Re: Support from a Support Group?

[Guest guest]

Elaina,

I am sorry to see you go. You are a very bright and well adjusted young lady in

spite of your challenges at such a young age. I just want you to know that I

hear what you are saying and I agree that there is some negativity going around

but I have two points to make to that end. The first is that part of being in a

support group, and going through grief, is getting angry. Some are better at

getting angry than others. We'll never change that here on this board or out in

the real world. We can only control how we react and respond to that anger. I

personally choose to remove myself from these types of people as I find them

toxic to me right now (All, please know that I am not referring to any one

specific person or post). My second point to you is that this is all cyclical in

these types of web groups and the group will come back around to being what you

once sought from it. I belong to a few web groups and I have seen these types of

flareups many times over and then everything settles and they get back to

business, in fact, I am fairly certain that your message might have been the

ticket. Anyway, I do hope that in future posts we can all be a little more

careful about our insinuations about each other's personal situations (single

vs. married, religious v. non-religious, angry vs. accepting, etc.). I

definitely saw in some of the posts where there was material that could be

viewed as offensive. On the other hand, as was stated before, we all need to

give each other the benefit of the doubt that our intentions are pure and that

we are here to help each other and support each other.

I am wishing everyone a great day as I sit pinned to my couch with a crappy

headcold on top of my usual joint pain. UGH!

Lissa

>

> Hello All, and I do hope all reads this one. I haven't been to active in this

group, but I really have been suffering lately. The biggest thing i needed while

I was suffering and herxing was love and encouragement from friends! If I didn't

have any encouragement or positive energy I would be so depressed there would be

no fighting this disease. I am about to withdraw my membership from this group

because I feel that a support group is intended for positive support to each

other. Through a recent string of posts under the titled Purpose and Meaning,

there were a lot of extremely negative reply's and posts. It started out as

something encouraging but this dark gloomy cloud came over it and all comments

were made about negativity and how horrible this chronic illness is. For all of

your information, we all know! this is the hardest thing I've ever had to

undergo and every will have to go through in m entire life, it brings me to the

edge of destruction! I just wanted to share that lately most of the posts have

been very depressing, and this is not the type of feedback I want in a support

group. I actually, believe it or not, want some heartfelt support! I apologize

if this offends anyone, but I wish you all the best of luck in the future, and

I'm praying for everyone's health throughout this group, but I'm moving on to a

group where I can get some positive feedback and feel like I'm not alone in

trying to fight this illness with positivity. Sorry for leaving, but once again

i wish you all the best of luck....

>

> Elaina

> P.S. as a 14 year old I can't handle anymore strain over how terrible I feel,

or reminding from others. encouragement is the biggest aspect of my optimism in

this stage of my life.....

>

[Guest guest]

Elaina,

I too am sorry to see you go. One thing I'd like to point out is that while

this is a support group etc,each person has a differnt life. As adults our

issue's other than being ill differ greatly from yours. Some of us have lost our

only source of income from being ill and have many worries due to our

circumstances.

I have read many encouraging posts on here and learned a great deal from other

posters. The world of Lyme is never going to be a picnic and to the others on

here who are having trying time,your in my prayers!

I do have a question I am hoping that someone can help with. I live in Pinellas

county Fl and am looking for a new primary care Dr..one who is familiar with

Lyme and is willing to work with an LLMD

Thanks

Yvette

> >

> > Hello All, and I do hope all reads this one. I haven't been to active in

this group, but I really have been suffering lately. The biggest thing i needed

while I was suffering and herxing was love and encouragement from friends! If I

didn't have any encouragement or positive energy I would be so depressed there

would be no fighting this disease. I am about to withdraw my membership from

this group because I feel that a support group is intended for positive support

to each other. Through a recent string of posts under the titled Purpose and

Meaning, there were a lot of extremely negative reply's and posts. It started

out as something encouraging but this dark gloomy cloud came over it and all

comments were made about negativity and how horrible this chronic illness is.

For all of your information, we all know! this is the hardest thing I've ever

had to undergo and every will have to go through in m entire life, it brings me

to the edge of destruction! I just wanted to share that lately most of the posts

have been very depressing, and this is not the type of feedback I want in a

support group. I actually, believe it or not, want some heartfelt support! I

apologize if this offends anyone, but I wish you all the best of luck in the

future, and I'm praying for everyone's health throughout this group, but I'm

moving on to a group where I can get some positive feedback and feel like I'm

not alone in trying to fight this illness with positivity. Sorry for leaving,

but once again i wish you all the best of luck....

> >

> > Elaina

> > P.S. as a 14 year old I can't handle anymore strain over how terrible I

feel, or reminding from others. encouragement is the biggest aspect of my

optimism in this stage of my life.....

> >

>