Re: Symptoms worse before/during monthly cycle

[Guest guest]

This is not uncommon. I was having Lyme symptoms flare up with my cycle and

my LLMD said that the hormones cause Lyme to come out and start replicating,

causing the symptoms. He has me on Omnicef for the week before my cycle

starts and it's entirely cleared up my flare up with zero herx'ing. Any

antibiotic that kills the bugs extracellularly would work. He initially put

me on Suprax but moved to me Omnicef after 5 or so months just to switch

things up with the bugs.

On Thu, Jan 21, 2010 at 3:59 PM, <scirella14@...> wrote:

>

>

> Do other women experience this too? Has anyone come up with anything that

> helps? I feel like I am obviously lacking something. I feel like I could go

> from feeling like a 9 straight down to a 2 in one day! I have no energy. I

> can't think straight. I can't talk right. I have no patience. All I want to

> do is sleep and I am so irritable. Some months I could chop my house down

> with my bare hands. I know some of this is the usual PMS stuff but my Lyme

> symptoms are exacerbated. My knees and ankles ache all the time and my brain

> fog is out of control.

>

> Any ideas?

>

>

>

>

[Guest guest]

 

~  I couldn't agree with you more on this.  and I have NO idea why.  ANY

suggestions would be helpful.  I experiment each month with a new tactic, but

inevitably end up Zombie-style, in bed for about 3-4 days.

 

 

[Guest guest]

Lyme has a four-week reproductive cycle. This is why we have to take antibiotics

for ever and ever. Antibiotics only work while the bacteria are actively

reproducing. Most bacteria multiply every 2-3 days, tops; so taking two weeks of

antibiotic will hack at them through 3-4 reproductive cycles, by which point

they should all be gone.

Lyme is only really vulnerable to the abx during the 4-5 days a month it's

actively reproducing. Some researchers think that there may be something in our

hormones during the last week of our cycles that encourages the Lyme

reproductive cycle to sync up with our own cycles, so we get big Lyme die-offs

right when we're already feeling our crummiest.

I found that bioidentical hormones helped manage this considerably. I started

taking them in my late 30s, because Lyme is a major hormone disruptor and it was

throwing me into perimenopause. (I'm slowly withdrawing from them now, as I get

better -- now just using a little progesterone cream.) All the usual herx

helpers should be ramped up, too -- is it time for me to publish that list

again?

Sara

On Jan 21, 2010, at 3:59 58PM, wrote:

> Do other women experience this too? Has anyone come up with anything that

helps? I feel like I am obviously lacking something. I feel like I could go from

feeling like a 9 straight down to a 2 in one day! I have no energy. I can't

think straight. I can't talk right. I have no patience. All I want to do is

sleep and I am so irritable. Some months I could chop my house down with my bare

hands. I know some of this is the usual PMS stuff but my Lyme symptoms are

exacerbated. My knees and ankles ache all the time and my brain fog is out of

control.

>

> Any ideas?

>

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

[Guest guest]

sara~ sure!

From: Sara <srobinson@...>

Subject: Re: [ ] Symptoms worse before/during monthly cycle

Date: Thursday, January 21, 2010, 11:11 PM

 

Lyme has a four-week reproductive cycle. This is why we have to take antibiotics

for ever and ever. Antibiotics only work while the bacteria are actively

reproducing. Most bacteria multiply every 2-3 days, tops; so taking two weeks of

antibiotic will hack at them through 3-4 reproductive cycles, by which point

they should all be gone.

Lyme is only really vulnerable to the abx during the 4-5 days a month it's

actively reproducing. Some researchers think that there may be something in our

hormones during the last week of our cycles that encourages the Lyme

reproductive cycle to sync up with our own cycles, so we get big Lyme die-offs

right when we're already feeling our crummiest.

I found that bioidentical hormones helped manage this considerably. I started

taking them in my late 30s, because Lyme is a major hormone disruptor and it was

throwing me into perimenopause. (I'm slowly withdrawing from them now, as I get

better -- now just using a little progesterone cream.) All the usual herx

helpers should be ramped up, too -- is it time for me to publish that list

again?

Sara

..

[Guest guest]

Sara,

Please publish herx helper list. Thanks.....KD

________________________________

From: <lisaloni@...>

Sent: Fri, January 22, 2010 2:03:49 AM

Subject: Re: [ ] Symptoms worse before/during monthly cycle

 

sara~ sure!

