Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 hi Nil, i have very bad noise sensitivity , i have chronic infections and orthostatic Intolerance or POTS.......and i cant take any noise........and i have ringing in ears and echoeing.......it makes my life miserable, since every noise bothers me so much.....wish i could have normal ears!!!!!!! Radha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Sorry to hear of the troubles you are having with such extreme noise sensitivity. I spoke today to a doctor over here in the UK who is finding many of his CFS patients have a " borrelia-like " spirochaete infection (ie possibly lyme). He said noise sensitivity goes along with this and ringing in the ears too. Just telling you in case this could be relevant. Also in the past I went through a phase of being very sensitive and I was helped by sorting out zinc, magnesium and B6 levels. Whatever, I hope you soon find something to help, BW, Sheila > Re:noise sensitivity > > > hi Nil, i have very bad noise sensitivity , i have chronic infections and > orthostatic Intolerance or POTS.......and i cant take any > noise........and i have > ringing in ears and echoeing.......it makes my life miserable, > since every > noise bothers me so much.....wish i could have normal ears!!!!!!! > Radha > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Radha, I had this very high amounts of noise sensitivity about 2 or 3 years ago but I am much better now.My question was acually asking if anyone noticed of having some noice sensitvity before the onset of the illness.Appearently I had not explained it well at my note. Anyway,my noise sensitivity diminished greatly after I started using adrenal cortex extract and pregnenolone. thanks Nil Re:noise sensitivity > > > > > > hi Nil, i have very bad noise sensitivity , i have chronic infections and > > orthostatic Intolerance or POTS.......and i cant take any > > noise........and i have > > ringing in ears and echoeing.......it makes my life miserable, > > since every > > noise bothers me so much.....wish i could have normal ears!!!!!!! > > Radha > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi , Sounds like you are describing is a child who is shutting down from being overstimulated by the noise. Try checking with your OT about sensory issues! Sue mom to Kate 15 and Karrie 8 w/ds and other issues .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi , Sounds like you are describing is a child who is shutting down from being overstimulated by the noise. Try checking with your OT about sensory issues! Sue mom to Kate 15 and Karrie 8 w/ds and other issues .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 I agree with Sue on the shutting down. You may also consider it being the chaos as well as or instead of the noise. My daughter had a very similar problem (still does). She does not shut down as in going to sleep, but she covers her ears and puts her head down until she feels safe. We think it is the chaos, because now she ask for the music to be louder. (mom to Bridget 12) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 I agree with Sue on the shutting down. You may also consider it being the chaos as well as or instead of the noise. My daughter had a very similar problem (still does). She does not shut down as in going to sleep, but she covers her ears and puts her head down until she feels safe. We think it is the chaos, because now she ask for the music to be louder. (mom to Bridget 12) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi and welcome to Upsndowns! Glad to see another local parent here. Yes, what you are seeing is a sensory issue and is pretty common. use to sleep in school anywhere from 1-3 hours a day. His teacher used alot of SI stuff and the sleepiness disappeared. He uses a message chair, fright/flight quiet area, she uses deep pressure massage, etc. It's really helped alot- the daytime sleepiness has disappeared. This SI stuff is really weird - likes the TV and radio up loud - sometimes he has a DVD going with the TV on at the same time - high volume! also use to sleep during movies - now he is pretty much into them until the very end. Another common thing that you may see soon is for your daughter to have the ability to stop a VCR/DVD in the same exact frame time after time (the rewinding will drive you crazy). has gotten better with alarms, sirens, etc. has not been to the mall in ages because it's just too much for him. I can take him to the Walmart in Leesburg - it's older (doesn't have the super bright lights) but not the newer Walmarts like the one in Sterling. You should be able to find a massage chair (the kind you can use in the car but also at home) for around $50 or less. That is what his teacher uses and I have one at home. We also have a built in massager in the recliner. Noise sensitivity > > Hi! I'm new to the group. In a nutshell, we live in Virginia and have > 3 daughters ages 7, 4, and 2 (DS), and are expecting our first son in > July! > > I have a question for all of you about whether you have found your kids > with DS to be more sensitive to noise. Our youngest, , is almost > 3 and all of a sudden has become very fearful of noises (lawnmowers, > vacuums, crying babies, etc...) and larger groups of people. The other > curious thing about this is that her coping mechanism seems to be to go > instantly to sleep - especially when she can't get away from a situation > like when she's in her booster chair at the table or trapped on our > laps. She fell asleep during an IMAX movie, took 2 naps during the > circus, and when a friend's 1 year old son was at our house for lunch > and making too many loud noises, she wouldn't eat and just put her head > down on the table and went to sleep. Is this a common reaction? > > Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi and welcome to Upsndowns! Glad to see another local parent here. Yes, what you are seeing is a sensory issue and is pretty common. use to sleep in school anywhere from 1-3 hours a day. His teacher used alot of SI stuff and the sleepiness disappeared. He uses a message chair, fright/flight quiet area, she uses deep pressure massage, etc. It's really helped alot- the daytime sleepiness has disappeared. This SI stuff is really weird - likes the