Eye Problems

[Guest guest]

Cornea's almost gone. Will probablu lose sight in eye. Maybe other

eye, too. Dr. says need interferon for eye, too--no insurance except

Medicare, and they won't cover Hep C. Very painful, very rare.

Kathi

---Marie Kuhn <mariek@...> wrote:

>

> From: Marie Kuhn <mariek@...>

>

> Hi Kathi,

> Wow, I've never heard of Hep C causing eye problems. It is a virus

in the

> blood, so I guess it can go anywhere your blood goes. Did you go to

an eye

> doctor? There is so much we don't know about Hep C, and the things

I'm

> learning don't give me encouragement. I have been feeling better

since I

> got off my interferon a few months ago, but I have to get some more

tests

> done in three months. I dread these tests, because if my liver

enzymes are

> up again, or my viral load test is positive, I'll probably need to

get back

> on those shots again. I'm glad I'll be off the interferon for

Christmas.

> At least I can have a better Christmas than last year.

>

> Good luck with your eye medication. Keep me in touch with your

progress.

> Marie

>

>

>

------------------------------------------------------------------------

>

[Guest guest]

Oh God, I am soo sorry to hear that Kathi. Is there nothing they can do?

Does it matter what type of insurance you have? I will say a prayer for

you.

Sincerely,

Carolee

----------

From: Kathi [sMTP:rdhd45vlcek@...]

Sent: Tuesday, November 24, 1998 3:04 AM

Hepatitis Conelist

Subject: Re: eye problems

From: Kathi <rdhd45vlcek@...>

Cornea's almost gone. Will probablu lose sight in eye. Maybe other

eye, too. Dr. says need interferon for eye, too--no insurance except

Medicare, and they won't cover Hep C. Very painful, very rare.

Kathi

---Marie Kuhn <mariek@...> wrote:

>

> From: Marie Kuhn <mariek@...>

>

> Hi Kathi,

> Wow, I've never heard of Hep C causing eye problems. It is a virus

in the

> blood, so I guess it can go anywhere your blood goes. Did you go to

an eye

> doctor? There is so much we don't know about Hep C, and the things

I'm

> learning don't give me encouragement. I have been feeling better

since I

> got off my interferon a few months ago, but I have to get some more

tests

> done in three months. I dread these tests, because if my liver

enzymes are

> up again, or my viral load test is positive, I'll probably need to

get back

> on those shots again. I'm glad I'll be off the interferon for

Christmas.

> At least I can have a better Christmas than last year.

>

> Good luck with your eye medication. Keep me in touch with your

progress.

> Marie

>

>

>

------------------------------------------------------------------------

>

[Guest guest]

---Cherry 2000 <cherry2000@...> wrote:

>

> From: Cherry 2000 <cherry2000@...>

>

> Oh God, I am soo sorry to hear that Kathi. Is there nothing they

can do?

> Does it matter what type of insurance you have? I will say a

prayer for

> you.

> Sincerely,

> Carolee

>

> ----------

> From: Kathi [sMTP:rdhd45vlcek@...]

> Sent: Tuesday, November 24, 1998 3:04 AM

> Hepatitis Conelist

> Subject: Re: eye problems

>

> From: Kathi <rdhd45vlcek@...>

>

>

> Cornea's almost gone. Will probablu lose sight in eye. Maybe other

> eye, too. Dr. says need interferon for eye, too--no insurance except

> Medicare, and they won't cover Hep C. Very painful, very rare.

> Kathi

>

>

>

> ---Marie Kuhn <mariek@...> wrote:

> >

> > From: Marie Kuhn <mariek@...>

> >

> > Hi Kathi,

> > Wow, I've never heard of Hep C causing eye problems. It is a virus

> in the

> > blood, so I guess it can go anywhere your blood goes. Did you go to

> an eye

> > doctor? There is so much we don't know about Hep C, and the things

> I'm

> > learning don't give me encouragement. I have been feeling better

> since I

> > got off my interferon a few months ago, but I have to get some more

> tests

> > done in three months. I dread these tests, because if my liver

> enzymes are

> > up again, or my viral load test is positive, I'll probably need to

> get back

> > on those shots again. I'm glad I'll be off the interferon for

> Christmas.

> > At least I can have a better Christmas than last year.

> >

> > Good luck with your eye medication. Keep me in touch with your

> progress.

