Re: My final test results - comments appreciated

[Guest guest]

Hi Jan,

I went through the same thing and no one, including my doc could explain it

- hopefully someone here could....

My tongue feels big too - I know that's a hypo symptom- is there anything we

could do about that?

----Original Message Follows----

From: " janjv1311 " <janaina@...>

Reply-hypothyroidism

hypothyroidism

Subject: My final test results - comments appreciated

Date: Thu, 20 Nov 2003 11:21:12 -0000

TSH - 0.01 (0.27-4.20)

Total T4 - 9.91 (4.60-12.00)

Free T4 - 1.34 (0.93-1.70)

Total T3 - 147.40 (80.00-200.00)

Free T3 - 0.48 (0.30-0.51)

_________________________________________________________________

Has one of the new viruses infected your computer? Find out with a FREE

online computer virus scan from McAfee. Take the FreeScan now!

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Jan,

I am on 150mcg of T4 and 37.5 of T3,I am finally feeling better but it

was not until I started with the progesterone cream that I got my energy

back.I tried DHEA but IMMEDIATELY started to gain weight like

crazy.Maybe try some prog.cream.My cortisol levels were really high and

it is possible that with all of the exersize that you have been doing

that your cortisol levels are going high...just a thought...:)

Deneen:)

[Guest guest]

Deneen, I just read somewhere that extra C can suppress some of that

high cortisol??? I don't know if it works or not? But you could try

an extra gram a day and see if you don't feel any better.

> Jan,

> I am on 150mcg of T4 and 37.5 of T3,I am finally feeling better but

it

> was not until I started with the progesterone cream that I got my

energy

> back.I tried DHEA but IMMEDIATELY started to gain weight like

> crazy.Maybe try some prog.cream.My cortisol levels were really high

and

> it is possible that with all of the exersize that you have been

doing

> that your cortisol levels are going high...just a thought...:)

> Deneen:)

>

>

>

>

[Guest guest]

Thanks,Tina,

I am already doing that and it is helping I hope.:)

[Guest guest]

I'm no expert, but I'd say you're on the right track. It does sound like you

might be having problems with the hormones getting into your cells or the

possible underlying adrenal problems are causing a lot of problems. But I'm just

guessing here. Wish I could help more. Hugs, Sheila

janjv1311 <janaina@...> wrote:TSH - 0.01 (0.27-4.20)

Total T4 - 9.91 (4.60-12.00)

Free T4 - 1.34 (0.93-1.70)

Total T3 - 147.40 (80.00-200.00)

Free T3 - 0.48 (0.30-0.51)

I am still feeling hypo symptoms: sleepy, fatigue, depressed, tongue

is big and scalloped, skin is yellow from the carotene, gaining

weight, a bit of edema, hair is falling. And I now have neuropathy on

my feet and hands - which got much milder yesterday, with the extra

Cytomel.

I don't have any hyper symptoms, like sweating, hunger, or insomnia

(ha! I wish I did. I sleep for 10h a night and still need a nap

later).

I was on 125mcg Synthroid + 25mcg Cytomel when I had the test. But

thinking back to the last time I felt good, I was on way more

Cytomel - 50 + 50. So I thought I'd decrease the Synthroid to 100 and

increase the Cytomel to 37.5 and then maybe 50.

Does this mean I now have a cellular level of resistance to thyroid

hormone? Cause I mean, my FT3 is way up there. If it were actually

reaching my cells, I wouldn't feel better by more T3, I'd feel hyper.

Any comments appreciated.

Jan

[Guest guest]

really high cortisol levels means you need cortisol.

Gracia

> Jan,

> I am on 150mcg of T4 and 37.5 of T3,I am finally feeling better but it

> was not until I started with the progesterone cream that I got my energy

> back.I tried DHEA but IMMEDIATELY started to gain weight like

> crazy.Maybe try some prog.cream.My cortisol levels were really high and

> it is possible that with all of the exersize that you have been doing

> that your cortisol levels are going high...just a thought...:)

> Deneen:)

>

>

>

>

[Guest guest]

Gracia,why would you need cortisol if your cortisol levels are

high???.....progesterone cream will balance out your levels.

Deneen:)

[Guest guest]

I had been using progesterone cream for a few years when cortisol was

tested. At first I think progesterone helped my adrenals a lot, but I have

adrenal hyperplasia or else pituitary problem, so have had symptoms since

birth. 24 hr urine test from AAL showed cortisol and other hormones (even

progesterone!!!) to be very low. Saliva test for cortisol was high

normal, high, high normal, high. What this means is that adrenals are

" burning out " . I tried cortef and felt immediately better, plus adding

7-keto DHEA.

Gracia

> Gracia,why would you need cortisol if your cortisol levels are

> high???.....progesterone cream will balance out your levels.