From: Sara <srobinson@cosmiccow grrl.com>

Subject: Re: [ ] Symptoms worse before/during monthly cycle

@group s.com

Date: Thursday, January 21, 2010, 11:11 PM

 

Lyme has a four-week reproductive cycle. This is why we have to take antibiotics

for ever and ever. Antibiotics only work while the bacteria are actively

reproducing. Most bacteria multiply every 2-3 days, tops; so taking two weeks of

antibiotic will hack at them through 3-4 reproductive cycles, by which point

they should all be gone.

Lyme is only really vulnerable to the abx during the 4-5 days a month it's

actively reproducing. Some researchers think that there may be something in our

hormones during the last week of our cycles that encourages the Lyme

reproductive cycle to sync up with our own cycles, so we get big Lyme die-offs

right when we're already feeling our crummiest.

I found that bioidentical hormones helped manage this considerably. I started

taking them in my late 30s, because Lyme is a major hormone disruptor and it was

throwing me into perimenopause. (I'm slowly withdrawing from them now, as I get

better -- now just using a little progesterone cream.) All the usual herx

helpers should be ramped up, too -- is it time for me to publish that list

again?

Sara

..

[Guest guest]

-

I actually laughed when I read this. Not at you, but because I can SO relate!

This past week I could not get a sentence out accurately to save my life and I

could've easily chopped my house down with my bare hands! If a towel isn't hung

back up properly it could seriously send me over the edge.

Everything gets worse for me about a week prior to my cycle and at the beginning

of it. My dizzy spells and heart palpitations increase significantly during that

time as well.

I have no ideas as to what can help us, but it looks like a few others might.

Just know that you're not alone!

Anne

>

> Do other women experience this too? Has anyone come up with anything that

helps? I feel like I am obviously lacking something. I feel like I could go from

feeling like a 9 straight down to a 2 in one day! I have no energy. I can't

think straight. I can't talk right. I have no patience. All I want to do is

sleep and I am so irritable. Some months I could chop my house down with my bare

hands. I know some of this is the usual PMS stuff but my Lyme symptoms are

exacerbated. My knees and ankles ache all the time and my brain fog is out of

control.

>

> Any ideas?

>

>

[Guest guest]

Me too My life used to be hell for the week before my period, then it was

the week and a half, then it was the two weeks before (from ovulation

onward)! Yes, very intense Lyme and Babesia symptoms (sweats, feeling like I

was coming down with malaria, feeling like I was drowning in infection).

This stopped happening to me when I got onto Bicillin shots for Lyme and

Mepron for Babesia, so my vote is that this might be addressed by more

treatment.

In my impression, it was my infection levels that were fluctuating, not my

levels of herxing, so controlling the infections better controlled the

symptoms.

>

>

> >

> > Do other women experience this too? Has anyone come up with anything that

> helps? I feel like I am obviously lacking something. I feel like I could go

> from feeling like a 9 straight down to a 2 in one day! I have no energy. I

> can't think straight. I can't talk right. I have no patience. All I want to

> do is sleep and I am so irritable. Some months I could chop my house down

> with my bare hands. I know some of this is the usual PMS stuff but my Lyme

> symptoms are exacerbated. My knees and ankles ache all the time and my brain

> fog is out of control.

> >

> > Any ideas?

> >

> >

>

>

>

[Guest guest]

My teen-age daughter's Lyme situation always got MUCH worse around her periods.

Her LL Naturopath put her on " Fem Premenstrual " by Metagenics. It's a

combination of vitamins and herbs. The improvement was HUGE. After things

stabilized, she went off them and seemed to be okay for a few months. Then the

bad stuff started coming back, and we went back on them. Helps immensely.

>

> Do other women experience this too? Has anyone come up with anything that

helps? I feel like I am obviously lacking something. I feel like I could go from

feeling like a 9 straight down to a 2 in one day! I have no energy. I can't

think straight. I can't talk right. I have no patience. All I want to do is

sleep and I am so irritable. Some months I could chop my house down with my bare

hands. I know some of this is the usual PMS stuff but my Lyme symptoms are

exacerbated. My knees and ankles ache all the time and my brain fog is out of

control.

>

> Any ideas?

>

>

[Guest guest]

I did, in a message yesterday afternoon....