> > Marie

>

Had emergency surgery on Tuesdday--trying to save eye, if not sight.

Go back to dr. tomorrow to have checked again. Very painful holiday.

My Thanksgiving prayer is that it's only one eye so far..both would be

too much right now. You don't realize how much you'd miss your sight

until you've spent a week without it! Family has been great,

tho--very helpful. Thanks for your concern!

Kathi

==

Visit my webpage at:

http://members.tripod.com/~rdhd45vlcek/index.html

and my support group at:

http://clubs./clubs/parentingtroubledteens

ICQ 22539187

[Guest guest]

And my doctors assistant said I was being pre-occupied! Well, Zachary has

stopped his blinking but this article just proves that it should be taken very

seriously and in a 4 year old that can't verbalize his ailments very well -

there are only so many signs we can watch for. I expect everything is o.k.

but I have to be on top of it for his sake! Thanks for doing the research!

-Suzie

[Guest guest]

Hi Suzie,

Yup. Always better to be safe, than sorry. If I were you, I'd be tempted to

print

out a copy and give it to the doctor's assistant! Who knows, though ... maybe

she

felt badly afterwards, for saying what she did. If she has children, she knows

how

a parent can worry over the safety and well being of a child, especially one

that

has been diagnosed with a chronic illness.

I'm glad the topic was brought up because now, I've been able to learn something

new. This is a great forum, a great way for us to share information with each

other. No question is too silly, in our quest for updated information :-)

Take care,

Georgina

> From: SUZIEJONES@...

>

> And my doctors assistant said I was being pre-occupied! Well, Zachary has

> stopped his blinking but this article just proves that it should be taken very

> seriously and in a 4 year old that can't verbalize his ailments very well -

> there are only so many signs we can watch for. I expect everything is o.k.

> but I have to be on top of it for his sake! Thanks for doing the research!

>

> -Suzie

[Guest guest]

Speaking of eye problems. My husband has Hep C. When he went on the

interferon the first time he suffered from horrible sties for the entire

year. As soon as he came off of it they disappeared. When he relapsed

they came back within the week. That was one of the reasons he won't take

it anymore.

Carolee

----------

From: arbrus@...[sMTP:arbrus@...]

Sent: Tuesday, May 18, 1999 6:36 PM

Hepatitis Conelist

Subject: Re: Eye Problems

From: arbrus@...

Perhaps the eye problems are a side effect of interferon? Arlene

------------------------------------------------------------------------

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[Guest guest]

I've had plenty of problems with my eyes. Tearing constantly, redness and

the need for glasses sooner than I should.

[Guest guest]

Perhaps the eye problems are a side effect of interferon? Arlene

[Guest guest]

My brother, Terry, has had some problems with his eyes. He has developed a

hypersensitivity to the sun. His eyes are red all the time. He squints and

they water even if the light is not bright. We are looking around for some

rose-type tinted sunglasses that can be worn inside as they are not too dark.

Can only find them in womens styles though.

Not to change the subject, but as Terry and I talked tonight, he was telling

me that he has to go in for bloodwork about 3 months after his treatments (he

has been on them for almost one month) to see how is enzyme count is. He was

wondering if I could find out from any of you who know, if (hopefully) at

that time they are not able to detect the C in his system, will his still

have to contine the full course of treatment? Or would it stop at that time?

Just wondering. Thanks to all of you for being there for us. Sandy

[Guest guest]

Hi ,

I'm a little late with this, but I wanted to comment that I also had an

apparent burst blood vessel in one of my eyes, but it happened when I first

started taking Imuran (50 mgs. daily) and Prednisone (40 mgs. daily). At

the time I was so sick from everything else, I didn't bother to ask my

doctor about it. In time, it cleared up. However, I had very prominent

vessels in my eyes when I was on higher doses of medication and I don't

know if it was because of the medication or because I was much more sick

then. My eyes were also swollen most of the time. Now they're clear and

normal and not coincidentally, I'm in remission from AIH (diagnosed 2 years

ago) and only taking 5 mgs. of Prednisone and 50 mgs. of Imuran.

If your wife's doctor tells her that it's something to be concerned about,

please do let all of us know. So many different things happen and many of

them aren't serious, but how can we be sure?

