Sara

[Guest guest]

On 3/28/06, Hunter <us2china2@...> wrote:

It sure sounds like he's doing everything he can to make the sale. JMO

....or maybe he's educating the mis-informed doc.

[Guest guest]

Good luck Sara to you and your sons, I hope it is a success. I've heard great things about Card.

Warmest regards,

Luann

-- Re: is finally potty trained / Greenspan's Floortime

Most parents can not afford costly aba. I would check out CARD for potty training help. My two autistic sons are going to have intensive 6 hour long day potty training sessions over a 4 day period, provided through CARD

(for free) next week.

Sara

is finally potty trained / Greenspan's Floortime

Hey everybody. I'm Luann from Greenville, SC and I have a little boy with autism and ADHD named who will be four in October. YaY that he's now potty trained! We did it the ABA way and it worked though it was very intense and costly. Just had to share - I'm so happy and proud. I didn't know if he was capable of it or not. = )I recently checked out Stanley Greenspan's book "Engaging Autism" andwas wondering if any of you have any comments good or bad aboutFloortime. The book seems great. We do ABA therapy with but I amconsidering implementing lots of Floortime too.Thanks for any responses!warmest regards,Luannhttp://awiggletot.4t.com

[Guest guest]

Good luck Sara to you and your sons, I hope it is a success. I've heard great things about Card.

Warmest regards,

Luann

-- Re: is finally potty trained / Greenspan's Floortime

Most parents can not afford costly aba. I would check out CARD for potty training help. My two autistic sons are going to have intensive 6 hour long day potty training sessions over a 4 day period, provided through CARD

(for free) next week.

Sara

is finally potty trained / Greenspan's Floortime

Hey everybody. I'm Luann from Greenville, SC and I have a little boy with autism and ADHD named who will be four in October. YaY that he's now potty trained! We did it the ABA way and it worked though it was very intense and costly. Just had to share - I'm so happy and proud. I didn't know if he was capable of it or not. = )I recently checked out Stanley Greenspan's book "Engaging Autism" andwas wondering if any of you have any comments good or bad aboutFloortime. The book seems great. We do ABA therapy with but I amconsidering implementing lots of Floortime too.Thanks for any responses!warmest regards,Luannhttp://awiggletot.4t.com

[Guest guest]

Thanks Luann,

I have high hopes. My boys are 4 and 5...and I am so over diapers.

Sara

is finally potty trained / Greenspan's Floortime

Hey everybody. I'm Luann from Greenville, SC and I have a little boy with autism and ADHD named who will be four in October. YaY that he's now potty trained! We did it the ABA way and it worked though it was very intense and costly. Just had to share - I'm so happy and proud. I didn't know if he was capable of it or not. = )I recently checked out Stanley Greenspan's book "Engaging Autism" andwas wondering if any of you have any comments good or bad aboutFloortime. The book seems great. We do ABA therapy with but I amconsidering implementing lots of Floortime too.Thanks for any responses!warmest regards,Luannhttp://awiggletot.4t.com

[Guest guest]

Thanks Luann,

I have high hopes. My boys are 4 and 5...and I am so over diapers.

Sara

is finally potty trained / Greenspan's Floortime

Hey everybody. I'm Luann from Greenville, SC and I have a little boy with autism and ADHD named who will be four in October. YaY that he's now potty trained! We did it the ABA way and it worked though it was very intense and costly. Just had to share - I'm so happy and proud. I didn't know if he was capable of it or not. = )I recently checked out Stanley Greenspan's book "Engaging Autism" andwas wondering if any of you have any comments good or bad aboutFloortime. The book seems great. We do ABA therapy with but I amconsidering implementing lots of Floortime too.Thanks for any responses!warmest regards,Luannhttp://awiggletot.4t.com

[Guest guest]

Keep us posted Sara on how it's going. I know it's really rough when you first begin intense potty training but it will get better I promise.

warmest regards,

Luann

-- Re: Sara

Thanks Luann,

I have high hopes. My boys are 4 and 5...and I am so over diapers.

Sara

is finally potty trained / Greenspan's Floortime

Hey everybody. I'm Luann from Greenville, SC and I have a little boy with autism and ADHD named who will be four in October. YaY that he's now potty trained! We did it the ABA way and it worked though it was very intense and costly. Just had to share - I'm so happy and proud. I didn't know if he was capable of it or not. = )I recently checked out Stanley Greenspan's book "Engaging Autism" andwas wondering if any of you have any comments good or bad aboutFloortime. The book seems great. We do ABA therapy with but I amconsidering implementing lots of Floortime too.Thanks for any responses!warmest regards,Luannhttp://awiggletot.4t.com

[Guest guest]

Thanks:) CARD will be with us the 7 - 10th. The first days of school (unfortunately), but I would take them up on it any day they offered their help.

Sara

is finally potty trained / Greenspan's Floortime

Hey everybody. I'm Luann from Greenville, SC and I have a little boy with autism and ADHD named who will be four in October. YaY that he's now potty trained! We did it the ABA way and it worked though it was very intense and costly. Just had to share - I'm so happy and proud. I didn't know if he was capable of it or not. = )I recently checked out Stanley Greenspan's book "Engaging Autism" andwas wondering if any of you have any comments good or bad aboutFloortime. The book seems great. We do ABA therapy with but I amconsidering implementing lots of Floortime too.Thanks for any responses!warmest regards,Luannhttp://awiggletot.4t.com

[Guest guest]

I know what you mean about getting help when it's offered. = ) I thought it was going to be this week. I'm so physically and emotionally drained that I can't think straight, I did get a little nap while was at preschool for about 45 minutes and now I fill minimally refreshed. LOL

Got my fingers crossed that it will go well for your little boys next week!

