Re: Re: Please help - I'm getting really desperate for help now.

[Guest guest]

----- Original Message -----

From: " samanthaoti " <samanthaoti@...>

> I started giving him all of my symptoms, when suddenly he stopped

> me. He said I'd told him 3 problems, and I'm only supposed to go to

> the Dr's with one problem at a time,

You know, as soon as I read that I knew you were in the UK. Same

thing happened to me a few years ago when I spoke to my ex-doc about

one thing and then started to show him a patch of skin on my leg that

looked cancerous. He told me the same thing as yours did - come back

later to talk about that. I could not believe it, this could have

been very dangerous and he was totally not interested. When I did go

back, he confirmed that it could be cancer and referred me to a

specialist. It turned out to be a non-invasive skin cancer - but the

outcome could have been totally different and could have been made

worse by the delay.

With regard to your symptoms and possible hypothyroidism, I am sorry

to tell you that a lot of people in this country have hit this brick

wall when trying to convince their docs. Many people are

self-medicating, but you are young and I would not recommend it. If

you can afford it I would recommend seeing a top thyroid doc

privately. You can find a list at www.thyroiduk.org

Best of luck

Lynda (also in the UK)

[Guest guest]

That doctor makes me SO angry!!! What's the freaking deal? What kind of doctor

tells you that you can't tell him all the symptoms you're having?? How is he

supposed to get any kind of clear picture of what might be happening with you if

you are only allowed to talk to him about one or two symptoms? His job is to

find out what's wrong with you, and he can't do that if he won't let you tell

him!!!

As far as I'm concerned, he's an idiot and he certainly does not sound

competent.

As far as " reaction to life... " that's a bunch of crap. As far as you feeling

depressed and sorry for yourself...he's nuts! Of course anyone's going to feel

down if they're so sick all the time. Feeling sorry for yourself??? I think all

you want to is feel good again. Of course if you feel bad physically you want a

doctor to help you feel better. That is their job, after all--to figure out

what's wrong (diagnose) and then treat you.

I can't believe he laughed at you and your mom when you showed him your

symptoms. I'm not even the one who experienced his cruelty, but I'm so angry and

just boiling. and i could just cry when I think about what you must be feeling.

I'm so terribly sorry this happened to you.

I don't know how things work in the UK, but if it were me, I would try to see a

Top Doc. If not that, then I would try to consult with someone privately.

someone in my other group who lives in the UK consults with these folks. She

says they are not too expensive and that they are great. I think they are based

in Pennsylvania.

http://www.oneflesh.org/

don't give up! {{{{Hugs,}}}}Sheila

samanthaoti <samanthaoti@...> wrote:

Hi everyone,

First of all, I'd like to thank you all for your help. You've been

great!

I went to see my doctor on Tuesday (unfortunately, it wasn't my usual

Dr - but there again, I suppose that could have been to my advantage -

a second oppinion so to speak).

I started giving him all of my symptoms, when suddenly he stopped

me. He said I'd told him 3 problems, and I'm only supposed to go to

the Dr's with one problem at a time, and that I'd already been with

him for 15 minutes! I was stunned - I didn't realise I had a limit!

He told me to tell him my last and main problem. So I told him about

the tiredness.

My Mam showed him the sheets and checklists that I'd printed out and

he literally laughed at us. He started jabbering on about how my

last Blood tests had came back fine, and that these symptoms could

all be " a reaction to life, if life's dealt us a bad hand " and it was

just something I'd have to live with. He was basically saying that I

was feeling depressed and sorry for myself which was why I was

feeling so tired, losing my hair etc. In his mind, he has completely

dismissed the Thyroid theory.

I was absolutely gutted. He has sent me for Blood tests though, but

as he's put my symptoms down to " a reaction to life " I don't think

anything more is going to be done.

I told him about my headaches, (that was one of the only 4 syptoms

that he allowed me to talk about) and he's given me some tablets. I

read the packaging and they say Do not take if you have an

underactive Thyroid - so that is how concerned he is about my

Thyroid!

All in all, I feel I'm back to square one and bashing my head against

a brick wall. I'm no nearer sorted with this problem as I was a year

ago.

I haven't been for the second Blood tests yet (I need to get the time

off work first) so I suppose I'll just have to wait and see.

My biggest worry now is that if the second tests come back clear,

that means that I don't have a Thyroid problem (which I suppose is

good in a way). But it means that there is definately something else

wrong somewhere. And it was when I put this possibility to my Dr,

that he came back with the " reaction... " line. So he isn't going to

investigate further. If my blood tests are clear, he's just going to

put it down to Depression I suppose - which, as you can imagine, I'm

not happy with.

Gracia, I'm in the North East of England, near Newcastle Upon Tyne.

Sorry to moan on. Thanks again for all your help.

>

> You are really really hypothyroid. Where do you live? Most

doctors know

> nothing about hypothyroidism.

> Gracia

>

> > Hello there,

> >

> > I was wondering if anyone could help me please?

> >

> > I'm a 19 year old girl, and haven't been feeling 'well' for many

> > years now.

> >

> > *I've got very thin, brittle hair - I often get times when it

falls

> > out (not in clumps, but an all-over general shed)

> >

> > *I'm quite short for my age (just on 5 foot), with very under-

> > devloped breasts. Everything seemed to stop growing as soon as I

hit

> > puberty at 14.

