Re: I have Lyme AND Dr. Backlash

[Guest guest]

I see him in 4 wks. I actually feel quasey from the doxy. Should I

just tell him his protocol is wrong? I feel like I was hit with a

bomb. A dr. actually said I have lymes.

I went to my family dr. for a shot today and i told her about the

lymes and she said " did he see your tests " ? What did he say about

them? I told her he said they are inacurrate in a nice way. She was a

bit defensive. She said lyme is still an evolution in progress.

She said be careful with all of that doxy and your stomach.

In , " " <betneal@y...> wrote:

>

> I AGREE WITH MILLIE 600 MG SOUNDS CORRECT. YOU NEED A HIGH ENOUGH

> DOSAGE TO KILL THE BUG AND 300 MG A DAY IS NOT ENOUGH.

>

>

> > Congrats on finally getting appropriate treatment. I have heard

he

> > is a really good doc so its great you have someone that knows

what

> > they are doing!

> >

> >

> >

>

[Guest guest]

DOXY IS SO HARD ON THE STOMACH. MAKE SURE TO DRINK A LOT OF WATER AND

TAKE TONS OF PROBIOTICS. MY STOMACH IS REALLY A MESS WITH THE

TINDAMAX. I HAVE LOST 9 LBS! ANYWAY I WOULD SIMPLY STATE THAT MANY

PEOPLE YOU KNOW ON YOUR LYME SUPPORT GROUP AND DR BURRASCANO SUGGESTS

HIGHER DOSES DOXY FOR Bb. HAVE YOU READ HIS 2005 REPORT? TELL HIM MOST

ARE TAKING BETWEEN 4-600 MG DAY. RESEARCH LYME TREATMENT PROTOCOL ON

LINE, SO YOU CAN SEE FOR YOURSELF AND BE CONFIDENT WHEN YOU SPEAK WITH

YOUR DR NEXT. BEING YOUR OWN ADVACATE IS HARD AT FIRST, THAN YOU

REALIZE WHEN NO DR'S ARE LISTENING YOU NEED TO GET TOUGH OR FIND A

LLMD WHO KNOWS THE MOST UP TO DATE TREATMENTS.

I KNOW THIS IS SUCH A SHOCK TO YOU RIGHT NOW AND YOU ARE MOVING ON

AUTO PILOT SO TO SPEAK, BUT IF YOU ARE TAKING ABX FOR LYME YOU NEED A

HIGH ENOUGH DOSE TO DESTROY THE BUG. HOPEFULLY THE QUASEY WILL PASS,

IT DID EVENTUALLY FOR ME WITH THE DOXY.

> > > Congrats on finally getting appropriate treatment. I have heard

> he

> > > is a really good doc so its great you have someone that knows

> what

> > > they are doing!

> > >

> > >

> > >

> >

>

[Guest guest]

Doxy also comes in tablets forms and I find it is much easier on the

stomach. The capsules do me in, but I can handle the tabs. Just ask the

pharmacist and see if it helps.

[ ] Re: I have Lyme AND Dr. Backlash

> DOXY IS SO HARD ON THE STOMACH. MAKE SURE TO DRINK A LOT OF WATER AND

> TAKE TONS OF PROBIOTICS. MY STOMACH IS REALLY A MESS WITH THE

> TINDAMAX. I HAVE LOST 9 LBS! ANYWAY I WOULD SIMPLY STATE THAT MANY

> PEOPLE YOU KNOW ON YOUR LYME SUPPORT GROUP AND DR BURRASCANO SUGGESTS

> HIGHER DOSES DOXY FOR Bb. HAVE YOU READ HIS 2005 REPORT? TELL HIM MOST

> ARE TAKING BETWEEN 4-600 MG DAY. RESEARCH LYME TREATMENT PROTOCOL ON

> LINE, SO YOU CAN SEE FOR YOURSELF AND BE CONFIDENT WHEN YOU SPEAK WITH

> YOUR DR NEXT. BEING YOUR OWN ADVACATE IS HARD AT FIRST, THAN YOU

> REALIZE WHEN NO DR'S ARE LISTENING YOU NEED TO GET TOUGH OR FIND A

> LLMD WHO KNOWS THE MOST UP TO DATE TREATMENTS.

