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The other ideas may not be relative to DS... but other

kinds of disABILITIES as well.

1. Open a small matchbox with tight fitting mittens

on. (Putting a piece of candy in the matchbox makes it

worth trying for)

2. Read a piece of paper (I usually write " It is

harder to read if you have Dislexia " on the paper that

they have to read) looking at it through a mirror.

3. Put on ankle weights on ONE leg and run a short

race.

..... hmmm... all my teaching tolerance stuff is at my

house (not dorm)... so I can't remember the rest.

Sorry!

BTW, , I got your newsletters and they are

BEAUTIFUL!!!! The graphics are REALLY amazing! By far,

the most beautiful newletter I have seen! Can I send a

international money order to you for the calendars??

How much would it be?

Cheers,

Sara

--- <lauranra@...> wrote:

> Sara;

> Thank you for your marshmallow idea and would

> very much appreciate any more ideas/games you have.

> My husband is doing his presentation on Wednesday.

>

>

>

=====

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>international money order to you for the calendars??

>How much would it be?

Hi Sara;

We get the calendars from the Canadian Down Syndrome Society (1999 year

Nicala & were in it). The cost is only $5.00 Canadian...which would

probably be something like $3.40 American. You could either send a Canadian

money order or use your credit card....or even a cheque for $3.40 American

would probably work. I would suggest that you go directly to the CDSS to

order it since you would avoid having to go thru me.

http://home.ican.net/~cdss/mainframeset.html

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, Just got the copies of your newsletter in the

mail last night! You guys to an awesome job! I'm

honored that you want to put my guys on the cover!

BTW, I'm still waiting for my M-I-L to come thru w/the

picture!

Judi

--- <lauranra@...> wrote:

> >international money order to you for the

> calendars??

> >How much would it be?

>

>

> Hi Sara;

> We get the calendars from the Canadian Down

> Syndrome Society (1999 year

> Nicala & were in it). The cost is only $5.00

> Canadian...which would

> probably be something like $3.40 American. You

> could either send a Canadian

> money order or use your credit card....or even a

> cheque for $3.40 American

> would probably work. I would suggest that you go

> directly to the CDSS to

> order it since you would avoid having to go thru me.

> http://home.ican.net/~cdss/mainframeset.html

>

>

>

>

>

------------------------------------------------------------------------

> http://DSyndrome.com/Multiples

>

<HR>

<html>

>

=====

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-

Apparently I haven't been paying attention, I want a newsletter, how do I

get one?

Re: Sara

, Just got the copies of your newsletter in the

mail last night! You guys to an awesome job! I'm

honored that you want to put my guys on the cover!

BTW, I'm still waiting for my M-I-L to come thru w/the

picture!

Judi

--- <lauranra@...> wrote:

> >international money order to you for the

> calendars??

> >How much would it be?

>

>

> Hi Sara;

> We get the calendars from the Canadian Down

> Syndrome Society (1999 year

> Nicala & were in it). The cost is only $5.00

> Canadian...which would

> probably be something like $3.40 American. You

> could either send a Canadian

> money order or use your credit card....or even a

> cheque for $3.40 American

> would probably work. I would suggest that you go

> directly to the CDSS to

> order it since you would avoid having to go thru me.

> http://home.ican.net/~cdss/mainframeset.html

>

>

>

>

>

------------------------------------------------------------------------

> http://DSyndrome.com/Multiples

>

<HR>

<html>

>

=====

http://DSyndrome.com/Multiples

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<Multiples-DSonelist>

Sent: Thursday, November 04, 1999 10:31 AM

Subject: RE: Sara

Hi

Can I get a newsletter sent all the way to New Zealand too? Would love to

see it also and would a lot of parents of children with DS here!!

Carolyn

> Re: Sara

>

>

> , Just got the copies of your newsletter in the

> mail last night! You guys to an awesome job! I'm

> honored that you want to put my guys on the cover!

