Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 I had asked his ENT if swimming was ok and he said as long as he had his ear plug it was fine. (the sticky water proof kind) After sunday we will not be visiting the pool for quite some time. If the pool is a cause of or added to the problem I really wish his dr had warned me of this. Any chance and I wouldn't have taken him. Although thanks to this group I am now beginning to understand alot more than I had before~! > > From: bethsdragon <bethsdragon@...> > Subject: Question... > cholesteatoma > Date: Monday, June 23, 2008, 11:34 AM > > > > > > > I took my son to the ENT on Friday am, who said that she couldn't see > naything wrong. Now, we had never seen this one before since his dr > was on vacation. She prescribed an antibiotic " just in case " (my butt > lol)Well, Friday about 4:30ish his ear hurt really bad and later had > discharge (only the second time he has had any.) It was yellow and > crusted by the time I saw it. Later that night he became very > nauseated and dizzy after taking his med. After he fell asleep I > watched him all night. Saturday I made sure he ate alot of bready > type food before taking the meds and he had some yellow puss like > discharge that wasn't coming out of his ear but was in the canal. I > very carefully cleaned the outer part. (No I didn't put anything in > the canal) Sunday after giving him his med he was fine but later at > the pool he said he was getting dizzy again. I had explained to him > he needs to tell me right away if he feels funny at all so we could > go home, hoping it wouldn't get as bad as friday night. > > He sat on the couch and watched tv for awhile and felt better. > > THis whole thing has scared the bejezus out of me. Could this be a > sign that the c-toma is getting alot worse?? Is it near the balance > center of the ear? > > We see Dr. Alan Nissen tomorrow at 1:45pm and I'd love to have > suggestions of what to ask other than the obvious is it getting worse? > I have made up my mind to use this dr. after looking him up on the > net and seeing he is involved with many articles etc. (aj nissen) > > Specifically what should I have him looking at, answering etc?? Any > suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 did the drainage smell? Thats a big one, If it smells really bad its a sign of infection.. And I had that with my ctoma... And now every once in a while I get drainage, no odor and my ent said there isnt any more ctoma that he could see, I have an apt with the neurologist tommorrow and we'll see whats causing my dizzyness.. > > I took my son to the ENT on Friday am, who said that she couldn't see > naything wrong. Now, we had never seen this one before since his dr > was on vacation. She prescribed an antibiotic " just in case " (my butt > lol)Well, Friday about 4:30ish his ear hurt really bad and later had > discharge (only the second time he has had any.) It was yellow and > crusted by the time I saw it. Later that night he became very > nauseated and dizzy after taking his med. After he fell asleep I > watched him all night. Saturday I made sure he ate alot of bready > type food before taking the meds and he had some yellow puss like > discharge that wasn't coming out of his ear but was in the canal. I > very carefully cleaned the outer part. (No I didn't put anything in > the canal) Sunday after giving him his med he was fine but later at > the pool he said he was getting dizzy again. I had explained to him > he needs to tell me right away if he feels funny at all so we could > go home, hoping it wouldn't get as bad as friday night. > > He sat on the couch and watched tv for awhile and felt better. > > THis whole thing has scared the bejezus out of me. Could this be a > sign that the c-toma is getting alot worse?? Is it near the balance > center of the ear? > > We see Dr. Alan Nissen tomorrow at 1:45pm and I'd love to have > suggestions of what to ask other than the obvious is it getting worse? > I have made up my mind to use this dr. after looking him up on the > net and seeing he is involved with many articles etc. (aj nissen) > > Specifically what should I have him looking at, answering etc?? Any > suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 No smell that I noticed.... Just rather nasty looking which I was expecting to happen at some point since he has a tube and the drainage has a " way " out of the ear. > > > > I took my son to the ENT on Friday am, who said that she couldn't > see > > naything wrong. Now, we had never seen this one before since his dr > > was on vacation. She prescribed an antibiotic " just in case " (my > butt > > lol)Well, Friday about 4:30ish his ear hurt really bad and later > had > > discharge (only the second time he has had any.) It was yellow and > > crusted by the time I saw it. Later that night he became very > > nauseated and dizzy after taking his med. After he fell asleep I > > watched him all night. Saturday I made sure he ate alot of bready > > type food before taking the meds and he had some yellow puss like > > discharge that wasn't coming out of his ear but was in the canal. I > > very carefully cleaned the outer part. (No I didn't put anything in > > the canal) Sunday after giving him his med he was fine but later at > > the pool he said he was getting dizzy again. I had explained to him > > he needs to tell me right away if he feels funny at all so we could > > go home, hoping it wouldn't get as bad as friday night. > > > > He sat on the couch and watched tv for awhile and felt better. > > > > THis whole thing has scared the bejezus out of me. Could this be a > > sign that the c-toma is getting alot worse?? Is it near the balance > > center of the ear? > > > > We see Dr. Alan Nissen tomorrow at 1:45pm and I'd love to have > > suggestions of what to ask other than the obvious is it getting > worse? > > I have made up my mind to use this dr. after looking him up on the > > net and seeing he is involved with many articles etc. (aj nissen) > > > > Specifically what should I have him looking at, answering etc?? Any > > suggestions? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 He has neo/poly drops we put in 3 every night. Sometimes they sting but they never have made him dizy, I learned quickly to warm them, sometimes i have him hold the bottle while I read They gave him an amox (not amoxicillian but similar) Friday. He also takes singular every night and nasonex. We see Dr. Nissen tomorrow for the first time. I took it upon myself to find an otologist, just got lucky that one of the two in the area was a neuro otologist! I figure since he is only 7 he has to live with what they do for a long time and I want the best we can get. As for the surgery, we will find out when we see Dr. Nissen tomorrow. Great idea about the email. I always come up with more questions after I " digest " what they say. I am making index cards as we speak! lol. Thanks... > > > I took my son to the ENT on Friday am, who said that she couldn't see > > naything wrong. Now, we had never seen this one before since his dr > > was on vacation. She prescribed an antibiotic " just in case " (my butt > > lol)Well, Friday about 4:30ish his ear hurt really bad and later had > > discharge (only the second time he has had any.) It was yellow and > > crusted by the time I saw it. Later that night he became very > > nauseated and dizzy after taking his med. After he fell asleep I > > watched him all night. Saturday I made sure he ate alot of bready > > type food before taking the meds and he had some yellow puss like > > discharge that wasn't coming out of his ear but was in the canal. I > > very carefully cleaned the outer part. (No I didn't put anything in > > the canal) Sunday after giving him his med he was fine but later at > > the pool he said he was getting dizzy again. I had explained to him > > he needs to tell me right away if he feels funny at all so we could > > go home, hoping it wouldn't get as bad as friday night. > > > > He sat on the couch and watched tv for awhile and felt better. > > > > THis whole thing has scared the bejezus out of me. Could this be a > > sign that the c-toma is getting alot worse?? Is it near the balance > > center of the ear? > > > > We see Dr. Alan Nissen tomorrow at 1:45pm and I'd love to have > > suggestions of what to ask other than the obvious is it getting worse? > > I have made up my mind to use this dr. after looking him up on the > > net and seeing he is involved with many articles etc. (aj nissen) > > > > Specifically what should I have him looking at, answering etc?? Any > > suggestions? > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 I love the index card idea!!! I think that is what I will be doing between now and our pre op on Friday!!! On Mon, Jun 23, 2008 at 2:40 PM, bethsdragon <bethsdragon@...> wrote: He has neo/poly drops we put in 3 every night. Sometimes they stingbut they never have made him dizy, I learned quickly to warm them, sometimes i have him hold the bottle while I read :PThey gave him an amox (not amoxicillian but similar) Friday.He also takes singular every night and nasonex.We see Dr. Nissen tomorrow for the first time. I took it upon myself to find an otologist, just got lucky that one of the two in the areawas a neuro otologist! I figure since he is only 7 he has to livewith what they do for a long time and I want the best we can get.As for the surgery, we will find out when we see Dr. Nissen tomorrow. Great idea about the email. I always come up with more questionsafter I " digest " what they say. I am making index cards as we speak!lol.Thanks...>> > I took my son to the ENT on Friday am, who said that she couldn'tsee> > naything wrong. Now, we had never seen this one before since hisdr> > was on vacation. She prescribed an antibiotic " just in case " (my butt> > lol)Well, Friday about 4:30ish his ear hurt really bad and laterhad> > discharge (only the second time he has had any.) It was yellow and> > crusted by the time I saw it. Later that night he became very > > nauseated and dizzy after taking his med. After he fell asleep I> > watched him all night. Saturday I made sure he ate alot of bready> > type food before taking the meds and he had some yellow puss like > > discharge that wasn't coming out of his ear but was in the canal.I> > very carefully cleaned the outer part. (No I didn't put anythingin> > the canal) Sunday after giving him his med he was fine but later at> > the pool he said he was getting dizzy again. I had explained tohim> > he needs to tell me right away if he feels funny at all so wecould> > go home, hoping it wouldn't get as bad as friday night. > >> > He sat on the couch and watched tv for awhile and felt better.> >> > THis whole thing has scared the bejezus out of me. Could this be a> > sign that the c-toma is getting alot worse?? Is it near the balance> > center of the ear?> >> > We see Dr. Alan Nissen tomorrow at 1:45pm and I'd love to have> > suggestions of what to ask other than the obvious is it gettingworse? > > I have made up my mind to use this dr. after looking him up on the> > net and seeing he is involved with many articles etc. (aj nissen)> >> > Specifically what should I have him looking at, answering etc?? Any> > suggestions?