RE: anybody awake? I'm so tired of it all...

[Guest guest]

Please don't give up.

Things will be better soon.

51 is young! & nbsp;

Find a penpal. & nbsp;

Read encouraging stories online 'google & nbsp;search inspiring stories'

Order a good book ... Inspiring books like Chicken Soup for the Soul.

You will be ok.

Robyn

-- Sent from my Palm Pre

On Nov 3, 2010 5:09, Kendra & lt;KCuyler@... & gt; wrote:

& nbsp;

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

Please don't give up.

Things will be better soon.

51 is young! & nbsp;

Find a penpal. & nbsp;

Read encouraging stories online 'google & nbsp;search inspiring stories'

Order a good book ... Inspiring books like Chicken Soup for the Soul.

You will be ok.

Robyn

-- Sent from my Palm Pre

On Nov 3, 2010 5:09, Kendra & lt;KCuyler@... & gt; wrote:

& nbsp;

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

Hi Kendra..........what state do you live in?  Don't give

up..........please!! 

We all understand your frustration......with family and everything.......believe

me it fn sucks.....but you are strong girl or God would of never allowed this to

happen......our spirit is growing though all of this all for a

reason.........wish I lived right by you my friend   Please let us know where

you are because I am sure someone lives around you that so

understands.........open yourself up for a friend to help and give you moral

support........

love you!!!!  Diane B. (WI)

________________________________

From: Kendra <KCuyler@...>

lymestrategies ;

Sent: Wed, November 3, 2010 4:08:48 AM

Subject: [ ] anybody awake? I'm so tired of it all...

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

Hi Kendra..........what state do you live in?  Don't give

up..........please!! 

We all understand your frustration......with family and everything.......believe

me it fn sucks.....but you are strong girl or God would of never allowed this to

happen......our spirit is growing though all of this all for a

reason.........wish I lived right by you my friend   Please let us know where

you are because I am sure someone lives around you that so

understands.........open yourself up for a friend to help and give you moral

support........

love you!!!!  Diane B. (WI)

________________________________

From: Kendra <KCuyler@...>

lymestrategies ;

Sent: Wed, November 3, 2010 4:08:48 AM

Subject: [ ] anybody awake? I'm so tired of it all...

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

Hi Kendra,

Where do you live? I am in NJ. I have been suffering from Lyme/Fibro for about

25 years, I am now 43. It is very difficult and most people don't get it. I am

here if you need to talk.

Hang in there!

Kim

From: Diane Biel <dkbmama@...>

Subject: Re: [ ] anybody awake? I'm so tired of it all...

Date: Wednesday, November 3, 2010, 8:01 AM

 

Hi Kendra..........what state do you live in?  Don't give

up..........please!! 

We all understand your frustration......with family and everything.......believe

me it fn sucks.....but you are strong girl or God would of never allowed this to

happen......our spirit is growing though all of this all for a

reason.........wish I lived right by you my friend   Please let us know where

you are because I am sure someone lives around you that so

understands.........open yourself up for a friend to help and give you moral

support........

love you!!!!  Diane B. (WI)

________________________________

From: Kendra <KCuyler@...>

lymestrategies ;

Sent: Wed, November 3, 2010 4:08:48 AM

Subject: [ ] anybody awake? I'm so tired of it all...

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

Hi Kendra,

Where do you live? I am in NJ. I have been suffering from Lyme/Fibro for about

25 years, I am now 43. It is very difficult and most people don't get it. I am

here if you need to talk.

Hang in there!

Kim

From: Diane Biel <dkbmama@...>

Subject: Re: [ ] anybody awake? I'm so tired of it all...

Date: Wednesday, November 3, 2010, 8:01 AM

 

Hi Kendra..........what state do you live in?  Don't give

up..........please!! 

We all understand your frustration......with family and everything.......believe

me it fn sucks.....but you are strong girl or God would of never allowed this to

happen......our spirit is growing though all of this all for a

reason.........wish I lived right by you my friend   Please let us know where

you are because I am sure someone lives around you that so

understands.........open yourself up for a friend to help and give you moral

support........

love you!!!!  Diane B. (WI)

________________________________

From: Kendra <KCuyler@...>

lymestrategies ;

Sent: Wed, November 3, 2010 4:08:48 AM

Subject: [ ] anybody awake? I'm so tired of it all...

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

You are not alone Kendra! There are other very ill long termers out here too!

Do I remember your name from some of the ME/CFS groups?

Have you been following any of the XMRV information or XMRV/Lyme connection?

Hang in there sweetie! They're finding out more all the time. Our time is

coming!

Looking forward to your next post.

 “Never doubt that a small group of thoughtful committed citizens can change

the

world. Indeed, it is the only thing that ever has.†Margaret Mead

________________________________

From: Kendra <KCuyler@...>

lymestrategies ;

Sent: Wed, November 3, 2010 5:08:48 AM

Subject: [ ] anybody awake? I'm so tired of it all...

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

You are not alone Kendra! There are other very ill long termers out here too!

Do I remember your name from some of the ME/CFS groups?