Take care,

Geri

[Guest guest]

This is why EVERYONE needs to fill out the anonymous survey and mail it in. It

has nothing to do with VAERS and there is no way they can track who it came

from. There are questions about severity of symptoms, length of symptoms,

whether a VAERS has been filed, what your opinions or other observations are,

etc. This is critical feedback that will be publicized once the timeframe for

collecting surveys is completed and the results have been studied.

The address to obtain the survey is

http://www.house.gov/reform/survey1.rtf

Blackburn

Former Air National Guard

[Guest guest]

Marie,

What do you mean by " eye problems? " Pain? Dryness? Extreme discomfort on

looking at bright lights? " Halos " or " rainbows " around light sources?

" Fuzziness " or decreased ability to read small print? Sudden near- or

far-sightedness, when you previously had good vision?

About how long after your FIRST shot did you begin to notice significant

symptoms? (Problems may start with the first shot. I only got one and

I've been rejecting my joints ever since. My symptoms didn't start until

about nine months after my first and only shot, and I got really sick about

13 months after getting the shot.)

Have you seen your local ophthalmologist (or more likely optometrist) to

see if there's anything obvious or a measurable decrease in your visual

acuity? If not, please do this (and tell your friends to do the same and

also to join ), and then PLEASE tell us the results.

We need some sort of tracking system correlating the time from the first

shot as well as subseqent shots on the appearance and severity of symptoms.

We know really nothing about the nature and epidemiology of the anthrax

injection syndrome. The Pentagon either isn't bright enough to think of

this, isn't keeping good or appropriate records (out of ignorance or

negligence), and in any event, won't let us see 'em. So we've got to keep

our own. Of course, ours aren't and won't be classified or otherwise

restricted -- anybody with Internet access will be able to see our

results -- so our data and analysis should be quite interesting and

entertaining for whoever is interested!

WE WILL WIN THIS!

Fisher, MD

LTC USAFR MC FS

(Inactive Reserve)

---------------------------------------------------------------------------

-----

Eastward I go only by force; but westward I go free. Thither no

business

leads me. It is hard for me to believe that I shall find fair

landscapes

or sufficient wildness and freedom behind the eastern horizon.

-- Henry Thoreau

(Walking)

---------------------------------------------------------------------------

-----

> Eye problems

>

>

> I had my third shot about 2 months ago - since about 2 hours

> after the 3rd

> shot I've been experiencing eye problems. Some of the other stuff too but

> nothing as scary as vision problems. I talked to a friend at

> Bradley ANG

> base where many people received their 6th shot a couple of

> months ago and he

> said that there is an undercurrent of whispering about eye

> problems all over

> the base.

> If you talk to your Senators - they really really need to go out to the

> troops and talk to them personally one on one off base and see what the

> reactions have been - one of the most distressing things is how scared

> everyone is of saying they think they are having problems!

> in Battle Creek

>

>

>

> ------------------------------------------------------------------------

> Your old buddies are not out of range anymore. Free search with

> Military.com's Personnel Locator.

> 1/4158/3/_/508397/_/963471421/

> ------------------------------------------------------------------------

>

> Our Anthrax information web site: http://www.dallasnw.quik.com/cyberella/

> To visit Dr. Meryl Nass's web site, go to: http://www.anthraxvaccine.org

> Also visit: http://www.MajorBates.com/ and http://www.enter.net/~jfsorg/

> http://www.jamesmadisonproject.org/importantlinks.html and

http://www.aboutanthrax.org

Contact list owner: Gretchen Whitney at: anna_nim@...

[Guest guest]

,

This is (former) major Bates wife. I know of autoimmune disorders that have

caused pain and swelling in the eye at Dover AFB. They usually have bone and

joint pain along with irritated eyes.

Roxane

[Guest guest]

At 06:42 PM 07/12/2000 -0700, you wrote:

>I had my third shot about 2 months ago - since about 2 hours after the 3rd

>shot I've been experiencing eye problems. Some of the other stuff too but

>nothing as scary as vision problems. I talked to a friend at Bradley ANG

>base where many people received their 6th shot a couple of months ago and he

>said that there is an undercurrent of whispering about eye problems all over

>the base.

>If you talk to your Senators - they really really need to go out to the

>troops and talk to them personally one on one off base and see what the

>reactions have been - one of the most distressing things is how scared

>everyone is of saying they think they are having problems!

> in Battle Creek

>

Hi ,

Some of the vision problems may clear up with Vitamin A (cod liver oil) -

it helps with measles vaccine damage - its worth a try.

