Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 order cortisol and Armour and treat yourself! You will be better off. I work in a group home and there is a tiny guy there who is untreated hypothyroid hypoadrenal, age 52. Imagine no doctor has ever treated him properly his whole life and now he is in a home for mentally retarded. Gracia > I'm in the same boat Sheila. I feel like an orphan. No help from anyone around here. I'm 37 and continue to feel as if I was 80. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Hi everyone, I just joined this group, My name is , I just turned 30 and have " known " I am hypo for about 8 years now, though have had symptoms since about puberty. It feels so weird to hear stories from others who suffer like I do. I have never met anyone else who had shared the same illness as myself, so I have been very much alone in dealing with these symtoms. I had been doing ok taking .075mg of synthroid, although recently have been feeling like my dosage is off. The Endo I was seeing retired about 2 years ago, he had instructed my OB to continue my refills for me. I'm trying to get into see my OB and hopefully he will believe me. There aren't any Endo's in my immediate area, and any that are close require a referral. My problem is that I feel like shit and no doc will believe me, my last hope is that my OB will take me seriously. Since I don't test " outside " the normal range with the T3 & T4 the other docs keep telling me I am fine. I went to the hospital this morning and saw some quack! I have been having dizzy spells all week and they are getting worse, I have been sooo tired all the time for about the past three weeks! I have to nap when I get home from work, if I don't give in to a nap I feel very sick like I'm gonna puke or pass out! My fingers/hands are peeling, I have no energy, feel like I'm 105 years old, but according to the doc, nothing is wrong with me. The idiot I saw this morning, said I have Vertigo, ok... like says... they don't know, so they just name it whatever sounds close. I was laying in the hospital bed for 4 hours this morning, come to find out the doc was waiting for pregnancy test results! I told the idiot that my tubes were tied 5 years ago and not having my period since mid April is normal for having my dosage off! I thought he only ordered tyroid tests! I have to pay for a pregnancy test too! I figured at least when I get into my OB, I could have a copy of the tests to show him, since he would have to order them before he makes a decision anyway. This doc didn't even know what tests to order, he said he didn't want the TSH, because I already know I am hypo and that wouldn't tell him anything. He wasn't sure which T3, T4 tests to order, so he had the receptionist call the lab and ask. They told her to order the T3, T4 and TSH. He refused the TSH and replaced it with a pregnancy test! I was sooooo mad! By the way, of course the preg. test was neg. I'm gonna try to fight paying for that! Now when I see the OB, I'm still not gonna have all the info he will need to make his diagnosis! Re: Gracia- update on mom I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 This sounds like what I went through 20 years ago! Back then, they only tested T4 and T3 and it was very hard to get a TSH test. T4 and T3 are not good indicators of hypothyroid for first diagnosis. If your dosage has not changed for a long time, you could have got more hypothyroid. After your TSH is in range, THEN you want to check the T3 and T4. You have got to get to a doctor who will test your TSH. Try one of the online labs if you have to. If you are in an HMO, offer to pay for the test yourself...the doctor may be gatekeeping. <brandy118@...> wrote: This doc didn't even know what tests to order, he said he didn't want the TSH, because I already know I am hypo and that wouldn't tell him anything. He wasn't sure which T3, T4 tests to order, so he had the receptionist call the lab and ask. They told her to order the T3, T4 and TSH. He refused the TSH and replaced it with a pregnancy test! I was sooooo mad! By the way, of course the preg. test was neg. I'm gonna try to fight paying for that! Now when I see the OB, I'm still not gonna have all the info he will need to make his diagnosis! Re: Gracia- update on mom I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 This sounds like what I went through 20 years ago! Back then, they only tested T4 and T3 and it was very hard to get a TSH test. T4 and T3 are not good indicators of hypothyroid for first diagnosis. If your dosage has not changed for a long time, you could have got more hypothyroid. After your TSH is in range, THEN you want to check the T3 and T4. You have got to get to a doctor who will test your TSH. Try one of the online labs if you have to. If you are in an HMO, offer to pay for the test yourself...the doctor may be gatekeeping. <brandy118@...> wrote: This doc didn't even know what tests to order, he said he didn't want the TSH, because I already know I am hypo and that wouldn't tell him anything. He wasn't sure which T3, T4 tests to order, so he had the receptionist call the lab and ask. They told her to order the T3, T4 and TSH. He refused the TSH and replaced it with a pregnancy test! I was sooooo mad! By the way, of course the preg. test was neg. I'm gonna try to fight paying for that! Now when I see the OB, I'm still not gonna have all the info he will need to make his diagnosis! Re: Gracia- update on mom I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 This sounds like what I went through 20 years ago! Back then, they only tested T4 and T3 and it was very hard to get a TSH test. T4 and T3 are not good indicators of hypothyroid for first diagnosis. If your dosage has not changed for a long time, you could have got more hypothyroid. After your TSH is in range, THEN you want to check the T3 and T4. You have got to get to a doctor who will test your TSH. Try one of the online labs if you have to. If you are in an HMO, offer to pay for the test yourself...the doctor may be gatekeeping. <brandy118@...