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Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in

series. This was best thing I ever read explaining in " dummy " terms what is

going on. Good luck. Vickie

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To GI-World-Hepatitisonelist

Please take me off this list. I " m flooded with to much mail signed

marey@...

VJannell@... wrote:

> From: VJannell@...

>

> Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in

> series. This was best thing I ever read explaining in " dummy " terms what is

> going on. Good luck. Vickie

>

> ---------------------------

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  • 1 month later...
Guest guest

That would be incredibly sad should anyone on this list or in the dwarf

community discriminate against someone because of their height.

However, with any crowd of people their will be a few. I can only speak for

myself when I say, height doesn't matter. Helen's quote about the package

speaks volumes.

Karin (who gained an inch and a quarter with her hip surgery and is now 4'4

1/8 " ).

>From: ABritt1041@...

>

> I have a question for anyone who is willing to help set my mind at ease.

my

>son who is now 17 months old has been diagnosed as being hypochondroplasia

>and I wonder about something. Didn't I read that the LPA is for 4`10 " and

>under? If so where does this leave him if he were to be on the taller end

of

>the growth scale? Will he not fit in with the people of LPA and also not

fit

>in with the average size folks? I just fear the possibility of him falling

>between the cracks so to speak. Also anyone who is hypo ,any input you can

>give me about your experience growing up as far as ant medical problems

would

>really hepl me know should a problem come up that I may not be aware of

that

>would need attention. We are still new to LPA and are trying to learn all

we

>can.

>Thanks

>Angie

>

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Many years ago LPA starte rephasing the membership height issue for the

very reason you are asking.

Most of the time the current literature and thinking goes something like

this.

.. . .4' 10 " or less or a medical diagnosis of dwarfism.

Marge

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  • 3 weeks later...
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Dear Hoppy,

There is supposedly a certain percentage of people who get it and it

does NOT turn chronic. What bothers me about this is that there can be an

undetectable viral load, and really there is still virus lying dormant in

the liver and eventually it will start multiplying. This is still such a

" new " disease and so much is still being learned about it. I don't think it

is safe for anyone to consider themselves cured, not at this point. It is

safer to assume you might be contagious and it could turn active/chronic.

(My opinion)

CC

>From: " Weiss " <hoppyweiss@...>

>Reply-Hepatitis Conelist

>Hepatitis Conelist

>Subject: Question

>Date: Fri, 17 Mar 2000 20:48:11 PST

>

>Asking for your thoughts. My mother was told a month ago she had hepatitis

>C. Now she is telling me her doctor told her she fought off the virus and

>no longer has it. I am concerned that she has shut us off from her

>problem.

> If it is possible for the virus to be eliminated by the immune system

>please let me know.

>

>Hoppy

>______________________________________________________

>Get Your Private, Free Email at http://www.hotmail.com

>

______________________________________________________

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Hi ,

I was told the exact same thing from my doctor. They told me that sometimes

happens. I don't buy that unless I have proof supporting that. I need to get

a second opinon w/ tests supporting their findings whatever they may be. I

just haven't done that yet. For some reason I just keep putting it off. I

would probably get a second opinion. For at least to put hers and your own

mind at rest. Good luck to you and keep us posted.

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Hoppy yes it is possible to fight it off... about 15% of people do with hep

c.. the only way to know that is to have a PCR (viral load) test and if it

is negative she MAY have fought it off (the test measures at best down to

200). Has she had a pcr and liver biopsy yet? those are to me the absolute

minimum for hep c antibody pos person.

alley/

ICQ 12631861

alleypat@...

http://micromagic.net/~alleypat

<center>

<a

href= " /subscribe/DFW_Liver_Disease " >

<img src= " /images/join.gif "

border=0><br>

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Hoppy............that could definitely be true...for some reason some people

CAN fight off HCV. She will probably be watched and tested every so often

(RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If

her PCR is undetectable and remains that way..she has indeed been able to

fight HCV with her own immune system. It happens. She is most likely being

honest with you....and in case she's not, you'll have to respect how she has

decided to deal with this...love, mzg

" We can do no great things; only small things with great Love. " Mother

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Hoppy............that could definitely be true...for some reason some people

