Re: any good psych meds for lyme rage? --have you tried neurofeedback?

April 12, 2010

Hi ,

I have Lyme, Babesia and Bartonella and had horrible rage and disabling anxiety.

Xanax would help the anxiety, but only when I took it and it totally knocks me

out so I couldn't take it often. My doctor had me start neurofeedback

treatments. I cannot even begin to explain how much this has helped. It can be

costly, but I think my insurance will cover it when all my fighting with them is

said and done (i'm still fighting for their coverage of the lab tests that came

back positive for babesia). For example, I LOVE snowboarding, but my anxiety

got to a point in the beginning of January that I would get up to the top of the

moutain and be so scared to go down. Even though if i just did it, I am good at

it, and can get down the mountain without falling or hurting myself, i was

practically paralyzed up at the top and had to literally force myself to go

down. After about 5 treatments (once per week for a 30 minute treatment), I was

tons better. I went to Colorado (much bigger mountains than I have here in

Jersey/Vermont) and I loved it. I had no problem getting to the top and coming

down. My husband has even expressed since I've started treatments that " OMG, i

feel like I have a normal wife again " . I do not flip out as much or get so

angry over everything. I'm able to take a breath and say " ok, not a big deal " .

I also am finding that I am just much happier all around. I find myself

genuinely laughing at things when I feel like before I was just going through

the motions. I know part of the feeling better is the actual drug treatments

for the three diseases too, but the neurofeedback has been wonderful. You may

want to ask your doctor if he/she feels it might be an option for you.

Good luck!

>

> I will be seeing my psychiatrist in two days.

>

> Any positive ratings on psychiatric meds for Lyme rage?

>

> I have it bad. involving some damage to apartment doors :-(. thankfully no

> wall damage.

>

> Any bad experiences with psych drugs? they seem to have scary side effects

> and warnings.

>

> I had no problems when my infections were being controlled, but with

> inadequate babesia treatment I've gotten testy again. Hopefully getting back

> on Malarone will fix this, but ... in the event of future herxing or future

> problems it might be good to have something to keep myself from losing

> control too much.

>

April 13, 2010

When the rage was at its worst, I found lithium orotate (available OTC and

recommended in " The 10 Best Lyme Treatments " ) very useful. I've also mentioned

(much too often) my success with DLPA in regulating dopamine deficiencies, which

tend to leave me more depressed than raging.

I've never used Rx psych meds other than seven months on Zoloft, which I didn't

much care for (though it got me through a stressful season of life). That was 15

years ago. In the years since, I've used the two above plus SJW and 5-HTP (which

are good OTC substitutes for SSRIs, without the side effects).

Sara

On Apr 12, 2010, at 8:55 56AM, S wrote:

> Hi ,

>

> I have Lyme, Babesia and Bartonella and had horrible rage and disabling

anxiety. Xanax would help the anxiety, but only when I took it and it totally

knocks me out so I couldn't take it often. My doctor had me start neurofeedback