> BTW, I'm still waiting for my M-I-L to come thru w/the

> picture!

>

> Judi

>

> --- <lauranra@...> wrote:

> > >international money order to you for the

> > calendars??

> > >How much would it be?

> >

> >

> > Hi Sara;

> > We get the calendars from the Canadian Down

> > Syndrome Society (1999 year

> > Nicala & were in it). The cost is only $5.00

> > Canadian...which would

> > probably be something like $3.40 American. You

> > could either send a Canadian

> > money order or use your credit card....or even a

> > cheque for $3.40 American

> > would probably work. I would suggest that you go

> > directly to the CDSS to

> > order it since you would avoid having to go thru me.

> > http://home.ican.net/~cdss/mainframeset.html

> >

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > http://DSyndrome.com/Multiples

> >

> <HR>

> <html>

> >

>

>

> =====

>

> http://DSyndrome.com/Multiples

>

> > http://DSyndrome.com/Multiples

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  • 1 month later...

Gail,

I'm sooooo sorry! My exams have kept me soooo busy! My

dad is coming over today and I think I may go home

with him to scan the pictures tonight and come back to

school tomorrow.... but it's snowing now... so keep

your fingers crossed!

Sara

--- GVanHouten <rjvh@...> wrote:

> From: GVanHouten <rjvh@...>

>

> Sara, doll face! Could you, would you, possibly be

> able to get my kids

> pics on here, you darling you?????

> Hate to bother you!

> Having a tough go at it, would like to show these

> wonderful Mom's that

> my kids exist.

> Thanks, and hope exams are going SMOOTHLY!!!!!!!

> Gail from NJ

>

> ---------------------------

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  • 4 months later...
Guest guest

That was incrediably fast!! I thought my husband mailed it 2 weeks ago, but he

forgot so we just mailed it Friday. Enjoy!!

Sara

>>> Scherb@... - 04/25/0 5:44 PM >>>

Sara,

Lost your email addy. We got the package yesterday! Thank you soooo much.

& Garry, parents of (9), (8), JJ (6), (5), and

Esther (3). All adopted & with Down Syndrome.

------------------------------------------------------------------------

You have a voice mail message waiting for you at iHello.com:

1/3555/6/_/691668/_/956695410/

------------------------------------------------------------------------

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  • 6 months later...

Sara:

Wonderful that your child is doing so well! And " only " on .5mg. of Risperdal

at night?? Wow, wish could take only a little.....we are now on 1.5mg

TWICE a day........

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  • 4 weeks later...
  • 3 weeks later...

Mine is not as supportive. It seems I am always defending BFL and my enthusiasm.

It's his negativity that I would like to change! Well, and maybe *minor* changes to the physique. :) He's actually not in bad shape physically.

Cheryl

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I've run into this perdicament a few times in coaching. My advice is to lead by example. If it comes down to it, don't even talk about BFL directly anymore. Just eat and exercise the program and let your actions and changing physique, improved confidence and presentation of yourself speak for you.

-

In a message dated 20-Dec-00 06:00:29 PM Eastern Standard Time, cdautah1@... writes:

Mine is not as supportive. It seems I am always defending BFL and my enthusiasm.

It's his negativity that I would like to change! Well, and maybe *minor* changes to the physique. :) He's actually not in bad shape physically.

Cheryl

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  • 3 months later...
Guest guest

That's odd Pam! Others got it. Let me know if it works this time....

Ok Moms and Dads!!

I'm putting together a Multiples Screen Saver and I need your

PICTURES!!!!!!!! Send me a few (I can probably include about 3 pictures of

each " Multiple Set. " I'll then make the screen saver and send it to all so

you can download it and see it everyday on your puter! How fun! Right??

So, send me your pictures of your Multiples (preferably pictures of the

2,3, or 4 of them together). If you need scanning, send your pictures to:

Sara Greenberg

PO Box 335

Amherst NY 14226

USA

Just let me know, via email, that you are sending them so I will wait for

them!

