Shingles

November 23, 2004

Alia,

Don't let Caroline near her cousin.I have a medical book and right here it

states

people who have shingles may transmit chicken pox.If a child has been exposed

to shingles and would be placed at special risk by complications of chicken

pox(for example,if the child is taking steroids or other immunosupressing

drugs,which suppress the body's immunity to disease,consult your doctor.In other

words by exposing Caroline to her cousin you could be faceing the real

possibility of hospitilization with anti viral antibiotics such as zozter immune

globulin.

Call the rheumy but my guess would be to keep Caroline away.

Hugs

Becki and 6systemic

PS)Even though Caroline has most likely received her chicken pox vaccine it

does not guarantee immunity.

November 23, 2004

I would call your dsoctor to make that call and decide if you want your

child her cousin. I personally would not take the chance with any of my

family becoming ill and risking them being soick during the christmas

season, including myself even though it usualy only attacks weakened immune

systems.

It is awful that he is ill with shingles, and from what I have read it

usually lasts 7-14 days, but I am not sure at what point they are no longer

contagious. Is it until they have all scabbed over like chicken pox? As a

cousin I am sure she would love to play with him, and she won't understand;

it is probably best you not see them at all for thanksgiving and let things

simmer down with him. This will give him time to rest, and you all a safe

bet that none of you will be ill for christmas.

I can't count how many times we avoided seeing family due to illness during

the holidays. Good luck!!! You should call your doctor, he may have better

advice.

Jay

Mom to

5 1/2 yrs old

Mathieu 21 1/2 months unknown diagnosis 30 " 21 pounds

Caroline's cousin came down with a case of Shingles last week. She hasn't

been around him, but we are supposed to see them for Thanksgiving. Does

anyone know the risks of having her around him. My sister in law said that

he is starting to scab over, but hasn't completely healed yet.

Thanks!

Alia and Caroline, age 2, poly and uveitis

November 23, 2004

First is the question if Caroline has had a chicken pox shot. If she

has, she really isn't at much risk. The other issue to think about is

that the incubation time is up to 14 days and that others in the house

have been exposed so you need to add the additional time to the

window. Once they have all scabbed they aren't contagious so they

say, but. . . with our luck. . .

On Tue, 23 Nov 2004 09:46:20 -0800, Jay Brethen <jbrethen@...> wrote:

>

> I would call your dsoctor to make that call and decide if you want your

> child her cousin. I personally would not take the chance with any of my

> family becoming ill and risking them being soick during the christmas

> season, including myself even though it usualy only attacks weakened immune

> systems.

>

> It is awful that he is ill with shingles, and from what I have read it

> usually lasts 7-14 days, but I am not sure at what point they are no longer

> contagious. Is it until they have all scabbed over like chicken pox? As a

> cousin I am sure she would love to play with him, and she won't understand;

> it is probably best you not see them at all for thanksgiving and let things

> simmer down with him. This will give him time to rest, and you all a safe

> bet that none of you will be ill for christmas.

>

> I can't count how many times we avoided seeing family due to illness during

> the holidays. Good luck!!! You should call your doctor, he may have better

> advice.

>

> Jay

>

> Mom to

> 5 1/2 yrs old

> Mathieu 21 1/2 months unknown diagnosis 30 " 21 pounds

>

> Caroline's cousin came down with a case of Shingles last week. She hasn't

> been around him, but we are supposed to see them for Thanksgiving. Does

> anyone know the risks of having her around him. My sister in law said that

> he is starting to scab over, but hasn't completely healed yet.

>

> Thanks!

>

> Alia and Caroline, age 2, poly and uveitis

>

November 23, 2004

Alia,

My daughter Allie did have the chicken Pox 1 year ago. We were very

lucky. It was a very mild case, and she had about 15 spots. She did

have the shot years ago, and had been exposed numerous times before, but

for whatever reason she got them this time, in fact all of my girls got

them together, even they had been inoculated against it. Dr. W. was

very concerned about Allie, and she prescribed medication to fight the

chicken pox. Allie was sicker from that than she was from the actual

disease. But we were told she was lucky. Don't take the chance. Too

bad for Turkey day! Go and get yourself a bunch of good movies and

enjoy the day that way.

Happy Holidays!

and Allie (8 poly)

________________________________

From: Arthurnator@... [mailto:Arthurnator@...]

Sent: Tuesday, November 23, 2004 12:38 PM

Subject: Re: Shingles

Alia,

Don't let Caroline near her cousin.I have a medical book and right here

it

states

people who have shingles may transmit chicken pox.If a child has been

exposed

to shingles and would be placed at special risk by complications of

chicken

pox(for example,if the child is taking steroids or other

immunosupressing

drugs,which suppress the body's immunity to disease,consult your

doctor.In other

words by exposing Caroline to her cousin you could be faceing the real

possibility of hospitilization with anti viral antibiotics such as

zozter immune

globulin.

