Guest guest Posted February 17, 2001 Report Share Posted February 17, 2001 This is a wonderful article, I think it describes so well what we go through. My mother has had systemic lupus for about 25 years, and I thought that I knew what it was like to go through something like this. When I was diagnosed with fibromyalgia about ten years ago, I went through a lot of these - first Concern and Fear because the doctors couldn't find anything, then the relief. Once I knew that I did not have a potentially life-threatening illness, I just dealt with it. Fortunately I did not have as bad a case as a lot of other people and could manage it. This AIH is a new thing altogether. Fear because the numbers were so high and I didn't know ANYTHING about how the liver functions, then temporary relief once it was diagnosed - I figured that because the medicine was bringing the numbers down everything would be OK. Frustration, primarily with my poor mother. She was my primary support, cooking, taking the kids places, school shopping for them - and I was really hateful to her. I needed the stuff done, but hated having to ask and took it out on her. I just wanted her to do it but not continually ask how I was doing, to get onto me when I was sitting instead of laying down, etc. Once I got to feeling better and went back to work, I seemed to be handling things really well. Was very calm with everyone, even my kids. I even got in less arguments with my 16-year-old (no small feat with this particular child). My mother kept saying that she was really proud of the way I was handling it, much better than she had - I told her that after all, with our family history, I had been preparing for something like this for a long time, and that things were a lot different than 25 years ago. Who was I kidding - things are different in that I was fortunate to have a diagnosis in 3 weeks where it took her five years, but once I realized that the damage from AIH can continue even when things are looking good, it really started to get to me. I am a real planner, and I realized that things don't go as we always planned. I have always been fortunate in that most things in my life have worked out, and I am sure that this will too - I just have to be careful what I plan for. Not to be whining, but just last summer before all of this happened, my husband and I had decided to make some life changes. We are both engineers, but he has always had a much more senior position. At the time, I was working part time with no benefits. We had decided that in September I would go back to work full time with benefits, and that he would stay home for a while. He has never had a break since we were married, and we felt it would be good for the entire family. I was actually kind of looking forward to having a " wife " at home. Then all of this happened. I am now working 30 hrs with insurance, short term and long term disability, but don't think it would exactly be smart for him to quit work right now. Now I am not only dealing with being sick, but his frustration at the situation. Sometimes I just want to scream at him that you don't always get what you want. This certainly wasn't what I had planned. It's funny ( not really), but a friend at work was diagnosed with Lupus about 2 weeks ago. They started her on anti-depressants and anti-inflammatories. She seemed so happy - said that now that she know what it is and the medicine is helping, she feels like it won't come back. I didn't tell her that it didn't go anywhere. Anyway, I know this is really long, but the article is so true. I thought I knew what chronic illnes was all about, but realize that only those who are actually going through it truly know. However, I know that I need to try to make others in my family more aware of how I feel. Thanks for listening. W > EMOTIONS SURROUNDING CHRONIC DISEASE > > CONCERN: created when an illness lingers and medical professionals > are unable to find the etilogy (cause) of the problem. > > FEAR: caused due to uncertainties-could be an undetected illness that has > not fully manifested itself. > > DENIAL: an attempt to deny the chronic disease and " live our life, " soon to > realize that the body is controlled by something out of their control. > > TEMPORARY RELIEF: established when all other illnesses are negative. When a > diagnosis is given for a chronic disease, there is " temporary relief " in > having a name for the illness-then reality sets in that a " name " does not > cure the illness. > > FRUSTRATION: due to the patient's feeling that their body has somehow let > them down. This can result in jealousy or envy in others. The patient > cannot do what the person helping them is doing. They don't want the person > helping to be ill, but instead wish they were well enough to handle the task. > Society tends to dictate that if you try a little harder, endure, etc., you > can do anything-but chronic disease becomes the " master " . > > UNFAIRNESS: results when the patient feels something has been taken > away- " being cheated from going on with their life " . Sometimes this emotion > can create a sense of " worthlessness. " > > ANGER: sometimes directed at doctors who have told the patient " it's all in > your head " . Anger often results when patients spend thousands of dollars > seeing many different doctors. Sometimes anger becomes so severe the patient > can appear belligerent. This emotion emerges when the media, public, medical > professionals, friends and loved ones lack understanding of chronic disease. > Too often, society demands visual evidence of affliction before it can be > valid-but too often forgets that some illnesses often have no physical signs > until it is too late. > > LOSS OF PERSONAL CONTROL: a very difficult emotion-we realize we have very > little control over the rest of the world, but we find comfort in feeling we > have control within ourselves. Chronic disease tends to become the > " authority " of the patient, showing no respect for the body it resides in. > > DEVASTATION: created because of, not only emotional aspects of the illness, > but also financial loss if a patient becomes disabled and cannot work. All > of us have certain aspirations, but chronic disease often times will destroy > those plans-reminding the patient they are very limited. > > HOPELESSNESS: some patients may feel like suicide is their only alternative. > Many have pre-existing psychological factors that were involved before > getting the chronic disease. Treatment with a counselor familiar with chronic > disease can help patients deal with this emotion. > > MOURNING: the realization that the patients life never will be the same. > A " loss " is suffered personally, but many times friends and loved ones tend > not to understand the illness, or loss of a once energetic person, and the > closeness with friends and family can diminish or disappear. Shattered dreams > are hard to lose-a long awaited promotion, career, marriage, family, home, > car, schooling, vacation, etc. > > HUMBLING: the illness can tear at every emotion until it " humbles " the > patient-regardless of economic or social status, patients share a certain > camaraderie with other chronically ill patients. People with chronic disease > are given a new perspective to life with the realization that we are