Megson MD has been working with autistic kids (possible MMR & autism)

connection and giving Vitamin A with good results. Also they actually give

Vitamin A with MMR vaccine Africa some (of course no one mentions it here),

but it may be a factor with anthrax vaccine too.

http://www.whaleto.freeserve.co.uk/Vaccines/autism35.html

http://home.att.net/~pediatricaac/main.html

--------------------------------------------------------

Sheri Nakken, R.N., MA

Vaccination Information & Choice Network, Nevada City CA 95959

http://www.nccn.net/~wwithin/vaccine.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO

VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA

CEU's for nurses, Books & Multi-Pure Water Filters

[Guest guest]

Yes,

We have people at Dover that have autoimmune disorders that have eye

problems. In fact, I got a call from one THIS MORNING that just got back from

the DR with newly developed eye irritation. He has had 3 shots, and has

memory problems as well.

The pilots won't talk about eyes. Married to a pilot 15 years, I know that

eyes is one thing they won't talk about, and value dearly!

Roxane Bates

[Guest guest]

Suggestion:

Set up a web sight with information on reported reactions. You could use the

VAERS form or whatever. One person with computer and web site building

experience needs to receive these reports and scan them. For confidentiality

you would need a signed statement from person authorizing it to be placed on

web site or to use a code number and the web site creator would have to

maintain hard files and letters of authoriztion?

[Guest guest]

Never needed glasses until I got to Desert Storm and got the first Anthrax

shot(s).

Now that I have had three in '98 my eyes go blurry for days and then come

back, but never as sharp as before the bluring.

Dave

> Re: Eye problems

>

>

> Yes,

> We have people at Dover that have autoimmune disorders that have eye

> problems. In fact, I got a call from one THIS MORNING that just

> got back from

> the DR with newly developed eye irritation. He has had 3 shots, and has

> memory problems as well.

> The pilots won't talk about eyes. Married to a pilot 15 years, I

> know that

> eyes is one thing they won't talk about, and value dearly!

> Roxane Bates

>

[Guest guest]

> Suggestion:

> Set up a web sight with information on reported reactions. You could use

the

> VAERS form or whatever. One person with computer and web site building

> experience needs to receive these reports and scan them. For

confidentiality

> you would need a signed statement from person authorizing it to be placed

on

> web site or to use a code number and the web site creator would have to

> maintain hard files and letters of authoriztion?

You've raised most of the important points, but it's a bit more complicated

than that. In order for anything coming out of that study to have any

credibility at all, we'd have to draft a study protocol, get it approved

through a local IRB, provide a way to talk with and explain the details of

the informed consent agreement with anyone who wants to participate, and

have hardcopy records of the signed (and probably notarized) consent

agreements and the questionnaires available for IRB review when required.

For accurate data collection, we'd also need all participants to be

examined by a specific panel of internists, ophthalmologists, neurologists,

and gynecologists. It's a huge undertaking to do it right.

I understand the necessity of doing this, and I would very much like to be

a part of it. But to have any credibility, and be able to publish our

results, we need to follow all the rules to the letter. I'm not being a

naysayer. I was a physician on the staff of the Lovelace Veterans' Health

Study ( " Agent Orange Study " ) in the mid-1980s. It's huge. It's expensive.

We definitely HAVE to do this sort of study on all aspects of " Gulf War

Syndrome, " including the anthrax injection, depleted uranium, and

DEET-pyridostigmine. We HAVE to do it while those with vested interests in

covering this up can be brought to justice (before any applicable

statutes-of-limitations expire), and while we're still alive to participate

in it and benefit from its findings as well as the redress and compensation

we so definitely deserve.

WE WILL WIN THIS!

---------------------------------------------------------------------------

-----

Eastward I go only by force; but westward I go free. Thither no

business

leads me. It is hard for me to believe that I shall find fair

landscapes

or sufficient wildness and freedom behind the eastern horizon.

-- Henry Thoreau

(Walking)

---------------------------------------------------------------------------

-----

[Guest guest]

In a message dated 1/9/01 11:16:08 PM EST, pj20844@... writes:

<< Folks, the black walnut green hull tincture a la Hulda has cured

my eye pain of over 10 years duration. It was increasing in intensity

over time till it hurt like crazy. Within 60 seconds of taking the

first dose, my eye pain stopped completely. >>

Was this an orally or topically (in the eye) application?