Call the rheumy but my guess would be to keep Caroline away.

Hugs

Becki and 6systemic

PS)Even though Caroline has most likely received her chicken pox vaccine

it

does not guarantee immunity.

November 23, 2004

Thanks . Her doctor just called back and said unless he is completely

scabbed over to not go anywhere near him. I guess I didn't realize how

serious these were. Better to be safe than sorry with her!

Alia and Caroline, age 2, poly and uveitis

Re: Shingles

Alia,

Don't let Caroline near her cousin.I have a medical book and right here

it

states

people who have shingles may transmit chicken pox.If a child has been

exposed

to shingles and would be placed at special risk by complications of

chicken

pox(for example,if the child is taking steroids or other

immunosupressing

drugs,which suppress the body's immunity to disease,consult your

doctor.In other

words by exposing Caroline to her cousin you could be faceing the real

possibility of hospitilization with anti viral antibiotics such as

zozter immune

globulin.

Call the rheumy but my guess would be to keep Caroline away.

Hugs

Becki and 6systemic

PS)Even though Caroline has most likely received her chicken pox vaccine

it

does not guarantee immunity.

February 25, 2005

I know that shingles and chicken pox etc. was

discussed not too long ago but my menopausal brain has

not retained the info. I am a school teacher and

there has been an outbreak of chicken pox in the

school. I had a mild case when I was a child. I know

that chikenpox virus and shingles virus are the same.

I am also aware that by taking imuran and pred. that

my immune system is compromised and am at a greater

risk for infections. If I come into contact with a

child who is contagious, am I at risk for developing

shingles? Once again, could you post the initial

symptoms of shingles. I know that sometimes the rash

does not show up for quite a while. Thanks in advance

for any info. regarding my question!

Kathy

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February 25, 2005

searched archives: This is just a sample if you are a member of the group which you must be to post you can search archives - in the box just type shingles and if nothing comes up hit next and next and read and read. Hope this helps, if not email me, please.

I understand memory problems.

Jo Lynne

Go to for searching: /

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Msg #

From: "tdcc" <tdcc2000@...> Date: Thu Feb 3, 2005 9:16 pm Subject: RE: [ ] Re: Chicken pox

Elaine, my son was only 3 months when he developed Chicken pox…BUT he only had 5 spots…but they were big enough so he had a good enough case to immunize him. We had him drink after our daughter when she was 2 and was ONE complete chicken pox. Bless her little heart. But he didn’t get another infection of the pox.

For me…the incubation period has come and gone and it appears that I am free of shingles, etc. It made my day for this to come and go! Anyway, now the kids are passing around the stomach flu. Think I will pass on that one too!

Debby

Tony..and then post on shingles

What was written below is positively true. Myself being on antirejection meds ( cyclosporin and cellcept) now so I am also very susceptible to getting shingles. My sister who had chicken pox much worse then I did..has had shingle since she was about 40 years old. Aggressive attack the FIRST outbreak can be a great deterrent to continued outbreaks or at the least the severity. Joanne Taking an immunosuppressant such as azathioprine makes us more susceptible to getting chickenpox and, afterwards, to getting shingles. 3) I've read on Medline.com about an antiviral therapy for those who take Imuran and who are exposed to chickenpox. There is a vaccine, but I don't know whether it's wise for those of us who are immune-suppressed to take it. Ask a doctor, a knowledgeable doctor, about that. 4) If you get chickenpox, it may later recur in the form of shingles. Shingles and chickenpox are the same virus. You can't catch shingles; you catch chickenpox and then (perhaps) get shingles later. 5) People who take an immunosuppressant are more susceptible to shingles.

Re: [ ] shingles

I know that shingles and chicken pox etc.

February 26, 2005

Thanks Jo Lynne,

I managed to retrieve the info. Your help is

appreciated!

Kathy

that shingles and chicken pox etc.

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December 18, 2005

>

> I read that eating more brown rice has b vitamins and taking more

> foods like miso will help? Among taking lysine...What about candida?

>

Hi ,

It might do you good to re-read Bee's diet....brown rice (and other

grains) and fruits are not allowed on this diet until much further

down the road, when you've concquered your candida overgrowth...they

are too high in carbs and sugars.

jackie

December 18, 2005

I did read it,but how much farther down the road do you mean. I have

celiac and have been gf for 5 years and sugar free for 3 years and no

grains for 3 years. This shingles that came up would you advise to

stay grain free is this a candida thing that is cleaning out the

closet so to speak?

December 18, 2005

>

> I did read it,but how much farther down the road do you mean. I have

> celiac and have been gf for 5 years and sugar free for 3 years and no

> grains for 3 years. This shingles that came up would you advise to

> stay grain free is this a candida thing that is cleaning out the

> closet so to speak?