> >

> > *I'm overweight, and seem to just pile weight on - but I'm unable

to

> > lose it no matter how much I cut down or exercise at the gym

(when I

> > feel up-to-it)

> >

> > *I can't stand the cold - so much so that even in summer I'm all

> > wrapped up

> >

> > *I'm often constipated

> >

> > *I'm very pale (I've been tested for anaemia but nothing found)

> >

> > *I've got very bad skin - it's not young and 'fresh' - it's very

> > puffy and 'old' especially on my face.

> >

> > *Dry flaky skin on my body

> >

> > *My periods are very irregular - at the moment I've now gone 53

days

> > without a period. This is how it often is for me.

> >

> > *I've always had mood swings, and feelings of depression, and I'm

> > often very irritable and snappy.

> >

> > *My legs, hands and neck sometimes swell up.

> >

> > But the worst problem is, I'm always feeling absolutely drained of

> > energy and very very tired - as though I've had no sleep for days.

> > This is such a big problem that it's really effecting my life.

> >

> > I fall asleep on busses and even at my desk at work. As soon as I

> > get home from work I go to bed for a few hours.

> >

> > I've always had this tiredness problem, so I decided I'd join a

gym.

> > My hope was to go three times a week, but I can barely manage

once a

> > week because I'm always too tired to go.

> >

> > I can never be bothered to go out anywhere to socialise. I just

don't

> > seem to have the same amout of energy and 'go' in me that other

> > teenagers have. (I bet there's not many 19 year olds who are in

> > their night clothes at 7.30pm every Saturday night!) I may joke

> > about this, but it is really getting me down.

> >

> > The reason I'm here is that a few weeks ago, my Mum decided to put

> > all of my symptoms into a search engine, to see what it could

find.

> > Hypothyroidism was one of the things that it brought up.

> >

> > I've got an appointment with my doctor this Tuesday so I can tell

her

> > all of these things. The only problem is, when I last went to her

> > with these prpblems, she tested my blood for Anaemia. The test

> > didn't find anything. My Mam also mentioned Thyroid, but she

> > said " No no, it won't be that " and just dismissed the idea

altogether.

> >

> > So if I do have Hypothyroidism - wouldn't she have spotted it

then?

> >

> > If I don't have Hypothyroidism, does anyone know what else it

could

> > be? Because there is definately something wrong somewhere in my

> > body. I've been feeling like this for years and its gradually

getting

> > worse.

> >

> >

> >

[Guest guest]

slap that boy with a lawsuit of ignornorance!!!

Re: Please help - I'm getting really desperate for

help now.

> Hi everyone,

>

> First of all, I'd like to thank you all for your help. You've been

> great!

>

> I went to see my doctor on Tuesday (unfortunately, it wasn't my usual

> Dr - but there again, I suppose that could have been to my advantage -

> a second oppinion so to speak).

>

> I started giving him all of my symptoms, when suddenly he stopped

> me. He said I'd told him 3 problems, and I'm only supposed to go to

> the Dr's with one problem at a time, and that I'd already been with

> him for 15 minutes! I was stunned - I didn't realise I had a limit!

> He told me to tell him my last and main problem. So I told him about

> the tiredness.

>

> My Mam showed him the sheets and checklists that I'd printed out and

> he literally laughed at us. He started jabbering on about how my

> last Blood tests had came back fine, and that these symptoms could

> all be " a reaction to life, if life's dealt us a bad hand " and it was

> just something I'd have to live with. He was basically saying that I

> was feeling depressed and sorry for myself which was why I was

> feeling so tired, losing my hair etc. In his mind, he has completely

> dismissed the Thyroid theory.

>

> I was absolutely gutted. He has sent me for Blood tests though, but

> as he's put my symptoms down to " a reaction to life " I don't think

> anything more is going to be done.

>

> I told him about my headaches, (that was one of the only 4 syptoms

> that he allowed me to talk about) and he's given me some tablets. I

> read the packaging and they say Do not take if you have an

> underactive Thyroid - so that is how concerned he is about my

> Thyroid!

>

> All in all, I feel I'm back to square one and bashing my head against

> a brick wall. I'm no nearer sorted with this problem as I was a year

> ago.

>

> I haven't been for the second Blood tests yet (I need to get the time

> off work first) so I suppose I'll just have to wait and see.

>

> My biggest worry now is that if the second tests come back clear,

> that means that I don't have a Thyroid problem (which I suppose is

> good in a way). But it means that there is definately something else

> wrong somewhere. And it was when I put this possibility to my Dr,

> that he came back with the " reaction... " line. So he isn't going to

> investigate further. If my blood tests are clear, he's just going to

> put it down to Depression I suppose - which, as you can imagine, I'm

> not happy with.

>

> Gracia, I'm in the North East of England, near Newcastle Upon Tyne.

>

> Sorry to moan on. Thanks again for all your help.

>

>

> >

> > You are really really hypothyroid. Where do you live? Most

> doctors know

> > nothing about hypothyroidism.

> > Gracia

> >

> > > Hello there,

> > >

> > > I was wondering if anyone could help me please?

> > >

> > > I'm a 19 year old girl, and haven't been feeling 'well' for many

> > > years now.