> >> >> > ------------------------------------> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 I prefer people to squat down. It hurts my neck and I can't hear well when people don't. Amy Question... OK, is it just me, or do any of the rest of you get offended, or at least uneasy, if a taller person kneels, or hunkers down to talk to you? For me, it feels very demeaning, even if it is not meant to be. Thoughts? Thanks, Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I agree. I think it's far more demeaning if they lean over to talk to you, as they would a child, than for them to kneel or squat down. Besides, you get the pleasure of hearing their joints creak and pop as they try to return to a standing position. ;-) Bill On Sun, Sep 21, 2008 at 7:43 PM, TxChapter44 <TxChapter44@...> wrote: > I prefer people to squat down. It hurts my neck and I can't hear well when > people don't. > > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 No - Quite the opposite. If a person comes down to my eye level to speak with me, then there is no perception that one is " larger " than the other. With our eyes at the same level, we are equal. I often have worked in heavy industrial environments that are very noisy. The only way I can carry on a conversation with someone there is either by two-way radio or by yelling in their ear and them in mine. The second method requires the AP to kneel. Randy Bradford >  OK, is it just me, or do any of the rest of you get offended, or at least uneasy, if a taller person kneels, or hunkers down to talk to you? For me, it feels very demeaning, even if it is not meant to be. > Thoughts? > Thanks, > Marcia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Hello all,  I personally don't like it when people bend over or kneel down to me, they look weird doing it lol. I usually walk over to a chair or step and they follow my lead, if that is not available, then I stand far back where my neck isn't creeked up. A few even plop down on the floor with me and they even enjoy it lol. I have many friends where there is half a foots different between them and no one bends over. I only have ever kneeled down when talking to my toddler cousins. - (the plopper leader) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I, for one, also prefer this method of conversing. That is, if you can't genuflect to me, then you don't talk to me! Genuflect to me, you ap, and now! haha;) And it must be a true genuflect, just short of a grovel. BUT, if it goes to a full blown grovel, it's still acceptable! lol Definition of genuflect, according to dictonary.com: gen·u·flect –verb (used without object) 1. to bend the knee or touch one knee to the floor in reverence or worship. 2. to express a servile attitude. Definition of grovel, also from dictionary.com: grov·el 1. to humble oneself or act in an abject manner, as in great fear or utter servility. 2. to lie or crawl with the face downward and the body prostrate, esp. in abject humility, fear, etc. 3. to take pleasure in mean or base things. —Related forms grov·el·er; especially British, grov·el·ler, noun grov·el·ing·ly; especially British, grov·el·ling·ly, adverb —Synonyms 1. truckle, toady, fawn, kowtow, pander. luv, grady:D -------------------------------------------------- > No - Quite the opposite. > If a person comes down to my eye level to speak with me, then there is no perception that one is " larger " than the other. With our eyes at the same level, we are equal. > I often have worked in heavy industrial environments that are very noisy. The only way I can carry on a conversation with someone there is either by two-way radio or by yelling in their ear and them in mine. The second method requires the AP to kneel. > Randy Bradford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 It depends on my relationship with the person and what's going on around us. Most of the time I just encourage a person to sit in a chair so I don't have to hurt my neck looking up at them or feel weird about them squatting down in front of me. I know most people do this out of respect and cannot think of another way to see eye to eye. But it does feel uncomfortable to me. Of course there are some people who do this just to annoy me and I let them know! ~ a > > > > >  OK, is it just me, or do any of the rest of you get offended, or at least uneasy, if a taller person kneels, or hunkers down to talk to you? For me, it feels very demeaning, even if it is not meant to be. > Thoughts? > Thanks, > Marcia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 is anyone being jerked awake with rapid heartrate and also does anyone have elevated blood sugar with lyme...and co infections...i may have already asked but cant rememeber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Yes on the heartrate, but it passed early for me. Elevated inflammation and blood sugar are common in Lyme, and can actually get worse with antibiotics. Sara On Feb 21, 2010, at 8:25 46AM, CR wrote: > is anyone being jerked awake with rapid heartrate and also does anyone have elevated blood sugar with lyme...and co infections...i may have already asked but cant rememeber > > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 yes, this can be caused from too much adrenelin which our bodies can overproduce in response to adrenal fatigue. I tried every sleeping aid and the only thing that worked was trazodone, my doc prescribed 50mg. [ ] question... is anyone being jerked awake with rapid heartrate and also does anyone have elevated blood sugar with lyme...and co infections...i may have already asked but cant rememeber Quote Link to comment Share on other sites More sharing options...
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