> I KNOW THIS IS SUCH A SHOCK TO YOU RIGHT NOW AND YOU ARE MOVING ON

> AUTO PILOT SO TO SPEAK, BUT IF YOU ARE TAKING ABX FOR LYME YOU NEED A

> HIGH ENOUGH DOSE TO DESTROY THE BUG. HOPEFULLY THE QUASEY WILL PASS,

> IT DID EVENTUALLY FOR ME WITH THE DOXY.

>

>

>

> > > > Congrats on finally getting appropriate treatment. I have heard

> > he

> > > > is a really good doc so its great you have someone that knows

> > what

> > > > they are doing!

> > > >

> > > >

> > > >

> > >

> >

>

>

>

>

>

>

>

>

> For up to date information about Lyme disease and the known co-infections

> delivered to your email address see:

> Robynns_Lyme_List/

>

>

[Guest guest]

Thx. I bought them at his office. They were dirt cheap, cheaper than

my insurance co-pays. I hope this dr. calls me back. I left a

message today that I was having nausea. I have one more to go today.

I really don't care if I pay for them at a pharmacy. I have

insurance and a flex spending account. They are much cheaper than my

other meds.

In , " fsmfarms " <fsmfarms@f...> wrote:

>

> Doxy also comes in tablets forms and I find it is much easier on

the

> stomach. The capsules do me in, but I can handle the tabs. Just

ask the

> pharmacist and see if it helps.

>

>

> [ ] Re: I have Lyme AND Dr. Backlash

>

>

> > DOXY IS SO HARD ON THE STOMACH. MAKE SURE TO DRINK A LOT OF

WATER AND

> > TAKE TONS OF PROBIOTICS. MY STOMACH IS REALLY A MESS WITH THE

> > TINDAMAX. I HAVE LOST 9 LBS! ANYWAY I WOULD SIMPLY STATE THAT

MANY

> > PEOPLE YOU KNOW ON YOUR LYME SUPPORT GROUP AND DR BURRASCANO

SUGGESTS

> > HIGHER DOSES DOXY FOR Bb. HAVE YOU READ HIS 2005 REPORT? TELL

HIM MOST

> > ARE TAKING BETWEEN 4-600 MG DAY. RESEARCH LYME TREATMENT

PROTOCOL ON

> > LINE, SO YOU CAN SEE FOR YOURSELF AND BE CONFIDENT WHEN YOU

SPEAK WITH

> > YOUR DR NEXT. BEING YOUR OWN ADVACATE IS HARD AT FIRST, THAN YOU

> > REALIZE WHEN NO DR'S ARE LISTENING YOU NEED TO GET TOUGH OR FIND

A

> > LLMD WHO KNOWS THE MOST UP TO DATE TREATMENTS.

> > I KNOW THIS IS SUCH A SHOCK TO YOU RIGHT NOW AND YOU ARE MOVING

ON

> > AUTO PILOT SO TO SPEAK, BUT IF YOU ARE TAKING ABX FOR LYME YOU

NEED A

> > HIGH ENOUGH DOSE TO DESTROY THE BUG. HOPEFULLY THE QUASEY WILL

PASS,

> > IT DID EVENTUALLY FOR ME WITH THE DOXY.

> >

> >

> >

> > > > > Congrats on finally getting appropriate treatment. I

have heard

> > > he

> > > > > is a really good doc so its great you have someone that

knows

> > > what

> > > > > they are doing!

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> > For up to date information about Lyme disease and the known co-

infections

> > delivered to your email address see:

> > Robynns_Lyme_List/

> >

> >

[Guest guest]

wrote:

> TELL HIM MOST ARE TAKING BETWEEN 4-600 MG DAY.

When I was seeing Dr. H. in New York and taking doxy, he was adamant that

the dosage was weight dependendent.

Deanna

[Guest guest]

Weight dependent? I am very petite.

In , bluesky <bluesky@g...> wrote:

>

> wrote:

>

> > TELL HIM MOST ARE TAKING BETWEEN 4-600 MG DAY.