Sara

On Jan 22, 2010, at 1:11 31AM, Kerry Dye wrote:

> Sara,

> Please publish herx helper list. Thanks.....KD

>

>

>

>

> ________________________________

> From: <lisaloni@...>

>

> Sent: Fri, January 22, 2010 2:03:49 AM

> Subject: Re: [ ] Symptoms worse before/during monthly cycle

>

>

> sara~ sure!

>

>

>

> From: Sara <srobinson@cosmiccow grrl.com>

> Subject: Re: [ ] Symptoms worse before/during monthly cycle

> @group s.com

> Date: Thursday, January 21, 2010, 11:11 PM

>

>

>

> Lyme has a four-week reproductive cycle. This is why we have to take

antibiotics for ever and ever. Antibiotics only work while the bacteria are

actively reproducing. Most bacteria multiply every 2-3 days, tops; so taking two

weeks of antibiotic will hack at them through 3-4 reproductive cycles, by which

point they should all be gone.

>

> Lyme is only really vulnerable to the abx during the 4-5 days a month it's

actively reproducing. Some researchers think that there may be something in our

hormones during the last week of our cycles that encourages the Lyme

reproductive cycle to sync up with our own cycles, so we get big Lyme die-offs

right when we're already feeling our crummiest.

>

> I found that bioidentical hormones helped manage this considerably. I started

taking them in my late 30s, because Lyme is a major hormone disruptor and it was

throwing me into perimenopause. (I'm slowly withdrawing from them now, as I get

better -- now just using a little progesterone cream.) All the usual herx

helpers should be ramped up, too -- is it time for me to publish that list

again?

>

> Sara

> .

>

>

[Guest guest]

Hmm. That reminds me of another Chinese herbal supplement I found useful. It was

called " Female Well " from Get Well International.

It was great stuff. I used it for years. In particular, it helped with mood and

hot flashes.

Sara

On Jan 22, 2010, at 11:11 27AM, jblral wrote:

> My teen-age daughter's Lyme situation always got MUCH worse around her

periods. Her LL Naturopath put her on " Fem Premenstrual " by Metagenics. It's a

combination of vitamins and herbs. The improvement was HUGE. After things

stabilized, she went off them and seemed to be okay for a few months. Then the

bad stuff started coming back, and we went back on them. Helps immensely.

>

>

>>

>> Do other women experience this too? Has anyone come up with anything that

helps? I feel like I am obviously lacking something. I feel like I could go from

feeling like a 9 straight down to a 2 in one day! I have no energy. I can't

think straight. I can't talk right. I have no patience. All I want to do is

sleep and I am so irritable. Some months I could chop my house down with my bare

hands. I know some of this is the usual PMS stuff but my Lyme symptoms are

exacerbated. My knees and ankles ache all the time and my brain fog is out of

control.

>>

>> Any ideas?

>>

>>

>

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

[Guest guest]

Sara,

Please publish the herx helpers again...

[Guest guest]

Hello,

I just wanted to be clear about this. I am taking zithro, mepron and bicillan

shots (2x/week) plus many other supplements. I start to feel pretty good and

then am just zapped of all energy when my period hits. I am 45 so I am in the

perimenopause stage anyway. But some months, it feels like it takes forever to

recover and I have 1 good week/month.

I also go to PT weekly.

Any ideas for the week before and of would be wonderful so I could feel more

like I am continuing with my progress instead of always moving backwards and

forwards so much. I know it is part of Lyme but it's such a roller coaster!

My LLMD did just do a hormone panel and I will see him next week so we will see

what he comes up with. But, hormones change all the time so I don't feel like it

is going to make a huge difference. I have been on progesterone cream before

and I really don't like the way it makes me feel so I don't know if I'll go that

route again. Any other ideas?

Supplements? Hysterectomy? Labotomy? :-)

PS - contracted Lyme 25 years ago on Martha's Vinyard, MA

[Guest guest]

My doctor also recommended a supplement called DIM as well as flax seed.

She said both will help bind up extra estrogen that causes PMS. I took DIM

for 2 months and it helped tremendously.

On Fri, Jan 22, 2010 at 3:31 PM, <scirella14@...> wrote:

>

>

> Hello,

>

> I just wanted to be clear about this. I am taking zithro, mepron and

> bicillan shots (2x/week) plus many other supplements. I start to feel pretty

> good and then am just zapped of all energy when my period hits. I am 45 so I

> am in the perimenopause stage anyway. But some months, it feels like it

> takes forever to recover and I have 1 good week/month.

