Re: allergies-Rocephin

[Guest guest]

I read that researchers in Italy found out Rocephin causes the Bb to form cysts

easier than other abx so they go into hiding, people feel better, not as much

herxes, then when they get on an abx that works they have herxes. My dr wants to

do a picc line with Rocephin and I don't even want to waste the time on it after

I heard that!

Bummer huh??

Francheska

>

> Bridget,

> I am not sure where you are (I think somewhere in the midwest) but soeone had

mentioned that East coast doctors are more inclined to give IV. My experience is

that my doctors wanted to exhaust every possibility before going the IV route

because of the risks associated. Infection is a big one, liver damage is another

with such high dosages of IV meds. I have suffered liver damage, now. I also

went into this whole thing wanting IV immediately and expecting that my doctors

would give it to me, but I went about one and a half years on oral meds before

getting my PICC line. I have had two different meds through the PICC line and am

currently on indefinite hold until my liver gets better. I still have my PICC

line in, though and still have to take care of it daily. Also, with the IV, you

will have to have a weekly nurse visit for dressing changes, weekly blood draws

for labs (mine are done through my PICC) and showeringis a bit of a hassle in my

opinion. You said that you miss doing certain things with your daughter. The

PICC line will make that worse, for sure. I cannot swim with my kids until this

PICC is out.

> I did feel a little better on IV Rocephin and apparently the improvement was

not enough so my doc switched me to Levaquin, which I suspect is what messed up

my liver. I also had a HORRIBLE herx on that. I guess my point to you is like

others said. You are still at the beginning of a very long stretch of road and I

would suggest that you exhaust all possible meds/combinations before going for

IV.

> Best wishes to you,

> Lissa

>