Re: Father gravely ill HELP!!!!!

[Guest guest]

robin,

is your dad being seen by a lyme literate MD? they know what to do. ask this

group for referals for your area.

On Sat, Nov 27, 2010 at 10:25 PM, Robin <keynamira@...> wrote:

>

>

> To make a long story short my father had been diagnosed with what was

> thought to be Parkinson's disease. The most obvious symptoms started in

> 2007. His path followed Parkinson's with ridigity of the limbs, extreme

> difficulty swallowing, frozen speech, anxiety and fuzzy thinking. (When he

> was admitted in July they inserted a feeding tube in his stomach because at

> that point he really couldn't eat anymore, and now not at all it's straight

> feeding tube)

>

> It was in July of this year that he acquired asperation pneumonia they gave

> him Rosephine we noticed him improve dramtically over the next 24 hrs. He

> was about 30-40% better which was encouraging since we had not seen that

> type of improvement since he had gotten sick.

> However it didn't last he was put on clyndamyican for 10 days for the

> pneumonia. When the antibiotics stopped he declined rapidly, he was also

> severly mistreated at the facility he was in, they refused to treat him with

> antibiotics. After a couple of weeks there we were able to get him

> transferred to a better nursing home. My brother's boss is a very wealthy

> man and he has lymes, he had seen doctors from all over the world and the

> one that had the best success was Dr. Hoffman in Waupaca,WI. We got him in

> to see Dr. Hoffman and he put my Dad back on Clyndamyican. He started to get

> better. But he longed to be stronger like he was(before this started my Dad

> could run circles around most 20yr olds he's 76)so he chose to get a picc

> line and Rosephine was started. He started to decline again, so they started

> rotating clynda and rosphine. He still declined. He started losing his

> balance and has fallen multiple times.

> The thought at this point that it may have gone too far before we were able

> to treat it. Advanced lymes with neurological symptoms such as his are in

> the very advanced stages.

> If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

> FATHER!!! He is a Marine and not a quitter so he is not giving up. But I

> think his body is.

> PLEASE HELP ME!!!!

> Robin

>

>

>

[Guest guest]

Try having dr do doxycycline. It is the first to hit with and ask about flagyl.

All oral meds. Also whatever movement/exercise he can do. This kills the bugs.

[ ] Father gravely ill HELP!!!!!

To make a long story short my father had been diagnosed with what was thought

to be Parkinson's disease. The most obvious symptoms started in 2007. His path

followed Parkinson's with ridigity of the limbs, extreme difficulty swallowing,

frozen speech, anxiety and fuzzy thinking. (When he was admitted in July they

inserted a feeding tube in his stomach because at that point he really couldn't

eat anymore, and now not at all it's straight feeding tube)

It was in July of this year that he acquired asperation pneumonia they gave

him Rosephine we noticed him improve dramtically over the next 24 hrs. He was

about 30-40% better which was encouraging since we had not seen that type of

improvement since he had gotten sick.

However it didn't last he was put on clyndamyican for 10 days for the

pneumonia. When the antibiotics stopped he declined rapidly, he was also severly

mistreated at the facility he was in, they refused to treat him with

antibiotics. After a couple of weeks there we were able to get him transferred

to a better nursing home. My brother's boss is a very wealthy man and he has

lymes, he had seen doctors from all over the world and the one that had the best

success was Dr. Hoffman in Waupaca,WI. We got him in to see Dr. Hoffman and he

put my Dad back on Clyndamyican. He started to get better. But he longed to be

stronger like he was(before this started my Dad could run circles around most

20yr olds he's 76)so he chose to get a picc line and Rosephine was started. He

started to decline again, so they started rotating clynda and rosphine. He still

declined. He started losing his balance and has fallen multiple times.

The thought at this point that it may have gone too far before we were able to

treat it. Advanced lymes with neurological symptoms such as his are in the very

advanced stages.

If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

FATHER!!! He is a Marine and not a quitter so he is not giving up. But I think

his body is.

PLEASE HELP ME!!!!

Robin

[Guest guest]

My prayers are with u and your father....please do not post doctor names -

Is doctor H still treat your father now? How long has he been in treatment?

Many times you go backwards first....

Have you used any natural things - probiotic is a must when on antibiotics....

Bless you both

On Sun Nov 28th, 2010 1:25 PM CST fsmfarms wrote:

>Try having dr do doxycycline. It is the first to hit with and ask about flagyl.

