question...

[Guest guest]

I used to get that a lot too. If I didn't eat, I would be a real

bitch and feel really sick. I also was like a bottomless pit...I

could eat a huge meal and two hours later feel starving again.

I didn't realize it but my mom was commenting the other day how much

less food I eat and how I don't do that " if I don't eat now I'm going

to puke " that much (only if I've been up for many hours and haven't

really eaten...something as small as a granola bar takes care of

that).

I think that this all changed once I started taking the thyroid meds,

in particular once I started taking them on an empty stomach.

Janine

> Hey all,

> I was just wondering if anyone has a problem with having to

eat

> frequently? If I don't eat every 3-4 hours I get the shakes, then

> lightheaded....not to mention REALLY cranky and whiney. I always

> assumed that I had a touch of low blood sugar since my Mom does but

> I've never had it checked. My family practice doc told me that it

> could be because of my thyroid but my endo wasn't sure and wanted

to

> see how it changed after being on my meds for awhile (I've only

been

> on them a couple of months) and then possibly do a blood sugar

> check. Anyway, does anybody else have this problem?

>

> Thanks in advance,

> >

[Guest guest]

Thanks to all who responded. I have noticed that some days are

better than others and I can go awhile without eating, but then there

are those days that, like you, I can't make it 2 hours without

another meal. I have made alot of changes in my life and have become

a more positive person and, believe it or not, I have noticed that I

feel much more better since I have slowed down and taken some time

for myself. There are times when I can't believe how differently I

feel, for the better. The best part is, my hubby has pointed it out

and supports everything I do 100%.

>

> > Hey all,

> > I was just wondering if anyone has a problem with having to

> eat

> > frequently? If I don't eat every 3-4 hours I get the shakes,

then

> > lightheaded....not to mention REALLY cranky and whiney. I always

> > assumed that I had a touch of low blood sugar since my Mom does

but

> > I've never had it checked. My family practice doc told me that

it

> > could be because of my thyroid but my endo wasn't sure and wanted

> to

> > see how it changed after being on my meds for awhile (I've only

> been

> > on them a couple of months) and then possibly do a blood sugar

> > check. Anyway, does anybody else have this problem?

> >

> > Thanks in advance,

> > >

[Guest guest]

> I am just speaking from my own journey, take it as you will, and nothing is

directed at anyone. Just my thoughts as I read your post. <

And what a good post it was!

I believe in the " getting harder " way of feeling, without even trying to get

that way. I feel harder. I don't focus on my pain and what I can or cannot

do...just work harder at hiding it so I can keep up.

Sometimes it helps to just share and know you are not alone.

[Guest guest]

I don't let how I feel show to my family and friends...just do a lot of internal

talking to myself. You know...when you smile on the outside and cuss them out on

the inside...LOL.

That is why I posted the question to the list...I don't want it to show on the

outside.

It made for a great group topic!!

Vivian

[Guest guest]

I asked too when I first joined. Tx means treatment.

[Guest guest]

In a message dated 6/11/2003 5:20:57 PM Eastern Standard Time,

deafwyo@... writes:

> that I should wear a

> hearing aid in the left ear just to keep the hair cells/nerves

> stimulated and what not. Has anyone else here done this? I was just

> wondering.

I just returned from my audiologist's office today. We reactivated my left

ear with a new hearing aid which has not had any sound for 12 years. I had to

quit wearing one because that ear suddenly developed a sensitivity to the point

where I became violently ill when I had sound. Through the years I would try

again with no luck. Now I feel " whole " again. It's wonderful!

[Guest guest]

The CI bypasses the hair cells and electrically stimulates the nerves just

beneath the cochlear wall. In most cases the CI renders the remainig hair cells

incapable of further function.

