Guest guest Posted April 30, 2008 Report Share Posted April 30, 2008 Yes, the spit test is accurate!!! Do you have a white coated tongue? That is another sign you have candida. FWIW, I spent $255 on a comprehensive stool analysis test and candida came back negative as well as parasites.. My tongue is coated white and I have continous yeast infections, so I did a google on why my test was still negative, and found that particular type of test only has about a 52% accuracy rating. Then I shelled out another $100 for a blood candida test and it came back positive. Even though I have insurance, they wouldn't cover the test, just the dr. visits. The only benefit to the stool test was that it said I was lacking in certain beneficial bacteria. If your spit test seems to follow the tell-tale signs, you can be sure you have it. Just take it from there. Testing Question Hello Again, I'm still reading and researching daily. its soooo much info I did the spit test and from what I observed I had the symptoms of someone with severe candida. I was just wondering, is there any other more " sophisticated " test that I could take. something over-the-counterish ... I don't have any insurance. I mean is the spit test really accurate??? Recent Activity * 18 New MembersVisit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Cat Groups on Share pictures & stories about cats. .. ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 I have been combating this candida for five or six months. My symptoms are at a low lebels or have desappeared completely, yet my spit test still comes out positive. Will it ever change? Has enybody ever had that change after treaatment? > > Yes, the spit test is accurate!!! Do you have a white coated tongue? That is another sign you have candida. > FWIW, I spent $255 on a comprehensive stool analysis test and candida came back negative as well as parasites.. My tongue is coated white and I have continous yeast infections, so I did a google on why my test was still negative, and found that particular type of test only has about a 52% accuracy rating. Then I shelled out another $100 for a blood candida test and it came back positive. Even though I have insurance, they wouldn't cover the test, just the dr. visits. The only benefit to the stool test was that it said I was lacking in certain beneficial bacteria. > If your spit test seems to follow the tell-tale signs, you can be sure you have it. Just take it from there. > > > > > Testing Question > > > Hello Again, > > I'm still reading and researching daily. its soooo much info > > I did the spit test and from what I observed I had the symptoms of someone with severe candida. > I was just wondering, is there any other more " sophisticated " test that I could take. something over-the-counterish ... > I don't have any insurance. > > I mean is the spit test really accurate??? > > > Recent Activity > * 18 > New MembersVisit Your Group > Meditation and > Lovingkindness > A Group > to share and learn. > Health > Healthy Aging > Improve your > quality of life. > Cat Groups > on > Share pictures & > stories about cats. > . > > > > _____________________________________________________________________ _______________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 Kandyce August wrote: > > Hello Again, > > I'm still reading and researching daily. its soooo much info > > I did the spit test and from what I observed I had the symptoms of > someone with severe candida. > I was just wondering, is there any other more " sophisticated " test > that I could take. something over-the-counterish ... > I don't have any insurance. > > I mean is the spit test really accurate??? > > Kween_of_Klubs > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile. / > ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Don't even bother, go find a LLMD, lyme literate MD and give him the details. I would say you have it and a good test in itself is how do you react to abx's. Do you have a herx or reaction? _____ From: [mailto: ] On Behalf Of mittenhead02131 Sent: Sunday, August 03, 2008 7:58 AM Subject: [ ] Testing question 8 years ago I was bit on my right shin by an insect while at a relatives home in MA. I didn't think anything of it until the site became very painful. A lesion formed at the site shortly after and my shin felt like I had banged it,kind of like when your running up the stairs and slip. 3 months went by and the lesion was not healing,I honestly thought it was nothing. My doctor was called and off I went. I had a fever of 102 when I was examined. THe doctor was a bit baffled by the lesion and took a culture,nothing came back. She prescribed something,can't remember exactly what. After the meds did nothing I was then sent to a surgeon who removed the lesion and packed it. WHen he did that, what ever was in it spread and formed a lesion a bit lower than the first. That one also was removed and packed. The lesion healed and I have a scar. Now here I am 8 years later.. Heart murmur(never had one before),lesions on my brain,demyelination, pituitary issues, migraines,joint pain, forgetfulness..and the list goes on. I am in the care of a neurologist who will not test past ELISA.. I live in Florida now..oops forgot to mention I lived in RI at the time of the bite. Does anyone have any idea what I can possibly do to get a Lyme test beyond ELISA. Thank you Yev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 mittenhead, Go to www.mylymelab.com, it is a very informative site about tests. They are pushing the test from CFR a lab in Fla. Something I found interesting is that if you go to Testing on the site they give the problems with antibody tests but also give the problems with the antigen test they do. I called and they are setting up a forum that deals with Lyme tests, so patients can talk and get information as to what test to use, even if it is not the one they are selling. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Hi; Unless you can find a Lyme Literate doctor you probably won't get anything other than ELISA. I'm in So. Cal now (from CT) and ran into the same thing. I finally found a naturopathic doctor who was trained in CT and familiar with Lyme. He drew the blood and I charged the nearly $1200 on my credit card for the gamut of testing at IGENIX for Lyme and all co-infections. It's criminal that you pay insurance all year long, never use it and when you need something you pay out of pocket. Everything I've read suggests IGENIX is the way to go; they have individual tests as well; you can order the test kits and they will mail them to your home - you just need to find a doctor to draw the blood and sign the form. Good luck! > > 8 years ago I was bit on my right shin by an insect while at a > relatives home in MA. I didn't think anything of it until the site > became very painful. A lesion formed at the site shortly after and > my shin felt like I had banged it,kind of like when your running up > the stairs and slip. > 3 months went by and the lesion was not healing,I honestly thought > it was nothing. My doctor was called and off I went. I had a fever > of 102 when I was examined. THe doctor was a bit baffled by the > lesion and took a culture,nothing came back. She prescribed > something,can't remember exactly what. After the meds did nothing I > was then sent to a surgeon who removed the lesion and packed it. > WHen he did that, what ever was in it spread and formed a lesion a > bit lower than the first. That one also was removed and packed. > The lesion healed and I have a scar. > Now here I am 8 years later.. Heart murmur(never had one > before),lesions on my brain,demyelination, pituitary issues, > migraines,joint pain, forgetfulness..and the list goes on. > I am in the care of a neurologist who will not test past ELISA.. > I live in Florida now..oops forgot to mention I lived in RI at the > time of the bite. > Does anyone have any idea what I can possibly do to get a Lyme test > beyond ELISA. > > Thank you > Yev > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Yev: Sorry to hear all your problems. I would try to find an LLMD. And I think I would check beyond Lyme. Doesn't really sound like Lyme for the most part. But is certainly something you do NOT want. Certain Herbs can help. Have you been on abx at all? Jim. ### -- In , " mittenhead02131 " <mittenhead02131@...> wrote: > > 8 years ago I was bit on my right shin by an insect while at a > relatives home in MA. I didn't think anything of it until the site > became very painful. A lesion formed at the site shortly after and > my shin felt like I had banged it,kind of like when your running up > the stairs and slip. > 3 months went by and the lesion was not healing,I honestly thought > it was nothing. My doctor was called and off I went. I had a fever > of 102 when I was examined. THe doctor was a bit baffled by the > lesion and took a culture,nothing came back. She prescribed > something,can't remember exactly what. After the meds did nothing I > was then sent to a surgeon who removed the lesion and packed it. > WHen he did that, what ever was in it spread and formed a lesion a > bit lower than the first. That one also was removed and packed. > The lesion healed and I have a scar. > Now here I am 8 years later.. Heart murmur(never had one > before),lesions on my brain,demyelination, pituitary issues, > migraines,joint pain, forgetfulness..and the list goes on. > I am in the care of a neurologist who will not test past ELISA.. > I live in Florida now..oops forgot to mention I lived in RI at the > time of the bite. > Does anyone have any idea what I can possibly do to get a Lyme test > beyond ELISA. > > Thank you > Yev > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Go to www.mylymelab.com It is a very good site on testing and how to get what you need. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Yev, Sorry to read of your experience, but am glad that you hadn't given up in your search. Please keep in mind that what you describe MAY be Lyme disease... and then it MAY be other common 'co-infections' that can be spread by the bite of a: flea; tick; mite; lice; sand fleas; mosquitos; and more. There have been some cases reported where people have several of these and test negative for Lyme Disease. Also important to understand is that there are main strains of different infections and not every lab tests for these and/or there is no perfect test. This is why clinical information is very important (i.e. photos of rashes; bites; strange marks) as well as your health history and the symptoms you are experiencing. Here is a link to the IgeneX Lab: http://igenex.com/Website/ Here is a link