is to > > get the > > body's adrenals to come back on. A dose as high as you are taking will > > surpress the adrenals completly and cause them to shrink and atrophy >over > > time. I have been reducing by 5mg every two weeks until the last 5mg >and > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > LaCretia > > > > > > > >hi lacretia > > > > > >i agree! thanks for the input. i will definitely be weaning off > > today.... > > > > > >LaCretia Mozingo wrote: > > > > > > > Shana... > > > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > > > 's > > > > which their adrenals don't work at all only take a max of 30mg > > total for > > > > full replacement. Just thought I would tell you that. It's very > > bad to > > > > overdose on Cortef...you can actually damage the adrenals more > > from over > > > > medicating. Hope this helps! > > > > > > > > Regards, > > > > LaCretia > > > > > > > > > > > > > >i just want to say that you (and any others that feel they > > benefit from > > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > > > >january and feel nothing. i am going to the doc today and insist > > that > > >i > > > > >start weaning off. there is no point to being on a steriod if > > there is > > > > >no apparent positive result! i have thyroid cancer (had a total > > > > >thryoidectomy), graves antiboidies and have been on thryoid > > replacement > > > > >for about 3 years. nothing seems to help! i am still debilitated - > > >walk > > > > >with a cane, can't make it through a day without resting and > > sleeping, > > > > >etc... ugh. > > > > > > > > > >thanks from shana > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up >to > > >50mg > > > > > > but I > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > > > stronger. > > > > >I > > > > > > think on 10mg you will see imrovement with libido! > > > > > > I don't know why they put some of that stufff in that insert, >well > > > > > > actually > > > > > > if you are too thin you will gain weight on cortef. Cortef > > made me > > > > >feel > > > > > > hungry and for the first time in a long while craving and > > tolerating > > > > > > carbs. > > > > > > I just went with it and my appetite settled down after a few > > weeks. > > > > > > After > > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > > >peaceful, > > > > > > tranquil and strong. After all the years of suffering and > > > > struggling, > > > > >it > > > > > > was cosmic. > > > > > > Gracia > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to take some > > today > > > > >with > > > > > > it. > > > > > > > Only 5mgs to start though..it seems that the jury is still > > out as > > >to > > > > > > whether > > > > > > > it > > > > > > > is really a good idea for women to take it, but you can't > > believe > > > > > > everything > > > > > > > that you read I guess, and I will start small for sure. > > > > > > > I feel like I can use a little testosterone anyway..I have > > > > pretty poor > > > > > > muscle > > > > > > > tone this year despite exercising when I can, and I have > > >absolutely > > > > >ZERO > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > The only thing about the cortef that concerns me really was >the > > > > >package > > > > > > > insert that warned about weight gain..at my age I don't need > > > > anymore > > > > >of > > > > > > that! > > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > > you have been great. > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 I think at the very end after I got down to the quarter of a pill I started taking 1/4 every other day. Bev LaCretia Mozingo <lacretiamo@...> wrote: Bev, How long have you been taking it and what is your reduction schedule? LaCretia >hi > >i just realized that i made a mistake in the way i stated my dose of >cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the >weaning process nonetheless. i wish it helped me as it seems to have >for others. > >thanks! > >bev wrote: > > > Hi LaCretia, > > After cushings I was on predinsone for a year and the doctor weaned > > me off the med. even slower than that ,If recall. It scares me,, my > > doctors said I should be scared. > > take care > > Bev > > > > LaCretia Mozingo <lacretiamo@...> wrote: > > I don't know how long you have been on this dose but you have to wean > > very > > slow. I have been on adrenal treatment for one year under a doctors >care > > and have had a few 's crisis and had to go to the ER. If you >wean > > too fast you could cause yourself to have an 's crisis even >though > > you may not have the full blown disease...you are on the same > > treatment as a > > person with 's disease. It's VERY dangerous to just quite. I > > have > > been trying to wean off since Feb. and I was only on 20mg a day total > > for 1 > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have > > had two > > in two weeks and they are not fun! I'm not trying to scare >anyone...just > > sharing my expierience. The dose you have been taking I would say is > > hurting your adrenals more than helping them. I do hope you are careful > > when you wean off. The longer you are on a dose the harder it is to > > get the > > body's adrenals to come back on. A dose as high as you are taking will > > surpress the adrenals completly and cause them to shrink and atrophy >over > > time. I have been reducing by 5mg every two weeks until the last 5mg >and > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > LaCretia > > > > > > > >hi lacretia > > > > > >i agree! thanks for the input. i will definitely be weaning off > > today.... > > > > > >LaCretia Mozingo wrote: > > > > > > > Shana... > > > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > > > 's > > > > which their adrenals don't work at all only take