Thanks!

Sara

--On Thursday, March 29, 2001, 7:32 AM -0800 Pam Houser

<p_houser37@...> wrote:

> I don't think your post was right. All I seen was a

> bunch of letters and numbers.

>

> Pam

>

> __________________________________________________

>

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  • 5 weeks later...
Guest guest

Evidently - did not. They said that they would call either way, but I guess

not. Oh Well - as a nurse I have plenty of work, I certainly did not need

to go to camp, just thought it would be nice.

Saa

_________________________________________________________________

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Guest guest

---Oh Sara, I'm sorry. :-( I know you must be disappointed.

Gail

In @y..., " sara cohen " <pastmidvale@h...> wrote:

> Evidently - did not. They said that they would call either way,

but I guess

> not. Oh Well - as a nurse I have plenty of work, I certainly did

not need

> to go to camp, just thought it would be nice.

>

> Saa

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

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  • 1 month later...
Guest guest

Hi Sara,

I had no idea that Elie was so long in toilet training for BM's.

We are going through this for Matt, too. He has amazing control, but

chooses to hold until he can have a " pull up " . He will ask for and get

his own pull up-sometimes not getting it on " straight " , which is then a

BIG mess.

Since he is home, for now, DH decided that this would be a wonderful

thing to correct, while he is here! But DH is NOT the one who is here

enforcing this order. A couple of nights ago, I ran out of pull ups.

Matt was having a tough day, with 3-4 small smears of BM in his

underwear. The last time he did this, I told him he would have to sit on

the toilet until I got back from the store (About 10-15 minutes at the

most), and left my oldest daughter and husband in charge of the

situation. They said he willing sat there, until it became apparant that

he had to " go " NOW, and kept trying to get up. He was clearly very

uncomfortable with the idea of sitting on the toilet until this happened.

They firmly held him there, he yelled, and released. After all of this,

he was very proud of himself!

With this success behind us, we tried again the next day. I wrestled with

him for 20 minutes before calling in the back-up troops. He tried to slam

my daughter's head into the counter top! With this, we decided that a

much more " Gentle " approach was needed. I gave him the pull-up, with the

instruction that he was not to leave the bathroom. Maybe, if we can get

him in the habit of only pooping in the bathroom, we can get him to the

toilet with the pull up on, and eventually with it off.

How did you finally accomplish this with Elie?

S

> The BM issue is interesting. The holding can sometimes be solved by

>

> introducing fiber or lactalose to the diet. That makes it more

> difficult to

> purposely hold. However, the down side (and isn't there always

> one) is

> that a child who will not use the toilet will then soil even more in

> the

> diaper, making a bigger nastier mess to clean up!

>

> To make you feel a little better - my son was not reliably bowel

> trained

> until 14. This was although he was dry from age 4 on both day and

> night and

> used the toilet easily. the dx was that he didn;t feel the need for

> bowel

> emptying. Hang in there!!

>

________________________________________________________________

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  • 3 months later...

Sara, Thank You so much for your words of encouragement. Yes, it helped. I

have talked to several ladies in the past two days that also had there kids

in there 40s and loved the way it went. IM sure all will be great.

Love, from Fla

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  • 1 month later...

<We started by having him GET clothes from his new dresser - we got a long

low 4 drawer dresser. We were able to separate his clothes more easily in

this dresser than his previous chest of drawers where the drawers were

shallow and some so high he couldn't see into them. We divided his dresser

in this fashion: pj's and bathing suits, long pants, shirts (easy as he

only wears short sleeved shirts, shorts, underwear and socks. Sweats and

sweaters are in his closet and he really doesn't touch those as he hasn't

worn long sleeves or sweaters in 2 years. Sweat pants will be moved into

his drawe with his long pants.