to explain lab testing for Lyme disease: http://www.igenex.com/labtest.htm Here is a good link to explaining 'co-infections': http://www.lymeinfo.net/coinfections.html Here is a good summary listing of 'co-infections': http://www.lymeinfo.net/coinfectionarticle.html Please note that even West Nile is now being considered a 'co-infection', and another summary listing is: http://www.turnthecorner.org/tick-borne-disorders.htm If you haven't already read through what Dr. ph J Burrascano, Jr. has written, I would suggest printing off the following: http://www.ilads.org/burrascano_0905.html Lastly, since you recall an insect bite in MA and also lived in RI... you may want to track down any Lyme Support Groups in those areas to see what 'local' information you can get for yourself and your attending physican that may be of help. Here are just two links that a quick 'google' search turned up please scroll down for data and local contact information: http://lymebook.com/blog/geographic-incidence/lyme-disease-in-massachusetts-coun\ ties-county/ http://members.cox.net/rilyme/home.html __________________________________________________________________ Ask a question on any topic and get answers from real people. Go to Answers and share what you know at http://ca.answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Go to www.mylymelab.com It is a very good site about Lyme tests. They are promoting an antigen test that is done here in Fla. Go to the testing link very good information. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 PLEASE STOP E-MAILING ME! From: mittenhead02131 <mittenhead02131@...> Subject: [ ] Testing question Date: Sunday, August 3, 2008, 8:57 AM 8 years ago I was bit on my right shin by an insect while at a relatives home in MA. I didn't think anything of it until the site became very painful. A lesion formed at the site shortly after and my shin felt like I had banged it,kind of like when your running up the stairs and slip. 3 months went by and the lesion was not healing,I honestly thought it was nothing. My doctor was called and off I went. I had a fever of 102 when I was examined. THe doctor was a bit baffled by the lesion and took a culture,nothing came back. She prescribed something,can' t remember exactly what. After the meds did nothing I was then sent to a surgeon who removed the lesion and packed it. WHen he did that, what ever was in it spread and formed a lesion a bit lower than the first. That one also was removed and packed. The lesion healed and I have a scar. Now here I am 8 years later.. Heart murmur(never had one before),lesions on my brain,demyelination , pituitary issues, migraines,joint pain, forgetfulness. .and the list goes on. I am in the care of a neurologist who will not test past ELISA.. I live in Florida now..oops forgot to mention I lived in RI at the time of the bite. Does anyone have any idea what I can possibly do to get a Lyme test beyond ELISA. Thank you Yev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 Can you elaborate on the this website advertising the Central Florida Lab? Where is it talking about pros and cons of different testing? Know that people going to Central Florida are not posting on the forums good reports from their testing; well I have seen one good report. Only Igenex is still getting many good reports. I wish there was a cheaper lab. I am always on the look out for good testing ideas. I hear there is a new lab, Clongen or something like that; I am keeping my eyes on that one to see what people say. Heidi N **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 Ambitionn01 If you go to mylymelab.com Go to testing- it gives the problems associated with antibody tests and antigen tests. I don't think that it is a test to end all test, I don't know that we will ever get there but sure hope so. I've had the Western blot and the new antigen test by CFR. I've been bit many times and have been lucky, have brushed 50 or so at a time off cloths after being in swamps etc. I have friends with Lymes and now take all precautions that I can while in the woods. I tested neg. I've done alot of research on all the tests that are out there. I have to deal with ticks and bites alot. As for me I'll keep using CFR'S antigen test by flow cytometry-$250.00 and I do believe it is the best test out there at this time. Gatortails Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hi! I have Chronic Lyme and see a LLMD in Louisiana. I live in NW Florida by Pensacola. I won't use any lab except for Igenex for any of my Lyme testing. I pay for the testing up front and then send in a claim to my insurance company for whatever reimbursement I can get out of them. On one of my claims from last year I got $135.00 back from the insurance company, which is pretty good for the $190.00 I paid out. In fact I just had another WB IgG, IgM, and Babesia FISH done by Igenex. My credit card was charged a total of $298.00 for those three tests. I have to make sure that I get the receipts from Igenex and just print off the claim forms from the insurance company website. I then make copies of everything before sending the claims and only attach the copies of the receipts to the claims and I have usually been reimbursed within 60 days. The insurance company tried to delay my reimbursement claiming that the diagnosis codes, etc