>

> I also go to PT weekly.

>

> Any ideas for the week before and of would be wonderful so I could feel

> more like I am continuing with my progress instead of always moving

> backwards and forwards so much. I know it is part of Lyme but it's such a

> roller coaster!

>

> My LLMD did just do a hormone panel and I will see him next week so we will

> see what he comes up with. But, hormones change all the time so I don't feel

> like it is going to make a huge difference. I have been on progesterone

> cream before and I really don't like the way it makes me feel so I don't

> know if I'll go that route again. Any other ideas?

>

> Supplements? Hysterectomy? Labotomy? :-)

>

>

> PS - contracted Lyme 25 years ago on Martha's Vinyard, MA

>

>

>

[Guest guest]

I haven't seen it. I looked for a new topic or under the same topic. Did you

publish it in this group?

> >

> > From: Sara <srobinson@cosmiccow grrl.com>

> > Subject: Re: [ ] Symptoms worse before/during monthly cycle

> > @group s.com

> > Date: Thursday, January 21, 2010, 11:11 PM

> >

> >

> >

> > Lyme has a four-week reproductive cycle. This is why we have to take

antibiotics for ever and ever. Antibiotics only work while the bacteria are

actively reproducing. Most bacteria multiply every 2-3 days, tops; so taking two

weeks of antibiotic will hack at them through 3-4 reproductive cycles, by which

point they should all be gone.

> >

> > Lyme is only really vulnerable to the abx during the 4-5 days a month it's

actively reproducing. Some researchers think that there may be something in our

hormones during the last week of our cycles that encourages the Lyme

reproductive cycle to sync up with our own cycles, so we get big Lyme die-offs

right when we're already feeling our crummiest.

> >

> > I found that bioidentical hormones helped manage this considerably. I

started taking them in my late 30s, because Lyme is a major hormone disruptor

and it was throwing me into perimenopause. (I'm slowly withdrawing from them

now, as I get better -- now just using a little progesterone cream.) All the

usual herx helpers should be ramped up, too -- is it time for me to publish that

list again?

> >

> > Sara

> > .

> >

> >

[Guest guest]

Thats very interesting. I have heart palpitations and dizziness about a week

before mine too. I went to an EP  and at first said I had postural orthostatic

tachycardia syndrome  because when going from lying down to standing my heart

rate increased by 38 beats and my blood pressure dropped. The next visit that

did not happen and he looked confused so maybe its just the timing of the

visits.

 

From: anniepmm <anniepmm@...>

Subject: [ ] Re: Symptoms worse before/during monthly cycle

Date: Friday, January 22, 2010, 1:26 PM

 

-

I actually laughed when I read this. Not at you, but because I can SO relate!

This past week I could not get a sentence out accurately to save my life and I

could've easily chopped my house down with my bare hands! If a towel isn't hung

back up properly it could seriously send me over the edge.

Everything gets worse for me about a week prior to my cycle and at the beginning

of it. My dizzy spells and heart palpitations increase significantly during that

time as well.

I have no ideas as to what can help us, but it looks like a few others might.

Just know that you're not alone!

Anne

>

> Do other women experience this too? Has anyone come up with anything that

helps? I feel like I am obviously lacking something. I feel like I could go from

feeling like a 9 straight down to a 2 in one day! I have no energy. I can't

think straight. I can't talk right. I have no patience. All I want to do is

sleep and I am so irritable. Some months I could chop my house down with my bare

hands. I know some of this is the usual PMS stuff but my Lyme symptoms are

exacerbated. My knees and ankles ache all the time and my brain fog is out of

control.

>

> Any ideas?

>

>

[Guest guest]

Well, I can tell you that my electrophysiologist told me to drink 16 oz of water

all at once every 2 to 3 hours. Its tough but it helps me with the dizziness. He

also said to eat low carb meals. Thats not gonna happen (-:. The water helps

control blood volume, actually it increases it. When you stand your blood drops

to your lower extremities which can make you dizzy if your blood volume is on

the lower side..I hope that helps.

 

From: <scirella14@...>

Subject: [ ] Re: Symptoms worse before/during monthly cycle

Date: Friday, January 22, 2010, 6:31 PM

 

Hello,

I just wanted to be clear about this. I am taking zithro, mepron and bicillan

shots (2x/week) plus many other supplements. I start to feel pretty good and

then am just zapped of all energy when my period hits. I am 45 so I am in the

perimenopause stage anyway. But some months, it feels like it takes forever to

recover and I have 1 good week/month.