All oral meds. Also whatever movement/exercise he can do. This kills the bugs.

>

>

>

>

> [ ] Father gravely ill HELP!!!!!

>

>

>

> To make a long story short my father had been diagnosed with what was thought

to be Parkinson's disease. The most obvious symptoms started in 2007. His path

followed Parkinson's with ridigity of the limbs, extreme difficulty swallowing,

frozen speech, anxiety and fuzzy thinking. (When he was admitted in July they

inserted a feeding tube in his stomach because at that point he really couldn't

eat anymore, and now not at all it's straight feeding tube)

>

> It was in July of this year that he acquired asperation pneumonia they gave

him Rosephine we noticed him improve dramtically over the next 24 hrs. He was

about 30-40% better which was encouraging since we had not seen that type of

improvement since he had gotten sick.

> However it didn't last he was put on clyndamyican for 10 days for the

pneumonia. When the antibiotics stopped he declined rapidly, he was also severly

mistreated at the facility he was in, they refused to treat him with

antibiotics. After a couple of weeks there we were able to get him transferred

to a better nursing home. My brother's boss is a very wealthy man and he has

lymes, he had seen doctors from all over the world and the one that had the best

success was Dr. Hoffman in Waupaca,WI. We got him in to see Dr. Hoffman and he

put my Dad back on Clyndamyican. He started to get better. But he longed to be

stronger like he was(before this started my Dad could run circles around most

20yr olds he's 76)so he chose to get a picc line and Rosephine was started. He

started to decline again, so they started rotating clynda and rosphine. He still

declined. He started losing his balance and has fallen multiple times.

> The thought at this point that it may have gone too far before we were able

to treat it. Advanced lymes with neurological symptoms such as his are in the

very advanced stages.

> If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

FATHER!!! He is a Marine and not a quitter so he is not giving up. But I think

his body is.

> PLEASE HELP ME!!!!

> Robin

>

>

>

>

>

>

[Guest guest]

sounds like he might need to detox. Is his doctor advising him on this important

subject? Check the posts here for detox info.

>

> To make a long story short my father had been diagnosed with what was thought

to be Parkinson's disease. The most obvious symptoms started in 2007. His path

followed Parkinson's with ridigity of the limbs, extreme difficulty swallowing,

frozen speech, anxiety and fuzzy thinking. (When he was admitted in July they

inserted a feeding tube in his stomach because at that point he really couldn't

eat anymore, and now not at all it's straight feeding tube)

>

> It was in July of this year that he acquired asperation pneumonia they gave

him Rosephine we noticed him improve dramtically over the next 24 hrs. He was

about 30-40% better which was encouraging since we had not seen that type of

improvement since he had gotten sick.

> However it didn't last he was put on clyndamyican for 10 days for the

pneumonia. When the antibiotics stopped he declined rapidly, he was also severly

mistreated at the facility he was in, they refused to treat him with

antibiotics. After a couple of weeks there we were able to get him transferred

to a better nursing home. My brother's boss is a very wealthy man and he has

lymes, he had seen doctors from all over the world and the one that had the best

success was Dr. Hoffman in Waupaca,WI. We got him in to see Dr. Hoffman and he

put my Dad back on Clyndamyican. He started to get better. But he longed to be

stronger like he was(before this started my Dad could run circles around most

20yr olds he's 76)so he chose to get a picc line and Rosephine was started. He

started to decline again, so they started rotating clynda and rosphine. He still

declined. He started losing his balance and has fallen multiple times.

> The thought at this point that it may have gone too far before we were able to

treat it. Advanced lymes with neurological symptoms such as his are in the very

advanced stages.

> If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

FATHER!!! He is a Marine and not a quitter so he is not giving up. But I think

his body is.

> PLEASE HELP ME!!!!

> Robin

>

[Guest guest]

No doc h doesn & #39;t get into any of that - he is a top notch LLMD but

doesn & #39;t get into detox or supplements at all that I know of....good

advise!!!!

[Guest guest]

Thank You all for your suggestions.

He is seeing a lyme literate doc. Sorry for mentioning his name. I thought it

might help others to know who he was. This doc treats alot of people for this.

However the thought is that my Dad might be so weak and so far into the disease

that treatment has to be delicate and might not work. If we had gotten him

diagnosed and treated sooner. Well, who knows...

