& Enbrel

[Guest guest]

, I don't know how you do it. I commend you wholeheartedly.

I can understand him feeling embarrassed in the shower. I think

about a time to come when I won't be able to reach and clean my own

backside. I guess I'm home too long and the brain goes a little crazy.

I am glad that the meds are working so well for him. This leaves me

with a little hope. Thanks.

Regards,

Sylvia

> we know that jesse is feeling better due all his meds but until he

started

> the enbrel it was only minium help. he was still flaring

uncontrolably. He

> would wake up screaming at night and couldn't even walk to the

bathroom or

> stand at the tolit to pee and god if he had to sit to go number 2

it was

> torture treatment for him lets not even discuss what it was like

for him to

> take a bath or shower. he had to take a bath cause he couldn't

stand long

> enough to take a shower. then there was the fact that mom had to

help him and

> that is very embrassing for an 11 yr old boy. i guess more so for a

boy then

> for a girl so he told me. he said if he was a girl it wouldn't

bother him so

> much for me to see him naked.lol bless his heart. so i did the best

i could

> without looking or opening my eyes just to make him feel more at

ease.

>

> anyway to get to the point. the day after jesse started the enbrel,

it was

> like seeing him reborn. you weren' t in the group yet so you

wouldn't

> remember me writing and telling everyone what a change it made in

his body.

> it took time for the swelling to go down but the pain decreased

about 85%.

> has never been able to stay outside with his friends or

brothers for

> more then 30 mins at a time if that. now he is out there all day

long and

> more if i let him. he is playing football and riding his bike and

running. he

> is doing all the things that he has wanted to do and couldn't cause

he hurt

> and was to swollen.

>

> after 6 yrs of trying different meds and then start the enbrel and

almost

> over night see such a change in his illness was a blessing so when

i say the

> enbrel has been jesses savior then iam not kidding. of course

people have to

> know that enbrel doesn't work by itself. it needs the help of all

the other

> meds and everything has to be tried before a insuracne oks the

treatment and

> there is a chance that enbrel won't work for everyone.

>

> I guess before i say they can use jesse as a poster child i have to

see what

> they are gonna write about his story first. I want people to know

the whole

> truth and not just what one company wants the poeple to hear.. .