==>I agree with Jackie. Before adding high carbs foods and grains your

immune system should be near normal. These foods are not even healthy

for healthy people to eat. If you have shingles yours is not there

yet, by a long shot. Do you have rash only on your waist area?

Bee

January 25, 2006

Shingles has responded in the past few cases to godzilla. Use on

arteries of the wrist to treat bloodstream, and also on the shingles

outbreak area, it should help. Let us know how you do with it.

bG

>

> HI MY NAME IS TERI GERFERS I JUST WANTED TOO SAY MINE AS SHINGLES AND

> AND AM VERY WORRYED ABOUT HER SHE DOING BETTER THEN SHE WAS SHE WENT

> TOO THE DOCTORS ON MONDAY THEY GAVE HER SOME PILLS TOO HELP IT

>

December 11, 2006

>

> Good Evening Bee and Everyone,

>

> I have a question don't know if the answer is in the files, to be

honest with you I got so frustrated when all I did wasn't getting me

no where. I do apologized for posting my question.

>

> Bee, what can you recommend for someone that is suffering with

shingles on the breast? My first thought would be to put coconut

oil on it, would epson salt bath be recommended also?

==>Hi Maddalena. Is she sure it is shingles? If it is she should

be eating a diet like we have because shingles are caused by a

depressed immune system. Yes, she can apply coconut oil and take

epsom salt baths as well.

Luv, Bee

December 17, 2006

Hello Bee,

Sorry for been late in answering this post.

> ==>Hi Maddalena. Is she sure it is shingles? If it is she should

> be eating a diet like we have because shingles are caused by a

> depressed immune system.

Yes, it is shingles. Yes, her immune system in very depressed, she'd

just underwent radiation and chemo for bone cancer. She is also a 10

year breast cancer survivor. Now the shingles are on the same breast

she had cancer.

Since, both her nurse and doctor noticed the shingle rash within the 76

hour mark (with my advice she refused to take the pill for it) instead

she started to put on CO right away the itch is very minimal. Thank

goodness. As for the diet, it's another story, sad to say. Like the

saying goes: You can take the horse to the water but you can't make

him drink.

Have a wonderful weekend.

Maddalena

February 13, 2007

Vitamin C has the amazing property of removing almost any poisons from the

body. I know of a couple instances where it got rid of carbon monoxide

poisoning when it was given quickly enough.

Adele wrote about it in a couple of her books.

Zack

On Tue, 13 Feb 2007, comdyne2002 wrote:

> Herpes Zoster was cured in the 1950s by a doctor that was using IV

> vitamin C. He infused 327 patients over a 3 day period and cured them

> all. High levels of oral vitamin C has been reported to be as effective

> but I remain skeptical. Ideally do both.

>

> http://www.annieappleseedproject.org/shinglesvitc.html

>

October 2, 2007

Today's New York Times science section has an article on herpes zoster --

shingles. The headline refers to the fairly new vaccine for it. You can access

the article by going to nyt.com and looking at today's science section. I

believe their files are now open to everyone, subscribers or not.

The article says, near the end, that the new vaccine may not be advisable for

people with compromised immune systems. You may want to tell others, those

whose immune systems are not suppressed, about the vaccine, however. My

husband will get it, and I will encourage my daughter to, also.

Those of us with compromised immune systems are more vulnerable to shingles.

The article will give you some idea of what to watch out for. It can be

quite a serious thing, occasionally fatal, and after-effects can last a

lifetime.

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October 2, 2007

That's pretty much what the New York Times article says. I'd intended to

have the vaccine, but according to the article, that's probably not a good idea

for me.

My husband, however, will have it as soon as he can find time.

Harper

In a message dated 10/2/07 6:33:33 PM, auntpat5@... writes:

>

> I asked my MD about the shingles vaccine last week.

> She said anyone with immune problems or those on drugs

> like Imuran should " not " get the vaccine. She said

> that people over sixty with no immune problems should

> really consider it.

>

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October 2, 2007

I asked my MD about the shingles vaccine last week.

She said anyone with immune problems or those on drugs

like Imuran should " not " get the vaccine. She said

that people over sixty with no immune problems should

really consider it.

--- flatcat9@... wrote:

> Today's New York Times science section has an

> article on herpes zoster --

> shingles. The headline refers to the fairly new

> vaccine for it. You can access

> the article by going to nyt.com and looking at

> today's science section. I

> believe their files are now open to everyone,

> subscribers or not.

>

> The article says, near the end, that the new vaccine

> may not be advisable for

> people with compromised immune systems. You may want

> to tell others, those

> whose immune systems are not suppressed, about the

> vaccine, however. My

> husband will get it, and I will encourage my

> daughter to, also.

>

> Those of us with compromised immune systems are more

> vulnerable to shingles.

