Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Barbie, Diane, I too have a son (10) with extremely slow motility in his digestive system. After numerous tests, including a gastric empyting test, he was diagnosed with gastroparesis. He takes Miralax and tried both erythromyacin and reglan (at different times.) He was nauseous and vomited frequently, even on those meds. The pediatric gastroenterologist recommended that we put him on cisapride (propulsid). It's not available in the US anymore, but we were able to get it over the Internet from Mexico. It was easier than I thought and comes in a sealed foil pack from the manufacturer. It's legal, as long as you don't sell it. It seems to be helping quite a bit. My older daughter also took it for 9 months when it was available in the U.S. and it helped her a lot. The other thing that helps quite a bit is exercise. He loves basketball and tennis and I encourage as much active exercise as possible. Ann Young, mother of (10) with gastroparesis, (14) primary immune deficiency, Christy (16) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 In a message dated 4/3/03 3:41:59 PM Central Standard Time, candidiasis writes: > Date: Wed, 2 Apr 2003 16:33:42 -0800 (PST) > From: Frances Yumo <fyumo2000@...> > Subject: RE: Testing for Candida > > > A simple spit test and muscle test will work fine. I've done it myself and > it seems reliable. > Crimi <crimiv@...> wrote:Immunodiagnostics (a subsidiary of > LabCorp) out of California does a > blood test. It is expensive but is worth it. > > What kind of muscle test? How do you do it? Please let me know. Thanks Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 In a message dated 5/3/2003 3:21:45 AM Pacific Standard Time, writes: That's because the original bill made it mandatory- the optional part came in an amendment. There was very little time between the orginal and the ammendments M. > From all the talk around here and other sped sites I got the > idea that every 3 yrs would be the only option, that is misinformation to > me. > If they aren't misreading the law and the gov web site is stating a lie > then > then point that out. Either way one is misinforming, who is it? This > list is where I got all the alerts on 3 yr IEP's. Perhaps I misread the > alerts and so did alot of other people? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 Joy- the OPTIONAL 3- year IEP is not my biggest worry on this bill.- I think the discpline issue has a greater impact in the long run, BUT something to consider with a 3 year IEP- this bill changed the statute of limitations for due process to one year. So if you find out in the middle of a 3 year IEP that your child's rights have been violated- you have no recourse- and that stinks! I spoke with someone last yesterday who has been in contact with our states representative to the presidents " Excellence in sp. ed committee " . They were the ones who made the recommendations to the workforce committee who wrote the changes. He said much of the bill as written does not reflect the recommendations made. He said they twisted many of the recommendations into something totally different. M. In a message dated 5/3/2003 3:21:45 AM Pacific Standard Time, writes: > Perhaps, then again perhaps not. > > I really think some changes are necessary. There are things and situations > where what is required takes time and resources. Options are necessary. > > Here they've said alot of things regarding educational changes. PSOP was > going to be so awful. (my middle to preferred it to hs back biting > cliques, > had the added benefit of AS dergrees) School choice has been an option > here > for along time, it to has not had the dire consequences that were > predicted. > Change is not bad, sometimes it's actually better to give choices since all > kids and all educational plans are not the same. > > If they try to take make the 3 yr option manditory in the next > reauthorization, then deal with it then, as long as it's now a choice give > it > a chance. IMO of course. :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 In a message dated 5/3/2003 1:26:19 PM Eastern Daylight Time, muracat@... writes: > this bill changed the statute of limitations > for due process to one year. Also, if a parent choses arbitration, they lose their right to due process. That's a biggie! How many parents will not be informed of this before they sign those rights to due process away? Civil rights are not about arbitration, let's negogiate ....civil rights belong to every American. Cheryl in VA Let every nation know, whether it wishes us well or ill, that we shall pay any price, bear any burden, meet any hardship, support any friend, oppose any foe, to assure the survival and success of liberty. - F. Kennedy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 In a message dated 9/19/04 12:30:13 PM Eastern Daylight Time, writes: > We had some wonderful news yesterday. > His tumor has shrunken almost to the point of not being there, has not > spread anywhere else, and does not need to have another check for 3 > months!!!!! > Oh -that is wonderful news about your dad!!!! Wow! Best of luck at your shows!! :-) Carol J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 In a message dated 12/4/04 7:07:16 AM Eastern Standard Time, writes: > Message: 2 > Date: Fri, 3 Dec 2004 11:17:07 -0800 (PST) > From: Grace <foxyfoxgrace@...> > Subject: Re: Digest Number 1685 > > MJH, > > I'm not really sure that it's headaches, she just says that her head hurts > after she's had a grand mal seizure and most of the time I don't give her > anything for it and she doesn't talk about it anymore and is fine, but the three > times that I did give her something for it, she ended up having all these > partials. > > He didn't say that supplements are not necessary, just not high doses of > them. For example, I told him that I was giving 500mg of Calcium and > 250mg of Magnesium, he said that this was too high that I should be giving her > less. > > I just bought some flax seed and I will start on them today. I'm > trying to keep her nutritionally healthy. Oh, and we're also going to start > seeing a nutritionist to see about putting her on a healthy diet, maybe the > modified Atkins diet. > > How's Charlie doing, is he still throwing up? > > Grace > .. .. >>> Grace I did not understand that the headaches were post-seizure. Charlie had excrutiating headaches after gran mals, but since I started to give him more Mg and B6 immediately when he could swallow, the severity of the pain and the whole post ictal period decreasedsignificantly. Also, using Lobelia inflata tincture to stop seizure activity instead of or in addition to rectal diazepam has also minimized head pain and hastened normalcy. Charlie is no longer on Lamictal, hence no more vomiting. I wrote about this a couple of days ago, see the subject: LAMICTAL. Good luck to you, success does not come instantly. CHarlie's Mom mjh Quote Link to comment Share on other sites More sharing options...
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