[Guest guest]

If I eat stuff that I shouldn't, I get sparkles in front of my eyes,

movement just out of my range of vision (like something's moving out of the

corner of your eye but when you look it's not there), and/or if I stare at

something long enough, it seems to " move " , like it will bulge up or shrink

away or ripple. Very odd. Any of this close to what you mean, or am I just

nuts? (c;

Hugs

Has anyone from the group had any eye problems due to having candida? I

notice that lately I have been seeing things move. I am not too sure

just how to explain this, I think maybe my eyes are crossing slightly

without me knowing it. I have an eye doctors appointment week after

next, but I thought this was strange. Anything that is strange, always

seems to be connected some how with Candida!

Pearl (NY)

Country Living at it's finest

Countrylife

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Very well explained , I get that too.

LIZ D

Re: Eye Problems

If I eat stuff that I shouldn't, I get sparkles in front of my eyes,

movement just out of my range of vision (like something's moving out of the

corner of your eye but when you look it's not there), and/or if I stare at

something long enough, it seems to "move", like it will bulge up or shrink

away or ripple. Very odd. Any of this close to what you mean, or am I just

nuts? (c;

Hugs

Has anyone from the group had any eye problems due to having candida? I

notice that lately I have been seeing things move. I am not too sure

just how to explain this, I think maybe my eyes are crossing slightly

without me knowing it. I have an eye doctors appointment week after

next, but I thought this was strange. Anything that is strange, always

seems to be connected some how with Candida!

Pearl (NY)

Country Living at it's finest

Countrylife

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

[Guest guest]

In a message dated 12/31/01 7:04:58 PM Pacific Standard Time, sunshinedotson@... writes:

I HAVE TO USE BIG LETTERS, AS MY EYES ARE NOT SO GOOD...I HAVE DIABETES, AND MANY OTHER HEALTH PROBLEMS....THAT AFFECT MY EYES......AS MANY HERE DO TOO.....

Bert, I'm sorry you're having problems with your eyes. Here's something that might make it easier for you to see your messages. I see you're on AOL. If you go to the tool bar (just below the subject line), you can change the font, or change the size , or make the letters bold, or change the color of the background or letters. I have a friend who's legally blind from diabetes, and he finds that on AOL a yellow background with blue text is easier on his eyes.

You can make these changes permanent, I think in the Settings area of your Menu bar. You may find that larger or bolder letters, or a different background or text color could be easier for you to read than if you used capitals. I've done a fair amount of work in graphics, and the rule of thumb is that capitals are considerably more difficult to read quickly!

However, you should do as you please on all this, of course. The goal is to make your life easier.

This is Arial font, 12 point.

This is Arial Font Bold.

This is Yellow Background, black text.

This is yellow background, blue text, bold.

Have fun experimenting!

Harper

Here's an example

[Guest guest]

Jane: Sorry to hear about your eye problems, that is scary. Hope the drs can

straighten that out for you. Question for you though, did you ever get the

" floaters " ? My uveitis has settled down for quite a few months, but this

summer I started getting floaters in the affected eye. Both the optometrist

and optho said not to worry unless they start to get significantly more

frequent. I had the flashing lights during the worst flares, but thankfully

that has gone away with the use of the methotrexate. I guess I'm assuming

that is what did it, but this disease kind of comes and goes when and where

it wants to. Thanks for any comments you can provide. Kathy from WI

[Guest guest]

Problems with night vision is usually due to cateracts ... My left eye has a

cateract due to Presizone usage over the years ... My right eye has a

cateract ( as they say ) do to Reiters for 26 years ... also no perrifial

(side vision ) due to a stroke in 95 ... It was remarkable to the students as

well as the doctors to be able to look in my right eye and actually see my

brain and nerves bleeding ... looks dark in there to me ...

I'm scheduled to have both repaired in November @ Hopkins ...

Just Some Input ... Walter ... essexhaus@...

[Guest guest]

> brain and nerves bleeding ... looks dark in there to me ...

>

> I'm scheduled to have both repaired in November @ Hopkins ...

>

> Just Some Input ... Walter ... essexhaus@a...

Walter,

i really wish you good luck and God's blessing..You do hang-in

there and for someone with all your medical problems, you seem to

offer up very few complaints..and that's not easy..i know because i

catch myself on the verge of whining quite often...

jeff lanneau