Re: Im not a hypocondriac or am i, please someone tell me

[Guest guest]

hi amy, your not crazy you have lyme. been there done that went down the doctor

road its very frustrating. steroids are bad for people with lyme as they turn

off your immune system. come on over to lymestrategies@ check out

the salt/c protocol. hang in there! kurt.

AMY GARRISON <amylv_76@...> wrote: i was diagnosed with lyme in

92 when i was 17, tick bit me on back on

neck , had headache , stiff neck , weak knees, hurt all over , went to

er and they did lyme titer western blot came back positive, took 3

weeks doxycycline and thought it was cured, until 5 years down the

road , dx's with following , mitral valve prolapse all test for

arthritis negative but my body said other wise, hurt in all joints ,

carpal tunnel, tarsal tunnel , short term memory loss, i now have

palps like crazy, hurt like an 80 year old , never been in any

accidents , have two hernitated discs in neck , bursitis in shoulder,

a bone deformatity in ankle , lumbar herniated disc, severe depression

cuz i hurt, burn up into back of head like a pinched nerve , short

nerve memory loss and hard to concentrate on anything, periods are so

irregular. and i can go on and on ...people think i'm a hypocondriac

and just want meds , they think i'm a druggy cuz i need pain meds in

order to function and not hurt . i have no lyme doctor, and not being

treated my doctor did put me on metrol pack which is steriod cuz my

neck and shoulder killing me. ...this is 3rd day, i'm hurting so bad

now , i'm irratible and mad at the world and really being irrational

toward family, i'm 30 trapped in a 80 year olds body but look 17 on

the outside , tonite my rib cage is killing me, my hips, knees and

head all hurt....i feel like i'm be a cry baby , i need support people

from all of you , i really need a lyme specialist , i'm in owensboro

kentucky...please get back at me with this , do i have chronic lyme or

am i really a hypocondrianic.....help me in kentucky

[Guest guest]

Sounds like Lyme to me - The one thing my Lyme dr said to me in a VERY serious

voice - NEVER TAKE STERIODS - so that is NOT an option for me - I stayed on

antib - for about 5 years and i AM 99% better. Its so very hard Amy - but you

are very BLESSED that your lyme test came back pos. - All my lyme test came back

accute positive for lyme .- that is such a blessing! Just think of the poor

people who feel like you and felt like i did and the test come back negative.

Atleast you have a direction to go. I had so many dr tell me i did not have

lyme but i knew i had the pos test and all the pain that went with this horrible

disease. I stood my ground - found a dr that would treat me - stuck with it -

PRAYED - and I AM BETTER. My advice is - Never use the word hypocondriac again

- you saw the tick - you got pos test - you have the symtoms - so take the next

step to fight this disease - Find a GOOD Lyme dr - READ the Lyme books - Pray -

and start FIGHTING the disease. Good

luck on your recovery! YOU CAN GET BETTER!!

AMY GARRISON <amylv_76@...> wrote: i was

diagnosed with lyme in 92 when i was 17, tick bit me on back on

neck , had headache , stiff neck , weak knees, hurt all over , went to

er and they did lyme titer western blot came back positive, took 3

weeks doxycycline and thought it was cured, until 5 years down the

road , dx's with following , mitral valve prolapse all test for

arthritis negative but my body said other wise, hurt in all joints ,

carpal tunnel, tarsal tunnel , short term memory loss, i now have

palps like crazy, hurt like an 80 year old , never been in any

accidents , have two hernitated discs in neck , bursitis in shoulder,

a bone deformatity in ankle , lumbar herniated disc, severe depression

cuz i hurt, burn up into back of head like a pinched nerve , short

nerve memory loss and hard to concentrate on anything, periods are so

irregular. and i can go on and on ...people think i'm a hypocondriac

and just want meds , they think i'm a druggy cuz i need pain meds in

order to function and not hurt . i have no lyme doctor, and not being

treated my doctor did put me on metrol pack which is steriod cuz my

neck and shoulder killing me. ...this is 3rd day, i'm hurting so bad

now , i'm irratible and mad at the world and really being irrational

toward family, i'm 30 trapped in a 80 year olds body but look 17 on

the outside , tonite my rib cage is killing me, my hips, knees and

head all hurt....i feel like i'm be a cry baby , i need support people

from all of you , i really need a lyme specialist , i'm in owensboro

kentucky...please get back at me with this , do i have chronic lyme or

am i really a hypocondrianic.....help me in kentucky

---------------------------------

Don't be flakey. Get for Mobile and

always stay connected to friends.

