ALS Symptoms and Lyme

[Guest guest]

My husband has ALS symptoms and has been treated for Lyme and is improving -

slowly but improving.

Is he going to an LLMD? I would like to send you the name of an LLMD that

has gone through this and knows how to treat it.

Please write to me at aprow@...

There is also a Lyme ALS group - you should join it and see what

others are doing with success. It's alslyme .

Looking forward to hearing from you,

Ann

In , " march196 " <wmeh@...> wrote:

>

> Hi. My husband is struggling with chronic Lyme and we're puzzled

by

> the fact that his condition continues to worsen although he has

been

> in treatment for nearly 7 months. He tested positive with Igenex

(his

> levels were five times that needed to be positive) and began

> intramuscular and oral antibiotics. He also takes a host of

> supplements and gets B12 and magnesium injections. His symptoms

began

> with twitching in his upper arms and slow or slighly slurred

speech.

> He was diagnosed with ALS last May based on those symptoms. After

> that, we explored the Lyme possibility and he saw a doctor who

tested

> with Igenex. For most of his life he has worked with farm animals

and

> has been bitten by ticks many times, so the Lyme diagnosis seemed

> reasonable to us. Since his treatment began, however, he now has

lost

> most of the use of his right hand and his left is very weak. His

> speech is worse, and his legs are weakening. He uses a walker to

get

> to his vehicle and cannot climb stairs. The doctor says this is

> normal. I guess I am just looking for confirmation that it is

normal!

> I keep wondering whether he should be getting IV antibiotics, or

> trying flagyl. His doctor doesn't use either. We did have one

month

> of IV rocephin and flagyl with another doctor, and it made my

husband

> quite ill. I'm not sure if this was the herxheimer effect. The

only

> herxheimer-like reaction he gets from the intramuscular and oral

> antibiotics is a red flush that spreads over his face and arms,

and

> his skin gets hot to the touch. This happens once every few weeks

it

> seems. Any thoughts out there are appreciated!! We just got

married

> in November and have two children--we are really struggling with

> this! Thanks!