> > >

> > > *I've got very thin, brittle hair - I often get times when it

> falls

> > > out (not in clumps, but an all-over general shed)

> > >

> > > *I'm quite short for my age (just on 5 foot), with very under-

> > > devloped breasts. Everything seemed to stop growing as soon as I

> hit

> > > puberty at 14.

> > >

> > > *I'm overweight, and seem to just pile weight on - but I'm unable

> to

> > > lose it no matter how much I cut down or exercise at the gym

> (when I

> > > feel up-to-it)

> > >

> > > *I can't stand the cold - so much so that even in summer I'm all

> > > wrapped up

> > >

> > > *I'm often constipated

> > >

> > > *I'm very pale (I've been tested for anaemia but nothing found)

> > >

> > > *I've got very bad skin - it's not young and 'fresh' - it's very

> > > puffy and 'old' especially on my face.

> > >

> > > *Dry flaky skin on my body

> > >

> > > *My periods are very irregular - at the moment I've now gone 53

> days

> > > without a period. This is how it often is for me.

> > >

> > > *I've always had mood swings, and feelings of depression, and I'm

> > > often very irritable and snappy.

> > >

> > > *My legs, hands and neck sometimes swell up.

> > >

> > > But the worst problem is, I'm always feeling absolutely drained of

> > > energy and very very tired - as though I've had no sleep for days.

> > > This is such a big problem that it's really effecting my life.

> > >

> > > I fall asleep on busses and even at my desk at work. As soon as I

> > > get home from work I go to bed for a few hours.

> > >

> > > I've always had this tiredness problem, so I decided I'd join a

> gym.

> > > My hope was to go three times a week, but I can barely manage

> once a

> > > week because I'm always too tired to go.

> > >

> > > I can never be bothered to go out anywhere to socialise. I just

> don't

> > > seem to have the same amout of energy and 'go' in me that other

> > > teenagers have. (I bet there's not many 19 year olds who are in

> > > their night clothes at 7.30pm every Saturday night!) I may joke

> > > about this, but it is really getting me down.

> > >

> > > The reason I'm here is that a few weeks ago, my Mum decided to put

> > > all of my symptoms into a search engine, to see what it could

> find.

> > > Hypothyroidism was one of the things that it brought up.

> > >

> > > I've got an appointment with my doctor this Tuesday so I can tell

> her

> > > all of these things. The only problem is, when I last went to her

> > > with these prpblems, she tested my blood for Anaemia. The test

> > > didn't find anything. My Mam also mentioned Thyroid, but she

> > > said " No no, it won't be that " and just dismissed the idea

> altogether.

> > >

> > > So if I do have Hypothyroidism - wouldn't she have spotted it

> then?

> > >

> > > If I don't have Hypothyroidism, does anyone know what else it

> could

> > > be? Because there is definately something wrong somewhere in my

> > > body. I've been feeling like this for years and its gradually

> getting

> > > worse.

> > >

> > >

> > >

[Guest guest]

I'm with you!! Makes you wonder " WHY " they ever went in to the medical

field..............

Shirley

Re: Re: Please help - I'm getting really desperate

for help now.

That doctor makes me SO angry!!! What's the freaking deal? What kind of doctor

tells you that you can't tell him all the symptoms you're having?? How is he

supposed to get any kind of clear picture of what might be happening with you if

you are only allowed to talk to him about one or two symptoms? His job is to

find out what's wrong with you, and he can't do that if he won't let you tell

him!!!

As far as I'm concerned, he's an idiot and he certainly does not sound

competent.

As far as " reaction to life... " that's a bunch of crap. As far as you feeling

depressed and sorry for yourself...he's nuts! Of course anyone's going to feel

down if they're so sick all the time. Feeling sorry for yourself??? I think all

you want to is feel good again. Of course if you feel bad physically you want a

doctor to help you feel better. That is their job, after all--to figure out

what's wrong (diagnose) and then treat you.

I can't believe he laughed at you and your mom when you showed him your

symptoms. I'm not even the one who experienced his cruelty, but I'm so angry and

just boiling. and i could just cry when I think about what you must be feeling.

I'm so terribly sorry this happened to you.

I don't know how things work in the UK, but if it were me, I would try to see

a Top Doc. If not that, then I would try to consult with someone privately.

someone in my other group who lives in the UK consults with these folks. She

says they are not too expensive and that they are great. I think they are based

in Pennsylvania.

http://www.oneflesh.org/

don't give up! {{{{Hugs,}}}}Sheila

samanthaoti <samanthaoti@...> wrote:

Hi everyone,

First of all, I'd like to thank you all for your help. You've been

great!

I went to see my doctor on Tuesday (unfortunately, it wasn't my usual

Dr - but there again, I suppose that could have been to my advantage -

a second oppinion so to speak).

I started giving him all of my symptoms, when suddenly he stopped

me. He said I'd told him 3 problems, and I'm only supposed to go to

the Dr's with one problem at a time, and that I'd already been with

him for 15 minutes! I was stunned - I didn't realise I had a limit!

He told me to tell him my last and main problem. So I told him about

the tiredness.

My Mam showed him the sheets and checklists that I'd printed out and

he literally laughed at us. He started jabbering on about how my

last Blood tests had came back fine, and that these symptoms could

all be " a reaction to life, if life's dealt us a bad hand " and it was

just something I'd have to live with. He was basically saying that I

was feeling depressed and sorry for myself which was why I was

feeling so tired, losing my hair etc. In his mind, he has completely

dismissed the Thyroid theory.