[Guest guest]

O AMY AS A 66/YO/M THAT GO THROUGH THAT EVERY DAY FINE YOUR SELF A GOOD LLMD TO

HELP YOU THROUGHT. YOU NEED SOME HELP THE LLMD SHOULD BE ABLE TO HELP. BUD

AMY GARRISON <amylv_76@...> wrote: i was diagnosed with lyme in

92 when i was 17, tick bit me on back on

neck , had headache , stiff neck , weak knees, hurt all over , went to

er and they did lyme titer western blot came back positive, took 3

weeks doxycycline and thought it was cured, until 5 years down the

road , dx's with following , mitral valve prolapse all test for

arthritis negative but my body said other wise, hurt in all joints ,

carpal tunnel, tarsal tunnel , short term memory loss, i now have

palps like crazy, hurt like an 80 year old , never been in any

accidents , have two hernitated discs in neck , bursitis in shoulder,

a bone deformatity in ankle , lumbar herniated disc, severe depression

cuz i hurt, burn up into back of head like a pinched nerve , short

nerve memory loss and hard to concentrate on anything, periods are so

irregular. and i can go on and on ...people think i'm a hypocondriac

and just want meds , they think i'm a druggy cuz i need pain meds in

order to function and not hurt . i have no lyme doctor, and not being

treated my doctor did put me on metrol pack which is steriod cuz my

neck and shoulder killing me. ...this is 3rd day, i'm hurting so bad

now , i'm irratible and mad at the world and really being irrational

toward family, i'm 30 trapped in a 80 year olds body but look 17 on

the outside , tonite my rib cage is killing me, my hips, knees and

head all hurt....i feel like i'm be a cry baby , i need support people

from all of you , i really need a lyme specialist , i'm in owensboro

kentucky...please get back at me with this , do i have chronic lyme or

am i really a hypocondrianic.....help me in kentucky

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.

[Guest guest]

You are NOT a hypcondrianic! So many lyme patients get accused of it

and it tics me off! About a year after I was diagnosed and considered

" cured " of lyme, a DR gave me prednisone for arthritic pain. I thought

I was going to die after the first night! I didn't know any better and

took 5 more pills the next morning. I called the DR and he said to go

off right away. After that I developed bells palsy and every thing

that was wrong pryor to the prednisone was 100 times worse. I

developed severe neuro issues, bad pain and fatigue and I walked

awkward for several months. I got online and read an article about

lyme disease and the severe effects steroids can have on a lyme

patient. It said to NEVER take steroids if you have lyme that it can

cripple and kill, it makes the infection worse. I freaked out and

found a lyme literate DR right away. I was re-diagnosed with lyme

babesia and bartenella. I urge you to get to a lyme literate DR right

away. We can help you find one in your area if you need help with that

or ck out lymenet.org I don't mean to scare you but it is urgent you

get proper diagnosis and treatment.

>

> i was diagnosed with lyme in 92 when i was 17, tick bit me on back on

> neck , had headache , stiff neck , weak knees, hurt all over , went to

> er and they did lyme titer western blot came back positive, took 3

> weeks doxycycline and thought it was cured, until 5 years down the

> road , dx's with following , mitral valve prolapse all test for

> arthritis negative but my body said other wise, hurt in all joints ,

> carpal tunnel, tarsal tunnel , short term memory loss, i now have

> palps like crazy, hurt like an 80 year old , never been in any

> accidents , have two hernitated discs in neck , bursitis in shoulder,

> a bone deformatity in ankle , lumbar herniated disc, severe depression

> cuz i hurt, burn up into back of head like a pinched nerve , short

> nerve memory loss and hard to concentrate on anything, periods are so

> irregular. and i can go on and on ...people think i'm a hypocondriac

> and just want meds , they think i'm a druggy cuz i need pain meds in

> order to function and not hurt . i have no lyme doctor, and not being

> treated my doctor did put me on metrol pack which is steriod cuz my

> neck and shoulder killing me. ...this is 3rd day, i'm hurting so bad

> now , i'm irratible and mad at the world and really being irrational

> toward family, i'm 30 trapped in a 80 year olds body but look 17 on

> the outside , tonite my rib cage is killing me, my hips, knees and

> head all hurt....i feel like i'm be a cry baby , i need support people

> from all of you , i really need a lyme specialist , i'm in owensboro

> kentucky...please get back at me with this , do i have chronic lyme or

> am i really a hypocondrianic.....help me in kentucky

>

[Guest guest]

