Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 After a bullseye rash on my ankle on a camping trip in New Mexico in July 2007 my GP tested me for a number of rodent/insect carrying infections and the Lyme disease showed positve on the Western Blot. So I began a regimen of doxy on an off for 2 years. Everytime I would go off, the Lyme seemed to flare up. (flu-like symptoms and burning in the joints/muscles) Eventually I changed doctors because I didn't feel I was getting good care. 2 years of antibiotics?!! Come on! Next doctor puts me on minocycline and I had a horrible allergic reaction. So I'm just on vicoprofen (hydrocodine/ibuprofen). My symptoms continue to be burning pain in the joints and muscles. It comes and goes. I would describe it as a feeling that someone is holding a flame to my joints and muscles. I have good days and bad. Seems to be worse when the weather changes and when I get run down. Finally this doctor sends me to an infectious disease specialist. She runs more tests. One of which is Lyme again (Western Blot). This time she says no Lyme. Another was to check my SED rate, which is elevated. So why am I still in pain? She is sending me now to a rheumatologist because she suspects I have fibromyalgia. My questions to the group: 1) can a person have Lyme, then be cured, but still have the lingering pain...even when the blood shows negative? 2) can a person have Lyme, and then it " morph " into fibromyaliga? 3) is it time to seek another doctor??? (can only afford to stay within my insurance group) Thanks in advance. BTW I'm in southern California and Lyme is rare, so most docs don't know what to do. I'm open to any suggestions. Vivian Quote Link to comment Share on other sites More sharing options...
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