Thank you for the detox and doxy ideas. However he is far to weak for either.

Dr. H said that putting him on Doxy now, since you usually get worse before

better, could kill him. And I'm not sure besides they lymes what toxins are in

him since he only has tube feedings of a nutrient solution(sort of like ensure).

He hasn't eaten in a very long time. And answer to the treatment question he

started on antibiotics for lyme in early September. Dr. H said it takes time,

but he seems to be getting worse by the minute. He's a very tough former Marine

and I know that is what is keeping him here, I just don't know how long he can

last now. He is so weak and tired.

If anyone has a similar experience or knows of one like this please let me know.

THANK YOU AGAIN EVERYONE AND THANK YOU FOR THE PRAYERS AND THOUGHTS!!

Robin

>

> To make a long story short my father had been diagnosed with what was thought

to be Parkinson's disease. The most obvious symptoms started in 2007. His path

followed Parkinson's with ridigity of the limbs, extreme difficulty swallowing,

frozen speech, anxiety and fuzzy thinking. (When he was admitted in July they

inserted a feeding tube in his stomach because at that point he really couldn't

eat anymore, and now not at all it's straight feeding tube)

>

> It was in July of this year that he acquired asperation pneumonia they gave

him Rosephine we noticed him improve dramtically over the next 24 hrs. He was

about 30-40% better which was encouraging since we had not seen that type of

improvement since he had gotten sick.

> However it didn't last he was put on clyndamyican for 10 days for the

pneumonia. When the antibiotics stopped he declined rapidly, he was also severly

mistreated at the facility he was in, they refused to treat him with

antibiotics. After a couple of weeks there we were able to get him transferred

to a better nursing home. My brother's boss is a very wealthy man and he has

lymes, he had seen doctors from all over the world and the one that had the best

success was Dr. Hoffman in Waupaca,WI. We got him in to see Dr. Hoffman and he

put my Dad back on Clyndamyican. He started to get better. But he longed to be

stronger like he was(before this started my Dad could run circles around most

20yr olds he's 76)so he chose to get a picc line and Rosephine was started. He

started to decline again, so they started rotating clynda and rosphine. He still

declined. He started losing his balance and has fallen multiple times.

> The thought at this point that it may have gone too far before we were able to

treat it. Advanced lymes with neurological symptoms such as his are in the very

advanced stages.

> If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

FATHER!!! He is a Marine and not a quitter so he is not giving up. But I think

his body is.

> PLEASE HELP ME!!!!

> Robin

>

[Guest guest]

Robin:

I am sorry to hear about what is going on with your dad.  I was diagnosed with

Lyme 7 years ago, I understand the pain, hopelessness, anger and all those other

feelings that go with the disease and for those around you watching you go

through it.  First, with treatment and I think many will agree you will start

to

feel a little better then you (depending on what type of Lyme you have) you're

body will herx (it is stirring up the toxins of Lyme) and you will get worse

before you get better.  My suggestion to you is that your brother's boss is

probably your key here, find out how to get to see his Lyme doctor and from

there I think you will get the results  you are looking for.  Remember, the

healing process with Lyme is like a roller coaster sometimes and don't let that

discourage you.  Your father is very blessed to have a daughter who is willing

to do a lot of leg work to see him get well again.  Please keep us all posted

on

his recovery journey and be well yourself.  Blessings, DonnaLee

________________________________

From: Robin <keynamira@...>

Sent: Sun, November 28, 2010 1:25:14 AM

Subject: [ ] Father gravely ill HELP!!!!!

 

To make a long story short my father had been diagnosed with what was thought to

be Parkinson's disease. The most obvious symptoms started in 2007. His path

followed Parkinson's with ridigity of the limbs, extreme difficulty swallowing,

frozen speech, anxiety and fuzzy thinking. (When he was admitted in July they

inserted a feeding tube in his stomach because at that point he really couldn't

eat anymore, and now not at all it's straight feeding tube)

It was in July of this year that he acquired asperation pneumonia they gave him

Rosephine we noticed him improve dramtically over the next 24 hrs. He was about

30-40% better which was encouraging since we had not seen that type of

improvement since he had gotten sick.

However it didn't last he was put on clyndamyican for 10 days for the pneumonia.