CAN fight off HCV. She will probably be watched and tested every so often

(RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If

her PCR is undetectable and remains that way..she has indeed been able to

fight HCV with her own immune system. It happens. She is most likely being

honest with you....and in case she's not, you'll have to respect how she has

decided to deal with this...love, mzg

" We can do no great things; only small things with great Love. " Mother

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Hoppy............that could definitely be true...for some reason some people

CAN fight off HCV. She will probably be watched and tested every so often

(RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If

her PCR is undetectable and remains that way..she has indeed been able to

fight HCV with her own immune system. It happens. She is most likely being

honest with you....and in case she's not, you'll have to respect how she has

decided to deal with this...love, mzg

" We can do no great things; only small things with great Love. " Mother

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Guest guest

Hoppy............that could definitely be true...for some reason some people

CAN fight off HCV. She will probably be watched and tested every so often

(RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If

her PCR is undetectable and remains that way..she has indeed been able to

fight HCV with her own immune system. It happens. She is most likely being

honest with you....and in case she's not, you'll have to respect how she has

decided to deal with this...love, mzg

" We can do no great things; only small things with great Love. " Mother

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  • 4 weeks later...
Guest guest

Give the Prozac time to work, it can take several weeks, and you may

need a dose increase too if it is only a small dose. My son was on both

Wellbutrin and Prozac together for a while and it worked great for him.

Don't give up on it yet.

I stopped treatment for 2 weeks once before starting high dose, and I

was going camping in a very remote location where refrigeration/ice would be

a problem. The depression was worse those 2 weeks, not better. I actually

felt better when I came home (early due to my extreme grouchiness) and went

ahead and got started on the high dose! Maybe it was the anticipation making

me feel so awful, I don't know. But I don't think stopping for a week will

help at all. The medication wouldn't even work out of your system that fast

I don't think. It would give the virus a chance to rebound though!

I know how you feel, the depression was so awful. I was either crying

or bitching. I would go around looking for something to complain about! I

even knew I was doing it, and I wanted to stop, but I just couldn't! So

that made me feel even worse. I was miserable, and sometimes all I wanted

to do was wallow in my misery! I had a perpetual pity party going for a

while there! I am so lucky my family put up with me, because I sure took a

lot out on them. My husband would walk around saying 'it's just the

medicine, it's just the medicine', like some kind of chant! He must have

wanted to strangle me, and looking back, I don't blame him!

I still have my down days even though I'm not on combo any more. One

thing that I've found that really helps is writing to friends I've made on

my e-mail support groups like this one. It doesn't even really matter what

response I get, I think it's more just that writing it all out seems to take

it OUT of me, and ON (in?) to the computer!

Hopefully the Prozac will start to kick in soon. I'm almost positive

it took about 3 - 4 weeks for it to really be helping my son.

I hope things get better for you soon. Take care, and you can write to me

anytime if you want to.

Claudine

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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The Wellbutrin and Prozac will cause you to have no

interest in sex. I was on antidepressants and I quit

them and did not tell Dr I felt more depressed on

them. By any chance did you get Fibromyalgia also? I

have it and it makes you ache bad....Connie

I also have insomnia. They prescribed 100 mgs a night

of Amitryptilimine (Elavil) for the Fibromyalgia.

--- kalidurga@... wrote:

> I am in my eight month of the combo and most of the

> physical side

> affects are gone, except being tired, and having

> sore arms if i sleep

> too long on one side at night. I was on Interferon

> alone in 1993 and i

> did it for six months, so i didnt know what to

> expect after the six

> month mark this time.

> well beside having NO interest in sex, which is fine

> with me, I have

> been getting depressed alot. I am on Wellbutrin,

> because of my history

> of depression, and now my psychiatrist just started

> me on a low dose of

> Prozac also. I havent told me specialist or primary

> care, because they

> said they would never have put me on it, unless was

> on meds for the

> depression. now that the depression seems to be

> hitting me stronger, i

> dont want them to pull me off the meds. My viral

> load and labs are good.

> Im genotype 1b and need to stay on for 48 weeks.

> My question;

>

> is it wise to take a week or so off to take a rest

> from the drugs? will

> that take away from the depression if i do take a

> week or so off? Or

> would that be dumb, and not be good for my liver?