> wrote: This doc didn't even know what tests to order, he said he didn't want the TSH, because I already know I am hypo and that wouldn't tell him anything. He wasn't sure which T3, T4 tests to order, so he had the receptionist call the lab and ask. They told her to order the T3, T4 and TSH. He refused the TSH and replaced it with a pregnancy test! I was sooooo mad! By the way, of course the preg. test was neg. I'm gonna try to fight paying for that! Now when I see the OB, I'm still not gonna have all the info he will need to make his diagnosis! Re: Gracia- update on mom I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Yeesh, sounds like a plan Gracia, but you think i'm gonna be eventually mentally retarded then? YIkes! Re: Re: where do you go? order cortisol and Armour and treat yourself! You will be better off. I work in a group home and there is a tiny guy there who is untreated hypothyroid hypoadrenal, age 52. Imagine no doctor has ever treated him properly his whole life and now he is in a home for mentally retarded. Gracia > I'm in the same boat Sheila. I feel like an orphan. No help from anyone around here. I'm 37 and continue to feel as if I was 80. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Gracia how do I self manage? At what doses and how do I get the right dose of cortisol (Cortef) and Armour and how do I self monitor both through the process? I am already taking IsoCort (2 at breakfast, 2 at lunch, and 1 a dinner) I don't know what I should notice. I am still very cold and sluggish. Much appreciated! Chris Re: Re: where do you go? order cortisol and Armour and treat yourself! You will be better off. I work in a group home and there is a tiny guy there who is untreated hypothyroid hypoadrenal, age 52. Imagine no doctor has ever treated him properly his whole life and now he is in a home for mentally retarded. Gracia > I'm in the same boat Sheila. I feel like an orphan. No help from anyone around here. I'm 37 and continue to feel as if I was 80. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 I'm really sorry for everything you've been going through. Being told your symptoms are due to anxiety or some kind of emotional problems must make you feel so hopeless...at least that's how I would feel. Like you said, though, it would be different if you were a member of those doctors' families. They would not stop until they found out what was wrong with you. But since you're not family or a friend, they just chalk it up to some kind of emotional disturbance. It's not fair. I wish I had advice for you. I'm not sure what I would do if I were in your shoes, but I *think* I would probably plan a vacation in which I travelled to see one of the best docs who knows how to deal with hormones. I would be too scared to self treat...maybe not if i was that desperate though...not sure. Good luck. Wish you the best, SHeila <moneyatwork@...> wrote: I'm in the same boat Sheila. I feel like an orphan. No help from anyone around here. I'm 37 and continue to feel as if I was 80. It's sad when your next door neighbour is is 80 can do more than I can. I sit and wonder, " How can they do that, or how can jog like that, or how can they wear hardly anything and not freeze? " I know my whole life my mind has always been an active one. I have always been a high strung person. Both and extrovert and introvert. An open personality. An open book. Someone passionate. Deep. I tend to think alot. But I feel somewhere along the way that I have burned my candle out at both ends. Overstress and overworry for many years. Traumatic events. But now here I am not being able to bounce back, or recover as though something has got stuck. Has slowed down. Like I'm short in some biochemical my body lacks to put me back into drive. Into motion. I just can't continue living my life like this. As a sloth. Imagine driving your car in 1st gear all the time just putzing along? I am horribly freezing and lethargic constantly. I have to wear long underwear and wool socks even in the summer time when everyone else is wearing shorts and tank tops with their thermostat turned down in their house. Just horrible cold intolerance. It feels winter in the summer. I can't seem to get warm. A hot shower never feels hot. I won't even sweat. I can't even handle air conditioning anymore. My feet are freezing, my whole body is freezing, I wake up and get out of bed and feel freezing cold, unrefreshed and unrestored, lethargic and sluggish and drained even after a good nights sleep. Can't get going in the morning. I have to just sit in a scalding hot shower just to warm up. All this has been going on for years though. Exercise won't seem to keep my metabolism up enough for me to feel warm for long enough. Doesn't get things to stay working for long enough. My body isn't regulating right. My function is slow and weak. My digestion is poor. Alot of G.I. distress. I lost weight I never lost before. I feel like I am sitting in the arctic right now. It's obvious the effects of what has declined has caused even my mind to feel emotionally depressed in mood and thought. I have lost feeling. Become emotionally numb. Lack interest in people and things. I am forgetful. Can't concentrate on much. Lost desire and enthusiasm for anything. I have no stamina or strength for anything, no tolerance to anything