When the antibiotics stopped he declined rapidly, he was also severly mistreated

at the facility he was in, they refused to treat him with antibiotics. After a

couple of weeks there we were able to get him transferred to a better nursing

home. My brother's boss is a very wealthy man and he has lymes, he had seen

doctors from all over the world and the one that had the best success was Dr.

Hoffman in Waupaca,WI. We got him in to see Dr. Hoffman and he put my Dad back

on Clyndamyican. He started to get better. But he longed to be stronger like he

was(before this started my Dad could run circles around most 20yr olds he's

76)so he chose to get a picc line and Rosephine was started. He started to

decline again, so they started rotating clynda and rosphine. He still declined.

He started losing his balance and has fallen multiple times.

The thought at this point that it may have gone too far before we were able to

treat it. Advanced lymes with neurological symptoms such as his are in the very

advanced stages.

If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

FATHER!!! He is a Marine and not a quitter so he is not giving up. But I think

his body is.

PLEASE HELP ME!!!!

Robin

[Guest guest]

On Mon, Nov 29, 2010 at 7:17 AM, Robin <keynamira@...> wrote:

>

>

> Thank You all for your suggestions.

> He is seeing a lyme literate doc. Sorry for mentioning his name. I thought

> it might help others to know who he was. This doc treats alot of people for

> this. However the thought is that my Dad might be so weak and so far into

> the disease that treatment has to be delicate and might not work. If we had

> gotten him diagnosed and treated sooner. Well, who knows...

> Thank you for the detox and doxy ideas. However he is far to weak for

> either. Dr. H said that putting him on Doxy now, since you usually get worse

> before better, could kill him. And I'm not sure besides they lymes what

> toxins are in him since he only has tube feedings of a nutrient

> solution(sort of like ensure). He hasn't eaten in a very long time.

>

ROBIN, IF THIS IS THE CASE THEN I WOULD HIGHLY, HIGHLY, HIGHLY SUGGEST THAT

> YOU GET A GOOD JUICER (CHAMPION IS GOOD AND NOT TOO EXPENSIVE) AND START

> JUICING VEGGIES FOR HIM!!!! it will feed his cells immediately, hydrate him,

> detox him naturally and in my humble opinion be the best thing you could do

> right now. there are tons of recipes on the internet. carrot/spinach,

> carrot/apple/brocolli, carrot/apple/kale. and remember juicing is NOT the

> same as blending in a blender or vitamix, juicing extracts the fiber (yes,

> yes fiber is good for you) but when it is taken out all the nutrition can go

> straight into your bloodstream and does not tax the body by having to digest

> this to get the nutrients and for someone who is as weak as your father this

> would benifit so much!!!! with lyme people want to watch out for the sugars

> in fruit but in this case i believe wholeheartedly he needs to just focus on

> strengthening the immune system by nourishing his body and getting some

> energy and vitality back.i hope and pray that you will do this for him

>

danielle

> And answer to the treatment question he started on antibiotics for lyme in

> early September. Dr. H said it takes time, but he seems to be getting worse

> by the minute. He's a very tough former Marine and I know that is what is

> keeping him here, I just don't know how long he can last now. He is so weak

> and tired.

> If anyone has a similar experience or knows of one like this please let me

> know. THANK YOU AGAIN EVERYONE AND THANK YOU FOR THE PRAYERS AND THOUGHTS!!

> Robin

>

>

>

> >

> > To make a long story short my father had been diagnosed with what was

> thought to be Parkinson's disease. The most obvious symptoms started in

> 2007. His path followed Parkinson's with ridigity of the limbs, extreme

> difficulty swallowing, frozen speech, anxiety and fuzzy thinking. (When he

> was admitted in July they inserted a feeding tube in his stomach because at

> that point he really couldn't eat anymore, and now not at all it's straight

> feeding tube)

> >

> > It was in July of this year that he acquired asperation pneumonia they

> gave him Rosephine we noticed him improve dramtically over the next 24 hrs.

> He was about 30-40% better which was encouraging since we had not seen that

> type of improvement since he had gotten sick.

> > However it didn't last he was put on clyndamyican for 10 days for the

> pneumonia. When the antibiotics stopped he declined rapidly, he was also

> severly mistreated at the facility he was in, they refused to treat him with

> antibiotics. After a couple of weeks there we were able to get him

> transferred to a better nursing home. My brother's boss is a very wealthy

> man and he has lymes, he had seen doctors from all over the world and the

> one that had the best success was Dr. Hoffman in Waupaca,WI. We got him in

> to see Dr. Hoffman and he put my Dad back on Clyndamyican. He started to get

> better. But he longed to be stronger like he was(before this started my Dad

> could run circles around most 20yr olds he's 76)so he chose to get a picc

> line and Rosephine was started. He started to decline again, so they started

> rotating clynda and rosphine. He still declined. He started losing his

> balance and has fallen multiple times.

