Abx, spinals, etc

[Guest guest]

I don't think that a lumbar puncture/spinal tap is definitive for

neuro Lyme; spirochetes are not always present in the spinal fluid

so the results may be a 'false' negative. Lyme is clinical diagnosis

for a good reason. Initially I consulted an ID doc who would not

treat me unless I had a positive LP. I fired him.

I think anyone who starts on a new antibiotic has to keep in mind

that feeling lousy, nauseous etc may be an indication that the

antibiotic is working. Feeling lousy could result from bug die-off

and actually is a good thing!! I am constantly amazed at how many

people post that they d/c these meds because they feel bad on them.

Expecting that the abx will make you feel better seems misplaced to

me.

When I discontinue my abx/flagyl I start to feel BETTER - more

alert, less woozy etc. I just started back on them today and already

my head is feeling like it gained 50 pounds in the last two hours.

Sometime in January I will be switching to Diflucan and another

antibiotic; believe me, I expect to feel very crappy or worse!

In the meantime, I am doing everything I can(afford) to shore up my

immune system through supplements, diet, salt/c, etc and am

considering RIFE if I can either build one or buy a used machine.

Iam working at bringing as much ammo to bear on the bugs as I can

tolerate!

Diane