mentally or physically exerting. I get irritated easily, upset easily, edgy, anxious, nervous, afraid, panicky. My bowels are sluggish and don't move much regardless of more than adequate fiber and liquid intake. My calorie and nutritional intake is more than optimum but yet have lost weight down to 157 from ideal weight of 175. I sleep and I wake up unrefreshed and unrestored tired and lethargic. My energy is very low and function is weak. My pulse is slow and weak obviously since my function is weak. My average temperature has been running around 97 orally during the day. I can't get warm at all. Only periodically. Stress and worryand lack of sleep bottoms me out more so my sleep will be poor and I will be cold and tired again. Poor recovery. Wounds heal slowly. Infections in my sinuses. Sinuses are unclear and smell is impaired lately. Everything smelling stale and musty when I wake up. I have no sexual desire or drive. My systolic blood pressure drops around 10 points upon standing. My AST and ALT liver enzymes are now higher than usual for some reason. I get some chest pain in upper left side of chest cavity side when running and breathing hard upon inhaling that goes away after I stop running. My hair takes forever to grow anymore and is thinning. I'm sprouting alot of grey hairs all over my body and I'm only 37. I can see if I was 67 yes but 37?? I am prematurely declining. The question is, what has declined to cause all this???? So I wonder why I am living this way. My doctors make me feel like I'm crazy. So what is it doc? Why am I so unusually freezing shivering cold like this and tired and my hair doesn't grow and is getting thinner and thinner. Is my circulation blocked? Am I about to die from some hidden undetected disease growing for years? What is going on here? Why is my body functioning this way? Why is it acting this way? They say, " Oh don't worry, you think too much, it's just stress, it's all in your head, it sounds like you may have a " mood disorder " . Take this pill for your head and I'll talk to you in a month! " I reply, " So it's just " in my mind " then? All I do is shake my head in disbelief that they would even make such an assumption. Even my specialist said to my G.P. " All the same, my impression is that this guy is psychoneurotic and may have panic disorder than a physical problem. All I have to say to that is....what the hell????? So what is " panic disorder " then? Some brand new disease that isn't something experienced on a physical level?? Just my imagination???? As though the mind and body are separate components and aren't connected together? What a lame answer. You know its quite strange that if they don't know the answer, then there is none, the problem is with the patient's head?????? So I'm psychotic now cause he can't find the answer????? So then I ask, " So what wrong with my stomach doc? " Take this pill for your epigastric pain " . So I say, why take a pill for this symptom if I'm just imagining it? I thought you said I was psychoneurotic? You see, so it's no wonder I start to feel more and more despair or become MORE emotionally depressed. A vicious cycle. Who wouldn't when your mind and body have become so sluggish for so long and then you have a doctor who tells you that its all in your head and your psychoneurotic or OCD? More labels just to put on you when they don't know the answer or don't care. I wonder what would happen if I was the doctor's son?? Who wouldn't become sick or functionally ill from running a subnormal body temperature? Functional illness is not disease. Doctors obviously only go for disease rather than go for good function. And yet the doctors look at me with this puzzled look in their eyes. They say, " It's not your thyroid cause your TSH is normal at 1.99, your fine. " , I then reply, " I see so you believe a number over the patient sitting in front of you? How bout' my adrenals then doc? " " Your adrenals are fine since your serum cortisol is in the normal range. Oh, let's see, your liver enzymes ALT and AST are a little high for some reason. " My luck is so bad, I even had a N.D. try me on sustained released T-3 since he and I both knew I felt better when I was warmer, so he thought he would try to get my temperature up cycling me on sustained released T-3. On one cycle, especially when I got on the higher doses, my anxiety symptoms got worse, more agitated, more irritability, edginess, more nervousness, more palpitations (heart fluttering and skipping), other than my gut motility improving. So he quit after one cycle of T-3 and said " i think your adrenals may not be up to snuff, try Isocort. So I'm on that and I don't feel at all an ounce better. Then he just quit treating me all together. Just up and left cause he figured he did everything. As though he is saying, " Boy you didn't respond to what you should have responded to, so I can't help you anymore " Like its that simple? Just throw something at the body and everything will go away? When will my suffering ever end. No wonder I'm stressed and more depressed trying to find someone to help me. Chris Re: Gracia- update on mom I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Yes Sheila. i am going to travel to see someone. I don't need a blind fold on trying to self heal. I don't know what the hell I'm doing. A team assessment would be ideal by a holistic health clinic from functional medicine docs. But the question is who is good at balancing hormones. I need an extensive workup by someone who who deals with functional medicine, not just a doctor who only looks for disease. Someone holistic and extensive, perhaps a clinic or team approach to evaluate all cornerstones of healing, who looks at diet, will do a gastric analysis to make sure there is sufficient stomach acid to digest food properly, diet counseling, chelation therapy, hormonal balancing, temperature charting, whatever is needed to provide the right program to my needs. Chris Re: Gracia- update on mom I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 i'm not sure where to point you, but you have an idea of what you need and can search. I would be scared out of my mind to self treat...like you...wouldn't have a clue and would be scared I'd just make myself sicker. Good luck, Sheila <moneyatwork@...