In a message dated 6/11/2003 7:41:41 PM Eastern Standard Time,

Starrgazingnite@... writes:

>

> i'm not sure how much the hair cells need stimulation for a CI i was

> deaf for 28 years hearing aids didn't help at all i never had

> auditory input so i didn't stimulate anything in my ears but my CI has

> worked

> wonders!!

>

[Guest guest]

Hi

When I became profoundly deaf my Ear specialist told me to stimulate my auditory

nerve by holding the telephone or a hairdryer up against the side of my head..I

was still getting some bone conduction then.i did this quite faithfully all the

while I was deaf before having my CI.The NRT and promintory stimulation tests

showed that my auditory nerve is in very good condition.You are the only other

person who I have heard mention this..

Love Dora

question...

Has anyone in here ever had their " bad " ear implanted? If so, did

you wear a hearing aid in the bad ear?

I haven't worn a hearing aid in my left ear since maybe 4th grade,

and that is the ear I want implanted. I was told by one of the CI

audiologists at the CNI Rocky Mountain CI Center that I should wear a

hearing aid in the left ear just to keep the hair cells/nerves

stimulated and what not. Has anyone else here done this? I was just

wondering.

I am going to see my audiologist on Monday morning to have an earmold

made for my left ear so I can wear a hearing aid again in that ear.

CD Meggers

[Guest guest]

I've never heard of holding the hairdryer or telephone close to the head to

stimulate the auditory nerves. Very interesting!

CD Meggers

From: " Dora Weber " <dora_weber@...>

Reply-

" Alice " < >

Subject: Re: question...

Date: Wed, 11 Jun 2003 18:05:58 -0500

Hi

When I became profoundly deaf my Ear specialist told me to stimulate my

auditory nerve by holding the telephone or a hairdryer up against the side

of my head..I was still getting some bone conduction then.i did this quite

faithfully all the while I was deaf before having my CI.The NRT and

promintory stimulation tests showed that my auditory nerve is in very good

condition.You are the only other person who I have heard mention this..

Love Dora

question...

Has anyone in here ever had their " bad " ear implanted? If so, did

you wear a hearing aid in the bad ear?

I haven't worn a hearing aid in my left ear since maybe 4th grade,

and that is the ear I want implanted. I was told by one of the CI

audiologists at the CNI Rocky Mountain CI Center that I should wear a

hearing aid in the left ear just to keep the hair cells/nerves

stimulated and what not. Has anyone else here done this? I was just

wondering.

I am going to see my audiologist on Monday morning to have an earmold

made for my left ear so I can wear a hearing aid again in that ear.

CD Meggers

[Guest guest]

Happy your CI works! I'll start wearing a hearing aid in my left ear

again as soon as I have an ear mold! Might as well use up the advice the

audiologist had given me. I want the CI to work in my left ear, so I'm

willing to do anything to make it work.

CD meggers

From: Starrgazingnite@...

Reply-

Subject: Re: question...

Date: Wed, 11 Jun 2003 19:39:06 EDT

i'm not sure how much the hair cells need stimulation for a CI i was

deaf for 28 years hearing aids didn't help at all i never had

auditory input so i didn't stimulate anything in my ears but my CI has

worked

wonders!!

susan

[Guest guest]

For

What is the link to READPLEASE? Is it a computer program that helps CI Users

to learn to read and listen to words spoken on speakers? What is its main

website?

Kindly tell me about it.

Thank you.

Bettyjean Brandt

[Guest guest]

Hey,

Look like I am creating a riot here over the " ReadPlease " LOL Just

kidding!

Kat, I wish you all of best lucks, and when you get back home, tell us how is

your body shaking up... LOL

[Guest guest]

Bettyjean the link is www.readplease.com and it is text to speach program.

What it is a read along with any palain text e-book or even messages

--

Snoopy

N24C-bilateral

[Guest guest]

Bettyjean,

I see has already answered your questions. I'm glad, too, because

I haven't had time to check the site out! Thanks, !

Re:QUESTION...