>

>

> When I was seeing Dr. H. in New York and taking doxy, he was adamant

that

> the dosage was weight dependendent.

>

> Deanna

>

[Guest guest]

it is hard to take but it is needed as I was on 600mg a day and it worked....

eric

<betneal@...> wrote:

DOXY IS SO HARD ON THE STOMACH. MAKE SURE TO DRINK A LOT OF WATER AND

TAKE TONS OF PROBIOTICS. MY STOMACH IS REALLY A MESS WITH THE

TINDAMAX. I HAVE LOST 9 LBS! ANYWAY I WOULD SIMPLY STATE THAT MANY

PEOPLE YOU KNOW ON YOUR LYME SUPPORT GROUP AND DR BURRASCANO SUGGESTS

HIGHER DOSES DOXY FOR Bb. HAVE YOU READ HIS 2005 REPORT? TELL HIM MOST

ARE TAKING BETWEEN 4-600 MG DAY. RESEARCH LYME TREATMENT PROTOCOL ON

LINE, SO YOU CAN SEE FOR YOURSELF AND BE CONFIDENT WHEN YOU SPEAK WITH

YOUR DR NEXT. BEING YOUR OWN ADVACATE IS HARD AT FIRST, THAN YOU

REALIZE WHEN NO DR'S ARE LISTENING YOU NEED TO GET TOUGH OR FIND A

LLMD WHO KNOWS THE MOST UP TO DATE TREATMENTS.

I KNOW THIS IS SUCH A SHOCK TO YOU RIGHT NOW AND YOU ARE MOVING ON

AUTO PILOT SO TO SPEAK, BUT IF YOU ARE TAKING ABX FOR LYME YOU NEED A

HIGH ENOUGH DOSE TO DESTROY THE BUG. HOPEFULLY THE QUASEY WILL PASS,

IT DID EVENTUALLY FOR ME WITH THE DOXY.

[Guest guest]

I noticed the tablet form doesn't seem to work as well as the capsules.

This sounds were I know, but when I took the Doxy capsules it caused

the tubes on my hearing aids to turn blue and/or green in the center of

the tube. I switched to the Doxy tablet thinking it was the blue

coloring of the capsules causing this. The pharmacist said I was wrong

it was not the dye, but just the nature of Doxy itself. He gave me the

tan Doxy tablets anyway and it only caused a dark navy blue staining on

the very end of the sound tube. It is less noticable being at the end

of the tube. However I don't herx as much on the tablets and also am

not running spirochetes out through my skin. When I was on Doxy

capsules it put the spircochetes on the run and they tried to escape

the antibiotics by coming out of the skin. My LLMD explained what was

happening to me. The only thing was they weren't escaping all the way

out, they got trapped in pockets of gunk that formed large bumps. My dr

cut opened up a large bump and found the spirochetes had tried to wall

themselves off for protection. It looked like white grandular sand and

my dr scooped out a gunk for 15 minutes. After the grandular stuff was

removed out poured this bright yellow oily fluid. It was not like pus.

It was something else not sure what, but apparently has to do with

Lyme. A friend told me one of her relatives had the same thing come out

of her knee and the dr tested it and it was Lyme.

So to make a long story short I don't think the tablets are near as

good. Maybe the body doesn't absorb them as well. I keep forgetting to

ask my pharmacist to give me the capsules again and he has gotten intot

he habit of dispensing the tablets to me after I made the fuss over my

hearing aids staining. LOL I am going to have to get on the capsules

again because I still have RMSF which doxy is the only thing that will

treat it. I may ask the dr for a higher dose too.

>

> Doxy also comes in tablets forms and I find it is much easier on the

> stomach. The capsules do me in, but I can handle the tabs. Just ask

the

> pharmacist and see if it helps.

>

>

[Guest guest]

I CAN ATTRIBUTE THE HIGHER DOSE OF DOXY TO THE COMPLETE ERADICATION OF

EHRLICHIA.