> wrote:Yes Sheila. i am going to travel to see someone. I don't need a blind fold on trying to self heal. I don't know what the hell I'm doing. A team assessment would be ideal by a holistic health clinic from functional medicine docs. But the question is who is good at balancing hormones. I need an extensive workup by someone who who deals with functional medicine, not just a doctor who only looks for disease. Someone holistic and extensive, perhaps a clinic or team approach to evaluate all cornerstones of healing, who looks at diet, will do a gastric analysis to make sure there is sufficient stomach acid to digest food properly, diet counseling, chelation therapy, hormonal balancing, temperature charting, whatever is needed to provide the right program to my needs. Chris Re: Gracia- update on mom I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 One thing I just did and may be helpful to you, ???? I found a ND who actually likes " conundrums " or things that allopathic doctors have a hard time diagnosing. I went to http://www.naturopathic.org and did a search for an ND. I used the advanced search for the whole state. Because that yielded so many results I looked for ones with websites. The ND that I found only had a brief description on the site, but when I visited their clinic's website knew I found a good match (although it is pretty far away...but that is the price I pay I guess) I am going to get many of the tests that will help the ND at the community clinic (as I am low income and the community clinic uses a sliding fee scale, so it is much cheaper than using the ND's lab which doesn't use a sliding scale) My last labs only cost me $17 and included a TSH, FSH, CBC and metabolic panel (protein, liver, kidney and electrolytes). I think the next set of tests will cost more, but will still be cheaper than the ND's labs. I also only pay $20 for office visit at community clinic where the ND is $200 for an office visit. YMMV The main reason I liked this clinic is that I also have ADHD and one of the doctors specializes in ADHD, but more than that was when I read the word CONUNDRUM. LOL Most of their site focuses on other disorders (AIDS, Breast Cancer, Parkinsons, Hepatitis), I contacted them with a list of my symptoms and they responded back and it sounded hopeful. It looks like a good match for me. Bottom line, look around and see if you can find a good match for yourself. Wishing you well on this journey, Re: Gracia- update on mom > > > I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. > And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. > > Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. > > I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. > > What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. > > If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. > > sheila > > > > > > > Gracia <circe@...> wrote: > > She is so sensitive to thyroid meds b/c she needs other hormones like > cortisol, compounded hormones. It is not complicated actually and does not > require tons of tests, some of which won't be accurate. My mother had a 24 > hr urine test in the hospital which came out normal--well they didn't give > her cortef, which tells me the test was useless. > It really isn't necessary for your mother to be so sick and not get > treatment. I just got Rx for hormones renewed and thank God the ND didn't > even SUGGEST I get TSH done. > Your mother will never get proper treatment unless the doc knows about > adrenals. > Gracia > > > > My mom is no longer going to that doctor. She just saw a different doctor > in the practice yesterday (was listed as a Top Doc). > > > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, > she has tons of symtpoms. > > > > He said she definitely needs Armour and is doing some more testing of > other hormones. Mom wasn't sure which ones...I have a feeling he's testing > some adrenal hormones again...doing 24 hour urine. > > > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. > and will increase slowly. > > > > I am thrilled she found this doctor! Hugs, Sheila > > > > Gracia <circe@...> wrote: > > > > DANGEROUS. no one should be going to a doc like this one. decreased > > income might send him a message. > > Gracia > > > > > Hi Gracia, > > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by > some > > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > > ?...can't remember but she was definitely in the hypoT range. This doc > said > > her TSH needed to get up over 10. Crazy! sheila > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 thanks . I wonder about that clinic in washington backed by Dr. athan . Ever heard of him? Chris Re: Gracia- update on mom > > > I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. > And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. > > Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. > > I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. > > What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. > > If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. > > sheila > > > > > > > Gracia <circe@...