> > The thought at this point that it may have gone too far before we were

> able to treat it. Advanced lymes with neurological symptoms such as his are

> in the very advanced stages.

> > If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

> FATHER!!! He is a Marine and not a quitter so he is not giving up. But I

> think his body is.

> > PLEASE HELP ME!!!!

> > Robin

> >

>

>

>

[Guest guest]

I was working on this yesterday when I saw your post and would like to get it

out to you, given the urgency of your dad's situation. In my opinion, he's way

too weak to do antibiotics and other drugs... he needs to be slowly, gently,

safely built up from the inside, so his body can do what it needs to do to heal.

I would be happy to talk with you off-line about something my son and I have

been using for the last 3 months that's making a remarkable difference. I'm not

ready to post about it at length on-line yet, and would be happy to share. I

so get the body giving up thing - my son and I were both right there, in spades!

Anyway, this technology builds cell energy at the mitochondrial level, which

lets the whole body/immune system strengthen and then fight the lyme, etc.

itself, rather that coming from an approach that kills tons of organisms on top

of a terribly weakened immune system, and then adds in all the antibiotic

damage, as well. It's just way too hard on the body - or, it certainly was for

us, and that method did not work for us at all. I just can't believe the

difference in both of us - it has been, like I said, remarkable. I've been

driving again, for the first time in 3 or 4 years, wanting to get up and do

things in the morning, having a happier brain - what a gift that is! - and

generally functioning much much better. I just did Thanksgiving dinner by

myself for 6 people, cleaned, wanted to cook, was on my feet/on the go for days

and still have energy - it's amazing. '

Please give a call, so at least you have options for him. Cindi

410-771-4994 O

443-980-7369 Cell

[ ] Re: Father gravely ill HELP!!!!!

Thank You all for your suggestions.

He is seeing a lyme literate doc. Sorry for mentioning his name. I thought it

might help others to know who he was. This doc treats alot of people for this.

However the thought is that my Dad might be so weak and so far into the disease

that treatment has to be delicate and might not work. If we had gotten him

diagnosed and treated sooner. Well, who knows...

Thank you for the detox and doxy ideas. However he is far to weak for either.

Dr. H said that putting him on Doxy now, since you usually get worse before

better, could kill him. And I'm not sure besides they lymes what toxins are in

him since he only has tube feedings of a nutrient solution(sort of like ensure).

He hasn't eaten in a very long time. And answer to the treatment question he

started on antibiotics for lyme in early September. Dr. H said it takes time,

but he seems to be getting worse by the minute. He's a very tough former Marine

and I know that is what is keeping him here, I just don't know how long he can

last now. He is so weak and tired.

If anyone has a similar experience or knows of one like this please let me

know. THANK YOU AGAIN EVERYONE AND THANK YOU FOR THE PRAYERS AND THOUGHTS!!

Robin

>

> To make a long story short my father had been diagnosed with what was

thought to be Parkinson's disease. The most obvious symptoms started in 2007.

His path followed Parkinson's with ridigity of the limbs, extreme difficulty

swallowing, frozen speech, anxiety and fuzzy thinking. (When he was admitted in

July they inserted a feeding tube in his stomach because at that point he really

couldn't eat anymore, and now not at all it's straight feeding tube)

>

> It was in July of this year that he acquired asperation pneumonia they gave

him Rosephine we noticed him improve dramtically over the next 24 hrs. He was

about 30-40% better which was encouraging since we had not seen that type of

improvement since he had gotten sick.

> However it didn't last he was put on clyndamyican for 10 days for the

pneumonia. When the antibiotics stopped he declined rapidly, he was also severly

mistreated at the facility he was in, they refused to treat him with

antibiotics. After a couple of weeks there we were able to get him transferred

to a better nursing home. My brother's boss is a very wealthy man and he has

lymes, he had seen doctors from all over the world and the one that had the best

success was Dr. Hoffman in Waupaca,WI. We got him in to see Dr. Hoffman and he

put my Dad back on Clyndamyican. He started to get better. But he longed to be

stronger like he was(before this started my Dad could run circles around most

20yr olds he's 76)so he chose to get a picc line and Rosephine was started. He

started to decline again, so they started rotating clynda and rosphine. He still

declined. He started losing his balance and has fallen multiple times.