I was absolutely gutted. He has sent me for Blood tests though, but

as he's put my symptoms down to " a reaction to life " I don't think

anything more is going to be done.

I told him about my headaches, (that was one of the only 4 syptoms

that he allowed me to talk about) and he's given me some tablets. I

read the packaging and they say Do not take if you have an

underactive Thyroid - so that is how concerned he is about my

Thyroid!

All in all, I feel I'm back to square one and bashing my head against

a brick wall. I'm no nearer sorted with this problem as I was a year

ago.

I haven't been for the second Blood tests yet (I need to get the time

off work first) so I suppose I'll just have to wait and see.

My biggest worry now is that if the second tests come back clear,

that means that I don't have a Thyroid problem (which I suppose is

good in a way). But it means that there is definately something else

wrong somewhere. And it was when I put this possibility to my Dr,

that he came back with the " reaction... " line. So he isn't going to

investigate further. If my blood tests are clear, he's just going to

put it down to Depression I suppose - which, as you can imagine, I'm

not happy with.

Gracia, I'm in the North East of England, near Newcastle Upon Tyne.

Sorry to moan on. Thanks again for all your help.

>

> You are really really hypothyroid. Where do you live? Most

doctors know

> nothing about hypothyroidism.

> Gracia

>

> > Hello there,

> >

> > I was wondering if anyone could help me please?

> >

> > I'm a 19 year old girl, and haven't been feeling 'well' for many

> > years now.

> >

> > *I've got very thin, brittle hair - I often get times when it

falls

> > out (not in clumps, but an all-over general shed)

> >

> > *I'm quite short for my age (just on 5 foot), with very under-

> > devloped breasts. Everything seemed to stop growing as soon as I

hit

> > puberty at 14.

> >

> > *I'm overweight, and seem to just pile weight on - but I'm unable

to

> > lose it no matter how much I cut down or exercise at the gym

(when I

> > feel up-to-it)

> >

> > *I can't stand the cold - so much so that even in summer I'm all

> > wrapped up

> >

> > *I'm often constipated

> >

> > *I'm very pale (I've been tested for anaemia but nothing found)

> >

> > *I've got very bad skin - it's not young and 'fresh' - it's very

> > puffy and 'old' especially on my face.

> >

> > *Dry flaky skin on my body

> >

> > *My periods are very irregular - at the moment I've now gone 53

days

> > without a period. This is how it often is for me.

> >

> > *I've always had mood swings, and feelings of depression, and I'm

> > often very irritable and snappy.

> >

> > *My legs, hands and neck sometimes swell up.

> >

> > But the worst problem is, I'm always feeling absolutely drained of

> > energy and very very tired - as though I've had no sleep for days.

> > This is such a big problem that it's really effecting my life.

> >

> > I fall asleep on busses and even at my desk at work. As soon as I

> > get home from work I go to bed for a few hours.

> >

> > I've always had this tiredness problem, so I decided I'd join a

gym.

> > My hope was to go three times a week, but I can barely manage

once a

> > week because I'm always too tired to go.

> >

> > I can never be bothered to go out anywhere to socialise. I just

don't

> > seem to have the same amout of energy and 'go' in me that other

> > teenagers have. (I bet there's not many 19 year olds who are in

> > their night clothes at 7.30pm every Saturday night!) I may joke

> > about this, but it is really getting me down.

> >

> > The reason I'm here is that a few weeks ago, my Mum decided to put

> > all of my symptoms into a search engine, to see what it could

find.

> > Hypothyroidism was one of the things that it brought up.

> >

> > I've got an appointment with my doctor this Tuesday so I can tell

her

> > all of these things. The only problem is, when I last went to her

> > with these prpblems, she tested my blood for Anaemia. The test

> > didn't find anything. My Mam also mentioned Thyroid, but she

> > said " No no, it won't be that " and just dismissed the idea

altogether.

> >

> > So if I do have Hypothyroidism - wouldn't she have spotted it

then?

> >

> > If I don't have Hypothyroidism, does anyone know what else it

could

> > be? Because there is definately something wrong somewhere in my

> > body. I've been feeling like this for years and its gradually

getting

> > worse.

> >

> >

> >

[Guest guest]

I am sorry to hear about all of your problems- I hope you get better. I know how

it feels to always be tired and drained- It isnt fun at all. First of all, you

need to make you doctor aware that you are paying him whether it is by cash or

insurance he is the doctor and it is his job to listen to ALL of your problems,

whether it is 5 or 5000 ..!! You really shouldof put him in his place then,, but

I would of probably been just like you shocked and stunned more then anything

that I wouldof been speechless

then later I wouldof called his office and ripe his & *^% & ^ & !!!!! I definally

would go to another doctor..I am not sure what it could be- meaning your probs..

it sounds to me it is alot lke hypo.. But I just recently got dianosed so I

really dont know alot about this disease just yet but I know that being tired

has alot to do with it and hair loss. Shelia and chriss know alot about this

maybe they can help you more, they sure have helped me alot as well as the other

people to- everyone hereis so nice.. keisha

samanthaoti <samanthaoti@...> wrote:Hi everyone,

First of all, I'd like to thank you all for your help. You've been

great!

I went to see my doctor on Tuesday (unfortunately, it wasn't my usual

Dr - but there again, I suppose that could have been to my advantage -

a second oppinion so to speak).