You know, I have been feeling like that myself. I don't think anyone knows the

extent of this disease. I just keep praying. I have started antiobiotics about 2

weeks ago and my LLMD is refilling me for a month with artemisinin. I am hoping

that will be enough to take care of this, though I don't know. My herxes have

been off and on. Some days, I feel phenomenally well, other days are worse than

others and so goes the merry go round. But, I have felt a lot better overall

since I have been on meds. And that has been my fear as well, developing a sort

of codependancy to the meds. I am not saying that that is your case, but it's

just my fears. I don't want to be on meds for the rest of my life, but then at

the same time I feel like I need the meds just to reassure me that I won't risk

a relapse, which scares me to death. I know how bad things were when it was

acute and it scares me out of my mind to be back at that place. Well...I don't

know if my ranting has helped any. I

just wanted to let you know that I know the feeling and I can relate. Take

Care, Edith.

AMY GARRISON <amylv_76@...> wrote: i was diagnosed with lyme in

92 when i was 17, tick bit me on back on

neck , had headache , stiff neck , weak knees, hurt all over , went to

er and they did lyme titer western blot came back positive, took 3

weeks doxycycline and thought it was cured, until 5 years down the

road , dx's with following , mitral valve prolapse all test for

arthritis negative but my body said other wise, hurt in all joints ,

carpal tunnel, tarsal tunnel , short term memory loss, i now have

palps like crazy, hurt like an 80 year old , never been in any

accidents , have two hernitated discs in neck , bursitis in shoulder,

a bone deformatity in ankle , lumbar herniated disc, severe depression

cuz i hurt, burn up into back of head like a pinched nerve , short

nerve memory loss and hard to concentrate on anything, periods are so

irregular. and i can go on and on ...people think i'm a hypocondriac

and just want meds , they think i'm a druggy cuz i need pain meds in

order to function and not hurt . i have no lyme doctor, and not being

treated my doctor did put me on metrol pack which is steriod cuz my

neck and shoulder killing me. ...this is 3rd day, i'm hurting so bad

now , i'm irratible and mad at the world and really being irrational

toward family, i'm 30 trapped in a 80 year olds body but look 17 on

the outside , tonite my rib cage is killing me, my hips, knees and

head all hurt....i feel like i'm be a cry baby , i need support people

from all of you , i really need a lyme specialist , i'm in owensboro

kentucky...please get back at me with this , do i have chronic lyme or

am i really a hypocondrianic.....help me in kentucky

---------------------------------

Get your own web address.

Have a HUGE year through Small Business.

[Guest guest]

5 yrs on antibiotics? Wow, I was hoping to get this with a month! I guess that

was wishful thinking on my part. How would you know if you need more than month?

Is it just based on monitoring your symptoms? I have been infected for 7 months.

And that is considered still early lyme, so the protocol is 4-6 wks. How would I

know if I need more time?

Oh and I yet have to have my exams done by Igenex. Could that effect my test

results? So far, I have had coinfections tests done and a vitamin B panel. One

co infection came back with M pneumnoia SP? And I am vitiman B deficient, which

explain the tingling nad heart palpatations. Anyhow....I really want to get

this, as I am sure we all do. Thank you, Edith.

Carolyn Luken <dedee5858@...> wrote:

Sounds like Lyme to me - The one thing my Lyme dr said to me in a VERY

serious voice - NEVER TAKE STERIODS - so that is NOT an option for me - I stayed

on antib - for about 5 years and i AM 99% better. Its so very hard Amy - but you

are very BLESSED that your lyme test came back pos. - All my lyme test came back

accute positive for lyme .- that is such a blessing! Just think of the poor

people who feel like you and felt like i did and the test come back negative.