truly > dependent upon our health. > > LEARNING TO COPE: this comes only after knowledge that the medical community > does not have the " answer " for all or many chronic diseases. > Patients must reach within their beings and find the tools to live with > their illnesses. They can do that with the help of others like support > groups, educational materials, relying on loved ones, family and friends. > Their own physician can be a " partner " in their health care. > > ACCEPTANCE: this emotion goes hand in hand with coping. Once patients learn > to accept their chronic disease-they tend to find ways to conserve what > energy they do have, and spend it wisely each day. They find ways to > eliminate stress and prioritize-and accept that some things may never get > done but life still proceeds in spite of it. With acceptance, each patient > tends to find strength they did not realize was there. > > HOPE: even though " coping " and " acceptance " allow patients to adjust to > chronic disease and still enjoy life, each patient, deep within, desires that > medical science will find a cure, prevention and/or treatment. Some patients > depend on this emotion more then others. > > UNDERSTANDING: this emotion is the greatest " gift " those not afflicted with > a chronic disease, can give the patients. Patients are burdened enough > living with a chronic disease without having to convince others that this is > a physical illness. " Two truly are stronger than one, " and through > understanding, maybe we can help patients endure all the aspects of their > illness lest we forget that " people need people. " > > Some people say, there is always light at the end of the tunnel. I agree, > but in the tunnel of a chronic disease you scrape, climb and even dig. > Sometimes you think you found the end, but alas, you just find a dead end. > > There are streaks of light coming in, called hope. That is what keeps you > going. The end of the tunnel is, understanding, and of course, a cure. > > author - Sherry Messick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Hi , I agree, it was a great article. I sent it to several of my friends who are also suffering from chronic illness. It does take someone who has a chronic illness to know what you are going through. I can sympathize with both you and your mother. I was diagnosed with SLE, fibromyalgia, CFS, lymphatic colititis, and a mishmash of other digestive problems caused by the SLE. It changed my life greatly. Just when I thought I was ready to accept my future and the changes in my life, my son was diagnosed with AIH. Talk about having the wind knocked out of you. I'm willing to accept that I may have a chronic illness, but I am not willing to accept it for my child. He is too young to have his life change so dramatically. I also agree with the part of trying to have your family understand. My husband tries, but he really doesn't know what we are going through. All he understands is that I am sick and he has to bear the burden. I get so frustrated sometimes, especially when I can't do the things that need to be done. I need to fly out to Phoenix to help his mother move. I asked him to go in my place and he refused. He said you can do this, it is just sitting in the plane. But, that is the problem, sitting for that many hours. My body just won't take it without large doses of darvocet and percocet and I try to use them limitly for the really bad times. Anyway, enough of complaining. I really just wanted you to know that I understand and sympathize. That article really touched a nerve. Debbie (Tommy's Mom) --- Have a fun day! --- debbiehenry@... --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Dear I'm new to the group and have been going through all the postings... I'd just like to say thank you for the wonderful email I just read. I'm a mother with AIH taking care of my mom with ailments all her own. I sometimes lose sight of all the wonderful things in my life and have to remind myself that things could be much worse. It is so good to know that all of the emotions I've been trying to keep under control are " normal " . Thanks for the light and take care of yourself. K. > This is a wonderful article, I think it describes so well what we go > through. My mother has had systemic lupus for about 25 years, and I > thought that I knew what it was like to go through something like > this. When I was diagnosed with fibromyalgia about ten years ago, I > went through a lot of these - first Concern and Fear because the > doctors couldn't find anything, then the relief. Once I knew that I > did not have a potentially life-threatening illness, I just dealt > with it. Fortunately I did not have as bad a case as a lot of other > people and could manage it. > > This AIH is a new thing altogether. Fear because the numbers were so > high and I didn't know ANYTHING about how the liver functions, then > temporary relief once it was diagnosed - I figured that because the > medicine was bringing the numbers down everything would be OK. > Frustration, primarily with my poor mother. She was my primary > support, cooking, taking the kids places, school shopping for them - > and I was really hateful to her. I needed the stuff done, but hated > having to ask and took it out on her. I just wanted her to do it but > not continually ask how I was doing, to get onto me when I was > sitting instead of laying down, etc. > > Once I got to feeling better and went back to work, I seemed to be > handling things really well. Was very calm with everyone, even my > kids. I even got in less arguments with my 16-year-old (no small > feat with this particular child). My mother kept saying that she was > really proud of the way I was handling it, much better than she had - > I told her that after all, with our family history, I had been > preparing for something like this for a long time, and that things > were a lot different than 25 years ago. > > Who was I kidding - things are different in that I was fortunate to > have a diagnosis in 3 weeks where it took her five years, but once I > realized that the damage from AIH can continue even when things are > looking good, it really started to get to me. I am a real planner, > and I realized that things don't go as we always planned. I have > always been fortunate in that most things in my life have worked out, > and I am sure that this will too - I just have to be careful what I > plan for. > > Not to be whining, but just last summer before all of this happened, > my husband and I had decided to make some life changes. We are both > engineers, but he has always had a much more senior position. At the > time, I was working part time with no benefits. We had decided that > in September I would go back to work full time with benefits, and > that he would stay home for a while. He has never had a break since > we were married, and we felt it would be good for the entire family. > I was actually kind of looking forward to having a " wife " at home. > > Then all of this happened. I am now working 30 hrs with insurance, > short term and long term disability, but don't think it would exactly > be smart for him to quit work right now. Now I am not only dealing > with being sick, but his frustration at the situation. Sometimes I > just want to scream at him that you