I started giving him all of my symptoms, when suddenly he stopped

me. He said I'd told him 3 problems, and I'm only supposed to go to

the Dr's with one problem at a time, and that I'd already been with

him for 15 minutes! I was stunned - I didn't realise I had a limit!

He told me to tell him my last and main problem. So I told him about

the tiredness.

My Mam showed him the sheets and checklists that I'd printed out and

he literally laughed at us. He started jabbering on about how my

last Blood tests had came back fine, and that these symptoms could

all be " a reaction to life, if life's dealt us a bad hand " and it was

just something I'd have to live with. He was basically saying that I

was feeling depressed and sorry for myself which was why I was

feeling so tired, losing my hair etc. In his mind, he has completely

dismissed the Thyroid theory.

I was absolutely gutted. He has sent me for Blood tests though, but

as he's put my symptoms down to " a reaction to life " I don't think

anything more is going to be done.

I told him about my headaches, (that was one of the only 4 syptoms

that he allowed me to talk about) and he's given me some tablets. I

read the packaging and they say Do not take if you have an

underactive Thyroid - so that is how concerned he is about my

Thyroid!

All in all, I feel I'm back to square one and bashing my head against

a brick wall. I'm no nearer sorted with this problem as I was a year

ago.

I haven't been for the second Blood tests yet (I need to get the time

off work first) so I suppose I'll just have to wait and see.

My biggest worry now is that if the second tests come back clear,

that means that I don't have a Thyroid problem (which I suppose is

good in a way). But it means that there is definately something else

wrong somewhere. And it was when I put this possibility to my Dr,

that he came back with the " reaction... " line. So he isn't going to

investigate further. If my blood tests are clear, he's just going to

put it down to Depression I suppose - which, as you can imagine, I'm

not happy with.

Gracia, I'm in the North East of England, near Newcastle Upon Tyne.

Sorry to moan on. Thanks again for all your help.

>

> You are really really hypothyroid. Where do you live? Most

doctors know

> nothing about hypothyroidism.

> Gracia

>

> > Hello there,

> >

> > I was wondering if anyone could help me please?

> >

> > I'm a 19 year old girl, and haven't been feeling 'well' for many

> > years now.

> >

> > *I've got very thin, brittle hair - I often get times when it

falls

> > out (not in clumps, but an all-over general shed)

> >

> > *I'm quite short for my age (just on 5 foot), with very under-

> > devloped breasts. Everything seemed to stop growing as soon as I

hit

> > puberty at 14.

> >

> > *I'm overweight, and seem to just pile weight on - but I'm unable

to

> > lose it no matter how much I cut down or exercise at the gym

(when I

> > feel up-to-it)

> >

> > *I can't stand the cold - so much so that even in summer I'm all

> > wrapped up

> >

> > *I'm often constipated

> >

> > *I'm very pale (I've been tested for anaemia but nothing found)

> >

> > *I've got very bad skin - it's not young and 'fresh' - it's very

> > puffy and 'old' especially on my face.

> >

> > *Dry flaky skin on my body

> >

> > *My periods are very irregular - at the moment I've now gone 53

days

> > without a period. This is how it often is for me.

> >

> > *I've always had mood swings, and feelings of depression, and I'm

> > often very irritable and snappy.

> >

> > *My legs, hands and neck sometimes swell up.

> >

> > But the worst problem is, I'm always feeling absolutely drained of

> > energy and very very tired - as though I've had no sleep for days.

> > This is such a big problem that it's really effecting my life.

> >

> > I fall asleep on busses and even at my desk at work. As soon as I

> > get home from work I go to bed for a few hours.

> >

> > I've always had this tiredness problem, so I decided I'd join a

gym.

> > My hope was to go three times a week, but I can barely manage

once a

> > week because I'm always too tired to go.

> >

> > I can never be bothered to go out anywhere to socialise. I just

don't

> > seem to have the same amout of energy and 'go' in me that other

> > teenagers have. (I bet there's not many 19 year olds who are in

> > their night clothes at 7.30pm every Saturday night!) I may joke

> > about this, but it is really getting me down.

> >

> > The reason I'm here is that a few weeks ago, my Mum decided to put

> > all of my symptoms into a search engine, to see what it could

find.

> > Hypothyroidism was one of the things that it brought up.

> >

> > I've got an appointment with my doctor this Tuesday so I can tell

her

> > all of these things. The only problem is, when I last went to her

> > with these prpblems, she tested my blood for Anaemia. The test

> > didn't find anything. My Mam also mentioned Thyroid, but she

> > said " No no, it won't be that " and just dismissed the idea

altogether.

> >

> > So if I do have Hypothyroidism - wouldn't she have spotted it

then?

> >

> > If I don't have Hypothyroidism, does anyone know what else it

could

> > be? Because there is definately something wrong somewhere in my

> > body. I've been feeling like this for years and its gradually

getting

> > worse.

> >

> >

> >

[Guest guest]

I'm in the UK, and have had much the same reaction from my GP. Part of the

problem for GPs is that the establishment here is so fixated on test results,

regardless of the reality. And they have all bought into the 'if its female (the

patient) then it must be emotional' myth. Not good medicine, but the reality of

the UK doctors life.

You really need to find the money to go private. It will be worth it - a few

hundred pounds is so easy to earn through promotion or overtime if you are

feeling well.