>

> The depression just was starting to bother me the

> day after the shot, i

> do mine at 9 pm, so the next morning i am pretty

> wiped out and down. but

> now it seems to have a mind of its own. it just hits

> me. i could be

> laughing with a friend, or watching tv, or someone

> might say something

> and 'pow', i literally feel myself falling into a

> depression. i hate it,

> because i reminds me of when i was a child.

>

> i know a side affect is depression from the combo,

> but as anyone else

> actually stoped the combo for a short while? and if

> so, did it help?

>

> i am 31 years old and have not been this depressed

> since my teenage

> years. i have always worked ALOT and i am known for

> my energy, which

> bothers me now since i have none, i am a vegetarian

> and eat healthy,

> dont drink or smoke or do drugs. i am not working,

> which i think makes

> me feel isolated, but sometimes i am wiped out, i do

> get out and walk my

> dog 1 to 3 hours a day, i live near a fenced dog

> park in the city and i

> socialize alot there, that helps.

> but i a so sick of the ups and downs. this is how i

> know its the combo.

>

> i hate to vent, i dont post much. i have joined many

> onelist groups,

> ones for; hep, depression, loneliess and i was

> hoping that would help.

>

> the two hep support groups here in boston are once a

> month, and i was

> told they are basically medically orientated, and

> not like a support

> group to talk about emotions.

>

> if anyone has any suggestions PLEASE get back to me.

> i want to fight

> this awful disease. i just had a frend who had a

> kidney transplant, his

> sisters gave him one, WOW!!!, and it really hit home

> to what may lie

> ahead.

>

> im open for suggestions.

> Thanks.

>

>

__________________________________________________

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kalidurga@... wrote:

>

> . . . is it wise to take a week or so off to take a rest from the drugs? will

> that take away from the depression if i do take a week or so off? Or

> would that be dumb, and not be good for my liver?

I'm so sorry that you are having such a rough time, darling. Please

just try to hang in there.

I do know that after four weeks on the combo, my Big Sis was pulled off

because her system was crashing. She had two transfusions, and after a

week of rest, jumped in there again -- starting with just the

Interferon. Ten days of just Interferon, and she is just now easing

into the ribarivin (2 pills a day -- not 5, as is recommended).

She was telling me that it is much rougher in some ways adjusting after

taking a week or two off.

But again, everyone responds differently. It may be that you need a

week or so off. But just be prepared for the fact that if you do take

off, getting back on may take you back to the place you were at when you

first started the combo. If it wasn't that bad for you (and God

willing, it wasn't), then it may not be too bad.

I'm anxious to read the others responses. I'm curious.

Warm hugs,

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I don't know much about treatment except what I read and what others have

said. It is known that interferon causes depression. I know what you mean

tho about not telling gp. My gp told me to do aerobics last time I mentioned

I was so tired and could he help with it. <sigh> My gastro put me in Celexa

(after trying zoloft which made me rather blah all the time) and asked if I

could have my gp start writing the scripts for that and the Celebrex. I said

yes I'll ask, but he isn't up on hep and I try to educate him as much as I

can. So I go in to see doc yesterday (sat) and he had the day off, his doc

assistant was there. I may just fax him a letter as I can never talk to him

on the fone, he's a great guy, at least he listens when I make him listen

hahaha. Anyway, big hugs to you and I'm not sure you should stop a week on

the combo. I hope you can just to take a break. Let us know what happens :)

Best to ask your specialist/gastro.

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

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I don't know much about treatment except what I read and what others have

said. It is known that interferon causes depression. I know what you mean

tho about not telling gp. My gp told me to do aerobics last time I mentioned

I was so tired and could he help with it. <sigh> My gastro put me in Celexa

(after trying zoloft which made me rather blah all the time) and asked if I

could have my gp start writing the scripts for that and the Celebrex. I said

yes I'll ask, but he isn't up on hep and I try to educate him as much as I

can. So I go in to see doc yesterday (sat) and he had the day off, his doc

assistant was there. I may just fax him a letter as I can never talk to him

on the fone, he's a great guy, at least he listens when I make him listen

hahaha. Anyway, big hugs to you and I'm not sure you should stop a week on

the combo. I hope you can just to take a break. Let us know what happens :)

Best to ask your specialist/gastro.