> The thought at this point that it may have gone too far before we were able

to treat it. Advanced lymes with neurological symptoms such as his are in the

very advanced stages.

> If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

FATHER!!! He is a Marine and not a quitter so he is not giving up. But I think

his body is.

> PLEASE HELP ME!!!!

> Robin

>

[Guest guest]

cindi,

are you talking about the bodihealth? i have talked to a few people who use

it and have gotten their life back. i know of 2 llmd's in san diego that use

it in their office, although i have heard the best results are when one is

off antibiotics.

On Mon, Nov 29, 2010 at 4:08 PM, Cindi Callanan

<cindicallanan@...>wrote:

>

>

> I was working on this yesterday when I saw your post and would like to get

> it out to you, given the urgency of your dad's situation. In my opinion,

> he's way too weak to do antibiotics and other drugs... he needs to be

> slowly, gently, safely built up from the inside, so his body can do what it

> needs to do to heal.

>

> I would be happy to talk with you off-line about something my son and I

> have been using for the last 3 months that's making a remarkable difference.

> I'm not ready to post about it at length on-line yet, and would be happy to

> share. I so get the body giving up thing - my son and I were both right

> there, in spades!

>

> Anyway, this technology builds cell energy at the mitochondrial level,

> which lets the whole body/immune system strengthen and then fight the lyme,

> etc. itself, rather that coming from an approach that kills tons of

> organisms on top of a terribly weakened immune system, and then adds in all

> the antibiotic damage, as well. It's just way too hard on the body - or, it

> certainly was for us, and that method did not work for us at all. I just

> can't believe the difference in both of us - it has been, like I said,

> remarkable. I've been driving again, for the first time in 3 or 4 years,

> wanting to get up and do things in the morning, having a happier brain -

> what a gift that is! - and generally functioning much much better. I just

> did Thanksgiving dinner by myself for 6 people, cleaned, wanted to cook, was

> on my feet/on the go for days and still have energy - it's amazing. '

>

> Please give a call, so at least you have options for him. Cindi

>

> 410-771-4994 O

> 443-980-7369 Cell

>

>

> [ ] Re: Father gravely ill HELP!!!!!

>

> Thank You all for your suggestions.

> He is seeing a lyme literate doc. Sorry for mentioning his name. I thought

> it might help others to know who he was. This doc treats alot of people for

> this. However the thought is that my Dad might be so weak and so far into

> the disease that treatment has to be delicate and might not work. If we had

> gotten him diagnosed and treated sooner. Well, who knows...

> Thank you for the detox and doxy ideas. However he is far to weak for

> either. Dr. H said that putting him on Doxy now, since you usually get worse

> before better, could kill him. And I'm not sure besides they lymes what

> toxins are in him since he only has tube feedings of a nutrient

> solution(sort of like ensure). He hasn't eaten in a very long time. And

> answer to the treatment question he started on antibiotics for lyme in early

> September. Dr. H said it takes time, but he seems to be getting worse by the

> minute. He's a very tough former Marine and I know that is what is keeping

> him here, I just don't know how long he can last now. He is so weak and

> tired.

> If anyone has a similar experience or knows of one like this please let me

> know. THANK YOU AGAIN EVERYONE AND THANK YOU FOR THE PRAYERS AND THOUGHTS!!

> Robin

>

>

> >

> > To make a long story short my father had been diagnosed with what was

> thought to be Parkinson's disease. The most obvious symptoms started in

> 2007. His path followed Parkinson's with ridigity of the limbs, extreme

> difficulty swallowing, frozen speech, anxiety and fuzzy thinking. (When he

> was admitted in July they inserted a feeding tube in his stomach because at

> that point he really couldn't eat anymore, and now not at all it's straight

> feeding tube)

> >

> > It was in July of this year that he acquired asperation pneumonia they

> gave him Rosephine we noticed him improve dramtically over the next 24 hrs.

> He was about 30-40% better which was encouraging since we had not seen that

> type of improvement since he had gotten sick.