don't always get what you want. > This certainly wasn't what I had planned. > > It's funny ( not really), but a friend at work was diagnosed with > Lupus about 2 weeks ago. They started her on anti-depressants and > anti-inflammatories. She seemed so happy - said that now that she > know what it is and the medicine is helping, she feels like it won't > come back. I didn't tell her that it didn't go anywhere. > > Anyway, I know this is really long, but the article is so true. I > thought I knew what chronic illnes was all about, but realize that > only those who are actually going through it truly know. However, I > know that I need to try to make others in my family more aware of how > I feel. > > Thanks for listening. > > W > > > > EMOTIONS SURROUNDING CHRONIC DISEASE > > > > CONCERN: created when an illness lingers and medical professionals > > are unable to find the etilogy (cause) of the problem. > > > > FEAR: caused due to uncertainties-could be an undetected illness > that has > > not fully manifested itself. > > > > DENIAL: an attempt to deny the chronic disease and " live our > life, " soon to > > realize that the body is controlled by something out of their > control. > > > > TEMPORARY RELIEF: established when all other illnesses are > negative. When a > > diagnosis is given for a chronic disease, there is " temporary > relief " in > > having a name for the illness-then reality sets in that a " name " > does not > > cure the illness. > > > > FRUSTRATION: due to the patient's feeling that their body has > somehow let > > them down. This can result in jealousy or envy in others. The > patient > > cannot do what the person helping them is doing. They don't want > the person > > helping to be ill, but instead wish they were well enough to handle > the task. > > Society tends to dictate that if you try a little harder, endure, > etc., you > > can do anything-but chronic disease becomes the " master " . > > > > UNFAIRNESS: results when the patient feels something has been > taken > > away- " being cheated from going on with their life " . Sometimes this > emotion > > can create a sense of " worthlessness. " > > > > ANGER: sometimes directed at doctors who have told the > patient " it's all in > > your head " . Anger often results when patients spend thousands of > dollars > > seeing many different doctors. Sometimes anger becomes so severe > the patient > > can appear belligerent. This emotion emerges when the media, > public, medical > > professionals, friends and loved ones lack understanding of chronic > disease. > > Too often, society demands visual evidence of affliction before it > can be > > valid-but too often forgets that some illnesses often have no > physical signs > > until it is too late. > > > > LOSS OF PERSONAL CONTROL: a very difficult emotion-we realize we > have very > > little control over the rest of the world, but we find comfort in > feeling we > > have control within ourselves. Chronic disease tends to become the > > " authority " of the patient, showing no respect for the body it > resides in. > > > > DEVASTATION: created because of, not only emotional aspects of the > illness, > > but also financial loss if a patient becomes disabled and cannot > work. All > > of us have certain aspirations, but chronic disease often times > will destroy > > those plans-reminding the patient they are very limited. > > > > HOPELESSNESS: some patients may feel like suicide is their only > alternative. > > Many have pre-existing psychological factors that were involved > before > > getting the chronic disease. Treatment with a counselor familiar > with chronic > > disease can help patients deal with this emotion. > > > > MOURNING: the realization that the patients life never will be the > same. > > A " loss " is suffered personally, but many times friends and loved > ones tend > > not to understand the illness, or loss of a once energetic person, > and the > > closeness with friends and family can diminish or disappear. > Shattered dreams > > are hard to lose-a long awaited promotion, career, marriage, > family, home, > > car, schooling, vacation, etc. > > > > HUMBLING: the illness can tear at every emotion until it " humbles " > the > > patient-regardless of economic or social status, patients share a > certain > > camaraderie with other chronically ill patients. People with > chronic disease > > are given a new perspective to life with the realization that we > are truly > > dependent upon our health. > > > > LEARNING TO COPE: this comes only after knowledge that the medical > community > > does not have the " answer " for all or many chronic diseases. > > Patients must reach within their beings and find the tools to live > with > > their illnesses. They can do that with the help of others like > support > > groups, educational materials, relying on loved ones, family and > friends. > > Their own physician can be a " partner " in their health care. > > > > ACCEPTANCE: this emotion goes hand in hand with coping. Once > patients learn > > to accept their chronic disease-they tend to find ways to conserve > what > > energy they do have, and spend it wisely each day. They find ways > to > > eliminate stress and prioritize-and accept that some things may > never get > > done but life still proceeds in spite of it. With acceptance, > each patient > > tends to find strength they did not realize was there. > > > > HOPE: even though " coping " and " acceptance " allow patients to > adjust to > > chronic disease and still enjoy life, each patient, deep within, > desires that > > medical science will find a cure, prevention and/or treatment. > Some patients > > depend on this emotion more then others. > > > > UNDERSTANDING: this emotion is the greatest " gift " those not > afflicted with > > a chronic disease, can give the patients. Patients are burdened > enough > > living with a chronic disease without having to convince others > that this is > > a physical illness. " Two truly are stronger than one, " and through > > understanding, maybe we can help patients endure all the aspects of > their > > illness lest we forget that " people need people. " > > > > Some people say, there is always light at the end of the tunnel. > I agree, > > but in the tunnel of a chronic disease you scrape, climb and even > dig. > > Sometimes you think you found the end, but alas, you just find a > dead end. > > > > There are streaks of light coming in, called hope. That is what > keeps you > > going. The end of the tunnel is, understanding, and of course, a > cure. > > > > author - Sherry Messick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 In a message dated 2/14/2003 11:47:44 AM Pacific Standard Time, charmainejensen@... writes: > I was diagnosed with Bipolar Disorder -- I see that people have allot of > the same mood swings as Bipolar Disorder. Fiancé says he wonders if it was > they hypothyroidism that my moods are attributed to and not a mental > illness? > Dear Charmaine, When my son came home crazy three years ago and was eventually diagnosed with bipolar disorder, I decided to seek out my own psychiatrist becasue I felt I was experiencing a lot of the same mental/emotional/psychological symptoms I saw in him. After extensive interviewing with the psychiatrist, I felt hopeful he would give me some meds that