For

What is the link to READPLEASE? Is it a computer program that helps CI

Users

to learn to read and listen to words spoken on speakers? What is its

main

website?

Kindly tell me about it.

Thank you.

Bettyjean Brandt

[Guest guest]

we're not finished with that design yet.

you should use the simple one shown on the group page, now. don't wait

around. It will do the same thing on a local infection like a foot or

toe. no need to use the glove on it to get it solved. Use on the

foot at least an hour a day, moving electrodes around from time to

time, like every 10 minutes or so. You should see results fast enough.

The wire is just any old extension cord. Unplug it before you cut

it. :0)

bG

>

> i need help here. gonna do the glove bit on my husbands foot where

swelling wont go down and there's possibility of little toe

amputation. gotta make sure i do this right. i'm not sure of what kind

of wire i use and also how are the wires at wrist of glove attached to

battery. please be specific. i thank you and appreciate your help. i

hope to save hubbys toe (infected) and heal foot also. blessings, kat

>

[Guest guest]

Just go to the photos section on the group page and follow the

directions exactly (don't be a " more is better " type, like me) for the

apprentice godzilla. It does work and really fast and cheap. Just be

sure to use enough cloth on the electrodes and keep them wet so that

your husband won't get burned and also be sure to move the electrodes

around about every 10 minutes. Finding this group with all of this

wonderful information has been a blessing for me and I am feeling

amazingly much better, something that all of the expensive medical care

couldn't do. My biggest regret is not finding this group earlier! Best

of luck and I hope this works for your husband also!

>

> i need help here. gonna do the glove bit on my husbands foot where

swelling wont go down and there's possibility of little toe amputation.

gotta make sure i do this right. i'm not sure of what kind of wire i

use and also how are the wires at wrist of glove attached to battery.

please be specific. i thank you and appreciate your help. i hope to

save hubbys toe (infected) and heal foot also. blessings, kat

>

[Guest guest]

Hi Ken,

Are you saying the hard spot you are feeling is not possibly any

part of your spine or pelvis? I am wondering if you might be getting

a little bit of rotation or twist if you are also coming forward a

bit? Kind of unclear to me where you say you are feeling this.

Anyway, I think you hit the nail on the head...best to let some

real " eyes " have a look..I am sure a doc will be able to determine

what it is. My guess would be if it is really hard it is either bone

or implants not a muscle knot(although for years I thought the hard

spot alongside the center of my spine was just a muscle knot...what

it really has turned out to be is the slight twist in my lumbar

curve making a more prominent implant...which can tire the muscle

overlaying it...kind of confusing...but giving this muscle a little

rub when it gets tired or sore I can feel a hard prominence under

it...and we identified this spot at my last xray....its just the top

of the pedicle screws.)

Good luck sorting this out.

Cam

[Guest guest]

I was told by my fill dr that caffeine stimulates cortisol and this will cause restriction on the band. gracesfalling <Gracefall@...> wrote: Thanks for answering my "is this normal" I figured that some of the discomfort I was feeling was, but I just wanted to be sure. I have a HUGE fear of my band slipping ... but based on what you all have said I think I'm fine. But I have a new question that was in another post ... How does caffeine change your restriction? and is

that the reason that we aren't' supposed to have too much sugar? Thanks Grace215/196/150

Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut.

[Guest guest]

//How does caffeine change your restriction? //

I am not aware of it changing restriction but I am sure it is possible

Everyone is different.

// is that the reason that we aren't' supposed to have too much

sugar? //

No.

The reason you are not supposed to have sugar is because it is loaded

with calories and you are trying to lose weight

7/18/05

280/180/140

[Guest guest]

Dang that is

interesting. Makes some sense too. But I sure hate having another reason not to

drink coffee and diet dr. pepper (ok, I can switch to the caffeine free but

really it would just give me an excuse to keep drinking it. I think I need an

intervention. NANCYYYYYY!! HELP!! LOL)

M

DOB 3/1/05

280/160/158 under goal!