Luann

-- Re: Sara

Thanks:) CARD will be with us the 7 - 10th. The first days of school (unfortunately), but I would take them up on it any day they offered their help.

Sara

is finally potty trained / Greenspan's Floortime

Hey everybody. I'm Luann from Greenville, SC and I have a little boy with autism and ADHD named who will be four in October. YaY that he's now potty trained! We did it the ABA way and it worked though it was very intense and costly. Just had to share - I'm so happy and proud. I didn't know if he was capable of it or not. = )I recently checked out Stanley Greenspan's book "Engaging Autism" andwas wondering if any of you have any comments good or bad aboutFloortime. The book seems great. We do ABA therapy with but I amconsidering implementing lots of Floortime too.Thanks for any responses!warmest regards,Luannhttp://awiggletot.4t.com

[Guest guest]

Thank you for the info/encouragement. I have my sister and husband take my

daughter out and do stuff outside the house as often as they can, but that

almost makes me feel even worse, that I can't be there, seeing her enjoyment and

happiness. This disease is evil, it is taking so much from me and my family, I

have missed out on so much this last year. I almost cried today, I was feeling a

little better, so my daughter and I did christmas crafts and made chocolate

covered pretzels while listening to music and dancing, something we used to do

all the time, and she asked me " mommy are you not sick anymore? " 4 years old and

she is that perceptive. Anyway, it is nice to know that I am not the only one

going through this. Thank you!

Bridget

[Guest guest]

I agree with Lissa. In general, children are much more afraid of what's hidden

from them than what is explained (at a level appropriate to their age). My kids

are young adults (21 & 23) but are having a hard time accepting their mother's

chronic illness. They try giving me pep talks when I get depressed, tell me I

spend too much time alone. I was finally diagnosed last June (after 5 1/2 yrs of

mysterious symptoms) They were away working at a camp in the Colorado Rockies

last summer when I went through the initial herx-- which completely immobilized

me for 6 weeks. They were unreachable by phone or internet most of the time. So

when we were finally all together in Sept. we had a good cry together and talked

about how we were feeling about the situation. It was very cathartic for all.

As a child of the 50s & 60s where everything about disease was unmentionable, I

believe it's best to approach illness and disease as part of life. Sooner or

later we all face these kinds of adversities.

Kim

[ ] Re: Sara

Bridget,

I wrote you before about your concerns for your daughter. I have 3 children

(5,4,and 3) and they are very aware of mommy's limitations and illness. I do as

much as I can physically do with them. Most days I push myself too far, but that

is a price I am willing to pay for my kids. I am very honest with them about my

disease and I also hear the question from my children about not being sick

anymore.

I don't think that there is anything wrong with allowing our children to

experience a certain amount of adversity. After all, life is full of setbacks

and disappontments. Are we doing our children a disservice by sheltering them

from this? I don't recommend " letting it all hang out " with your daughter, but

in my opinion it is good to be open and honest with her. My husband and I were

both pretty sheltered growing up and looking back, I don't think it was the

right way to handle us. Kids are so incredibly resilient and sometimes I think

we don't give them enough credit for that.

When I got my PICC line I think my kids were really creeped out so I let them

look at it and I explained everything to them. It was a lesson in anatomy on

some level. Also, I allow them to " play doctor " with me and prepare my infusions

for me, too. They like doing that and I think it really helps them to have some

hands on experience with me and my disease.

I am always certain to let them know that no matter what, mommy is going to be

OK...because I am. I have an excellent doctor, excellent insurance and a

fantastic support network. If I am denied anything by my insurance company, I am

lucky enough that my husband is able to move money around to pay out of pocket

for whatever I need. I am very thankful for what I have and very aware that

there are many people who suffer without any of what I have. This is also an

important lesson for my children to know that not everyone in the world, or even

our neighborhood has what we have. I take my children to the hospital 2 or 3

times per year to donate new toys and this year we adopted an underpriviledged

family in our area for the holidays and we will be giving them a holiday with

some friends of ours. These things are so important for our children.

So, I am writing a novella, here, but I hope you get my points about being

honest with your daughter - with limits, and helping her understand your illness

rather than fearing it.

Best of luck to you.

Lissa

>

> Thank you for the info/encouragement. I have my sister and husband take my

daughter out and do stuff outside the house as often as they can, but that

almost makes me feel even worse, that I can't be there, seeing her enjoyment and

happiness. This disease is evil, it is taking so much from me and my family, I

have missed out on so much this last year. I almost cried today, I was feeling a

little better, so my daughter and I did christmas crafts and made chocolate

covered pretzels while listening to music and dancing, something we used to do

all the time, and she asked me " mommy are you not sick anymore? " 4 years old and

she is that perceptive. Anyway, it is nice to know that I am not the only one

going through this. Thank you!

> Bridget

>

=