would even out my moods and take the endge off my considerable anger and mental pain. Instead, I was shocked to hear his diagnosis: Severe, untreated hypothyroidism! (At that time, I'd been trying to get along without medicine for 30 years because no doctor would treat me since my TSH test always came back " normal. " ) The pDoc refused, fortunately, to give me mind bending meds until I got treatment for my low thyroid problem. Though I was initially disappointed because I was suffering a lot and wanted some immediate help, it actually turned out to be a good thing. That doctor's diagnosis spurred me on to search for an MD who would treat me and my hypothyroidism based on my symptoms rather than my blood tests. Today, after a year plus on the 's treatment, I'm free of the dark moods and the weird thinking. I sometimes still feel depressed but it is only a slight decrease in my normal cheerfulness and usually lifts quickly as compared to the paralyzing, chronic depression I used to have linger for weeks or months in the time before I got on the T3. Best regards, in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 I experience these same types of outbursts that I cannot explain. It has ruined countless relationships...and I'm sure it's only a matter of time before I scare my current boyfriend away. I used to blame it on PMS but now it seems to occur on a regular basis, sometimes I can control it, other times I can't. I really don't feel like I have a mental illness or anything like that, I feel like it's hormones or something I haven't figured out. I have an appt. this month with a new OB/GYN and I'm hoping she will do some new tests besides the thyroid tests. I have been taking 1 and 1/2 grains of Armour and using some Progesterone Cream that someone here recommended. It seems to help but not nearly enough. Any suggestions as to what I should ask her to test me for? Thanks. Beth Elliott <n2dance@...> wrote:Hello, I also have this, I don't know if I would say I don't know what I'm doing until it's too late, but I know when it's happening, I truly am feeling the feelings that are exploding all over the place out of me, but a little voice inside my head is saying, this isn't the big deal you're making out of it. I wouldn't say it's completely physical, but I am very careful to have my outbursts at home. I don't know what is a reasonable reaction and what isn't anymore. I have one acquaintance whom I feel is downright abusive but whenever I react she says she's sick of me being so oversensitive all the time. I don't know who's right, I suspect it's a little of both but I don't know where the line is because I know I'm a little off. I call it PMS, it never occurred to me that it could be pituitary related. My naturopath does computerized biomedical feedback which indicated my pituitary gland is the problem, not the thyroid. What to do about it though? She gave me a cream called ProGen to strengthen the pituitary. I haven't noticed much of a difference in how I feel from it. Sometimes when I start new things, nothing happens, then the doctors tell me if their program is not working then it's MY fault. Beth >Hi Charmaine, I have a pituitary problem causeing my thyroid to be >low... the symptom I'm reffering to, are monthly bouts of anger or >blame where I verbally beat up a loved one and don't even understand >what I'm doing until it's too late. This isn't an anger issue, it's >some kind of strange state that I slip into. Over the past few >years, I've gotten a good handel on myself and don't feel like this >is a physic issue... hormonal... anyone else experience this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 >Any suggestions as to what I should ask her to test me for? , I would ask for a hormonal workup.. i.e. estrogen, progesterone, testosterone, DHEA, cortisol, and prolactin. Those are just off the top of my head. I also believe that sharp increases or decreases in thyroid function can affect us more than we think. Do you have Hashimoto's? _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 Thanks for the info. I don't know if I have Hashimoto's or not? I've been told I don't have hypothyroidism by some doc's and other's have told me my T3 is really low. I've kind of given up on doctor's and have been just taking the Armour that I have left until I figure out what to do? Pierce <karlynn17@...> wrote:>Any suggestions as to what I should ask her to test me for? , I would ask for a hormonal workup.. i.e. estrogen, progesterone, testosterone, DHEA, cortisol, and prolactin. Those are just off the top of my head. I also believe that sharp increases or decreases in thyroid function can affect us more than we think. Do you have Hashimoto's? _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 , The T3 is probably the problem,you need more.I had the same problem but when I got my meds corrected with enough T3, the emotional rollercoaster was gone.T3,I believe,has the most effect on the mental state,that is why Drs. want to prescribe anti-depressants to patients who come back still not feeling right after being on T4 only.If more Drs. would just get their heads out of those outdated medical books and listen to the patient more we would all be cured...An interesting thought,..I am on Thyrolar which is the synthetic of Armour.The two meds are made by the same manufacturer,Forest Industries,I have had great success with this med and I noticed a lot of people in this group on Armour who are still having problems.Any thoughts on this?People on Armour with feedback on this issue? Deneen:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 Hear is a thought ,could it be our adreanal function that is causing the rages ? I know that our adreanals control our flight/fight response .Also that I have personaly had panic attacks accompany the rage , not at the same time exactly ! I thought it might be adreanal exaustion related to my thyroid condtion , although i havent talked to the dr about it yet . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 , I also had panic attacks as well as on and off emotional rage. I take synthroid, which helped alot of my symptoms, but not those 2. I came off of all refined sugars and flours. I was also a vegetarian for 15 years and I began to eat meat. Within 3 days of me doing these things, I became a completely different person. I have not had one single panic attack, and my husband feels I am a completely different person emotionally. I never felt like I was going to actually feel well and " normal " again, but I do. I have had a full adrenal workup and everything was normal. I am diagnosed with hashimotos, and my doctors are considering taking me off my synthroid as since my dietary changes, my lab tests for my thyroid have come back completely normal. > Hear is a thought ,could it be our adreanal function that is causing > the rages ? I know that our adreanals control our flight/fight > response .Also that I have personaly had panic attacks accompany the > rage , not at the same time exactly ! I thought it might be adreanal > exaustion related to my thyroid condtion , although i havent talked > to the dr about it yet . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 I cannot say that I have had Hypothyroidism all my life as in my teens up to about 19 I was quite under weight and it was not until my mid to latter 20's that I really started to put on weight. My weight has been going up and down ever since my early 30's .... I was diagnosed with Bipolar Disorder -- I see that people have allot of the same mood swings as Bipolar Disorder. Fiancé says he wonders if it was they hypothyroidism that my moods are attributed to and not a mental illness? Charmaine I experience these same types of outbursts that I cannot explain. It has ruined countless relationships...and I'm sure it's only a matter of time before I scare my current boyfriend away. I used to blame it on PMS but now it seems to occur on a regular basis, sometimes I can control it, other times I can't. I really don't feel like I have a mental illness or anything like that, I feel like it's hormones or something I haven't figured out. I have an appt. this month with a new OB/GYN and I'm hoping she will do some new tests besides the thyroid tests. I have been taking 1 and 1/2 grains of Armour and using some Progesterone Cream that someone here recommended. It seems to help but not nearly enough. Any suggestions as to what I should ask her to test me for? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 Dear , Thanks for this in-depth reply to my message. I have an appt with both my Psychiatrist and Therapist next week -- as the Psychiatrist is planning on putting me on another Psychiatric drug. I am wondering now -- how am I going to get them to realize that there is a very good possibility that what I suffered from in my adolescence into my mid 20's was hyperthyroidism and then in mid 20's to the present was hypothyroidism. I have tried to get them to in the past look at my moods in a different light -- but they only look at me like I do not know what I am talking about it -- There is one other syndrome that I have been dx with and do believe that I do have and that is PTSD -- that is the only one that I do know I do have -- as I was sexually abused as a child and was raped a few times thereafter in my adult life.... Otherwise I do feel that most of my life, that my anger and my mental anguish has been do to that of my thyroid... Again getting through to the Doctors is going to be a completely new task on its own -0- Btw , where you from, the United States or Canada? I am so happy that I have joined this group as I am learning some stuff that I had otherwise felt in the past to be part of what has been going on -- you see ever since my mid 20's I have had other symptoms that are also related to those with thyroid problems - IBS and GERD Charmaine Dear Charmaine, When my son came home crazy three years ago and was eventually diagnosed with bipolar disorder, I decided to seek out my own psychiatrist becasue I felt I was experiencing a lot of the same mental/emotional/psychological symptoms I saw in him. After extensive interviewing with the psychiatrist, I felt hopeful he would give me some meds that would even out my moods and take the endge off my considerable anger and mental pain. Instead, I was shocked to hear his diagnosis: Severe, untreated hypothyroidism! (At that time, I'd been trying to get along without medicine for 30 years because no doctor would treat me since my TSH test always came back " normal. " ) The pDoc refused, fortunately, to give me mind bending meds until I got treatment for my low thyroid problem. Though I was initially disappointed because I was suffering a lot and wanted some immediate help, it actually turned out to be a good thing. That doctor's diagnosis spurred me on to search for an MD who would treat me and my hypothyroidism based on my symptoms rather than my blood tests. Today, after a year plus on the 's treatment, I'm free of the dark moods and the weird thinking. I sometimes still feel depressed but it is only a slight decrease in my normal cheerfulness and usually lifts quickly as compared to the paralyzing, chronic depression I used to have linger for weeks or months in the time before I got on the T3. Best regards, in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 those having problems with Armour either need a higher dose and/or other hormones (in the right amount!!) fo example, in the UK needs Armour plus testosterone and DHEA. It really helps to have a doc who understands how hormones work together. Gracia > med and I noticed a lot of people in this group on Armour who are still > having problems.Any thoughts on this?People on Armour with feedback on > this issue? > > Deneen:) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 melanie, you might not be getting enough progesterone (some OTC stuff is expensive hand cream) and might need more Armour and DHEA. You can get a doc referral from http://www.womensinternational.com Gracia > > I experience these same types of outbursts that I cannot explain. It has ruined countless relationships...and I'm sure it's only a matter of time before I scare my current boyfriend away. I used to blame it on PMS but now it seems to occur on a regular basis, sometimes I can control it, other times I can't. I really don't feel like I have a mental illness or anything like that, I feel like it's hormones or something I haven't figured out. I have an appt. this month with a new OB/GYN and I'm hoping she will do some new tests besides the thyroid tests. I have been taking 1 and 1/2 grains of Armour and using some Progesterone Cream that someone here recommended. It seems to help but not nearly enough. Any suggestions as to what I should ask her to test me for? Thanks. > > Beth Elliott <n2dance@...> wrote:Hello, > > I also have this, I don't know if I would say I don't know what I'm > doing until it's too late, but I know when it's happening, I truly am > feeling the feelings that are exploding all over the place out of me, > but a little voice inside my head is saying, this isn't the big deal > you're making out of it. > > I wouldn't say it's completely physical, but I am very careful to have > my outbursts at home. I don't know what is a reasonable reaction and > what isn't anymore. I have one acquaintance whom I feel is downright > abusive but whenever I react she says she's sick of me being so > oversensitive all the time. I don't know who's right, I suspect it's a > little of both but I don't know where the line is because I know I'm a > little off. > > I call it PMS, it never occurred to me that it could be pituitary > related. My naturopath does computerized biomedical feedback which > indicated my pituitary gland is the problem, not the thyroid. What to > do about it though? She gave me a cream called ProGen to strengthen the > pituitary. I haven't noticed much of a difference in how I feel from > it. Sometimes when I start new things, nothing happens, then the > doctors tell me if their program is not working then it's MY fault. > > Beth > > >Hi Charmaine, I have a pituitary problem causeing my thyroid to be > >low... the symptom I'm reffering to, are monthly bouts of anger or > >blame where I verbally beat up a loved one and don't even understand > >what I'm doing until it's too late. This isn't an anger issue, it's > >some kind of strange state that I slip into. Over the past few > >years, I've gotten a good handel on myself and don't feel like this > >is a physic issue... hormonal... anyone else experience this? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 , I used to get panic attacks also.It is definitely a symptom of your thyroid problems.I don't have that problem any more with my meds I am on now. Deneen:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Hi Charmaine, Have you read Abe Hoffer's work on orthomolecular medicine? Most of his research seems to be for persons wth schizophrenia but bipolar is mentioned here and there as benefiting from his treatment. Be careful with the diagnosis (get a second, third or fourth opinion). Bipolar has become a catchall somewhat similar to ADHD. There are many things people have done to help change brain chemicals that involve nutrition and building up the body but it does require being responsible for your own health. I'm pleased your doc insists on getting your thyroid up to speed before messing around with other kinds of chemicals---but what in the body is not funcitioning properly and why when the thyroid goes haywire? I've been reading this list quite some time and no one ever sems to address the underlying cause of thyroid malfunction. Why does it not produce or process adequate T3 or T4 or whatever? SaraLou " Hoffer's Law of Natural Nutrition (Quarry Press, Kingston, ON, 1996). THE DOCTOR YOURSELF LAWS OF NATURAL THERAPEUTICS LAW: Most non-accidental illness is due to malnutrition. This not only includes the chronic diseases, but also viral and bacterial acute illness, which are greatly aggravated by inadequate nutrition. Conventional physicians are still available to persons needing them for traumatic injury. LAW: Adding drugs to a sick body to cure it is like adding poison to a polluted lake to clean it. Killing microorganisms, or masking the cause of symptoms is no more than a temporary answer in either case. LAW: Restoring health must be done nutritionally, not pharmacologically. All cells in all persons are made exclusively from what we drink and eat. Neither the chemical spraying a sick plant nor the chemical vaccination of a sickly child can substitute for really good nutrition. LAW: Nutrient therapy increases individual resistance to disease. Drug therapy generally lowers resistance to disease. Healthy plants, healthy animals and healthy people do not get sick. Doctors do not admit to this, because healthy people do not go to doctors. LAW: The quantity of a nutritional supplement that cures an illness indicates the patient's degree of deficiency. It is therefore not a megadose of the vitamin, but rather a megadeficiency of the nutrient that we are dealing with. LAW: The number one side effect of vitamins is failure to take enough of them. LAW: With vitamin therapy, speed of recovery is proportional to the dosage given. As there is a certain, large amount of fuel needed to launch an aircraft or a spacecraft, there is a certain, large amount of nutrients needed to cure a sick body. LAW: Vitamin C replaces antibiotics, antihistamines, antipyretics, antitoxics, and antiviral drugs at saturation (bowel tolerance) levels. This is the single most inflammatory statement in medicine. LAW: The reason one nutrient can cure so many different illnesses is because a deficiency of one nutrient can cause many different illnesses. LAW: A vitamin can act as a drug, but a drug can never act as a vitamin. LAW: With vitamin therapy, at any given quantity, frequently divided doses are more effective. LAW: The advertising of a given food is inversely proportionate to its nutritional value. If you couldn't miss seeing it on TV, you probably can do without it. LAW: The price of a food is inversely proportional to its nutritional value. Brown rice, beans, vegetables from your garden, sprouts from your own countertop jars, fruits from your own trees and bushes. all are superior to meats and prepared convenience foods that cost a fortune. LAW: Media publicization of a nutritional research study is inversely proportional to its curative value. The most popular news stories about vitamin therapy tend to be either worthless, or negative, or both. LAW: Being you own physician refers to your overall management of your case yourself. It is about rights and about power, not how many diplomas you have accumulated. " Doctor Yourself " is a practical philosophy, based NOT on your mastering all aspects of scientific medicine, but based rather on the reasoned application of effective health knowledge where you personally need it. LAW: The principles of natural therapeutics are fairly simple, but they are not easy. What you need to do to Doctor Yourself is less than you might think but more than you might want. Lifestyle changes (in diet, routine, and choices) can be unpopular. LAW: Health recovered is proportional to effort expended. You do not have to live an inflexibly perfect life to have a much healthier life... but it helps. LAW: Health knowledge worth having does not go out of date in ten years or even one hundred years. " New " does not automatically mean more accurate or more valuable. " Old " research and clinical studies are often superior references. What works is never out of date. Fasting, near-vegetarian diet, use of nutritional supplements, and other non-pharmaceutical methods have stood the test of time, as have Einstein's theories and the Bill of Rights. Those unaware of the power of simple and safe natural methods are in this position because of contradictory and confusing media reporting. LAW: Most confusion over " what constitutes proper healthcare " arises from partisans. A " partisan " is a highly one-sided source. Bias against vitamin supplements usually proceeds from persons and industries who stand to lose when cheap, natural health care succeeds. Hospitals, physicians, nurses, dieticians, politicians, pharmaceutical companies and others have a vested (cash) interest in disease. LAW: Many conflicting reports about vitamin therapy come from natural health partisans. These include vitamin distributors, individual supplement companies, brands and even practitioners trying to corner as much of the market as they can for themselves. Ignore them. Re: Emotions I cannot say that I have had Hypothyroidism all my life as in my teens up to about 19 I was quite under weight and it was not until my mid to latter 20's that I really started to put on weight. My weight has been going up and down ever since my early 30's .... I was diagnosed with Bipolar Disorder -- I see that people have allot of the same mood swings as Bipolar Disorder. Fiancé says he wonders if it was they hypothyroidism that my moods are attributed to and not a mental illness? Charmaine I experience these same types of outbursts that I cannot explain. It has ruined countless relationships...and I'm sure it's only a matter of time before I scare my current boyfriend away. I used to blame it on PMS but now it seems to occur on a regular basis, sometimes I can control it, other times I can't. I really don't feel like I have a mental illness or anything like that, I feel like it's hormones or something I haven't figured out. I have an appt. this month with a new OB/GYN and I'm hoping she will do some new tests besides the thyroid tests. I have been taking 1 and 1/2 grains of Armour and using some Progesterone Cream that someone here recommended. It seems to help but not nearly enough. Any suggestions as to what I should ask her to test me for? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Actually getting away from the diagnosis of bipolar disorder would be a hard one -- would be a hard one -- as I was dx with this when I was 19 years old -- there have been other occasions where I have told them over the years that I felt it was not this. Do you have a link that I could go to -- to read this article of Abe Hoffer's article that you make mention of below? Thanks, Charmaine Hi Charmaine, Have you read Abe Hoffer's work on orthomolecular medicine? Most of his research seems to be for persons wth schizophrenia but bipolar is mentioned here and there as benefiting from his treatment. Be careful with the diagnosis (get a second, third or fourth opinion). Bipolar has become a catchall somewhat similar to ADHD. There are many things people have done to help change brain chemicals that involve nutrition and building up the body but it does require being responsible for your own health. I'm pleased your doc insists on getting your thyroid up to speed before messing around with other kinds of chemicals---but what in the body is not funcitioning properly and why when the thyroid goes haywire? I've been reading this list quite some time and no one ever sems to address the underlying cause of thyroid malfunction. Why does it not produce or process adequate T3 or T4 or whatever? SaraLou Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 My mother was diagnosed bi-polar. It is certainly the diagnosis du jour, along with depression. In my mother's case, she was untreated hypothyroid all her life, and then had an unnecessary hysterectomy. ALL she needed to get well was hormones. So the big problem in this society is how to get well, and how to find good medical care. Gracia > Actually getting away from the diagnosis of bipolar disorder would be a hard one -- would be a hard one -- as I was dx with this when I was 19 years old -- there have been other occasions where I have told them over the years that I felt it was not this. > > Do you have a link that I could go to -- to read this article of Abe Hoffer's article that you make mention of below? > > Thanks, > Charmaine > > Hi Charmaine, > > Have you read Abe Hoffer's work on orthomolecular medicine? Most of his research seems to be for persons wth schizophrenia but bipolar is mentioned here and there as benefiting from his treatment. Be careful with the diagnosis (get a second, third or fourth opinion). Bipolar has become a catchall somewhat similar to ADHD. There are many things people have done to help change brain chemicals that involve nutrition and building up the body but it does require being responsible for your own health. > > I'm pleased your doc insists on getting your thyroid up to speed before messing around with other kinds of chemicals---but what in the body is not funcitioning properly and why when the thyroid goes haywire? I've been reading this list quite some time and no one ever sems to address the underlying cause of thyroid malfunction. Why does it not produce or process adequate T3 or T4 or whatever? > > SaraLou > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Well through my adolescence and teens I do believe it should have been hypothyroid -- as was considerably underweight and then the latter part of early 30's to present should have been hypothyroid -- but every time I made a remark of my weight -- they never appeared too concerned and therefore never did the necessary tests until now -- when they see how upset I was about the weight I am now in comparison to what I was about 4-5 months ago. Charmaine My mother was diagnosed bi-polar. It is certainly the diagnosis du jour, along with depression. In my mother's case, she was untreated hypothyroid all her life, and then had an unnecessary hysterectomy. ALL she needed to get well was hormones. So the big problem in this society is how to get well, and how to find good medical care. Gracia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Bee and others, I have noticed odd, old emotions also creeping up since I've begun this program, esp most recently. I have anger/resentment issues which for whatever reason I haven't felt for a long time until very recently. I am not sure what to do about them really, but to me it seems like they are connected to my healing and health and have oddly appeared very strongly with Bee's candida program. Does anyone else experience any type of emotional resurfacing? How do you feel better about the emotions as they occur? ~Anita --------------------------------- New Messenger with Voice. Call regular phones from your PC for low, low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Have you read the file on Herings law of cures? It might just bring up emotional issues as well. It is my thought that we have been stuffing ourselves with food for so long to push down pain or anxiety or stress of any kind. A lot of those foods such as sugar, flour, junk, chips, etc. are the very ones that fed the candida. When you take all of that away and have an initial limited diet you are removing a very effective vehicle for some of us to avoid feelings. It would only make sense that the feelings are coming up because you aren't stuffing them with meat, eggs, good oils and fats. They just don't work the same as that big huge sugar rush. Good time to heal both physically, mentally, and emotionally. I know when my candida was healing and also when I have a flare up anxiety is the first thing to flare up. Big time. Really big time. Find things to do to relax you that do not include food. Also magnesium, C, and a lot of water helped me. Jeanne otn -------------- Original message -------------- From: " Anita P. Wagner " <anita_priscilla@...> Bee and others, I have noticed odd, old emotions also creeping up since I've begun this program, esp most recently. I have anger/resentment issues which for whatever reason I haven't felt for a long time until very recently. I am not sure what to do about them really, but to me it seems like they are connected to my healing and health and have oddly appeared very strongly with Bee's candida program. Does anyone else experience any type of emotional resurfacing? How do you feel better about the emotions as they occur? ~Anita --------------------------------- New Messenger with Voice. Call regular phones from your PC for low, low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Anita, The emotions that you are experiencing ARE part of the healing process. It's part of the " retracing " that occurs (see the file regarding " Hering's Law of Cures " for more info). Like the physical symptoms which come and go, emotions will do the same thing....they will bubble up and then leave. The best way to deal with them is to simply notice them and let them go. Be gentle with yourself and don't judge the emotions...they are simply energy (neither " good " nor " bad " ) that is now ready to completely leave you. It may be helpful to meditate or journal about them...maybe journal or talk with a friend about the specific emotions and what circumstance they may have been originally attached to and how your life is now different. This too shall pass. jackie > I have noticed odd, old emotions also creeping up since I've begun this program, esp most recently. I have anger/resentment issues which for whatever reason I haven't felt for a long time until very recently. I am not sure what to do about them really, but to me it seems like they are connected to my healing and health and have oddly appeared very strongly with Bee's candida program. > > Does anyone else experience any type of emotional resurfacing? How do you feel better about the emotions as they occur? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 I was just reading the Yeast Connection by Dr. Crook last night, and he says emotional stuff is common with candida and healing. I think what it is is the toxins and how they affect the brain, and also the hormones. Luv, Debby San JOse, CA --- " Anita P. Wagner " <anita_priscilla@...> wrote: > I have noticed odd, old emotions also creeping up > since I've begun this program, esp most recently. I > have anger/resentment issues which for whatever > reason I haven't felt for a long time until very > recently. I am not sure what to do about them > really, but to me it seems like they are connected > to my healing and health and have oddly appeared > very strongly with Bee's candida program. Website for my son Hunter Hudson, born 10/11/04: http://debbypadilla.0catch.com/hunter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 I was just reading the Yeast Connection by Dr. Crook last night, and he says emotional stuff is common with candida and healing. **** Thanks Debby! Can you expand on this for us? I think those that are overwhelmed right now with what is going on with them emotionally would really appreciate it. Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 --- jeannekrieg@... wrote: > **** Thanks Debby! Can you expand on this for us? I > think those that are overwhelmed right now with what > is going on with them emotionally would really > appreciate it. Well gosh, it's not really an area I have too much knowledge in, but I'll share what I do know. One, the symptoms are both physical and emotional. So when people experience depression, it's a chemical thing in the brain. This is why anti-depressants help, but they don't really cure the problem. Candida toxins are like alcohol toxins.. yeast is made to ferment alcohol, which is why it's so similar. You know when you have a hangover how you feel? Well actually I don't drink and have never had a hangover, but from what I hear you are tired, achy, headache, depressed, nauseous or even vomiting, weak, fatigued, you have memory loss, brain fog.. all this sound familiar? This is what is going on in your body when you are killing the candida and their die-off by products are entering their poison in your blood stream. What do they tell you to do after a hang over? Take aspirin (natural white willow bark - instead of the fake stuff) and drink lots of water to flush it out, right? This is the same thing you do with candida. The other thing you do is take lots of vitamin C and garlic which supports your immune system, which makes more white blood cells with which your body counteracts the yeast. OK, so that is physically what happens to your body during the process, and now you know how to kind of lessen those symptoms. Then there is the whole emotional aspect which is entirely emotional and has to do with our emotional ties to food. This area is much more complex. But basically, like most of us probably know from maybe watching TV, addicts do drugs, drink, or what ever because they want to avoid feeling " pain " . Usually when you see some TV drama about an addict, it starts when their parents get divorced or they do, someone dies, they get raped or molested, or what have you. Something traumatic happens. In real life it doesn't even have to be that dramatic, but it affects us to the core. So what we do is we eat for pleasure, because eating releases pleasurable chemicals in the brain, especially refined sugars. This counteracts the " depressing " chemicals in our brain, but then we create more yeast which release more toxins and make us more sick and make us more depressed. It's a viscious cycle that keeps getting worse. When we follow the candida diet, we get all of the diet off toxins again, but this time we can not medicate the emotions with food.. we have no where to turn to help us with the uphill battle that is required to heal the cycle. In addition we begin to feel all of the negative emotions we stuffed down with food (much like an alcoholic stuffs down with alcohol) and the combination of physical and emotional symptoms can really be a struggle. Physically, the best things you can do are drink lots of water, vitamin C and garlic to help your immune system deal with toxins and manufacture white blood cells, stick with the diet, and exercise to provide endorphins for your brain to counteract the depressants. The good chemicals you get through exercise don't have the same negative side effects that eating sugars do. Also you don't have to exercise vigorously to get results if you are tired.. force yourself, no matter how tired, to take a walk each day, and slowly gently increase your activity and exercise level. The exercise will also help you regular blood sugar and burn off any extra carbs you are eating so that the candida can't eat them. Emotionally, you want to set up a no-fail environment. Your meals should be planned in advance, cooked and ready to go 24 hours in advanced every single day. Get your family and friends to support you by not tempting you, and get the no-no foods out of your house. Be pushy if you need to, this is your health, and you have nothing else if you don't have your health. Not even your children, spouse, etc. At this point when emotional stuff comes up, talking with friends, a therapist, meditation, journaling, deep breathing, a mind-clearing walk, etc. are all things that can help you get through the emotional stuff you feel. Like the other day I bought my hubby cupcakes for his birthday. My MIL was visiting, and I was talking her about something very stressful. All of a sudden, physically and emotionally (even my stomach growled) I had this strong craving to eat a cupcake. I realized though that this was because of my conversation with my MIL, so I made a cup of tea to warm myself up, and I sat on my couch in the dark with my cup of tea and did deep breathing and just felt the feelings seething inside of me. My frustration with my MIL, the chaos that I was going through, the highs and lows of my love/hate relationship with her, etc. I was just alone with my thoughts and feelings. The warmth of the tea was physically soothing, without being self destructive. The deep breathing helped get oxygen into my body and made me feel better too. The emotional stuff I just *felt* instead of stuffing down. I just let myself feel all those things, and forgave myself for being human and being able to be irritated or frustrated. I went over the situation in my head, as if I was talking to a friend, but the friend was myself, if that makes sense. The moment passed and it was a triumph for me. In fact I made it through 5 days with my MIL without a single cheat! Sorry this is so long.. but hope it helps someone. Luv, Debby San JOse, CA Website for my son Hunter Hudson, born 10/11/04: http://debbypadilla.0catch.com/hunter/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.