> The article will give you some idea of what to watch

> out for. It can be

> quite a serious thing, occasionally fatal, and

> after-effects can last a lifetime.

>

> **************************************

> See what's new at http://www.aol.com

>

> [Non-text portions of this message have been

> removed]

>

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October 6, 2008

This question is on my mind, too. I don't think there is much question that

the shingles vaccine is good. The problem is that it may not be good for those

of us who have an autoimmune disorder, and possibly not even for those of us

who have already had an episode of shingles.

I talked with doctors about this when the vaccine first came out. I need to

see what the latest thinking is.

I'm in the middle of my FIFTH episode of shingles. Fortunately, while the

first one was horrible beyond words, the following ones haven't been too bad.

My husband, who is very healthy, has had two episodes. Both of us always

keep an anti-viral like Acyclovir where we could get to it within an hour.

Here's what I want to stress to all of you (again): at the first sign of

possible shingles, get to a doctor fast, fast, fast. Prompt, aggressive

treatment

can lessen the chances of life-long after-effects. If you have never have had

chickenpox, you will never have shingles. Shingles can be mild. Or, it can

cause blindness or even death. Prescriptions probably will involve an

anti-viral,

increased Prednisone, and, if needed, heavy-duty pain treatment. Injections

along the spine (can't think of the term just now) can help pain a lot, if done

early. Long, hot showers sometimes help. Caladryl is somewhat soothing, at

times. Shingles is (are) becoming far more common in recent years. The

average person who lives to 80 has a 50% chance of getting shingles. We, with

AIH, have a far higher level of risk. The main thing to remember is, see a

doctor

immediately.

Harper

In a message dated 10/6/08 8:19:22 PM, MARELENEfromNJ@... writes:

> what are your thoughts on the shingles vaccine. i believe

> my hep doc told me no not now as it does not have a track record. what

> are the thoughts on this subject. i heard thru the grapevie the pbcers

> digest members are all getting the vaccine. have a good week. marlene

>

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May 26, 2010

,

Don't let your husband give you a hard time! Shingles is a form of

herpes, the same one as chicken pox. As I understand it, if you had

chicken pox, you have the condition in your system. I think also it

causes cold sores. It does indeed break out when you are stressed.

Good luck---take care of yourself

Debra

rebeccamaas wrote:

>

> Have many of you had experience with shingles? I developed a very mild

> case during my hospital stay after my revision in 2007. It was caught

> right away and treated effectively with no long-lasting effects.

> However, about a month ago I developed what I thought was a small

> patch of dry skin on my back/side. I just kept putting lotion on it

> and ignoring it until my ribs became very painful and the rash patches

> spread recently. I went to my doctor yesterday and she confirmed that

> it was shingles. Unfortunately, I waited quite a while before getting

> it checked out, since I thought it was just dry skin. I mean, who goes

> to the doctor for a little patch of dry skin? So anyways, I am on

> anti-virals now, as well as neurontin for the pain. And I'm on

> antibiotics for another UTI.

>

> The first time I developed shingles, I was told it was likely due to

> the intense physical stress of the revision surgery on the body. This

> time around, who knows why! I was just curious if anyone else has had

> this happen. BTW, I'm 34 years old, and my darling hubby keeps teasing

> me that shingles is " an old person's disease " - even tho I know it's

> not unheard of in younger people

>

May 27, 2010

Shingles must be cyclical. You're at least the 10th person I've heard of that

had a flare up in the last 6 months. I hope it's not too painful, and doesn't

last too long.

--

>

> Have many of you had experience with shingles? I developed a very mild case

during my hospital stay after my revision in 2007. It was caught right away and

treated effectively with no long-lasting effects. However, about a month ago I

developed what I thought was a small patch of dry skin on my back/side. I just

kept putting lotion on it and ignoring it until my ribs became very painful and

the rash patches spread recently. I went to my doctor yesterday and she

confirmed that it was shingles. Unfortunately, I waited quite a while before

getting it checked out, since I thought it was just dry skin. I mean, who goes

to the doctor for a little patch of dry skin? So anyways, I am on anti-virals

now, as well as neurontin for the pain. And I'm on antibiotics for another UTI.

>

> The first time I developed shingles, I was told it was likely due to the

intense physical stress of the revision surgery on the body. This time around,

who knows why! I was just curious if anyone else has had this happen. BTW, I'm

34 years old, and my darling hubby keeps teasing me that shingles is " an old

person's disease " - even tho I know it's not unheard of in younger people

>

May 27, 2010

Thanks ! It's not too horribly painful, just when I'm laying down on that

side. I've been surprised at the number of responses I got to this on other

various groups - it seems to be a lot more common than I thought! Not that I

want other people to have it, but it's just nice to know I'm not alone

> >

> > Have many of you had experience with shingles? I developed a very mild case