> DOXY IS SO HARD ON THE STOMACH. MAKE SURE TO DRINK A LOT OF WATER AND

> TAKE TONS OF PROBIOTICS. MY STOMACH IS REALLY A MESS WITH THE

> TINDAMAX. I HAVE LOST 9 LBS! ANYWAY I WOULD SIMPLY STATE THAT MANY

> PEOPLE YOU KNOW ON YOUR LYME SUPPORT GROUP AND DR BURRASCANO SUGGESTS

> HIGHER DOSES DOXY FOR Bb. HAVE YOU READ HIS 2005 REPORT? TELL HIM MOST

> ARE TAKING BETWEEN 4-600 MG DAY. RESEARCH LYME TREATMENT PROTOCOL ON

> LINE, SO YOU CAN SEE FOR YOURSELF AND BE CONFIDENT WHEN YOU SPEAK WITH

> YOUR DR NEXT. BEING YOUR OWN ADVACATE IS HARD AT FIRST, THAN YOU

> REALIZE WHEN NO DR'S ARE LISTENING YOU NEED TO GET TOUGH OR FIND A

> LLMD WHO KNOWS THE MOST UP TO DATE TREATMENTS.

> I KNOW THIS IS SUCH A SHOCK TO YOU RIGHT NOW AND YOU ARE MOVING ON

> AUTO PILOT SO TO SPEAK, BUT IF YOU ARE TAKING ABX FOR LYME YOU NEED A

> HIGH ENOUGH DOSE TO DESTROY THE BUG. HOPEFULLY THE QUASEY WILL PASS,

> IT DID EVENTUALLY FOR ME WITH THE DOXY.

>

[Guest guest]

A family friend is a pharmacist and he told me same thing. Really

all meds are weight dependent even though drs rarely prescribe them

that way. Just as a child needs a smaller dose of meds than an

adult, a 100 lb adult needs a smaller dose than a 200 lb adult.

> >

> > > TELL HIM MOST ARE TAKING BETWEEN 4-600 MG DAY.

> >

> >

> > When I was seeing Dr. H. in New York and taking doxy, he was

adamant

> that

> > the dosage was weight dependendent.

> >

> > Deanna

> >

>

[Guest guest]

Make sure you eat with the Doxy, I avoided diary, multivit, stuff

with Calcium and Magnesium at the time I took the Doxy. I took the

other stuff at a different time. I also have started out slowly with

stuff- taking one, then 2 a day and etc to see what would happen.

You will be able eventually to tell the difference between herxing

(killing off spiros) and a drug reaction. Hang in there and drink at

least a gallon of water a day.

Rose Marie

>

> I see him in 4 wks. I actually feel quasey from the doxy. Should I

> just tell him his protocol is wrong? I feel like I was hit with a

> bomb. A dr. actually said I have lymes.

>

> I went to my family dr. for a shot today and i told her about the

> lymes and she said " did he see your tests " ? What did he say about

> them? I told her he said they are inacurrate in a nice way. She

was a

> bit defensive. She said lyme is still an evolution in progress.

> She said be careful with all of that doxy and your stomach.

>

>

>

>

>

[Guest guest]

I know the Taber's says like 100 or 200 doxie. Ludicrous.

Millie

bluesky <bluesky@...> wrote:

wrote:

> TELL HIM MOST ARE TAKING BETWEEN 4-600 MG DAY.

When I was seeing Dr. H. in New York and taking doxy, he was adamant that

the dosage was weight dependendent.

Deanna

[Guest guest]

Doxy is the hardest thing on my stomach I have ever taken. It makes my stomach

ache. I hate it. I am supposed to be taking 300mg of it right now. I took one

a while ago. I will spread it out over the day and make sure I don't go to bed

right after taking any abx.