Have you been following any of the XMRV information or XMRV/Lyme connection?

Hang in there sweetie! They're finding out more all the time. Our time is

coming!

Looking forward to your next post.

 “Never doubt that a small group of thoughtful committed citizens can change

the

world. Indeed, it is the only thing that ever has.†Margaret Mead

________________________________

From: Kendra <KCuyler@...>

lymestrategies ;

Sent: Wed, November 3, 2010 5:08:48 AM

Subject: [ ] anybody awake? I'm so tired of it all...

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

Hi Kendra,

I don't know if you have health insurance, but if you do then you may be able to

get approval for hyperbaric oxygen therapy for the osteomyelitis. It would

benefit you greatly ( and kill the lyme too )

Please hang in there,

Blessings,

Sudylo RN/CHT

www.juliashbot.com

From: Kendra <KCuyler@...>

Subject: [ ] anybody awake? I'm so tired of it all...

lymestrategies ,

Date: Wednesday, November 3, 2010, 5:08 AM

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

Hi Kendra,

I don't know if you have health insurance, but if you do then you may be able to

get approval for hyperbaric oxygen therapy for the osteomyelitis. It would

benefit you greatly ( and kill the lyme too )

Please hang in there,

Blessings,

Sudylo RN/CHT

www.juliashbot.com

From: Kendra <KCuyler@...>

Subject: [ ] anybody awake? I'm so tired of it all...

lymestrategies ,

Date: Wednesday, November 3, 2010, 5:08 AM

 

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

yes Kendra..this illness sucks...being ill sucks...it is at these times..groups

like this are my life line...sure i would love to be out there..but that isn't

posible..but i can read and connect with you who is going thru a similiar

situation..that makes it worthwhile and bearable for me...I just keep reaching

out when i can and i am amazed at where the help comes from and when...who knows

why we are in this path....there is a stillness in it...some people never

experience all we go thru in a lifetime...and i don't think it is all a bad

thing... but i know something...in every year i have been ill my life has

changed...it will continue to change and grow....that is the beauty I hold

onto..peace in you

From: boejr1@...

Date: Wed, 3 Nov 2010 17:59:28 -0700

Subject: Re: [ ] anybody awake? I'm so tired of it all...

Hi Kendra,

I don't know if you have health insurance, but if you do then you may be able to

get approval for hyperbaric oxygen therapy for the osteomyelitis. It would

benefit you greatly ( and kill the lyme too )

Please hang in there,

Blessings,

Sudylo RN/CHT

www.juliashbot.com

From: Kendra <KCuyler@...>

Subject: [ ] anybody awake? I'm so tired of it all...

lymestrategies ,

Date: Wednesday, November 3, 2010, 5:08 AM

I've beens sick 25+ years. I finally found a doctor but I'm looking

at dental bills in excess of $15,000 (and I have no $$ left) and the

possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

single, no kids - and my family doesn't care if I live or die. After

moving to a new city for medical care I really don't know anyone and

I'm finding it hard to make friends when I'm still in bed nearly 24/7

- 7 days a week. I just don't see any point in trying anymore., it's

just al much....

Kendra

[Guest guest]

You could sign my name to the bottom of this statement because it's exactly my

story too, except for the moving to a new city part.

I've been having good success with herbal remedies. I've been taking Banderol

tincture and Cats Claw which taken together tested 100% effective in killing

Lyme in vitro. I was doing really great, better than I have in many years, for

about 4 weeks but now I think I'm herxing. I'm not so great anymore.

There are many people who know exactly what you are going through. Don't loose

heart.

Barbara

>

> I've beens sick 25+ years. I finally found a doctor but I'm looking

> at dental bills in excess of $15,000 (and I have no $$ left) and the

> possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

> if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

> single, no kids - and my family doesn't care if I live or die. After

> moving to a new city for medical care I really don't know anyone and

> I'm finding it hard to make friends when I'm still in bed nearly 24/7

> - 7 days a week. I just don't see any point in trying anymore., it's

> just al much....

>

> Kendra

>

[Guest guest]

You could sign my name to the bottom of this statement because it's exactly my

story too, except for the moving to a new city part.

I've been having good success with herbal remedies. I've been taking Banderol

tincture and Cats Claw which taken together tested 100% effective in killing

Lyme in vitro. I was doing really great, better than I have in many years, for

about 4 weeks but now I think I'm herxing. I'm not so great anymore.

There are many people who know exactly what you are going through. Don't loose

heart.

Barbara

>

> I've beens sick 25+ years. I finally found a doctor but I'm looking

> at dental bills in excess of $15,000 (and I have no $$ left) and the

> possiblity of surgery on my jaw for osteonecrosis/osteomyelitis. Even

> if I could pay the dental bills 1/2 my life is wasted and I'm now 51,

> single, no kids - and my family doesn't care if I live or die. After

> moving to a new city for medical care I really don't know anyone and

> I'm finding it hard to make friends when I'm still in bed nearly 24/7

> - 7 days a week. I just don't see any point in trying anymore., it's

> just al much....

>

> Kendra

>