122lbs GONE!

5ft 6in, Size 8

http://www.tracyslapband.com

From: [mailto: ] On Behalf Of nne

Sent: Tuesday, January 16, 2007

11:13 AM

Subject: Re:

Question...

I was told by my fill dr that caffeine stimulates cortisol and

this will cause restriction on the band.

gracesfalling

<Gracefallcfl (DOT) rr.com> wrote:

Thanks for answering my

" is this normal " I figured that some of the

discomfort I was feeling was, but I just wanted to be sure. I have a

HUGE fear of my band slipping ... but based on what you all have said I

think I'm fine. But I have a new question that was in another post ...

How does caffeine change your restriction? and is that the reason that

we aren't' supposed to have too much sugar?

Thanks

Grace

215/196/150

Don't get soaked. Take a

quick peak at the forecast

with the

Search weather shortcut.

[Guest guest]

LOL Mills <tracy@...> wrote: Dang that is interesting. Makes some sense too. But I sure hate having another reason not to drink coffee and diet dr. pepper (ok, I can switch to the caffeine free but really it would just give me an excuse to keep

drinking it. I think I need an intervention. NANCYYYYYY!! HELP!! LOL) MDOB 3/1/05280/160/158 under goal! 122lbs GONE!5ft 6in, Size 8http://www.tracyslapband.com From: [mailto: ] On Behalf Of nneSent: Tuesday, January 16, 2007 11:13 AM Subject: Re:

Question... I was told by my fill dr that caffeine stimulates cortisol and this will cause restriction on the band. gracesfalling <Gracefallcfl (DOT) rr.com> wrote: Thanks for answering my "is this normal" I figured that some of the discomfort I was feeling was, but I just wanted to be sure. I have a HUGE fear of my band slipping ... but based on what you all have said I think I'm fine. But I have a new question that was in another post ... How does caffeine change your restriction? and is that the reason that we aren't' supposed to have too much sugar? Thanks Grace215/196/150 Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut.

Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A.

[Guest guest]

// I think I need an intervention. NANCYYYYYY!! HELP!! LOL//

Here is am to save the day – LOL

Deb hold my diet Pepsi while I kick s butt :-)

7/18/05

280/180/140

[Guest guest]

HAHAHAHA THANKS

for the laugh girl! And the kick in the butt!

M

DOB 3/1/05

280/160/158 under goal!

122lbs GONE!

5ft 6in, Size 8

http://www.tracyslapband.com

From: [mailto: ] On Behalf Of NANCY

Sent: Tuesday, January 16, 2007

8:49 PM

Subject: Re:

Question...

// I think I need an intervention. NANCYYYYYY!! HELP!!

LOL//

Here is am to save the day – LOL

Deb hold my diet Pepsi while I kick s

butt :-)

7/18/05

280/180/140

[Guest guest]

You mention "later at the pool he was feeling dizzy" - did he go swimming with this infection in place? If so, I'd talk about whether or not this is really a good idea when you talk to your doc - personally, I don't think it is a good idea for him to be swimming at this point.

I think your doc will want to clean up the infection before he makes a full assessment.

From: bethsdragon <bethsdragon@...>Subject: Question...cholesteatoma Date: Monday, June 23, 2008, 11:34 AM

I took my son to the ENT on Friday am, who said that she couldn't see naything wrong. Now, we had never seen this one before since his dr was on vacation. She prescribed an antibiotic "just in case" (my butt lol)Well, Friday about 4:30ish his ear hurt really bad and later had discharge (only the second time he has had any.) It was yellow and crusted by the time I saw it. Later that night he became very nauseated and dizzy after taking his med. After he fell asleep I watched him all night. Saturday I made sure he ate alot of bready type food before taking the meds and he had some yellow puss like discharge that wasn't coming out of his ear but was in the canal. I very carefully cleaned the outer part. (No I didn't put anything in the canal) Sunday after giving him his med he was fine but later at the pool he said he was getting dizzy again. I had explained to him he needs to tell me right away if he

