Hope I'm At the Right Place

[Guest guest]

Hello All---I thought I would ask the experts on the list my cries for help.

It's been 8 years and still no luck--all tests are " normal " . Hubby started with

burning feet in 2002 then the left leg became spastic (tight) and continued

throughout the years to both legs bladder arms hand right up to the mouth of

slurred speech. We've been to 11 neurologists in and out of Boston, MA and

Providence RI -- so many MRI's 2 spinal taps and so much bloodwork Dracula would

be jelous! Hubby was finally diagnosed with PLS (Primary Lateral Sclorsis)--this

is a disease of elimination--they exhaust all avenues and when everything comes

out clean and the disease progresses they put it under the ALS umbrella calling

it PLS (Primary Lateral Sclrosis) We finally went to a LLMD a few months ago who

is also a NEurologist, who is taking more tests of her own to try to prove it is

lyme with co-infections. We will go over the tests on Wednesday. Does anyone

else on this list have similiar symptoms? Can anyone share with me the road

that will lay ahead? He is so sick of brain fogg and not being able to walk,

write, tie a button or speach like he's not drunk! He just started taking

probiotics and lots of Vitamin C in addition to Vitamin B shots and folic acid.

His homocysteine and methlmyelonic levels are way off so he started with the

shots over a year ago and still no changes. Any advice would be so much help to

us right now. Even if you don't think it is lyme please let us know so we can

cross it off the list. Thank you in advance for reading this and listening to

my cry for help.--Penny