> wrote: > > She is so sensitive to thyroid meds b/c she needs other hormones like > cortisol, compounded hormones. It is not complicated actually and does not > require tons of tests, some of which won't be accurate. My mother had a 24 > hr urine test in the hospital which came out normal--well they didn't give > her cortef, which tells me the test was useless. > It really isn't necessary for your mother to be so sick and not get > treatment. I just got Rx for hormones renewed and thank God the ND didn't > even SUGGEST I get TSH done. > Your mother will never get proper treatment unless the doc knows about > adrenals. > Gracia > > > > My mom is no longer going to that doctor. She just saw a different doctor > in the practice yesterday (was listed as a Top Doc). > > > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, > she has tons of symtpoms. > > > > He said she definitely needs Armour and is doing some more testing of > other hormones. Mom wasn't sure which ones...I have a feeling he's testing > some adrenal hormones again...doing 24 hour urine. > > > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. > and will increase slowly. > > > > I am thrilled she found this doctor! Hugs, Sheila > > > > Gracia <circe@...> wrote: > > > > DANGEROUS. no one should be going to a doc like this one. decreased > > income might send him a message. > > Gracia > > > > > Hi Gracia, > > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by > some > > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > > ?...can't remember but she was definitely in the hypoT range. This doc > said > > her TSH needed to get up over 10. Crazy! sheila > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 I have not heard of him, but did see (just checked the state list LOL) him listed, but only with an email address. One thing that is in my criteria is that I find someone who would accept a lower fee. That is why I wanted to see a website, get a feel for how they approach things and that it helped narrow down the search quite a bit. I didn't want to email EVERYONE. LOL The local ND's that I called said, sorry we don't do reduced fees. I'm kind of weird that way. I find flexibility as a good trait and the fee issue is a good way to examine flexibility (for me anyway). I don't want to see someone who is fixed in their philosophy. An individual and/or organization that is flexible tells me that they are openminded and willing to look outside their routine. Another criteria is communication. If I email someone and don't hear back, I'm not likely to keep trying. It is very important to me to have a fluid communication back and forth. So emailing can tell me how they are likely to communicate. Of course it also can be misleading, but...that's how I do things. Unfortunately, it will eliminate people who may be poor in the technological areas but great in the interpersonal communication. I just know most healers (be they MD, ND, or any other specialty) have great demands on their time, so knowing I can email (especially with a clinic so far away) gives me peace of mind. Especially since so much of the " unknowing " effects peace of mind in such a negative way. That is just me and my personal criteria. Everyone has different things that tell them a match is good. For some people it may be someone who relies heavily on gathering as much scientific data as possible and is a good analyser. For others it will be someone who is more intuitive. For some, people skills are the most important, or maybe they are moved by the physical environment of the clinic or doctor's setting, or someone who has a history of extensive research. We all have our own personal preferences. So tell me more about Dr. . Re: Gracia- update on mom > > > > > > I'm sure you are right, Gracia. Since she's been diagnosed with > adrenal exhaustion in the past, I'm sure there is some adrenal problem going > on now. > > And while I agree that the tests they're running may turn out to be > useless, what else is she to do? My folks are already making a 2 hour trip > just to get to this specialist. > > > > Your advice for her to see a doc who specializes in adrenals is great, > but I don't think maybe you've forgotten that my folks live in sticks and > it's not so easy to find the kind of doc you're talking about. > > > > I live in the biggest city in Louisville, and my endo is the only doc > here I can find who will RX Armour...and my doc certainly is no expert in > adrenals. The one so called " expert " in adrenals that I went to didn't know > beans about adrenals. I simply can't find the kind of docs you're talking > about. > > > > What's my mom supposed to do...drive half way across the country to > find the kind of doc you're talking about? We want to get to the bottom of > what's going on with her, and I think that we are trying our best to do just > that. > > > > If you have some suggestions on how I can find the kind of doctor > you're talking about, please let me know. I can't find any Broda docs > in the area, and I can't find any doc who specializes in adrenals. > > > > sheila > > > > > > > > > > > > > > Gracia <circe@...