were not there, but when I called them and pointed it out to the claim rep. and also stuck my insurance agent on them to make sure they give me my money, I got reimbursed. I'm receiving IV Rocephin 5 days a week and this is my 4th or 5th month. My LLMD wants me to go for another 3 months on the IV and has also just started me on Flagyl 250mg 3 times a day on Fridays, Saturdays, and Sundays only, but I have to work my way up to the total dose very slowly taking 9 weeks to do so to avoid a major Herx. If anyone needs help seeking reimbursement from your insurance for things like Igenex tests, etc, I'll do the best I can. I studied medical coding and billing in college, but due to the Lyme, I have not been able to obtain work in the field as of yet. Well, it's getting late, so I better go get some rest. take care all and I'll be seeing everyone in the posts. Barbara K. [ ] Re: Testing question Hi; Unless you can find a Lyme Literate doctor you probably won't get anything other than ELISA. I'm in So. Cal now (from CT) and ran into the same thing. I finally found a naturopathic doctor who was trained in CT and familiar with Lyme. He drew the blood and I charged the nearly $1200 on my credit card for the gamut of testing at IGENIX for Lyme and all co-infections. It's criminal that you pay insurance all year long, never use it and when you need something you pay out of pocket. Everything I've read suggests IGENIX is the way to go; they have individual tests as well; you can order the test kits and they will mail them to your home - you just need to find a doctor to draw the blood and sign the form. Good luck! > > 8 years ago I was bit on my right shin by an insect while at a > relatives home in MA. I didn't think anything of it until the site > became very painful. A lesion formed at the site shortly after and > my shin felt like I had banged it,kind of like when your running up > the stairs and slip. > 3 months went by and the lesion was not healing,I honestly thought > it was nothing. My doctor was called and off I went. I had a fever > of 102 when I was examined. THe doctor was a bit baffled by the > lesion and took a culture,nothing came back. She prescribed > something,can't remember exactly what. After the meds did nothing I > was then sent to a surgeon who removed the lesion and packed it. > WHen he did that, what ever was in it spread and formed a lesion a > bit lower than the first. That one also was removed and packed. > The lesion healed and I have a scar. > Now here I am 8 years later.. Heart murmur(never had one > before),lesions on my brain,demyelination, pituitary issues, > migraines,joint pain, forgetfulness..and the list goes on. > I am in the care of a neurologist who will not test past ELISA.. > I live in Florida now..oops forgot to mention I lived in RI at the > time of the bite. > Does anyone have any idea what I can possibly do to get a Lyme test > beyond ELISA. > > Thank you > Yev > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 IgeneX tests are antibody, correct? What test can be done to find the actual lyme bacteria? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Culture, which isn't always easy. > > IgeneX tests are antibody, correct? > > What test can be done to find the actual lyme bacteria? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Mainly because the kind of tissue -- joint or nerve tissue or spinal fluid -- that's needed for a good culture is (ahem) rather hard to get at in a doctor's office. You need an OR for this one. Some Lyme patients who are getting surgery or spinal taps for other things (things that are covered by insurance, for example, like knee or back surgery) make a point of asking the doctors to get a tissue sample -- hey, as long as you're in there anyway, Doc, might as well -- and have it cultured for Lyme. It's something I'm definitely planning on doing if (god forbid) the opportunity ever arises. A positive culture, crawling with springy little spirochetes, is as positive positive positive as any Lyme test can ever be. Sara On Oct 26, 2009, at 7:47 PM, mamawolf33 wrote: > Culture, which isn't always easy. > > >> >> IgeneX tests are antibody, correct? >> >> What test can be done to find the actual lyme bacteria? >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 That reminded me of my attempt to do something similar: I had a pre-op myelogram/CT scan done and asked the neurosurgeon if he'd get a sample of the spinal fluid while he was in there. He said no as if I were insane. My CFS had already tested positive 5 years prior, and I had a thought that my neurologist might want to check titers... the excruciating pain of the myelogram, concurrent spinal leak headache, then bloodpatch a week before spinal surgery served to make me forget all about asking until now. Funny how pain can do that, make you forget things. LOL. If culture were easy, I'm sure it would be many doc's preferred method of testing, since it looks directly for the bacteria. I guess someone would have to WANT to find the bacteria in order to work on developing a less invasive test for it. > >> > >> IgeneX tests are antibody, correct? > >> > >> What test can be done to find the actual lyme bacteria? > >> > > > > > Quote Link to comment Share on other sites More sharing options...
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