I always sort his clothes and fold them. For months I have been sorting his

clothes in his room into 4 stacks for the four drawers and worked at getting

him to put them in the appropriate drawers. For a couple of weeks he would

sort of help me. Then this week, I put the basket in his room to put away

when I finished another task. When I came back, the clothes were in the

drawers!!!

I never really thought he would take the initiative. Now we will move on to

bed making - I gave up on that after backward chaining for 2 years but I

guess we will try again.

br><br><br>Sara, Elie's Mom - 16 yo and just discovering friends

----Original Message Follows----

From: smilinggail@...

Reply-

Subject: Sara

Date: Wed, 7 Nov 2001 05:48:57 EST

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From sentto-410305-22757-1005130149-pastmidvale Wed, 07 Nov 2001 02:51:03

-0800

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In a message dated 11/6/01 6:38:50 PM Pacific Standard Time,

pastmidvale@... writes:

<< But

there is another chore he has just decided to do - put his own

clothes away in the correct places in his dresser!!!!! >>

Congrats ! How did you teach him that? Very cool!

Gail :-)

_________________________________________________________________

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In a message dated 11/9/01 11:35:38 PM Eastern Standard Time,

pastmidvale@... writes:

> Then this week, I put the basket in his room to put away

> when I finished another task. When I came back, the clothes were in the

> drawers!!!

>

WOW Sara!!! that's amazing!!!! I can't get my 15 yo NDA son to do

that...LOLOL

Donna

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also puts his clothes away, one thing i have found to hlep is the

pic/word symbol on the drawer, eg the pants drawer has the pant pic/word on it,

covered with clear contact paper. I am working on this for the kitchen because

since the washing and rinsing hasnt been going well(likes to play in water, and

his poor fms doesnt get dishes clean) I have the boys put the dishes away, and

nathan needs constant reminders so my weekend is going to be busy,lol. Oh, we

hang nathans shirts up in his closet, and a way we figured out so nathan can do

it and does with prompts, i lay the pile of shirts flat on the side next to his

closet, then he gets a hanger and brings it to the shirt, slips it in while its

laying on the bed and the wala, its on the hanger, and he just hangs them up,

yaaaaa, his dress pants have been more of a struggle, so i let him put those in

his dresser for now. shawna.

Sara

Date: Wed, 7 Nov 2001 05:48:57 EST

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>From sentto-410305-22757-1005130149-pastmidvale Wed, 07 Nov 2001 02:51:03

-0800

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In a message dated 11/6/01 6:38:50 PM Pacific Standard Time,

pastmidvale@... writes:

<< But

there is another chore he has just decided to do - put his own

clothes away in the correct places in his dresser!!!!! >>

Congrats ! How did you teach him that? Very cool!

Gail :-)

_________________________________________________________________

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--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of

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  • 3 months later...

In a message dated 2/22/02 9:18:06 AM Eastern Standard Time, deanlig@...

writes:

>

>

>

>

>

> I am fairly new and dont understand computers too much but I just

> read all the posts when I get on-line, I dont get individual e-mails

>

Dawn,

You can set your email to receive the list however you want (Individual

mail, digest, no mail). Simply go to the web page, sign in with your

password and click on Edit my membership. Sara, I checked and you are

still on, listed as receiving individual mail.

Donna

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You can change to individual posts. Welcome to the

group, hope you can learn and enjoy the group.

--- deanlig <deanlig@...> wrote:

> I am fairly new and dont understand computers too

> much but I just

> read all the posts when I get on-line, I dont get

> individual e-mails

> unless someone e-mails privately. Hope you continue

> writing cause

> some of the things you have written have stayed in

> my mind and helped

> me greatly. When you talked once about the mom with

> the child who was

> not walking yet etc. and this mom was talking about

> how well your

> child was sitting etc. it was exactly what I needed

> to hear, thanks!

> Just wanted to let you know. Dawn, mom to , 4

>

>

>

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