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

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Kalidurga - try lifting small (1 or 2 lbs. weights) everyday. It really

works. And definitely the walking is great, keep it up after tx. Make it

your addiction for the rest of your life - LOL!

I've had good success with Celexa. I know everyone is different...but I'm

just throwing in my 2 cents. Do rent funny movies and stay away from tragic

health movies. Go for slash and burn, also adventure stuff. Take your mind

off things.

Peace,

Jane

<< , except being tired, and having

> sore arms if i sleep

> too long on one side at night. I was on Interferon

> alone in 1993 and i

> I have

> been getting depressed alot. I am on Wellbutrin,

> because of my history

> of depression, and now my psychiatrist just started

> me on a low dose of

> Prozac also >>

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  • 1 month later...
Guest guest

Dear Micky,

No one, of course, can really say what to do, we don't know the

particulars of his situation, exactly how low his platelets are, and we're

not doctors. But, I do know that there is new evidence out that

interferon can help those with cirrhosis, even moving those with

decompensated cirrhosis into compensated cirrhosis. If interferon is

something he chooses, he will definitely need careful monitoring. He may

choose a low dose of interferon, hoping more for an improvement in his liver

condition than for a cure. Something else he may look into would be

ursodeoxycholic acid (UDCA) treatment. This has been found to help liver

function, especially in cirrhotics. I have some info on it somewhere, I'll

try to find it and post it. I do agree with all you were saying about

improving lifestyle and diet, but I think he need more than just that, if

all he has to look forward to at this point is a transplant. Let's face it,

there just aren't enough livers for all who need them, so I know I'd rather

try just about anything to avoid getting to that point. A naturopath may

help with ideas also. I will try to send whatever info I have on this.

Good luck to you and your friend.

Claudine

>From: " micky woolf " <micky@...>

..

>He has a coagulation problem, ascites and low platelets and cirrhosis

>(I don't know what stage). His doctor told him that he couldn't give

>him any treatment due to his situation and said that in 5 years he

>will probably be on the transplant list.

>This man is desperate and really wants to try the combo, even though

>he was advised not to.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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jeannine wrote:

> Hi every one, I would like to rid my bowel of all the undigested stuff in

> it, but I would like to know if it is possible to do so without colonics

> (not sure what that is anyways...) or enemas. My bowels are very irritable

> and I am affraid to hurt them with enemas and such things. Is there a fast

> or diet that will rid them of all the scum and is it possible to identify

> that stuff in the stool???

I'm sure that there are people better qualified to answer that than I, and I

will defer to their answers, but as a start, usually gentle enemas will provide

some relief to bowel,

irritability. The key word is gentle, using just warm water with baking soda, 1

tsp. per quart. Warm is a comfortable bath temperature, warmer than body

temperature. Start with a full bag,

but only take as much as is comfortable, probably a pint or two, but maybe a cup

or less the first time.

A " colonic " is a continuous enema or a series of enemas with the nozzle kept in

place. One method has the " patient " lying over a drain, a small nozzle is used

but kept in place by a bracket;

the patient expels around the nozzle whenever he/she feels enough pressure to

want to. The other method uses a larger nozzle and a machine with valves so that

alternately clean water is

injected and the effluent is drained through the same nozzle. Either method can

qualify as gentle.

Hope this helps.

Aquarius

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>Thanks aquarius. the thing is, I have some sort of hemophilia. It's not

very bad but my blood vessels are more delicate than most people and my

tissues tear easily. That's why I am looking for a diet/fast rather than

an enema type of thing. I am afraid the pressure will tear my intestins and

make me bleed. (This type of hemophilia is called Von Willebrand after the

guy who found it)

thanks. Janie

>I'm sure that there are people better qualified to answer that than I, and

I will defer to their answers, but as a start, usually gentle enemas will

provide some relief to bowel,

>irritability. The key word is gentle, using just warm water with baking

soda, 1 tsp. per quart. Warm is a comfortable bath temperature, warmer than

body temperature. Start with a full bag,

>but only take as much as is comfortable, probably a pint or two, but maybe

a cup or less the first time.