I recently went to see Dr Gordon Skinner - and for the first time in years I was

talking to a Doc who didn't glaze over at the mention of TATT! He's really not

interested in the tests, he is interested in the patient's symptoms, and whether

they might be helped by treatment with Thyroid hormones(or anything else for

that matter). Very entertaining too, but that is just a bonus. He runs an

occasional clinic in Scunthorpe - not exactly around the corner, but I suspect

otherwise you'll be coming to London!

You can find a list of doctors sympathetic to your case on www.thyroidUK.org -

there is the guy at www.e-med.co.uk too - and that one is not that expensive.

Good luck,

Ruth

Re: Please help - I'm getting really desperate for

help now.

Hi everyone,

First of all, I'd like to thank you all for your help. You've been

great!

I went to see my doctor on Tuesday (unfortunately, it wasn't my usual

Dr - but there again, I suppose that could have been to my advantage -

a second oppinion so to speak).

I started giving him all of my symptoms, when suddenly he stopped

me. He said I'd told him 3 problems, and I'm only supposed to go to

the Dr's with one problem at a time, and that I'd already been with

him for 15 minutes! I was stunned - I didn't realise I had a limit!

He told me to tell him my last and main problem. So I told him about

the tiredness.

My Mam showed him the sheets and checklists that I'd printed out and

he literally laughed at us. He started jabbering on about how my

last Blood tests had came back fine, and that these symptoms could

all be " a reaction to life, if life's dealt us a bad hand " and it was

just something I'd have to live with. He was basically saying that I

was feeling depressed and sorry for myself which was why I was

feeling so tired, losing my hair etc. In his mind, he has completely

dismissed the Thyroid theory.

I was absolutely gutted. He has sent me for Blood tests though, but

as he's put my symptoms down to " a reaction to life " I don't think

anything more is going to be done.

I told him about my headaches, (that was one of the only 4 syptoms

that he allowed me to talk about) and he's given me some tablets. I

read the packaging and they say Do not take if you have an

underactive Thyroid - so that is how concerned he is about my

Thyroid!

All in all, I feel I'm back to square one and bashing my head against

a brick wall. I'm no nearer sorted with this problem as I was a year

ago.

I haven't been for the second Blood tests yet (I need to get the time

off work first) so I suppose I'll just have to wait and see.

My biggest worry now is that if the second tests come back clear,

that means that I don't have a Thyroid problem (which I suppose is

good in a way). But it means that there is definately something else

wrong somewhere. And it was when I put this possibility to my Dr,

that he came back with the " reaction... " line. So he isn't going to

investigate further. If my blood tests are clear, he's just going to

put it down to Depression I suppose - which, as you can imagine, I'm

not happy with.

Gracia, I'm in the North East of England, near Newcastle Upon Tyne.

Sorry to moan on. Thanks again for all your help.

>

> You are really really hypothyroid. Where do you live? Most

doctors know

> nothing about hypothyroidism.

> Gracia

>

> > Hello there,

> >

> > I was wondering if anyone could help me please?

> >

> > I'm a 19 year old girl, and haven't been feeling 'well' for many

> > years now.

> >

> > *I've got very thin, brittle hair - I often get times when it

falls

> > out (not in clumps, but an all-over general shed)

> >

> > *I'm quite short for my age (just on 5 foot), with very under-

> > devloped breasts. Everything seemed to stop growing as soon as I

hit

> > puberty at 14.

> >

> > *I'm overweight, and seem to just pile weight on - but I'm unable

to

> > lose it no matter how much I cut down or exercise at the gym

(when I

> > feel up-to-it)

> >

> > *I can't stand the cold - so much so that even in summer I'm all

> > wrapped up

> >

> > *I'm often constipated

> >

> > *I'm very pale (I've been tested for anaemia but nothing found)

> >

> > *I've got very bad skin - it's not young and 'fresh' - it's very

> > puffy and 'old' especially on my face.

> >

> > *Dry flaky skin on my body

> >

> > *My periods are very irregular - at the moment I've now gone 53

days

> > without a period. This is how it often is for me.

> >

> > *I've always had mood swings, and feelings of depression, and I'm

> > often very irritable and snappy.

> >

> > *My legs, hands and neck sometimes swell up.

> >

> > But the worst problem is, I'm always feeling absolutely drained of

> > energy and very very tired - as though I've had no sleep for days.

> > This is such a big problem that it's really effecting my life.

> >

> > I fall asleep on busses and even at my desk at work. As soon as I

> > get home from work I go to bed for a few hours.

> >

> > I've always had this tiredness problem, so I decided I'd join a

gym.

> > My hope was to go three times a week, but I can barely manage

once a

> > week because I'm always too tired to go.

> >

> > I can never be bothered to go out anywhere to socialise. I just

don't

> > seem to have the same amout of energy and 'go' in me that other

> > teenagers have. (I bet there's not many 19 year olds who are in

> > their night clothes at 7.30pm every Saturday night!) I may joke

> > about this, but it is really getting me down.

> >

> > The reason I'm here is that a few weeks ago, my Mum decided to put

> > all of my symptoms into a search engine, to see what it could

find.

> > Hypothyroidism was one of the things that it brought up.