> wrote: > > > > She is so sensitive to thyroid meds b/c she needs other hormones like > > cortisol, compounded hormones. It is not complicated actually and > does not > > require tons of tests, some of which won't be accurate. My mother had > a 24 > > hr urine test in the hospital which came out normal--well they didn't > give > > her cortef, which tells me the test was useless. > > It really isn't necessary for your mother to be so sick and not get > > treatment. I just got Rx for hormones renewed and thank God the ND > didn't > > even SUGGEST I get TSH done. > > Your mother will never get proper treatment unless the doc knows about > > adrenals. > > Gracia > > > > > > > My mom is no longer going to that doctor. She just saw a different > doctor > > in the practice yesterday (was listed as a Top Doc). > > > > > > Her TSH after 8 weeks without thyroid meds was 13 something. Of > course, > > she has tons of symtpoms. > > > > > > He said she definitely needs Armour and is doing some more testing > of > > other hormones. Mom wasn't sure which ones...I have a feeling he's > testing > > some adrenal hormones again...doing 24 hour urine. > > > > > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 > mgs. > > and will increase slowly. > > > > > > I am thrilled she found this doctor! Hugs, Sheila > > > > > > Gracia <circe@...> wrote: > > > > > > DANGEROUS. no one should be going to a doc like this one. > decreased > > > income might send him a message. > > > Gracia > > > > > > > Hi Gracia, > > > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago > by > > some > > > stupid endo that she should NOT be on thyroid meds 'cause her TSH > was > > > ?...can't remember but she was definitely in the hypoT range. This > doc > > said > > > her TSH needed to get up over 10. Crazy! sheila > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Nevermind, I found their clinic. The web address is: http://www.tahoma-clinic.com/ Looks very interesting. Thanks for the info. Re: Re: where do you go? > thanks . I wonder about that clinic in washington backed by Dr. athan . Ever heard of him? > > Chris --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.688 / Virus Database: 449 - Release Date: 05/18/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 thanks a lot for this link...first time I've seen something like this. There only 1 ND listed in my entire state. Glad you found someone! Hugs, Sheila Living and Learning <sball@...> wrote: One thing I just did and may be helpful to you, ???? I found a ND who actually likes " conundrums " or things that allopathic doctors have a hard time diagnosing. I went to http://www.naturopathic.org and did a search for an ND. I used the advanced search for the whole state. Because that yielded so many results I looked for ones with websites. The ND that I found only had a brief description on the site, but when I visited their clinic's website knew I found a good match (although it is pretty far away...but that is the price I pay I guess) I am going to get many of the tests that will help the ND at the community clinic (as I am low income and the community clinic uses a sliding fee scale, so it is much cheaper than using the ND's lab which doesn't use a sliding scale) My last labs only cost me $17 and included a TSH, FSH, CBC and metabolic panel (protein, liver, kidney and electrolytes). I think the next set of tests will cost more, but will still be cheaper than the ND's labs. I also only pay $20 for office visit at community clinic where the ND is $200 for an office visit. YMMV The main reason I liked this clinic is that I also have ADHD and one of the doctors specializes in ADHD, but more than that was when I read the word CONUNDRUM. LOL Most of their site focuses on other disorders (AIDS, Breast Cancer, Parkinsons, Hepatitis), I contacted them with a list of my symptoms and they responded back and it sounded hopeful. It looks like a good match for me. Bottom line, look around and see if you can find a good match for yourself. Wishing you well on this journey, Re: Gracia- update on mom > > > I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. > And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. > > Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. > > I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. > > What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. > > If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. > > sheila > > > > > > > Gracia <circe@...> wrote: > > She is so sensitive to thyroid meds b/c she needs other hormones like > cortisol, compounded hormones. It is not complicated actually and does not > require tons of tests, some of which won't be accurate. My mother had a 24 > hr urine test in the hospital which came out normal--well they didn't give > her cortef, which tells me the test was useless. > It really isn't necessary for your mother to be so sick and not get > treatment. I just got Rx for hormones renewed and thank God the ND didn't > even SUGGEST I get TSH done. > Your mother will never get proper treatment unless the doc knows about > adrenals. > Gracia > > > > My mom is no longer going to that doctor. She just saw a different doctor > in the practice yesterday (was listed as a Top Doc). > > > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, > she has tons of symtpoms. > > > > He said she definitely needs Armour and is doing some more testing of > other hormones. Mom wasn't sure which ones...I have a feeling he's testing > some adrenal hormones again...doing 24 hour urine. > > > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. > and will increase slowly. > > > > I am thrilled she found this doctor! Hugs, Sheila > > > > Gracia <circe@...