a max of 30mg > > total for > > > > full replacement. Just thought I would tell you that. It's very > > bad to > > > > overdose on Cortef...you can actually damage the adrenals more > > from over > > > > medicating. Hope this helps! > > > > > > > > Regards, > > > > LaCretia > > > > > > > > > > > > > >i just want to say that you (and any others that feel they > > benefit from > > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) since > > > > >january and feel nothing. i am going to the doc today and insist > > that > > >i > > > > >start weaning off. there is no point to being on a steriod if > > there is > > > > >no apparent positive result! i have thyroid cancer (had a total > > > > >thryoidectomy), graves antiboidies and have been on thryoid > > replacement > > > > >for about 3 years. nothing seems to help! i am still debilitated - > > >walk > > > > >with a cane, can't make it through a day without resting and > > sleeping, > > > > >etc... ugh. > > > > > > > > > >thanks from shana > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women take up >to > > >50mg > > > > > > but I > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > > > stronger. > > > > >I > > > > > > think on 10mg you will see imrovement with libido! > > > > > > I don't know why they put some of that stufff in that insert, >well > > > > > > actually > > > > > > if you are too thin you will gain weight on cortef. Cortef > > made me > > > > >feel > > > > > > hungry and for the first time in a long while craving and > > tolerating > > > > > > carbs. > > > > > > I just went with it and my appetite settled down after a few > > weeks. > > > > > > After > > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > > >peaceful, > > > > > > tranquil and strong. After all the years of suffering and > > > > struggling, > > > > >it > > > > > > was cosmic. > > > > > > Gracia > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to take some > > today > > > > >with > > > > > > it. > > > > > > > Only 5mgs to start though..it seems that the jury is still > > out as > > >to > > > > > > whether > > > > > > > it > > > > > > > is really a good idea for women to take it, but you can't > > believe > > > > > > everything > > > > > > > that you read I guess, and I will start small for sure. > > > > > > > I feel like I can use a little testosterone anyway..I have > > > > pretty poor > > > > > > muscle > > > > > > > tone this year despite exercising when I can, and I have > > >absolutely > > > > >ZERO > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > The only thing about the cortef that concerns me really was >the > > > > >package > > > > > > > insert that warned about weight gain..at my age I don't need > > > > anymore > > > > >of > > > > > > that! > > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > > you have been great. > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 hi - i have been taking cortef since january. i am going down 5 mg every 2 weeks.... LaCretia Mozingo wrote: > Bev, > How long have you been taking it and what is your reduction schedule? > > LaCretia > > >hi > > > >i just realized that i made a mistake in the way i stated my dose of > >cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the > >weaning process nonetheless. i wish it helped me as it seems to have > >for others. > > > >thanks! > > > >bev wrote: > > > > > Hi LaCretia, > > > After cushings I was on predinsone for a year and the doctor weaned > > > me off the med. even slower than that ,If recall. It scares me,, my > > > doctors said I should be scared. > > > take care > > > Bev > > > > > > LaCretia Mozingo <lacretiamo@...> wrote: > > > I don't know how long you have been on this dose but you have to wean > > > very > > > slow. I have been on adrenal treatment for one year under a doctors > >care > > > and have had a few 's crisis and had to go to the ER. If you > >wean > > > too fast you could cause yourself to have an 's crisis even > >though > > > you may not have the full blown disease...you are on the same > > > treatment as a > > > person with 's disease. It's VERY dangerous to just quite. I > > > have > > > been trying to wean off since Feb. and I was only on 20mg a day total > > > for 1 > > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have > > > had two > > > in two weeks and they are not fun! I'm not trying to scare > >anyone...just > > > sharing my expierience. The dose you have been taking I would say is > > > hurting your adrenals more than helping them. I do hope you are > careful > > > when you wean off. The longer you are on a dose the harder it is to > > > get the > > > body's adrenals to come back on. A dose as high as you are taking > will > > > surpress the adrenals completly and cause them to shrink and atrophy > >over > > > time. I have been reducing by 5mg every two weeks until the last 5mg > >and > > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > > > LaCretia > > > > > > > > > > >hi lacretia > > > > > > > >i agree! thanks for the input. i will definitely be weaning off > > > today.... > > > > > > > >LaCretia Mozingo wrote: > > > > > > > > > Shana... > > > > > 20mg 4x a day is WAY too much to take. Folks that have full blown > > > > > 's > > > > > which their adrenals don't work at all only take a max of 30mg > > > total for > > > > > full replacement. Just thought I would tell you that. It's very > > > bad to > > > > > overdose on Cortef...you can actually damage the adrenals more > > > from over > > > > > medicating. Hope this helps! > > > > > > > > > > Regards, > > > > > LaCretia > > > > > > > > > > > > > > > > >i just want to say that you (and any others that feel they > > > benefit from > > > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) > since > > > > > >january and feel nothing. i am going to the doc today and insist > > > that > > > >i > > > > > >start weaning off. there is no point to being on a steriod if > > > there is > > > > > >no apparent positive result! i have thyroid cancer (had a total > > > > > >thryoidectomy), graves antiboidies and have been on thryoid > > > replacement > > > > > >for about 3 years. nothing seems to help! i am still > debilitated - > > > >walk > > > > > >with a cane, can't make it through a day without resting and > > > sleeping, > > > > > >etc... ugh. > > > > > > > > > > > >thanks from shana > > > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women > take up > >to > > > >50mg > > > > > > > but I > > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it feels > > > > > stronger. > > > > > >I > > > > > > > think on 10mg you will see imrovement with libido! > > > > > > > I don't know why they put some of that stufff in that insert, > >well > > > > > > > actually > > > > > > > if you are too thin you will gain weight on cortef. Cortef > > > made me > > > > > >feel > > > > > > > hungry and for the first time in a long while craving and > > > tolerating > > > > > > > carbs. > > > > > > > I just went with it and my appetite settled down after a few > > > weeks. > > > > > > > After > > > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > > > >peaceful, > > > > > > > tranquil and strong. After all the years of suffering and > > > > > struggling, > > > > > >it > > > > > > > was cosmic. > > > > > > > Gracia > > > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to take some > > > today > > > > > >with > > > > > > > it. > > > > > > > > Only 5mgs to start though..it seems that the jury is still > > > out as > > > >to > > > > > > > whether > > > > > > > > it > > > > > > > > is really a good idea for women to take it, but you can't > > > believe > > > > > > > everything > > > > > > > > that you read I guess, and I will start small for sure. > > > > > > > > I feel like I can use a little testosterone anyway..I have > > > > > pretty poor > > > > > > > muscle > > > > > > > > tone this year despite exercising when I can, and I have > > > >absolutely > > > > > >ZERO > > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > > > The only thing about the cortef that concerns me really was > >the > > > > > >package > > > > > > > > insert that warned about weight gain..at my age I don't need > > > > > anymore > > > > > >of > > > > > > > that! > > > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > > > you have been great. > > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 LaCretia, we all got your point, move on. This is a hypothyroid group. If you've got pertinent information relating to Hypo then share it otherwise ... Keep the bickering with Gracia outside the group. It's annoying and distracting from what the rest of us are trying to do - gain a better, clearer understanding of hypothyroidism and its treatment. Your bickering is clouding it up. Enough's enough. --- LaCretia Mozingo <lacretiamo@...> wrote: > Bev, > How long did it take to wean off? So far I have > been weaning for 3 months. > My health is okay...just can't take any stress right > now. It sends me into > an 's crisis. I have had two in the past two > weeks and with 1 ER > trip. I am hoping to get through this soon as I am > an adrenal junky and > can't do any of the activities I want to do. > > Gracia, > You can say this is misinformation, but I am posting > what I have been > through which is a fact of the disease. Please post > a link or information > that supports your statement. I'm just sharing with > others what I have gone > through while being on Cortisone treatment. I think > it's important to share > the negatives and the positives. I will say that > getting on it improved my > life greatly...just remember that adrenal fatigue is > temporary and at some > point you have to wean off of it. This process can > make one quite sick very > suddenly if you encounter stress during your weaning > period. If you don't > catch it early enough after you expierience > stress...you can going into an > 's crisis. I do hope that in the end, my > adrenals come back on and > work properly. We just don't know yet if they will. > > Thanks! > > LaCretia > > > > > > >misinformation with tragic consequences. How's > your health now? Good? > >Gracia > > > > > Hi LaCretia, > > > After cushings I was on predinsone for a year > and the doctor weaned me > >off the med. even slower than that ,If recall. It > scares me,, my doctors > >said I should be scared. > > > take care > > > Bev > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 The worst info on adrenals that I have seen has come from s patients. They are relying on endos who seem to be unaware of all the other hormones produced by adrenal glands. Doctors who understand adrenals are at http://www.brodabarnes.org I am kind of thinking that you will have to get sick and tired of being sick and tired. Gracia > LacCretia, > I have never taken cortef. When I had the surgery for the cushings and only had one adrenal gland left they stared me on predinsone right away. I was on the highest does(I can't remember what it was now, been too long ago) for a couple of months to see if I was ok, then he would reduce the amount every couple of months , always making sure I was going to be ok, and like you said the mg. got so low I had to break the med. in half then quarters and then I was off of it. I had the surgery in 12-1991. I went to a addisons support group and started reading and you were right. I read some pretty nasty things that I don't want to go through. > thanks > take care > Bev > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Adrenal insufficiency/s/ adrenal hyperplasia are VERY MUCH related to hypothyroidism. They go hand in hand. Doctors do not know this and many people die b/c of it. Gracia > LaCretia, we all got your point, move on. This is a > hypothyroid group. If you've got pertinent information > relating to Hypo then share it otherwise ... > > Keep the bickering with Gracia outside the group. It's > annoying and distracting from what the rest of us are > trying to do - gain a better, clearer understanding of > hypothyroidism and its treatment. Your bickering is > clouding it up. > > Enough's enough. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 Mike, what bickering????? The discussion about the thyroid/adrenal conection has been very polite and informative on both sides. Adrenal funtion information is very pertinent to thyroid dysfuntion. It looks like you are the only one annoyed and distracted. I think you would be much happier if you just unsubcribed from this Group instead of insulting a most valued member! I know we would be. Pamela > > Bev, > > How long did it take to wean off? So far I have > > been weaning for 3 months. > > My health is okay...just can't take any stress right > > now. It sends me into > > an 's crisis. I have had two in the past two > > weeks and with 1 ER > > trip. I am hoping to get through this soon as I am > > an adrenal junky and > > can't do any of the activities I want to do. > > > > Gracia, > > You can say this is misinformation, but I am posting > > what I have been > > through which is a fact of the disease. Please post > > a link or information > > that supports your statement. I'm just sharing with > > others what I have gone > > through while being on Cortisone treatment. I think > > it's important to share > > the negatives and the positives. I will say that > > getting on it improved my > > life greatly...just remember that adrenal fatigue is > > temporary and at some > > point you have to wean off of it. This process can > > make one quite sick very > > suddenly if you encounter stress during your weaning > > period. If you don't > > catch it early enough after you expierience > > stress...you can going into an > > 's crisis. I do hope that in the end, my > > adrenals come back on and > > work properly. We just don't know yet if they will. > > > > Thanks! > > >o.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 I think what Mike is talking about is when some people call other people idots and stupid and what not. thanks, Bev southallp <southallp@...> wrote: Mike, what bickering????? The discussion about the thyroid/adrenal conection has been very polite and informative on both sides. Adrenal funtion information is very pertinent to thyroid dysfuntion. It looks like you are the only one annoyed and distracted. I think you would be much happier if you just unsubcribed from this Group instead of insulting a most valued member! I know we would be. Pamela > > Bev, > > How long did it take to wean off? So far I have > > been weaning for 3 months. > > My health is okay...just can't take any stress right > > now. It sends me into > > an 's crisis. I have had two in the past two > > weeks and with 1 ER > > trip. I am hoping to get through this soon as I am > > an adrenal junky and > > can't do any of the activities I want to do. > > > > Gracia, > > You can say this is misinformation, but I am posting > > what I have been > > through which is a fact of the disease. Please post > > a link or information > > that supports your statement. I'm just sharing with > > others what I have gone > > through while being on Cortisone treatment. I think > > it's important to share > > the negatives and the positives. I will say that > > getting on it improved my > > life greatly...just remember that adrenal fatigue is > > temporary and at some > > point you have to wean off of it. This process can > > make one quite sick very > > suddenly if you encounter stress during your weaning > > period. If you don't > > catch it early enough after you expierience > > stress...you can going into an > > 's crisis. I do hope that in the end, my > > adrenals come back on and > > work properly. We just don't know yet if they will. > > > > Thanks! > > >o.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 I am with Pamela on this too. There are medical conditions that are inter-related due to the source of hormones that drive them. I would much rather listen to BOTH sides of an argument, and take what I can from people's OWN experiences - rather than dismiss one that may not support my own view, or one that I may have no interest in at all. I would much prefer someone point out a possible danger or pit fall to me, than to let me happen upon it by accident because they did not care to speak up. Val Re: adrenal support/Shana > Mike, what bickering????? > > The discussion about the thyroid/adrenal conection has been very > polite and informative on both sides. > > Adrenal funtion information is very pertinent to thyroid dysfuntion. > > It looks like you are the only one annoyed and distracted. I think > you would be much happier if you just unsubcribed from this Group > instead of insulting a most valued member! > > I know we would be. > > Pamela > > > > > Bev, > > > How long did it take to wean off? So far I have > > > been weaning for 3 months. > > > My health is okay...just can't take any stress right > > > now. It sends me into > > > an 's crisis. I have had two in the past two > > > weeks and with 1 ER > > > trip. I am hoping to get through this soon as I am > > > an adrenal junky and > > > can't do any of the activities I want to do. > > > > > > Gracia, > > > You can say this is misinformation, but I am posting > > > what I have been > > > through which is a fact of the disease. Please post > > > a link or information > > > that supports your statement. I'm just sharing with > > > others what I have gone > > > through while being on Cortisone treatment. I think > > > it's important to share > > > the negatives and the positives. I will say that > > > getting on it improved my > > > life greatly...just remember that adrenal fatigue is > > > temporary and at some > > > point you have to wean off of it. This process can > > > make one quite sick very > > > suddenly if you encounter stress during your weaning > > > period. If you don't > > > catch it early enough after you expierience > > > stress...you can going into an > > > 's crisis. I do hope that in the end, my > > > adrenals come back on and > > > work properly. We just don't know yet if they will. > > > > > > Thanks! > > > > >o.