I also go to PT weekly.

Any ideas for the week before and of would be wonderful so I could feel more

like I am continuing with my progress instead of always moving backwards and

forwards so much. I know it is part of Lyme but it's such a roller coaster!

My LLMD did just do a hormone panel and I will see him next week so we will see

what he comes up with. But, hormones change all the time so I don't feel like it

is going to make a huge difference. I have been on progesterone cream before and

I really don't like the way it makes me feel so I don't know if I'll go that

route again. Any other ideas?

Supplements? Hysterectomy? Labotomy? :-)

PS - contracted Lyme 25 years ago on Martha's Vinyard, MA

[Guest guest]

The very first piece of useful advice I got re: POTS was: Salt your food to

taste, and don't hold back.

You need the salt to a) thin your blood and keep enough blood volume going to

avoid the lightheadedness. (Adding water helps; adding salt makes the water do

more.)

Aspirin, as another excellent blood thinner, also helps.

Sara

On Jan 23, 2010, at 3:54 47PM, Chiaravalloti wrote:

> Well, I can tell you that my electrophysiologist told me to drink 16 oz of

water all at once every 2 to 3 hours. Its tough but it helps me with the

dizziness. He also said to eat low carb meals. Thats not gonna happen (-:. The

water helps control blood volume, actually it increases it. When you stand your

blood drops to your lower extremities which can make you dizzy if your blood

volume is on the lower side..I hope that helps.

>

>

>

>

>

>

> From: <scirella14@...>

> Subject: [ ] Re: Symptoms worse before/during monthly cycle

>

> Date: Friday, January 22, 2010, 6:31 PM

>

>

>

>

>

>

> Hello,

>

> I just wanted to be clear about this. I am taking zithro, mepron and bicillan

shots (2x/week) plus many other supplements. I start to feel pretty good and

then am just zapped of all energy when my period hits. I am 45 so I am in the

perimenopause stage anyway. But some months, it feels like it takes forever to

recover and I have 1 good week/month.

>

> I also go to PT weekly.

>

> Any ideas for the week before and of would be wonderful so I could feel more

like I am continuing with my progress instead of always moving backwards and

forwards so much. I know it is part of Lyme but it's such a roller coaster!

>

> My LLMD did just do a hormone panel and I will see him next week so we will

see what he comes up with. But, hormones change all the time so I don't feel

like it is going to make a huge difference. I have been on progesterone cream

before and I really don't like the way it makes me feel so I don't know if I'll

go that route again. Any other ideas?

>

> Supplements? Hysterectomy? Labotomy? :-)

>

>

> PS - contracted Lyme 25 years ago on Martha's Vinyard, MA

>

>

>

>

>

>

>

>

>

[Guest guest]

Would also appreciate it the " herx-helper " list. any chance I could ask if you

could email me a copy? i am very sick and don't always get to check these

postings. THANKS! robin

> > >

> > > From: Sara <srobinson@cosmiccow grrl.com>

> > > Subject: Re: [ ] Symptoms worse before/during monthly cycle

> > > @group s.com

> > > Date: Thursday, January 21, 2010, 11:11 PM

> > >

> > >

> > >

> > > Lyme has a four-week reproductive cycle. This is why we have to take

antibiotics for ever and ever. Antibiotics only work while the bacteria are

actively reproducing. Most bacteria multiply every 2-3 days, tops; so taking two

weeks of antibiotic will hack at them through 3-4 reproductive cycles, by which

point they should all be gone.

> > >

> > > Lyme is only really vulnerable to the abx during the 4-5 days a month it's

actively reproducing. Some researchers think that there may be something in our

hormones during the last week of our cycles that encourages the Lyme

reproductive cycle to sync up with our own cycles, so we get big Lyme die-offs

right when we're already feeling our crummiest.

> > >

> > > I found that bioidentical hormones helped manage this considerably. I

started taking them in my late 30s, because Lyme is a major hormone disruptor

and it was throwing me into perimenopause. (I'm slowly withdrawing from them

now, as I get better -- now just using a little progesterone cream.) All the

usual herx helpers should be ramped up, too -- is it time for me to publish that

list again?

> > >

> > > Sara

> > > .

> > >

> > >