feels funny at all so we could go home, hoping it wouldn't get as bad as friday night. He sat on the couch and watched tv for awhile and felt better. THis whole thing has scared the bejezus out of me. Could this be a sign that the c-toma is getting alot worse?? Is it near the balance center of the ear? We see Dr. Alan Nissen tomorrow at 1:45pm and I'd love to have suggestions of what to ask other than the obvious is it getting worse?I have made up my mind to use this dr. after looking him up on the net and seeing he is involved with many articles etc. (aj nissen) Specifically what should I have him looking at, answering etc?? Any suggestions?

[Guest guest]

Are your meds oral or drops? Chloe has better luck with drops. If drops make him dizzy and nauseous, you can warm them by holding them in your hand 5 min before administering.

She also had pus and drainage up until her first removal of ctoma in 2006. The cholesteatoma makes it hard for antibiotics to get a good delivery. Is Dr. Nissen doing your surgery? Are you still doing it in July? If so, don't panic, (easier said than done). These usually grow very slowly, and a few weeks doesn't make a ton of difference. I would ask about drops if the drainage isn't better when you see the ENT.

Also, make a list of everything that concerns you, so you are sure to tell him about all the symptoms you see and ask all your questions. I also asked our surgeon for his email. I seem to always have ten more questions after I leave that are not important enough to call him about, but are important to me. With email, he can reply when it is convenient for him, and you will be able to address your concerns.

Also, you mentioned that you were nervous about taking him home sameday. We have had 5 tympanoplasty-mastoidectomy surgeries (and the sixth next Wed.), and I always insist on an overnight. I took her home one time, and I did not feel confident in removing the dressing, etc. Now I could probably do it in my sleep, but I have decided there are some things a mother shouldn't have to do. She did like being home, though, so if it doesn't work out to stay overnight, maybe it will be more comfortable for your son. One thing I always insist on is that my child has to be acting like herself before I leave. It takes her a while to get all the anesthesia out of her system, and she doesn't usually fully wake up until the next morning. By afternoon, she is doing great. I am always amazed at how kids bounce back from this! If it were me, I'd need two weeks of Valium just to get over the horror!

You are obviously a great mom, so keep following your instincts and asking lots of questions!

On Mon, Jun 23, 2008 at 11:34 AM, bethsdragon <bethsdragon@...> wrote:

I took my son to the ENT on Friday am, who said that she couldn't seenaything wrong. Now, we had never seen this one before since his dr

was on vacation. She prescribed an antibiotic " just in case " (my buttlol)Well, Friday about 4:30ish his ear hurt really bad and later haddischarge (only the second time he has had any.) It was yellow and

crusted by the time I saw it. Later that night he became verynauseated and dizzy after taking his med. After he fell asleep Iwatched him all night. Saturday I made sure he ate alot of breadytype food before taking the meds and he had some yellow puss like

discharge that wasn't coming out of his ear but was in the canal. Ivery carefully cleaned the outer part. (No I didn't put anything inthe canal) Sunday after giving him his med he was fine but later at

the pool he said he was getting dizzy again. I had explained to himhe needs to tell me right away if he feels funny at all so we couldgo home, hoping it wouldn't get as bad as friday night.He sat on the couch and watched tv for awhile and felt better.

THis whole thing has scared the bejezus out of me. Could this be asign that the c-toma is getting alot worse?? Is it near the balancecenter of the ear?We see Dr. Alan Nissen tomorrow at 1:45pm and I'd love to have

suggestions of what to ask other than the obvious is it getting worse?I have made up my mind to use this dr. after looking him up on thenet and seeing he is involved with many articles etc. (aj nissen)Specifically what should I have him looking at, answering etc?? Any

suggestions?------------------------------------