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Bev, Sorry to get back to you so late. Did I understand that right...1 year to wean off? What was your weaning schedule like? I'm curious...I'm down to 2.5 now and doing ok this week. Why did they remove your adrenals? It seems that you were on the same treatment but, I didn't understand why they removed them? I have had two crisis in the past 3 wks though. Now I'm having cracked lips which is a sign of low B12 and I'm constantly going to the bathroom... low salt I suspect. I drank a large helping of salt water this morning and it really helped! LaCretia > >Hi LaCretia, >The normal time is one year and that's what the docs. had me do, one year. >I think I might have some insuffiency but the test don't show it. But, I'm >going to have my doc. give me a blood work paper for when I have the >attacks to go into the ER and have them take blood & test it to see if it's >just when I have the attacks. I had one this past weekend, what a doosy it >was, felt like I was going to die. If I would just show up at the ER they >would not test for what I need to be tested for is why I don't even bother >going there now. Boy, I know what you mean about being an adrenal junky, I >used to be to and it has been very hard adjusting to doing not very much at >all. WHEW!!!!!!! I really don't believe I'm adjusted yet & it has been >since 1991 since I had my adrenal gland taken out. > >take care >Bev > >LaCretia Mozingo <lacretiamo@...> wrote: >Bev, >How long did it take to wean off? So far I have been weaning for 3 months. >My health is okay...just can't take any stress right now. It sends me into >an 's crisis. I have had two in the past two weeks and with 1 ER >trip. I am hoping to get through this soon as I am an adrenal junky and >can't do any of the activities I want to do. > >Gracia, >You can say this is misinformation, but I am posting what I have been >through which is a fact of the disease. Please post a link or information >that supports your statement. I'm just sharing with others what I have >gone >through while being on Cortisone treatment. I think it's important to >share >the negatives and the positives. I will say that getting on it improved my >life greatly...just remember that adrenal fatigue is temporary and at some >point you have to wean off of it. This process can make one quite sick >very >suddenly if you encounter stress during your weaning period. If you don't >catch it early enough after you expierience stress...you can going into an >'s crisis. I do hope that in the end, my adrenals come back on and >work properly. We just don't know yet if they will. > >Thanks! > >LaCretia > > > > > > >misinformation with tragic consequences. How's your health now? Good? > >Gracia > > > > > Hi LaCretia, > > > After cushings I was on predinsone for a year and the doctor weaned >me > >off the med. even slower than that ,If recall. It scares me,, my >doctors > >said I should be scared. > > > take care > > > Bev > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 That's the same I have been doing except at the end I'm on 2.5 mg for two weeks then off! One more week and I'm off! We'll see if I make it without a crisis! LaCretia > >hi - i have been taking cortef since january. i am going down 5 mg >every 2 weeks.... > >LaCretia Mozingo wrote: > > > Bev, > > How long have you been taking it and what is your reduction schedule? > > > > LaCretia > > > > >hi > > > > > >i just realized that i made a mistake in the way i stated my dose of > > >cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the > > >weaning process nonetheless. i wish it helped me as it seems to have > > >for others. > > > > > >thanks! > > > > > >bev wrote: > > > > > > > Hi LaCretia, > > > > After cushings I was on predinsone for a year and the doctor weaned > > > > me off the med. even slower than that ,If recall. It scares me,, >my > > > > doctors said I should be scared. > > > > take care > > > > Bev > > > > > > > > LaCretia Mozingo <lacretiamo@...> wrote: > > > > I don't know how long you have been on this dose but you have to >wean > > > > very > > > > slow. I have been on adrenal treatment for one year under a doctors > > >care > > > > and have had a few 's crisis and had to go to the ER. If you > > >wean > > > > too fast you could cause yourself to have an 's crisis even > > >though > > > > you may not have the full blown disease...you are on the same > > > > treatment as a > > > > person with 's disease. It's VERY dangerous to just quite. >I > > > > have > > > > been trying to wean off since Feb. and I was only on 20mg a day >total > > > > for 1 > > > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have > > > > had two > > > > in two weeks and they are not fun! I'm not trying to scare > > >anyone...just > > > > sharing my expierience. The dose you have been taking I would say >is > > > > hurting your