>

>A " colonic " is a continuous enema or a series of enemas with the nozzle

kept in place. One method has the " patient " lying over a drain, a small

nozzle is used but kept in place by a bracket;

>the patient expels around the nozzle whenever he/she feels enough pressure

to want to. The other method uses a larger nozzle and a machine with valves

so that alternately clean water is

>injected and the effluent is drained through the same nozzle. Either method

can qualify as gentle.

>

>Hope this helps.

>

>Aquarius

>

>

>------------------------------------------------------------------------

>Old school buds here:

>1/4057/1/_/478268/_/959534578/

>------------------------------------------------------------------------

>

>Subscription email: bowel cleanse-subscribeegroups

>

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Guest guest

You can do the Arise & Shine program without enema's. You will increase the

number of shakes and pills on the last week of the three week cleanse.

Bernadette

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You can use the salt water cleanse which will rid your colon pronto of its

contents. You put one and a half teaspoons of sea salt (NOT iodized salt)

in a quart of warm water and drink it first thing in the morning, all at

once. Be prepared for toilet duty.

Alternatively, you can buy one or two bottles of magnesium citrate from the

grocery store for about $1.35 each and drink it all down. (If you use both

bottles, do it about 2 hours apart.) This will also clean out your system.

Patty

question

> Hi every one, I would like to rid my bowel of all the undigested stuff in

> it, but I would like to know if it is possible to do so without colonics

> (not sure what that is anyways...) or enemas. My bowels are very

irritable

> and I am affraid to hurt them with enemas and such things. Is there a

fast

> or diet that will rid them of all the scum and is it possible to identify

> that stuff in the stool???

>

>

> ------------------------------------------------------------------------

> Was the salesman clueless? Productopia has the answers.

> 1/4633/1/_/478268/_/959527146/

> ------------------------------------------------------------------------

>

> Subscription email: bowel cleanse-subscribeegroups

>

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Guest guest

Dear Claudine

Thank you for your input.

It is very hard to tell someone to wait, when he knows about the odds.

But I told him what I thought and hope he takes the best decision.

There is now a low form of interferon by Amarillo, have you heard

about it?

Apparently it's still in a study but I know someone who is taking it.

No one really knows the long term effects, but it would be an option,

I guess..

Take care

Micky

> Dear Micky,

> No one, of course, can really say what to do, we don't know

the

> particulars of his situation, exactly how low his platelets are,

and we're

> not doctors. But, I do know that there is new evidence out that

> interferon can help those with cirrhosis, even moving those with

> decompensated cirrhosis into compensated cirrhosis. If interferon

is

> something he chooses, he will definitely need careful monitoring.

He may

> choose a low dose of interferon, hoping more for an improvement in

his liver

> condition than for a cure. Something else he may look into would

be

> ursodeoxycholic acid (UDCA) treatment. This has been found to help

liver

> function, especially in cirrhotics. I have some info on it

somewhere, I'll

> try to find it and post it. I do agree with all you were saying

about

> improving lifestyle and diet, but I think he need more than just

that, if

> all he has to look forward to at this point is a transplant. Let's

face it,

> there just aren't enough livers for all who need them, so I know

I'd rather

> try just about anything to avoid getting to that point. A

naturopath may

> help with ideas also. I will try to send whatever info I have on

this.

> Good luck to you and your friend.

> Claudine

>

>

> >From: " micky woolf " <micky@w...>

> .

> >He has a coagulation problem, ascites and low platelets and

cirrhosis

> >(I don't know what stage). His doctor told him that he couldn't

give

> >him any treatment due to his situation and said that in 5 years he

> >will probably be on the transplant list.

> >This man is desperate and really wants to try the combo, even

though

> >he was advised not to.

>

>

>

>

______________________________________________________________________

__

> Get Your Private, Free E-mail from MSN Hotmail at

http://www.hotmail.com

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  • 1 month later...
Guest guest

<< Is there a test that a naturalpath (or even a GP) would do to find out

if

you're a candidate for Candidiasis? >>

There's a stool sample test for candida; however, most naturopaths advise

that if it walks like a duck and quacks like a duck, it's probably a duck

(read: if you've got health complaints X, Y, and Z, you could benefit from

treatment for candida.) There are candida questionaires in many popular

books about candida. In my opinion, that's the easiest and least expensive

way to find out if you have candida.

*Jami

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