Millie

<betneal@...> wrote:

DOXY IS SO HARD ON THE STOMACH. MAKE SURE TO DRINK A LOT OF WATER AND

TAKE TONS OF PROBIOTICS. MY STOMACH IS REALLY A MESS WITH THE

TINDAMAX. I HAVE LOST 9 LBS! ANYWAY I WOULD SIMPLY STATE THAT MANY

PEOPLE YOU KNOW ON YOUR LYME SUPPORT GROUP AND DR BURRASCANO SUGGESTS

HIGHER DOSES DOXY FOR Bb. HAVE YOU READ HIS 2005 REPORT? TELL HIM MOST

ARE TAKING BETWEEN 4-600 MG DAY. RESEARCH LYME TREATMENT PROTOCOL ON

LINE, SO YOU CAN SEE FOR YOURSELF AND BE CONFIDENT WHEN YOU SPEAK WITH

YOUR DR NEXT. BEING YOUR OWN ADVACATE IS HARD AT FIRST, THAN YOU

REALIZE WHEN NO DR'S ARE LISTENING YOU NEED TO GET TOUGH OR FIND A

LLMD WHO KNOWS THE MOST UP TO DATE TREATMENTS.

I KNOW THIS IS SUCH A SHOCK TO YOU RIGHT NOW AND YOU ARE MOVING ON

AUTO PILOT SO TO SPEAK, BUT IF YOU ARE TAKING ABX FOR LYME YOU NEED A

HIGH ENOUGH DOSE TO DESTROY THE BUG. HOPEFULLY THE QUASEY WILL PASS,

IT DID EVENTUALLY FOR ME WITH THE DOXY.

[Guest guest]

That sore I can't believe it I had that type of thing happen. I love this site.

I just told my, 11/05, LLMD about it the last time I saw him. I thought it was

just not showering often enough. He grabbed the picture and ran to show it to

his Dad.

I had a picture of the sore as it was developing. It was right on where one

of the bites had been. It itched like crazy and I would not scratch it as I was

curious to see what was going on.

It took a while. I was on Doxie. 1999. It finally broke open and there were

these waxy egg shaped things. I brushed them away.

I think it was this site that said the Doxie in brown stains your teeth. That

it comes off with a good cleaning but it is one of the things that color does.

Interesting the blue Doxie stains too.

Another thing I believe and have not mentioned it to a Doctor yet. There is

always so little time and so much to address. I mentioned it before but I have

Psoriasis or Yeast depending on who you are talking to. Under my fingernails.

It get real bad when I'm stressed.

It was real bad in 1995 and I had to pick Lyme ticks off my dog who later got

Lyme so bad I had to put her down. I know. But I had no money and I had spent

$500 to do a procedure to remove grass she got caught in her wind pipe eating

grass because she was sick.

It wasn't a week before she had done it again. That is why I will not get

anymore pets. I love animals but I can't afford to take care of one.

So I haven't asked a Doctor yet but is it possible I got more infection from

the blood under my fingernails from picking ticks off her. She had at least 50

ticks on her.

This one Doctor I sent an E-mail to when it got to her address the spell check

asked me if I wanted to change the word to flimflamed.

Small pleasures.

Millie

wtptoo <wtptoo@...> wrote:

I noticed the tablet form doesn't seem to work as well as the capsules.

This sounds were I know, but when I took the Doxy capsules it caused

the tubes on my hearing aids to turn blue and/or green in the center of

the tube. I switched to the Doxy tablet thinking it was the blue

coloring of the capsules causing this. The pharmacist said I was wrong

it was not the dye, but just the nature of Doxy itself. He gave me the

tan Doxy tablets anyway and it only caused a dark navy blue staining on

the very end of the sound tube. It is less noticable being at the end

of the tube. However I don't herx as much on the tablets and also am

not running spirochetes out through my skin. When I was on Doxy

capsules it put the spircochetes on the run and they tried to escape

the antibiotics by coming out of the skin. My LLMD explained what was

happening to me. The only thing was they weren't escaping all the way

out, they got trapped in pockets of gunk that formed large bumps. My dr

cut opened up a large bump and found the spirochetes had tried to wall

themselves off for protection. It looked like white grandular sand and

my dr scooped out a gunk for 15 minutes. After the grandular stuff was

removed out poured this bright yellow oily fluid. It was not like pus.

It was something else not sure what, but apparently has to do with

Lyme. A friend told me one of her relatives had the same thing come out

of her knee and the dr tested it and it was Lyme.

