Re: Remicade Partners

[Guest guest]

,

Cheer! My next dose is August 9. The one thing I am sad about for you is

being alone in the room. I am in a room with about 7 other people. And we

have a TV, though it never gets turned on bcs people would rather read. If it

weren't for the interaction of all the other people I'd die of boredom. My

first treatment, I was there 5+ hours! So don't be surprised if you're there

a while. I also have at least 2 nurses. They are taking care of everyone

getting various treatments. They are fun and joke around with us.

Don't be disappointed if you don't notice anything right away. I noticed a

huge difference the very next day. But some people take a week or two. My doc

said to actually get about 4 doses before I made a decision about staying on

it. I guess he said that bcs some people took that long for their body to

respond. I also talked with others who told me it took them that long. But

they all say it has changed their lives! One lady, an older lady I would

guess in her 60's, has really bad damage to her hands. They are bent,

crippled, crooked, and actually some finger joints fused together on their

own. You know what she does?? She draws gorgeous pictures!

So don't be worried. Keep the hope!

If you have other questions, let me know. =)

~Sue

> Hello,

> Just thought I let you know I have my approval for Remicade. The first

> treatment will be on August 17. She told me it is in a small room that it

> is done in and that I will have two nurses. It is done on a one to one

> bases. Because the room is small I will be the only one there. It will

> take at least three hours.

> Okay Sue now we are partners in remicade. I will take even a little

> relief, this summer has not been kind to me. She told me they have not had

> anyone suffer bad side effects. I told her about the problems I have with

> side effects, just so they are ready in case something comes up. Today, I

> don't want to think about if this doesn't work. The nurse did tell me that

> remicade is getting so popular that they have to get a larger area.

>

>