adrenals more than helping them. I do hope you are > > careful > > > > when you wean off. The longer you are on a dose the harder it is to > > > > get the > > > > body's adrenals to come back on. A dose as high as you are taking > > will > > > > surpress the adrenals completly and cause them to shrink and atrophy > > >over > > > > time. I have been reducing by 5mg every two weeks until the last >5mg > > >and > > > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > > > > > LaCretia > > > > > > > > > > > > > >hi lacretia > > > > > > > > > >i agree! thanks for the input. i will definitely be weaning off > > > > today.... > > > > > > > > > >LaCretia Mozingo wrote: > > > > > > > > > > > Shana... > > > > > > 20mg 4x a day is WAY too much to take. Folks that have full >blown > > > > > > 's > > > > > > which their adrenals don't work at all only take a max of 30mg > > > > total for > > > > > > full replacement. Just thought I would tell you that. It's >very > > > > bad to > > > > > > overdose on Cortef...you can actually damage the adrenals more > > > > from over > > > > > > medicating. Hope this helps! > > > > > > > > > > > > Regards, > > > > > > LaCretia > > > > > > > > > > > > > > > > > > > >i just want to say that you (and any others that feel they > > > > benefit from > > > > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) > > since > > > > > > >january and feel nothing. i am going to the doc today and >insist > > > > that > > > > >i > > > > > > >start weaning off. there is no point to being on a steriod if > > > > there is > > > > > > >no apparent positive result! i have thyroid cancer (had a >total > > > > > > >thryoidectomy), graves antiboidies and have been on thryoid > > > > replacement > > > > > > >for about 3 years. nothing seems to help! i am still > > debilitated - > > > > >walk > > > > > > >with a cane, can't make it through a day without resting and > > > > sleeping, > > > > > > >etc... ugh. > > > > > > > > > > > > > >thanks from shana > > > > > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women > > take up > > >to > > > > >50mg > > > > > > > > but I > > > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it >feels > > > > > > stronger. > > > > > > >I > > > > > > > > think on 10mg you will see imrovement with libido! > > > > > > > > I don't know why they put some of that stufff in that >insert, > > >well > > > > > > > > actually > > > > > > > > if you are too thin you will gain weight on cortef. Cortef > > > > made me > > > > > > >feel > > > > > > > > hungry and for the first time in a long while craving and > > > > tolerating > > > > > > > > carbs. > > > > > > > > I just went with it and my appetite settled down after a few > > > > weeks. > > > > > > > > After > > > > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > > > > >peaceful, > > > > > > > > tranquil and strong. After all the years of suffering and > > > > > > struggling, > > > > > > >it > > > > > > > > was cosmic. > > > > > > > > Gracia > > > > > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to take >some > > > > today > > > > > > >with > > > > > > > > it. > > > > > > > > > Only 5mgs to start though..it seems that the jury is still > > > > out as > > > > >to > > > > > > > > whether > > > > > > > > > it > > > > > > > > > is really a good idea for women to take it, but you can't > > > > believe > > > > > > > > everything > > > > > > > > > that you read I guess, and I will start small for sure. > > > > > > > > > I feel like I can use a little testosterone anyway..I have > > > > > > pretty poor > > > > > > > > muscle > > > > > > > > > tone this year despite exercising when I can, and I have > > > > >absolutely > > > > > > >ZERO > > > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > > > > > The only thing about the cortef that concerns me really >was > > >the > > > > > > >package > > > > > > > > > insert that warned about weight gain..at my age I don't >need > > > > > > anymore > > > > > > >of > > > > > > > > that! > > > > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > > > > you have been great. > > > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Sorry you feel that way, we were having a discussion, not an argument. This is related to hypo... they can go hand in hand just as you pituitary and hypothamulas is involved. Gracia is very well educated and gives a lot of excellent advise here. I just wanted to share the negatives of taking such a treatment. I have Hashi's and later found that I had an adrenal problem which I think is relevent to discuss here since I see a tremendous amount of postings on the matter. Also, the adrenals should be treated before the thryoid which never happens. They are linked and thus important to discuss. Many still suffer here because there doctors don't ever test their adrenals to begin with. No matter how much thyroid medication I received, I was still sick... later we found my adrenals were caput. I feel it's a shame when others flame someone for just sharing their expierience with a certain treatment protocol. I also take Armour for my Hashi's which is well controlled. If you remember, I was responded to another lady who is taking adrenal treatment and was taking too high of a dosage. I got flamed considerablly for this...even though I can post links to the facts I posted that support what I was saying. LaCretia > >LaCretia, we all got your point, move on. This is a >hypothyroid group. If you've got pertinent information >relating to Hypo then share it otherwise ... > >Keep the bickering with Gracia outside the group. It's >annoying and distracting from what the rest of us are >trying to do - gain a better, clearer understanding of >hypothyroidism and its treatment. Your bickering is >clouding it up. > >Enough's enough. > > >--- LaCretia Mozingo <lacretiamo@...