So to make a long story short I don't think the tablets are near as

good. Maybe the body doesn't absorb them as well. I keep forgetting to

ask my pharmacist to give me the capsules again and he has gotten intot

he habit of dispensing the tablets to me after I made the fuss over my

hearing aids staining. LOL I am going to have to get on the capsules

again because I still have RMSF which doxy is the only thing that will

treat it. I may ask the dr for a higher dose too.

[Guest guest]

true. Pharmacodynamics. I just have to take what the dr. gave me. I

keep my mind open and go from there. I saw my dr. one time. He cut to

the chase. He said we have to start treating lyme now.

In , william turner <silkwoodhounds@y...>

wrote:

>

> I was taking 100mg doxy twice a day, and on my blood test I had

more in my system than people who were taking 600 mg. It all depends

on your metabolism.

>

> wtptoo <wtptoo@y...> wrote: A family friend is a pharmacist and he

told me same thing. Really

> all meds are weight dependent even though drs rarely prescribe them

> that way. Just as a child needs a smaller dose of meds than an

> adult, a 100 lb adult needs a smaller dose than a 200 lb adult.

>

>

>

>

>

> > >

> > > > TELL HIM MOST ARE TAKING BETWEEN 4-600 MG DAY.

> > >

> > >

> > > When I was seeing Dr. H. in New York and taking doxy, he was

> adamant

> > that

> > > the dosage was weight dependendent.

> > >

> > > Deanna

> > >

> >

>

>

>

>

>

>

> For up to date information about Lyme disease and the known co-

infections

> delivered to your email address see:

> Robynns_Lyme_List/

>

>

>

>

>

[Guest guest]

Deanna,

I was on 300MG per day for 2.5 months. I weigh 350lbs. After the

Doxy I was switched to Ceftin. I have been on that for the past 9

months. I had success with both.

Drink plenty of water.

Be well,

>

> > TELL HIM MOST ARE TAKING BETWEEN 4-600 MG DAY.

>

>

> When I was seeing Dr. H. in New York and taking doxy, he was

adamant that

> the dosage was weight dependendent.

>

> Deanna

>

[Guest guest]

angela

did you really take the test to determin the level of doxy in your blood?why

would your doctor do that with such a low dose?something is not right about that

statement and I would check to make sure that the facts are straight.....just

looking out for you so let me know, as I was on 600mg and they did do the tests

and my metabolism was very very slow but I was ok and there were no problems...

eric

william turner <silkwoodhounds@...> wrote:

I was taking 100mg doxy twice a day, and on my blood test I had more in my

system than people who were taking 600 mg. It all depends on your metabolism.

wtptoo <wtptoo@...> wrote: A family friend is a pharmacist and he told me

same thing. Really

all meds are weight dependent even though drs rarely prescribe them

that way. Just as a child needs a smaller dose of meds than an

adult, a 100 lb adult needs a smaller dose than a 200 lb adult.

[Guest guest]

I like ceftin better,I was taking it for acne for 2 days then stopped

to start the doxy. The dr. office said he will switch me to another

antibiotic if my stomach can't deal with the doxy.

In , " McGillycuddy " <@M...> wrote:

>

> Deanna,

>

> I was on 300MG per day for 2.5 months. I weigh 350lbs. After the

> Doxy I was switched to Ceftin. I have been on that for the past 9

> months. I had success with both.

>

> Drink plenty of water.

>

> Be well,

>

>

>

>

> >

> > > TELL HIM MOST ARE TAKING BETWEEN 4-600 MG DAY.

> >

> >

> > When I was seeing Dr. H. in New York and taking doxy, he was

> adamant that

> > the dosage was weight dependendent.

> >

> > Deanna

> >

>

[Guest guest]

,

I didn't post that I took a blood test to check doxy level. It

appears posted that. I have never taken a blood test to

determine levels on any med as no dr has ever even mentioned such.

A family friend is a pharmacist and

he told me same thing. Really

> all meds are weight dependent even though drs rarely prescribe

them

> that way. Just as a child needs a smaller dose of meds than an

> adult, a 100 lb adult needs a smaller dose than a 200 lb adult.

>

>

>