> wrote: > > > > DANGEROUS. no one should be going to a doc like this one. decreased > > income might send him a message. > > Gracia > > > > > Hi Gracia, > > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by > some > > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > > ?...can't remember but she was definitely in the hypoT range. This doc > said > > her TSH needed to get up over 10. Crazy! sheila > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 MD is the greatest, I get his expensive newsletter, http://www.wrightnewsletter.com , but I have heard disappointing reports about Tahoma clinic--don't know why that is. Shouldn't be that way. I have thought of writing him to ask. Gracia > Nevermind, I found their clinic. The web address is: > http://www.tahoma-clinic.com/ Looks very interesting. > > Thanks for the info. > > > Re: Re: where do you go? > > > > thanks . I wonder about that clinic in washington backed by Dr. > athan . Ever heard of him? > > > > Chris > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.688 / Virus Database: 449 - Release Date: 05/18/2004 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 The best docs I have had charged a lot of money and didn't do email, for what it's worth. They had huge patient loads, and just focused on that, and were well worth the money. Gracia > I have not heard of him, but did see (just checked the state list LOL) him > listed, but only with an email address. One thing that is in my criteria is > that I find someone who would accept a lower fee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 This is the reason I stated that it was what was important to me. And why I added the other bit about what I thought in regards that the two aren't exclusive. I can't remember what I said now, lol, but it was something like, perhaps they are poor at email, but good one on one. I'm sure there are a lot of doctors who charge alot because they are very good and people are willing to pay that. Unfortunately, I just don' t have the resources to use one of those doctors. My income is 598/mo. after rent and utilities I have 148 to use for ALL other items, food, clothing (LOL...not), transportation, laundry, medical expenses. This is why I have to find people who can work within my criteria, and still be good at what they do. The only reason I have the money to go to a ND is that I found some money that I stashed about 6 years ago after I refinanced my house. (Sometimes there are little payoffs for memory problems. LOL) The local ND I called charged $200 a visit and requires weekly visits until one " stabalizes " . This would have meant that I could have started with her, but I wouldn't have been able to afford any treatment of any reasonable duration. My money would have been gone possibly after the initial appointment depending on if they wanted to do testing, as the labs the ND's use are very expensive. Even with the reduced rate, I'm not sure how long I will be able to work with the ND as it will cost $40 just in transportation back and forth. One of the other things I really liked about her was that she does encourage her clients to do their own research as well, so we can work together, and will allow occasional appointments by phone. When one is financially challenged it requires a different set of criteria. It would be nice to live in a world where everyone, regardless of income, could access good healthcare, but unfortunately that is not a reality in our times *deep sigh*. So we do what we can. ----- Original Message ----- > The best docs I have had charged a lot of money and didn't do email, for > what it's worth. They had huge patient loads, and just focused on that, > and were well worth the money. > Gracia > > > I have not heard of him, but did see (just checked the state list LOL) him > > listed, but only with an email address. One thing that is in my criteria > is > > that I find someone who would accept a lower fee. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 No you won't end up like him--he's obviously been hypo his whole life, poor poor guy, but you could end up pretty bad off like I was. Gracia > Yeesh, sounds like a plan Gracia, but you think i'm gonna be eventually mentally retarded then? YIkes! > Re: Re: where do you go? > > > > order cortisol and Armour and treat yourself! You will be better off. I > work in a group home and there is a tiny guy there who is untreated > hypothyroid hypoadrenal, age 52. Imagine no doctor has ever treated him > properly his whole life and now he is in a home for mentally retarded. > Gracia > > > I'm in the same boat Sheila. I feel like an orphan. No help from anyone > around here. I'm 37 and continue to feel as if I was 80. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 I definitely see your point. Thanks for sharing that with me though. I need to take action. I have pinpointed three docs already I am planning to see. I am going to interview them next week and hopefully pick the right one. Chris Re: Re: where do you go? > > > > order cortisol and Armour and treat yourself! You will be better off. I > work in a group home and there is a tiny guy there who is untreated > hypothyroid hypoadrenal, age 52. Imagine no doctor has ever treated him > properly his whole life and now he is in a home for mentally retarded. > Gracia > > > I'm in the same boat Sheila. I feel like an orphan. No help from anyone > around here. I'm 37 and continue to feel as if I was 80. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 we should find out what has gone wrong at the Tahoma clinic. That is strange since Dr. has much credibility. May he is just a promotor like many doctors on the net. Yes let's do that Gracia. Anyone seen Dr. Bruce Rind? Is he proved to be good for anyone? Chris Chris Re: Re: where do you go? > > > > thanks . I wonder about that clinic in washington backed by Dr. > athan . Ever heard of him? > > > > Chris > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.688 / Virus Database: 449 - Release Date: 05/18/2004 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 the bad experiences have been with other docs there, not him. I will see if I can email him from the newsletter site. Gracia > we should find out what has gone wrong at the Tahoma clinic. That is strange since Dr. has much credibility. May he is just a promotor like many doctors on the net. Yes let's do that Gracia. Anyone seen Dr. Bruce Rind? Is he proved to be good for anyone? > > Chris > > > Chris > Re: Re: where do you go? > > > > > > > thanks . I wonder about that clinic in washington backed by Dr. > > athan . Ever heard of him? > > > > > > Chris > > > > > > > > --- > > Outgoing mail is certified Virus Free. > > Checked by AVG anti-virus system (http://www.grisoft.com). > > Version: 6.0.688 / Virus Database: 449 - Release Date: 05/18/2004 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Hi ! Well, the TSH is pretty useless anyway. Once you are on medication, it is good for nothing, there are several articles that state that. Did he order Free T3 and Free T4, or just T3 and T4? The Frees are the most accurate tests, but still don't replace a doctor who treats by symptoms. Odds are, such a doctor will *not* be an endocrinologist. You'd have better luck with an internist, an ND, or an OD. My doctor happens to be an endo and she is good, but she is the 37th endo I've seen, no kidding. For many of us, me for instance, my Total T3 and Total T4 have to be *above* the normal range for the Free T3 and Free T4 to be in the upper third of the normal range. Also, very few feel well just with a T4 medication, like Levoxyl - most need a combo of a T4 medication with a T3 medication, or to take Armour thyroid, since it contains all the thyroid hormone. Now, let's address the dizzy spells and the feeling like you are gonna puke. Those sound like hypoadrenal/adrenal fatigue symptoms. The adrenal glands are involved with the thyroid and the pituitary in an axis of hormone production. When one of them is out of balance, like with hypothyroidism, it makes the adrenals more likely to overproduce cortisol, and eventually to become exhausted and produce less cortisol, DHEA, and even sex hormones in extreme cases. It would also be beneficial to you to find a doctor who would test and check for symptoms of adrenal fatigue. In the meantime, are you taking vitamins? They are very important for hypothyroidism, and larger dosages of Bs and C (2-5g a day) are also important with adrenal fatigue. Jan Re: Re: where do you go? Hi everyone, I just joined this group, My name is , I just turned 30 and have " known " I am hypo for about 8 years now, though have had symptoms since about puberty. It feels so weird to hear stories from others who suffer like I do. I have never met anyone else who had shared the same illness as myself, so I have been very much alone in dealing with these symtoms. I had been doing ok taking .075mg of synthroid, although recently have been feeling like my dosage is off. The Endo I was seeing retired about 2 years ago, he had instructed my OB to continue my refills for me. I'm trying to get into see my OB and hopefully he will believe me. There aren't any Endo's in my immediate area, and any that are close require a referral. My problem is that I feel like shit and no doc will believe me, my last hope is that my OB will take me seriously. Since I don't test " outside " the normal range with the T3 & T4 the other docs keep telling me I am fine. I went to the hospital this morning and saw some quack! I have been having dizzy spells all week and they are getting worse, I have been sooo tired all the time for about the past three weeks! I have to nap when I get home from work, if I don't give in to a nap I feel very sick like I'm gonna puke or pass out! My fingers/hands are peeling, I have no energy, feel like I'm 105 years old, but according to the doc, nothing is wrong with me. The idiot I saw this morning, said I have Vertigo, ok... like says... they don't know, so they just name it whatever sounds close. I was laying in the hospital bed for 4 hours this morning, come to find out the doc was waiting for pregnancy test results! I told the idiot that my tubes were tied 5 years ago and not having my period since mid April is normal for having my dosage off! I thought he only ordered tyroid tests! I have to pay for a pregnancy test too! I figured at least when I get into my OB, I could have a copy of the tests to show him, since he would have to order them before he makes a decision anyway. This doc didn't even know what tests to order, he said he didn't want the TSH, because I already know I am hypo and that wouldn't tell him anything. He wasn't sure which T3, T4 tests to order, so he had the receptionist call the lab and ask. They told her to order the T3, T4 and TSH. He refused the TSH and replaced it with a pregnancy test! I was sooooo mad! By the way, of course the preg. test was neg. I'm gonna try to fight paying for that! Now when I see the OB, I'm still not gonna have all the info he will need to make his diagnosis! -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 How does one deal with a fatty liver? My liver enzymes have shot up over the top but normally high normal and high triglycerides/low HDL. ANd my cholesterol has gone up over the top as well. Also a very elevated amount of fecal fat as well from a 72 hour fecal fat test. I am trying to figure out why the liver is stressed or underfunctioning since i do not smoke or drink alcohol and take good care of my diet. Anyone have any ideas? http://www.liverdoctor.com/Section4/fattyliver.asp Chris Re: Re: where do you go? > > > > thanks . I wonder about that clinic in washington backed by Dr. > athan . Ever heard of him? > > > > Chris > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.688 / Virus Database: 449 - Release Date: 05/18/2004 > > > > > Quote Link to comment Share on other sites More sharing options...
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