> >

> > I've got an appointment with my doctor this Tuesday so I can tell

her

> > all of these things. The only problem is, when I last went to her

> > with these prpblems, she tested my blood for Anaemia. The test

> > didn't find anything. My Mam also mentioned Thyroid, but she

> > said " No no, it won't be that " and just dismissed the idea

altogether.

> >

> > So if I do have Hypothyroidism - wouldn't she have spotted it

then?

> >

> > If I don't have Hypothyroidism, does anyone know what else it

could

> > be? Because there is definately something wrong somewhere in my

> > body. I've been feeling like this for years and its gradually

getting

> > worse.

> >

> >

> >

[Guest guest]

,

I have every empathy for you there. Here is my story and hope it helps you not

to give up hope.

I was diagnosed in Jan 02 with hypothyroidism but not which type. I had an

absolutely dreadful GP who basically didn't listen to me or my symptoms when I

said I felt like I needed more thyroxine. I was having the whole list of

symptoms on the checklist and when I showed that to my GP she basically told me

off for getting the information from the internet. She made me feel like I was

overreacting that I once my TSH was within 'so called' limits I was cured.

My response was to demand to be referred to an Endocrinologist. She refused but

said if I still wanted to see an endocrinologist when I saw her again with my

next blood test then she would refer me. I asked again and again for 12 months,

then she said that she would ask for their opinion rather than refer me, then

told me they had agreed with her treatment plan and that they don't see

hypothyroid people only hyperthyroid people because the drugs are more toxic.

After speaking with others on here I decided to ask for my antibodies to be

checked and I said I wasn't leaving until she put the request on my blood form.

My antibodies I was told came back high which meant I had Autoimmune Thyroiditis

but that it didn't changed the management of my hypothyroidism and the thyroxine

dose stayed the same. After 14 months this doctor had a year out of the practice

for some reason. So I changed GP (within the same practice)

On my first visit to this new doctor she took one look at me and asked me if I

had been referred to the Endocrinologist yet. I said that it was a bit of a sore

point and that I have been requesting the referral for the past 14 months. She

referred me immediately, no questions asked. My TSH came back 'normal' but

explained that although it was within normal it was increasing, so she increased

my thyroxine dose. It was a complete change from the other awful woman I had

before.

On my first appointment with the Professor of Endocrinology he asked me why I

hadn't been referred earlier and I explained all the story to him. He said that

no doctor had ever contacted him regarding my treatment. He comented that my

antibodies were so severely high I was effectively toxic. He said that I would

now be managed through clinic because it would be dangerous to be managed

through my GP. I believe he wrote a very stern letter of complaint to the

original doctor I had.

I have since been stabilised on my medication and I actually feel well. Through

the regular blood checks and medication changes (even if TSH is within normal) I

now know I feel well when my TSH is around 1.0 I also now know I feel very hypo

if I go above a TSH of 2.0. I was also sent for a complete set of blood work

which thankfully has come back negative for any further auto immune conditions.

I am also to take part in a nationwide study into auto immune conditions with

blood samples. I would never have felt this well if I had stayed with my first

GP and without the advice and support of this group I would never have had the

guts (or knowledge) to demand for certain blood tests to be done or my doses to

be altered. With my new GP and now the Endo clinic I feel I have finally reached

wellness (with the odd bad hypo day)

The main thing I want to say to you and anyone else who has suffered at

the hands of bad doctors is to give yourself the courage to change doctors and

to keep changing until you find a doctor that actually listens to you. Be your

own advocate. The doctors are not always right, they don't always know about

thyroid problems. There are a couple of people at work who have also had bad

care with their thyroid condition and one girl went to her doctor armed with the

information I had given her (gained from this group, the thyroiditis group and

Shomans excellent book) and her GP has ordered blood tests and told her

that 'your friend was right, lets do some tests' The first step on the journey

to wellness has to begin with you and a little help from your friends here.

I hope all works out for you and keep us up to date with how you get on. I am

also in the North of England. Feel free to e-mail me if ever you want to chat.

Good Luck.

Ali

Shirley White <docwhite@...> wrote:

I'm with you!! Makes you wonder " WHY " they ever went in to the medical

field..............

Shirley

Re: Re: Please help - I'm getting really desperate

for help now.

That doctor makes me SO angry!!! What's the freaking deal? What kind of doctor

tells you that you can't tell him all the symptoms you're having?? How is he

supposed to get any kind of clear picture of what might be happening with you if

you are only allowed to talk to him about one or two symptoms? His job is to

find out what's wrong with you, and he can't do that if he won't let you tell

him!!!

As far as I'm concerned, he's an idiot and he certainly does not sound

competent.

As far as " reaction to life... " that's a bunch of crap. As far as you feeling

depressed and sorry for yourself...he's nuts! Of course anyone's going to feel

down if they're so sick all the time. Feeling sorry for yourself??? I think all

you want to is feel good again. Of course if you feel bad physically you want a

doctor to help you feel better. That is their job, after all--to figure out

what's wrong (diagnose) and then treat you.

I can't believe he laughed at you and your mom when you showed him your

symptoms. I'm not even the one who experienced his cruelty, but I'm so angry and

just boiling. and i could just cry when I think about what you must be feeling.

I'm so terribly sorry this happened to you.