TV and radio up loud - sometimes he has a DVD going with the TV on at the same time - high volume! also use to sleep during movies - now he is pretty much into them until the very end. Another common thing that you may see soon is for your daughter to have the ability to stop a VCR/DVD in the same exact frame time after time (the rewinding will drive you crazy). has gotten better with alarms, sirens, etc. has not been to the mall in ages because it's just too much for him. I can take him to the Walmart in Leesburg - it's older (doesn't have the super bright lights) but not the newer Walmarts like the one in Sterling. You should be able to find a massage chair (the kind you can use in the car but also at home) for around $50 or less. That is what his teacher uses and I have one at home. We also have a built in massager in the recliner. Noise sensitivity > > Hi! I'm new to the group. In a nutshell, we live in Virginia and have > 3 daughters ages 7, 4, and 2 (DS), and are expecting our first son in > July! > > I have a question for all of you about whether you have found your kids > with DS to be more sensitive to noise. Our youngest, , is almost > 3 and all of a sudden has become very fearful of noises (lawnmowers, > vacuums, crying babies, etc...) and larger groups of people. The other > curious thing about this is that her coping mechanism seems to be to go > instantly to sleep - especially when she can't get away from a situation > like when she's in her booster chair at the table or trapped on our > laps. She fell asleep during an IMAX movie, took 2 naps during the > circus, and when a friend's 1 year old son was at our house for lunch > and making too many loud noises, she wouldn't eat and just put her head > down on the table and went to sleep. Is this a common reaction? > > Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 When our son was young he would cry at loud basketball games, etc. He seemed to outgrow it shortly after the toddler stage. Shirley > > From: <laurenandmatt@...> > Date: 2005/04/20 Wed PM 09:18:55 EDT > < > > Subject: Noise sensitivity > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 When our son was young he would cry at loud basketball games, etc. He seemed to outgrow it shortly after the toddler stage. Shirley > > From: <laurenandmatt@...> > Date: 2005/04/20 Wed PM 09:18:55 EDT > < > > Subject: Noise sensitivity > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 In a message dated 4/20/2005 10:32:50 PM Eastern Standard Time, cindysue@... writes: I have a question for all of you about whether you have found your kids > with DS to be more sensitive to noise. Our youngest, , is almost > 3 and all of a sudden has become very fearful of noises (lawnmowers, > vacuums, crying babies, etc...) and larger groups of people. The other > curious thing about this is that her coping mechanism seems to be to go > instantly to sleep - especially when she can't get away from a situation > like when she's in her booster chair at the table or trapped on our > laps. She fell asleep during an IMAX movie, took 2 naps during the > circus, and when a friend's 1 year old son was at our house for lunch > and making too many loud noises, she wouldn't eat and just put her head > down on the table and went to sleep. Is this a common reaction? > -- Welcome to the world of Sensory Integration! While not all kids have SI issues, many do. sure does. Also talk to your pediatrician about being checked out for Narcolepsy... the neurological response that makes her fall asleep when her senses are overloaded. It runs in my family but I didn't recognize it in for years. It took a child psychiatrist to recognize it for what it was. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 In a message dated 4/20/2005 10:32:50 PM Eastern Standard Time, cindysue@... writes: I have a question for all of you about whether you have found your kids > with DS to be more sensitive to noise. Our youngest, , is almost > 3 and all of a sudden has become very fearful of noises (lawnmowers, > vacuums, crying babies, etc...) and larger groups of people. The other > curious thing about this is that her coping mechanism seems to be to go > instantly to sleep - especially when she can't get away from a situation > like when she's in her booster chair at the table or trapped on our > laps. She fell asleep during an IMAX movie, took 2 naps during the > circus, and when a friend's 1 year old son was at our house for lunch > and making too many loud noises, she wouldn't eat and just put her head > down on the table and went to sleep. Is this a common reaction? > -- Welcome to the world of Sensory Integration! While not all kids have SI issues, many do. sure does. Also talk to your pediatrician about being checked out for Narcolepsy... the neurological response that makes her fall asleep when her senses are overloaded. It runs in my family but I didn't recognize it in for years. It took a child psychiatrist to recognize it for what it was. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 In a message dated 4/20/2005 10:02:02 PM Eastern Standard Time, writes: Is this a common reaction? I don't know how common it is for all children with Ds, but Sheila was very sensitive to noise and would go to sleep to get away from it. nancy (mom of , Sheila-DS and Colleen) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 In a message dated 4/20/2005 10:02:02 PM Eastern Standard Time, writes: Is this a common reaction? I don't know how common it is for all children with Ds, but Sheila was very sensitive to noise and would go to sleep to get away from it. nancy (mom of , Sheila-DS and Colleen) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Welcome , Yes my son also does not like loud noises as many of our kids don't. He doesn't go to sleep though, just yells. I think I like 's alternative better lol!! See if your OT can help you with how to desensitize her. Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Welcome , Yes my son also does not like loud noises as many of our kids don't. He doesn't go to sleep though, just yells. I think I like 's alternative better lol!! See if your OT can help you with how to desensitize her. Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Stefanie was too. We still take ear plugs to movie theaters. I have to say during her teen years she must have grown out of some of the sensitivity cuz the girl loved to blast the stereo LOUDLY!!! Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Stefanie was too. We still take ear plugs to movie theaters. I have to say during her teen years she must have grown out of some of the sensitivity cuz the girl loved to blast the stereo LOUDLY!!! Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Hi , Kristi, and are still sensitive to certain loud, sudden noises, even loud music. But they like to play their own music loud! Guess that comes with the teen years. Dad to , Kristi, and (all three Down syndrome) and (Cri du chat) Husband to C. in MO. Uncle Daddy to and in California (both Down syndrome) Noise sensitivity > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Hi , Kristi, and are still sensitive to certain loud, sudden noises, even loud music. But they like to play their own music loud! Guess that comes with the teen years. Dad to , Kristi, and (all three Down syndrome) and (Cri du chat) Husband to C. in MO. Uncle Daddy to and in California (both Down syndrome) Noise sensitivity > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 has some problems with noise too, but not as much as when he was a child. it isn't so much constant noises like music but he startles easily, doesn't like things like fireworks. He doesn't like loud music, thank goodness but it doesn't particularly bother him, just not his kind of music. Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 has some problems with noise too, but not as much as when he was a child. it isn't so much constant noises like music but he startles easily, doesn't like things like fireworks. He doesn't like loud music, thank goodness but it doesn't particularly bother him, just not his kind of music. Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 was very noise sensitive as a baby and toddler, and has gradually gotten better. Her reaction was to cry first, (later she could say " too loud " ), and eventually coped by " shutting down " and eventually falling asleep. She did much better at age 4 when we purchased ear muffs (like you'd wear with power equipment) kid-sized at sensorycomfort.com. We take them with us to places like Disneyland, parades, school assemblies, and on the 4th on July (which still usually cause a sleeping shut-down, but then again, it's late at night, LOL), but she can now attend these things with our family, which is a huge success. And yet, even with them, this weekend we were at a college band competition for a little while, and even with the ear muffs, she just passed out on the grass...... hundreds of college musicians all around, playing their hearts out. There she was, sleeping on my sweatshirt, earmuffs on, even when the saxaphones strolled through the crowd. She was darling, and if I ever get around to posting a picture, this one is great. , mom to (9), (7 DS), and (5, who plays the drums and can easily get out of her room just by sitting down at her drum set!) laurenandmatt@... wrote: >Hi! I'm new to the group. In a nutshell, we live in Virginia and have >3 daughters ages 7, 4, and 2 (DS), and are expecting our first son in >July! > >I have a question for all of you about whether you have found your kids >with DS to be more sensitive to noise. Our youngest, , is almost >3 and all of a sudden has become very fearful of noises (lawnmowers, >vacuums, crying babies, etc...) and larger groups of people. The other >curious thing about this is that her coping mechanism seems to be to go >instantly to sleep - especially when she can't get away from a situation >like when she's in her booster chair at the table or trapped on our >laps. She fell asleep during an IMAX movie, took 2 naps during the >circus, and when a friend's 1 year old son was at our house for lunch >and making too many loud noises, she wouldn't eat and just put her head >down on the table and went to sleep. Is this a common reaction? > >Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 was very noise sensitive as a baby and toddler, and has gradually gotten better. Her reaction was to cry first, (later she could say " too loud " ), and eventually coped by " shutting down " and eventually falling asleep. She did much better at age 4 when we purchased ear muffs (like you'd wear with power equipment) kid-sized at sensorycomfort.com. We take them with us to places like Disneyland, parades, school assemblies, and on the 4th on July (which still usually cause a sleeping shut-down, but then again, it's late at night, LOL), but she can now attend these things with our family, which is a huge success. And yet, even with them, this weekend we were at a college band competition for a little while, and even with the ear muffs, she just passed out on the grass...... hundreds of college musicians all around, playing their hearts out. There she was, sleeping on my sweatshirt, earmuffs on, even when the saxaphones strolled through the crowd. She was darling, and if I ever get around to posting a picture, this one is great. , mom to (9), (7 DS), and (5, who plays the drums and can easily get out of her room just by sitting down at her drum set!) laurenandmatt@... wrote: >Hi! I'm new to the group. In a nutshell, we live in Virginia and have >3 daughters ages 7, 4, and 2 (DS), and are expecting our first son in >July! > >I have a question for all of you about whether you have found your kids >with DS to be more sensitive to noise. Our youngest, , is almost >3 and all of a sudden has become very fearful of noises (lawnmowers, >vacuums, crying babies, etc...) and larger groups of people. The other >curious thing about this is that her coping mechanism seems to be to go >instantly to sleep - especially when she can't get away from a situation >like when she's in her booster chair at the table or trapped on our >laps. She fell asleep during an IMAX movie, took 2 naps during the >circus, and when a friend's 1 year old son was at our house for lunch >and making too many loud noises, she wouldn't eat and just put her head >down on the table and went to sleep. Is this a common reaction? > >Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
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