> Deneen:)

>

>

>

>

[Guest guest]

Hi Gracia,

My youngest daughter has late onset congenital adrenal hyperplasia. (LOCAH)

Her testosterone & her DHEA were high. She's on 5mg of prednisone a day.

Best to you!

Re: My final test results - comments appreciated

>

> I had been using progesterone cream for a few years when cortisol was

> tested. At first I think progesterone helped my adrenals a lot, but I

have

> adrenal hyperplasia or else pituitary problem, so have had symptoms since

> birth. 24 hr urine test from AAL showed cortisol and other hormones (even

> progesterone!!!) to be very low. Saliva test for cortisol was high

> normal, high, high normal, high. What this means is that adrenals are

> " burning out " . I tried cortef and felt immediately better, plus adding

> 7-keto DHEA.

> Gracia

>

> > Gracia,why would you need cortisol if your cortisol levels are

> > high???.....progesterone cream will balance out your levels.

> > Deneen:)

[Guest guest]

I've read something that TSH and Free T3 and T4 are just often not

reliable tests. Dr. Shames trusts the Total T3 and T4 more. According

to those, I could stand to take more hormone, so that is what I did.

No hyper symptoms whatsoever, my tongue is a bit less scalloped and

the neuropathy is almost totally gone.

There is another theory is that we have the hormone in our blood, but

it is not necessarily reaching the cells. It is a resistance on the

cellular level. In that case, the only way is also to take more

hormone.

Jan

> Hi Jan,

> I went through the same thing and no one, including my doc could

explain it

> - hopefully someone here could....

>

> My tongue feels big too - I know that's a hypo symptom- is there

anything we

> could do about that?

>

>

>

>

> ----Original Message Follows----

> From: " janjv1311 " <janaina@v...>

> Reply-hypothyroidism

> hypothyroidism

> Subject: My final test results - comments

appreciated

> Date: Thu, 20 Nov 2003 11:21:12 -0000

>

> TSH - 0.01 (0.27-4.20)

> Total T4 - 9.91 (4.60-12.00)

> Free T4 - 1.34 (0.93-1.70)

> Total T3 - 147.40 (80.00-200.00)

> Free T3 - 0.48 (0.30-0.51)

>

> _________________________________________________________________

> Has one of the new viruses infected your computer? Find out with a

FREE

> online computer virus scan from McAfee. Take the FreeScan now!

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Thanks, Deneen. I am having estrogen and progesterone tested soon, as

well as cortisol.

I was taking the DHEA, but it made no difference - I was gaining

weight before, kept gaining at the same rate. I quit it now. Let's

see if I notice a difference.

I am on 50mcg Cytomel and 150mcg Synthroid now, although it hasn't

been long enough on the Synthroid to feel a difference, I feel better

with the extra Cytomel. Still gaining though, but the other symptoms

are not as bad as before.

Jan

> Jan,

> I am on 150mcg of T4 and 37.5 of T3,I am finally feeling better but

it

> was not until I started with the progesterone cream that I got my

energy

> back.I tried DHEA but IMMEDIATELY started to gain weight like

> crazy.Maybe try some prog.cream.My cortisol levels were really high

and

> it is possible that with all of the exersize that you have been

doing

> that your cortisol levels are going high...just a thought...:)

> Deneen:)

>

>

>

>

[Guest guest]

Thanks, Sheila. I read an article that estimates around 5% of

patients need to be in the hyper range to feel decent - I guess that

describes us. That is, if you choose to believe the Free tests for

starters. Dr. Shames says they are disappointing, and he prefers the

Totals.

Jan

TSH - 0.01 (0.27-4.20)

> Total T4 - 9.91 (4.60-12.00)

> Free T4 - 1.34 (0.93-1.70)

> Total T3 - 147.40 (80.00-200.00)

> Free T3 - 0.48 (0.30-0.51)

>

> I am still feeling hypo symptoms: sleepy, fatigue, depressed,

tongue

> is big and scalloped, skin is yellow from the carotene, gaining

> weight, a bit of edema, hair is falling. And I now have neuropathy

on

> my feet and hands - which got much milder yesterday, with the extra

> Cytomel.

>

> I don't have any hyper symptoms, like sweating, hunger, or insomnia

> (ha! I wish I did. I sleep for 10h a night and still need a nap

> later).

>

> I was on 125mcg Synthroid + 25mcg Cytomel when I had the test. But

> thinking back to the last time I felt good, I was on way more

> Cytomel - 50 + 50. So I thought I'd decrease the Synthroid to 100

and

> increase the Cytomel to 37.5 and then maybe 50.

>

> Does this mean I now have a cellular level of resistance to thyroid

> hormone? Cause I mean, my FT3 is way up there. If it were actually

> reaching my cells, I wouldn't feel better by more T3, I'd feel

hyper.

>

> Any comments appreciated.

>

>

> Jan

>

>

>

>