> wrote: > > Bev, > > How long did it take to wean off? So far I have > > been weaning for 3 months. > > My health is okay...just can't take any stress right > > now. It sends me into > > an 's crisis. I have had two in the past two > > weeks and with 1 ER > > trip. I am hoping to get through this soon as I am > > an adrenal junky and > > can't do any of the activities I want to do. > > > > Gracia, > > You can say this is misinformation, but I am posting > > what I have been > > through which is a fact of the disease. Please post > > a link or information > > that supports your statement. I'm just sharing with > > others what I have gone > > through while being on Cortisone treatment. I think > > it's important to share > > the negatives and the positives. I will say that > > getting on it improved my > > life greatly...just remember that adrenal fatigue is > > temporary and at some > > point you have to wean off of it. This process can > > make one quite sick very > > suddenly if you encounter stress during your weaning > > period. If you don't > > catch it early enough after you expierience > > stress...you can going into an > > 's crisis. I do hope that in the end, my > > adrenals come back on and > > work properly. We just don't know yet if they will. > > > > Thanks! > > > > LaCretia > > > > > > > > > > >misinformation with tragic consequences. How's > > your health now? Good? > > >Gracia > > > > > > > Hi LaCretia, > > > > After cushings I was on predinsone for a year > > and the doctor weaned me > > >off the med. even slower than that ,If recall. It > > scares me,, my doctors > > >said I should be scared. > > > > take care > > > > Bev > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 WHY??? Are you stopping Armour too??? b/c you are " healed " ? YEOW Gracia > That's the same I have been doing except at the end I'm on 2.5 mg for two > weeks then off! One more week and I'm off! We'll see if I make it without > a crisis! > > LaCretia > > > > >hi - i have been taking cortef since january. i am going down 5 mg > >every 2 weeks.... > > > >LaCretia Mozingo wrote: > > > > > Bev, > > > How long have you been taking it and what is your reduction schedule? > > > > > > LaCretia > > > > > > >hi > > > > > > > >i just realized that i made a mistake in the way i stated my dose of > > > >cortef - i am on a TOTAL of 20 mg (5 mg X 4)! i am starting the > > > >weaning process nonetheless. i wish it helped me as it seems to have > > > >for others. > > > > > > > >thanks! > > > > > > > >bev wrote: > > > > > > > > > Hi LaCretia, > > > > > After cushings I was on predinsone for a year and the doctor weaned > > > > > me off the med. even slower than that ,If recall. It scares me,, > >my > > > > > doctors said I should be scared. > > > > > take care > > > > > Bev > > > > > > > > > > LaCretia Mozingo <lacretiamo@...> wrote: > > > > > I don't know how long you have been on this dose but you have to > >wean > > > > > very > > > > > slow. I have been on adrenal treatment for one year under a doctors > > > >care > > > > > and have had a few 's crisis and had to go to the ER. If you > > > >wean > > > > > too fast you could cause yourself to have an 's crisis even > > > >though > > > > > you may not have the full blown disease...you are on the same > > > > > treatment as a > > > > > person with 's disease. It's VERY dangerous to just quite. > >I > > > > > have > > > > > been trying to wean off since Feb. and I was only on 20mg a day > >total > > > > > for 1 > > > > > year. Each time I get to 5mg to 2.5mg I got into a crisis. I have > > > > > had two > > > > > in two weeks and they are not fun! I'm not trying to scare > > > >anyone...just > > > > > sharing my expierience. The dose you have been taking I would say > >is > > > > > hurting your adrenals more than helping them. I do hope you are > > > careful > > > > > when you wean off. The longer you are on a dose the harder it is to > > > > > get the > > > > > body's adrenals to come back on. A dose as high as you are taking > > > will > > > > > surpress the adrenals completly and cause them to shrink and atrophy > > > >over > > > > > time. I have been reducing by 5mg every two weeks until the last > >5mg > > > >and > > > > > then you go to 2.5 for two weeks until weaned. Hope this helps! > > > > > > > > > > LaCretia > > > > > > > > > > > > > > > > >hi lacretia > > > > > > > > > > > >i agree! thanks for the input. i will definitely be weaning off > > > > > today.... > > > > > > > > > > > >LaCretia Mozingo wrote: > > > > > > > > > > > > > Shana... > > > > > > > 20mg 4x a day is WAY too much to take. Folks that have full > >blown > > > > > > > 's > > > > > > > which their adrenals don't work at all only take a max of 30mg > > > > > total for > > > > > > > full replacement. Just thought I would tell you that. It's > >very > > > > > bad to > > > > > > > overdose on Cortef...you can actually damage the adrenals more > > > > > from over > > > > > > > medicating. Hope this helps! > > > > > > > > > > > > > > Regards, > > > > > > > LaCretia > > > > > > > > > > > > > > > > > > > > > > >i just want to say that you (and any others that feel they > > > > > benefit from > > > > > > > >cortef) are very lucky. i have been on 20 mg (4 times a day) > > > since > > > > > > > >january and feel nothing. i am going to the doc today and > >insist > > > > > that > > > > > >i > > > > > > > >start weaning off. there is no point to being on a steriod if > > > > > there is > > > > > > > >no apparent positive result! i have thyroid cancer (had a > >total > > > > > > > >thryoidectomy), graves antiboidies and have been on thryoid > > > > > replacement > > > > > > > >for about 3 years. nothing