> > However it didn't last he was put on clyndamyican for 10 days for the

> pneumonia. When the antibiotics stopped he declined rapidly, he was also

> severly mistreated at the facility he was in, they refused to treat him with

> antibiotics. After a couple of weeks there we were able to get him

> transferred to a better nursing home. My brother's boss is a very wealthy

> man and he has lymes, he had seen doctors from all over the world and the

> one that had the best success was Dr. Hoffman in Waupaca,WI. We got him in

> to see Dr. Hoffman and he put my Dad back on Clyndamyican. He started to get

> better. But he longed to be stronger like he was(before this started my Dad

> could run circles around most 20yr olds he's 76)so he chose to get a picc

> line and Rosephine was started. He started to decline again, so they started

> rotating clynda and rosphine. He still declined. He started losing his

> balance and has fallen multiple times.

> > The thought at this point that it may have gone too far before we were

> able to treat it. Advanced lymes with neurological symptoms such as his are

> in the very advanced stages.

> > If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

> FATHER!!! He is a Marine and not a quitter so he is not giving up. But I

> think his body is.

> > PLEASE HELP ME!!!!

> > Robin

> >

>

>

[Guest guest]

Robyn......my prayers are with you and your father.......keep fighting to get

him better.......NO ONE should have to suffer as lyme disease patients do!!

Diane

________________________________

From: Robin <keynamira@...>

Sent: Mon, November 29, 2010 9:17:24 AM

Subject: [ ] Re: Father gravely ill HELP!!!!!

 

Thank You all for your suggestions.

He is seeing a lyme literate doc. Sorry for mentioning his name. I thought it

might help others to know who he was. This doc treats alot of people for this.

However the thought is that my Dad might be so weak and so far into the disease

that treatment has to be delicate and might not work. If we had gotten him

diagnosed and treated sooner. Well, who knows...

Thank you for the detox and doxy ideas. However he is far to weak for either.

Dr. H said that putting him on Doxy now, since you usually get worse before

better, could kill him. And I'm not sure besides they lymes what toxins are in

him since he only has tube feedings of a nutrient solution(sort of like ensure).

He hasn't eaten in a very long time. And answer to the treatment question he

started on antibiotics for lyme in early September. Dr. H said it takes time,

but he seems to be getting worse by the minute. He's a very tough former Marine

and I know that is what is keeping him here, I just don't know how long he can

last now. He is so weak and tired.

If anyone has a similar experience or knows of one like this please let me know.

THANK YOU AGAIN EVERYONE AND THANK YOU FOR THE PRAYERS AND THOUGHTS!!

Robin

>

> To make a long story short my father had been diagnosed with what was thought

>to be Parkinson's disease. The most obvious symptoms started in 2007. His path

>followed Parkinson's with ridigity of the limbs, extreme difficulty swallowing,

>frozen speech, anxiety and fuzzy thinking. (When he was admitted in July they

>inserted a feeding tube in his stomach because at that point he really couldn't

>eat anymore, and now not at all it's straight feeding tube)

>

> It was in July of this year that he acquired asperation pneumonia they gave

him

>Rosephine we noticed him improve dramtically over the next 24 hrs. He was about

>30-40% better which was encouraging since we had not seen that type of

>improvement since he had gotten sick.

> However it didn't last he was put on clyndamyican for 10 days for the

>pneumonia. When the antibiotics stopped he declined rapidly, he was also

severly

>mistreated at the facility he was in, they refused to treat him with

>antibiotics. After a couple of weeks there we were able to get him transferred

>to a better nursing home. My brother's boss is a very wealthy man and he has

>lymes, he had seen doctors from all over the world and the one that had the

best

>success was Dr. Hoffman in Waupaca,WI. We got him in to see Dr. Hoffman and he

>put my Dad back on Clyndamyican. He started to get better. But he longed to be

>stronger like he was(before this started my Dad could run circles around most

>20yr olds he's 76)so he chose to get a picc line and Rosephine was started. He

>started to decline again, so they started rotating clynda and rosphine. He

still

>declined. He started losing his balance and has fallen multiple times.

>

> The thought at this point that it may have gone too far before we were able to

>treat it. Advanced lymes with neurological symptoms such as his are in the very

>advanced stages.

>

> If anyone can help please let me know a.s.a.p!! I DO NOT WANT TO LOSE MY

>FATHER!!! He is a Marine and not a quitter so he is not giving up. But I think

>his body is.

> PLEASE HELP ME!!!!

> Robin

>