Atleast you have a direction to go. I had so many dr tell me i did not have lyme

but i knew i had the pos test and all the pain that went with this horrible

disease. I stood my ground - found a dr that would treat me - stuck with it -

PRAYED - and I AM BETTER. My advice is - Never use the word hypocondriac again -

you saw the tick - you got pos test - you have the symtoms - so take the next

step to fight this disease - Find a GOOD Lyme dr - READ the Lyme books - Pray -

and start FIGHTING the disease. Good

luck on your recovery! YOU CAN GET BETTER!!

[Guest guest]

After 7 months, there is a good chance that you can clear up a LD

infection with 1 to 3 months of oral abx treatment, basically you will

probably be able to tell because the symptoms will disappear, but give

it another month just to make sure.

cheers

Duncan

> Sounds like Lyme to me - The one thing my Lyme dr said to

me in a VERY serious voice - NEVER TAKE STERIODS - so that is NOT an

option for me - I stayed on antib - for about 5 years and i AM 99%

better. Its so very hard Amy - but you are very BLESSED that your lyme

test came back pos. - All my lyme test came back accute positive for

lyme .- that is such a blessing! Just think of the poor people who

feel like you and felt like i did and the test come back negative.

Atleast you have a direction to go. I had so many dr tell me i did not

have lyme but i knew i had the pos test and all the pain that went

with this horrible disease. I stood my ground - found a dr that would

treat me - stuck with it - PRAYED - and I AM BETTER. My advice is -

Never use the word hypocondriac again - you saw the tick - you got pos

test - you have the symtoms - so take the next step to fight this

disease - Find a GOOD Lyme dr - READ the Lyme books - Pray - and start

FIGHTING the disease. Good

> luck on your recovery! YOU CAN GET BETTER!!

>

[Guest guest]

hi edith, are you sure its only a 7 month infection? im 42 and have had lyme for

42 years. actually dont use abx to treat anymore im using alternative. something

to think about, kurt.

Edith Guzman <edcguzman@...> wrote: 5 yrs on antibiotics? Wow, I

was hoping to get this with a month! I guess that was wishful thinking on my

part. How would you know if you need more than month? Is it just based on

monitoring your symptoms? I have been infected for 7 months. And that is

considered still early lyme, so the protocol is 4-6 wks. How would I know if I

need more time?

Oh and I yet have to have my exams done by Igenex. Could that effect my test

results? So far, I have had coinfections tests done and a vitamin B panel. One

co infection came back with M pneumnoia SP? And I am vitiman B deficient, which

explain the tingling nad heart palpatations. Anyhow....I really want to get

this, as I am sure we all do. Thank you, Edith.

Carolyn Luken <dedee5858@...> wrote:

Sounds like Lyme to me - The one thing my Lyme dr said to me in a VERY serious

voice - NEVER TAKE STERIODS - so that is NOT an option for me - I stayed on

antib - for about 5 years and i AM 99% better. Its so very hard Amy - but you

are very BLESSED that your lyme test came back pos. - All my lyme test came back

accute positive for lyme .- that is such a blessing! Just think of the poor

people who feel like you and felt like i did and the test come back negative.

Atleast you have a direction to go. I had so many dr tell me i did not have lyme

but i knew i had the pos test and all the pain that went with this horrible

disease. I stood my ground - found a dr that would treat me - stuck with it -

PRAYED - and I AM BETTER. My advice is - Never use the word hypocondriac again -

you saw the tick - you got pos test - you have the symtoms - so take the next

step to fight this disease - Find a GOOD Lyme dr - READ the Lyme books - Pray -

and start FIGHTING the disease. Good

luck on your recovery! YOU CAN GET BETTER!!

[Guest guest]

Hi, Amy,

When Dr. Fallon spoke at the Lyme Rights Rally in November, he said

that he had studied people with Lyme Disease, and people with

Hypochondriasis. He had a questionaire that he used to test for

hypochondria, and he decided to give it to Lyme patients to see what

differences he might find in the answers given.

There were two questions that could be used to differentiate between

the two groups.

1. Do you feel the medical profession is taking your illness

seriously enough?

Lymies said no - Hypochondriacs said yes.

2. Do you worry about catching diseases and illnesses you hear about

in the news?

Lymies said no - Hypochondrics said yes.

Dr. Fallon is a well-respected Clinical Psychologist, researcher and

author affiliated with Columbia University. He knows his sh*t.