seems to help! i am still > > > debilitated - > > > > > >walk > > > > > > > >with a cane, can't make it through a day without resting and > > > > > sleeping, > > > > > > > >etc... ugh. > > > > > > > > > > > > > > > >thanks from shana > > > > > > > > > > > > > > > >Gracia wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > DHEA is really marvelous for immune issues, some women > > > take up > > > >to > > > > > >50mg > > > > > > > > > but I > > > > > > > > > think 10-25mg is the norm. I like 7-keto better b/c it > >feels > > > > > > > stronger. > > > > > > > >I > > > > > > > > > think on 10mg you will see imrovement with libido! > > > > > > > > > I don't know why they put some of that stufff in that > >insert, > > > >well > > > > > > > > > actually > > > > > > > > > if you are too thin you will gain weight on cortef. Cortef > > > > > made me > > > > > > > >feel > > > > > > > > > hungry and for the first time in a long while craving and > > > > > tolerating > > > > > > > > > carbs. > > > > > > > > > I just went with it and my appetite settled down after a few > > > > > weeks. > > > > > > > > > After > > > > > > > > > 1 week on 20mg cortef I suddenly realized I felt wonderful, > > > > > >peaceful, > > > > > > > > > tranquil and strong. After all the years of suffering and > > > > > > > struggling, > > > > > > > >it > > > > > > > > > was cosmic. > > > > > > > > > Gracia > > > > > > > > > > > > > > > > > > > Yes I have been reading about DHEA, and started to take > >some > > > > > today > > > > > > > >with > > > > > > > > > it. > > > > > > > > > > Only 5mgs to start though..it seems that the jury is still > > > > > out as > > > > > >to > > > > > > > > > whether > > > > > > > > > > it > > > > > > > > > > is really a good idea for women to take it, but you can't > > > > > believe > > > > > > > > > everything > > > > > > > > > > that you read I guess, and I will start small for sure. > > > > > > > > > > I feel like I can use a little testosterone anyway..I have > > > > > > > pretty poor > > > > > > > > > muscle > > > > > > > > > > tone this year despite exercising when I can, and I have > > > > > >absolutely > > > > > > > >ZERO > > > > > > > > > > libido. (that has been a major issue in my house) > > > > > > > > > > > > > > > > > > > > The only thing about the cortef that concerns me really > >was > > > >the > > > > > > > >package > > > > > > > > > > insert that warned about weight gain..at my age I don't > >need > > > > > > > anymore > > > > > > > >of > > > > > > > > > that! > > > > > > > > > > So far the 10mgs has helped me to feel amazingly better! > > > > > > > > > > I'm just sorry that I waited so long to give it a try... > > > > > > > > > > > > > > > > > > > > thanks again for all of the info that you have provided! > > > > > > > > > > you have been great. > > > > > > > > > > christina. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Gracia, I was just sharing my expierience with others. I'm sorry you feel the need to put someone down instead of just guiding them to the correct information. I have seen you on this board for a while and respect your opinion. I don't want to waste others time reading posts that don't help them and I'm sure they don't want to read arguments. I thought we were having a discussion not a debate. Your statement about patients relying on endos who seem to be unaware of all the other hormones produced by the adrenal glands was insulting...which is sad. I'm sorry you feel all endo's are bad. Personally, I don't see an endo at all... so you are wrong about that. Anyway, thanks for sharing your opinion anyways. Like I said... I won't waste anymore time on this. Some others were reading this and came back with very good information that helped me and I appreciate that. LaCretia > >The worst info on adrenals that I have seen has come from s >patients. >They are relying on endos who seem to be unaware of all the other hormones >produced by adrenal glands. Doctors who understand adrenals are at >http://www.brodabarnes.org I am kind of thinking that you will have to >get sick and tired of being sick and tired. >Gracia > > > LacCretia, > > I have never taken cortef. When I had the surgery for the cushings and >only had one adrenal gland left they stared me on predinsone right away. I >was on the highest does(I can't remember what it was now, been too long >ago) >for a couple of months to see if I was ok, then he would reduce the amount >every couple of months , always making sure I was going to be ok, and like >you said the mg. got so low I had to break the med. in half then quarters >and then I was off of it. I had the surgery in 12-1991. I went to a >addisons >support group and started reading and you were right. I read some pretty >nasty things that I don't want to go through. > > thanks > > take care > > Bev > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Thank you Gracia... You are very correct...good point and it's important to study the entire endocrine system...not just the thyroid. LaCretia > >Adrenal insufficiency/s/ adrenal hyperplasia are VERY MUCH related >to >hypothyroidism. They go hand in hand. Doctors do not know this and many >people die b/c of it. >Gracia > > > LaCretia, we all got your point, move on. This is a > > hypothyroid group. If you've got pertinent information > > relating to Hypo then share it otherwise ... > > > > Keep the bickering with Gracia outside the group. It's > > annoying and distracting from what the rest of us are > > trying to do - gain a better, clearer understanding of > > hypothyroidism and its treatment. Your bickering is > > clouding it up. > > > > Enough's enough. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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