I don't know how things work in the UK, but if it were me, I would try to see

a Top Doc. If not that, then I would try to consult with someone privately.

someone in my other group who lives in the UK consults with these folks. She

says they are not too expensive and that they are great. I think they are based

in Pennsylvania.

http://www.oneflesh.org/

don't give up! {{{{Hugs,}}}}Sheila

samanthaoti <samanthaoti@...> wrote:

Hi everyone,

First of all, I'd like to thank you all for your help. You've been

great!

I went to see my doctor on Tuesday (unfortunately, it wasn't my usual

Dr - but there again, I suppose that could have been to my advantage -

a second oppinion so to speak).

I started giving him all of my symptoms, when suddenly he stopped

me. He said I'd told him 3 problems, and I'm only supposed to go to

the Dr's with one problem at a time, and that I'd already been with

him for 15 minutes! I was stunned - I didn't realise I had a limit!

He told me to tell him my last and main problem. So I told him about

the tiredness.

My Mam showed him the sheets and checklists that I'd printed out and

he literally laughed at us. He started jabbering on about how my

last Blood tests had came back fine, and that these symptoms could

all be " a reaction to life, if life's dealt us a bad hand " and it was

just something I'd have to live with. He was basically saying that I

was feeling depressed and sorry for myself which was why I was

feeling so tired, losing my hair etc. In his mind, he has completely

dismissed the Thyroid theory.

I was absolutely gutted. He has sent me for Blood tests though, but

as he's put my symptoms down to " a reaction to life " I don't think

anything more is going to be done.

I told him about my headaches, (that was one of the only 4 syptoms

that he allowed me to talk about) and he's given me some tablets. I

read the packaging and they say Do not take if you have an

underactive Thyroid - so that is how concerned he is about my

Thyroid!

All in all, I feel I'm back to square one and bashing my head against

a brick wall. I'm no nearer sorted with this problem as I was a year

ago.

I haven't been for the second Blood tests yet (I need to get the time

off work first) so I suppose I'll just have to wait and see.

My biggest worry now is that if the second tests come back clear,

that means that I don't have a Thyroid problem (which I suppose is

good in a way). But it means that there is definately something else

wrong somewhere. And it was when I put this possibility to my Dr,

that he came back with the " reaction... " line. So he isn't going to

investigate further. If my blood tests are clear, he's just going to

put it down to Depression I suppose - which, as you can imagine, I'm

not happy with.

Gracia, I'm in the North East of England, near Newcastle Upon Tyne.

Sorry to moan on. Thanks again for all your help.

>

> You are really really hypothyroid. Where do you live? Most

doctors know

> nothing about hypothyroidism.

> Gracia

>

> > Hello there,

> >

> > I was wondering if anyone could help me please?

> >

> > I'm a 19 year old girl, and haven't been feeling 'well' for many

> > years now.

> >

> > *I've got very thin, brittle hair - I often get times when it

falls

> > out (not in clumps, but an all-over general shed)

> >

> > *I'm quite short for my age (just on 5 foot), with very under-

> > devloped breasts. Everything seemed to stop growing as soon as I

hit

> > puberty at 14.

> >

> > *I'm overweight, and seem to just pile weight on - but I'm unable

to

> > lose it no matter how much I cut down or exercise at the gym

(when I

> > feel up-to-it)

> >

> > *I can't stand the cold - so much so that even in summer I'm all

> > wrapped up

> >

> > *I'm often constipated

> >

> > *I'm very pale (I've been tested for anaemia but nothing found)

> >

> > *I've got very bad skin - it's not young and 'fresh' - it's very

> > puffy and 'old' especially on my face.

> >

> > *Dry flaky skin on my body

> >

> > *My periods are very irregular - at the moment I've now gone 53

days

> > without a period. This is how it often is for me.

> >

> > *I've always had mood swings, and feelings of depression, and I'm

> > often very irritable and snappy.

> >

> > *My legs, hands and neck sometimes swell up.

> >

> > But the worst problem is, I'm always feeling absolutely drained of

> > energy and very very tired - as though I've had no sleep for days.

> > This is such a big problem that it's really effecting my life.

> >

> > I fall asleep on busses and even at my desk at work. As soon as I

> > get home from work I go to bed for a few hours.

> >

> > I've always had this tiredness problem, so I decided I'd join a

gym.

> > My hope was to go three times a week, but I can barely manage

once a

> > week because I'm always too tired to go.

> >

> > I can never be bothered to go out anywhere to socialise. I just

don't

> > seem to have the same amout of energy and 'go' in me that other

> > teenagers have. (I bet there's not many 19 year olds who are in

> > their night clothes at 7.30pm every Saturday night!) I may joke

> > about this, but it is really getting me down.

> >

> > The reason I'm here is that a few weeks ago, my Mum decided to put

> > all of my symptoms into a search engine, to see what it could

find.

> > Hypothyroidism was one of the things that it brought up.

> >

> > I've got an appointment with my doctor this Tuesday so I can tell

her

> > all of these things. The only problem is, when I last went to her

> > with these prpblems, she tested my blood for Anaemia. The test

> > didn't find anything. My Mam also mentioned Thyroid, but she

> > said " No no, it won't be that " and just dismissed the idea

altogether.

> >

> > So if I do have Hypothyroidism - wouldn't she have spotted it

then?

> >

> > If I don't have Hypothyroidism, does anyone know what else it

could

> > be? Because there is definately something wrong somewhere in my

> > body. I've been feeling like this for years and its gradually

getting

> > worse.

> >

> >

> >