So, how'd you answer the questions?

Best of luck finding treatment. Please look into alternative

therapies while you look for an LLMD. Salt/C helps many people. See

the Lyme strategies list at

lymestrategies/

It's cheap, and you can get started right away (as long as you don't

have high blood pressure).

And the -Buhner list discusses his herbal protocol.

/

Buy Buhner's book. It's the best darn Lyme primer out there, and the

herbs he recommends will help you.

http://www.amazon.com/Healing-Lyme-Prevention-Borreliosis-Coinfections/dp/097086\

9630

Be sure to check out his website for corrections to the book:

http://www.gaianstudies.org/errors-corrections.htm

And join 's website - Planet Thrive - for ongoing Q & A with

Buhner. http://planetthrive.com

Also consider looking into heavy metal intoxication, dental amalgam

illness... There are that discuss this as well.

adult-metal-chelation/?yguid=163720716

frequent-dose-chelation/?yguid=163720716

Take care, and good luck!!!

D.

[Guest guest]

The lyme was and still is in my nervous system. Once it reaches the nervous

system its much harder to cure. I tried to get off all antib after about 3

months but the symptoms returned almost immediately. My plan was to stay on the

anti until all my symptoms were completely gone. I could never reach that goal.

But finally i got to the point where i could go days without any symptoms - then

weeks. Slowly i cut back on the anti. I am still weak on my right side . The

twitching - esp in my legs - i still suffer with - esp around my monthly cycles.

I do not feel like i am cured but i do feel like my body is strong enough to

keep this disease in check. I have been off all anti for the last three years.

The horrible neck pain and pressure in my head is gone - electric shocks around

my mouth is gone - cramping in my back and legs is gone- numbness is gone - bone

pain is gone - sensitivity to touch ( when i would scratch my scalp it felt like

i was clawing myself - or if

someone barely touched my it felt like they hit me) joint pain is gone -

tremors is gone - muscle spasms are gone - bright flashes of light are gone - so

many i cant even remember them all . I have three friends who have lyme - one

found a tick and the red circle rash - i told him to take pictures of the rash

and sent him to my dr - the test came back positive - he was on 3 months of

strong anti - He stared treatment within 7 days of the tick bite - He is cured -

Two more of my friends refuse to believe they have lyme disease and are

suffering daily pain but will not look into the possibility they have lyme. Drs

tell them they do NOT have lyme cause the test came back negative - they refuse

to even see my lyme dr. or read a book about lyme. They have a blind faith in

Drs that know NOTHING about lyme. - Good luck with your fight!

Edith Guzman <edcguzman@...> wrote: 5 yrs

on antibiotics? Wow, I was hoping to get this with a month! I guess that was

wishful thinking on my part. How would you know if you need more than month? Is

it just based on monitoring your symptoms? I have been infected for 7 months.

And that is considered still early lyme, so the protocol is 4-6 wks. How would I

know if I need more time?

Oh and I yet have to have my exams done by Igenex. Could that effect my test

results? So far, I have had coinfections tests done and a vitamin B panel. One

co infection came back with M pneumnoia SP? And I am vitiman B deficient, which

explain the tingling nad heart palpatations. Anyhow....I really want to get

this, as I am sure we all do. Thank you, Edith.

Carolyn Luken <dedee5858@...> wrote:

Sounds like Lyme to me - The one thing my Lyme dr said to me in a

VERY serious voice - NEVER TAKE STERIODS - so that is NOT an option for me - I

stayed on antib - for about 5 years and i AM 99% better. Its so very hard Amy -

but you are very BLESSED that your lyme test came back pos. - All my lyme test

came back accute positive for lyme .- that is such a blessing! Just think of the

poor people who feel like you and felt like i did and the test come back

negative. Atleast you have a direction to go. I had so many dr tell me i did not

have lyme but i knew i had the pos test and all the pain that went with this

horrible disease. I stood my ground - found a dr that would treat me - stuck

with it - PRAYED - and I AM BETTER. My advice is - Never use the word

hypocondriac again - you saw the tick - you got pos test - you have the symtoms

- so take the next step to fight this disease - Find a GOOD Lyme dr - READ the

Lyme books - Pray - and start FIGHTING the disease. Good

luck on your recovery! YOU CAN GET BETTER!!

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.