Please help with results! Does my son have IT????

[Guest guest]

I am really confused and would so much appreciate input!

I have Lyme Disease -Dx Aug. but EM rash was in 1989.As I am aware many

out there can relate to this. I have been very sick but now on

treatment...

My 16 y/o son has been tested for LD using Labcorp draws. The results

came back positive in only one area-WB IgM P39 Ab-Positive. All serum

and other antibodies were neg. So....big ?// Does he have Lyme like me

or??? I have read wher you can pass on in-utero but my dr. does not

concur with that. My son has chronic immune disease(eosiniphilic

esophagitis) and I just need to know what may or may not be going on.

Thanks so much for helping a totally confused mom!!!!

[Guest guest]

-

I can not help you with your questions but - I contacted lyme in 1987

and I gave all my three girls lyme - it is true. I am the beginning

of our treatment and know we have a long road but are so willing to

travel it - good luck with your son and never stop pushing to find

out. My heart goes out to you -

Diane

>

> I am really confused and would so much appreciate input!

>

> I have Lyme Disease -Dx Aug. but EM rash was in 1989.As I am aware

many

> out there can relate to this. I have been very sick but now on

> treatment...

>

> My 16 y/o son has been tested for LD using Labcorp draws. The

results

> came back positive in only one area-WB IgM P39 Ab-Positive. All

serum

> and other antibodies were neg. So....big ?// Does he have Lyme like

me

> or??? I have read wher you can pass on in-utero but my dr. does not

> concur with that. My son has chronic immune disease(eosiniphilic

> esophagitis) and I just need to know what may or may not be going

on.

>

> Thanks so much for helping a totally confused mom!!!!

>

>

[Guest guest]

I appreciate your input...I am not looking for dx.( just what you stated...a

long journey)just some advice from others who may have experienced some similar

scenerios.

 

Thanks so much and you and your girls are in my thoughts and prayers.

 

Thanks again!

From: dkbmama <dkbmama@...>

Subject: [ ] Re: Please help with results! Does my son have IT????

Date: Thursday, October 30, 2008, 9:05 PM

-

I can not help you with your questions but - I contacted lyme in 1987

and I gave all my three girls lyme - it is true. I am the beginning

of our treatment and know we have a long road but are so willing to

travel it - good luck with your son and never stop pushing to find

out. My heart goes out to you -

Diane

[Guest guest]

,

Band 39 is a Lyme specific antibody - one of the most specific.

My 3 kids have congenital Lyme causing Lyme-induced autism in 2 of them.

So, yes, Lyme can cause some other illnesses. (I did not know I had Lyme

when I was pregnant with them.)

On Thu, Oct 30, 2008 at 4:48 PM, akearsesmith <akearsesmith@...>wrote:

> I am really confused and would so much appreciate input!

>

> I have Lyme Disease -Dx Aug. but EM rash was in 1989.As I am aware many

> out there can relate to this. I have been very sick but now on

> treatment...

>

> My 16 y/o son has been tested for LD using Labcorp draws. The results

> came back positive in only one area-WB IgM P39 Ab-Positive. All serum

> and other antibodies were neg. So....big ?// Does he have Lyme like me

> or??? I have read wher you can pass on in-utero but my dr. does not

> concur with that. My son has chronic immune disease(eosiniphilic

> esophagitis) and I just need to know what may or may not be going on.

>

> Thanks so much for helping a totally confused mom!!!!

>

>

>

>

[Guest guest]

Thank you so much for reply.  When you say lyme specific, I am a little

confused(well, really alot:-) wht do you mean?? Is it that he does have it or do

I need to pursue a lab like Igenix?? All of my labs were sent to Labcorp woth a

positive on all criteria for CDC so I guess I was lucky in a way that i was so

cut/dried for me but not the case for Chase.

 

I was not aware I had it either when I became pregnant but do not agree that it

can't be transmitted in-utero.  i

> I am really confused and would so much appreciate input!

>

> I have Lyme Disease -Dx Aug. but EM rash was in 1989.As I am aware many

> out there can relate to this. I have been very sick but now on

> treatment...

>

> My 16 y/o son has been tested for LD using Labcorp draws. The results

> came back positive in only one area-WB IgM P39 Ab-Positive. All serum

> and other antibodies were neg. So....big ?// Does he have Lyme like me

> or??? I have read wher you can pass on in-utero but my dr. does not

> concur with that. My son has chronic immune disease(eosiniphili c

> esophagitis) and I just need to know what may or may not be going on.

>

> Thanks so much for helping a totally confused mom!!!!

>

>

>

>

[Guest guest]

Thank you so much for reply.  When you say lyme specific, I am a little

confused(well, really alot:-) wht do you mean?? Is it that he does have it or do

I need to pursue a lab like Igenix?? All of my labs were sent to Labcorp woth a

positive on all criteria for CDC so I guess I was lucky in a way that i was so

cut/dried for me but not the case for Chase.

 

I was not aware I had it either when I became pregnant but do not agree that it

can't be transmitted in-utero. I  am convinced of ths after friend who has lyme

and 12 y/o has tested positive and stories like yours.

 

Thanks so much

> I am really confused and would so much appreciate input!

>

> I have Lyme Disease -Dx Aug. but EM rash was in 1989.As I am aware many

> out there can relate to this. I have been very sick but now on

> treatment...

>

> My 16 y/o son has been tested for LD using Labcorp draws. The results

> came back positive in only one area-WB IgM P39 Ab-Positive. All serum

> and other antibodies were neg. So....big ?// Does he have Lyme like me

> or??? I have read wher you can pass on in-utero but my dr. does not

> concur with that. My son has chronic immune disease(eosiniphili c

> esophagitis) and I just need to know what may or may not be going on.

>

> Thanks so much for helping a totally confused mom!!!!

>

>

>

>

[Guest guest]

,

I can not diagnose over the internet, but if it were me and I only had band

39 and I had typical Lyme symptoms, I would say that I did indeed have Lyme

disease.

I would suggest that you and he both see an LLMD.

Good luck!

On Fri, Oct 31, 2008 at 9:55 PM, angela smith <akearsesmith@...>wrote:

> Thank you so much for reply. When you say lyme specific, I am a little

> confused(well, really alot:-) wht do you mean?? Is it that he does have it

> or do I need to pursue a lab like Igenix?? All of my labs were sent to

> Labcorp woth a positive on all criteria for CDC so I guess I was lucky in a

> way that i was so cut/dried for me but not the case for Chase.

>

> I was not aware I had it either when I became pregnant but do not agree

> that it can't be transmitted in-utero. I am convinced of ths after friend

> who has lyme and 12 y/o has tested positive and stories like yours.

>

> Thanks so much

>

>

[Guest guest]

hi everyone- reading these posts sparked my curiosity regarding my own

14year old son. He was born with severe foot deformities (surgery #6

upcoming this summer). He has already had cardiac catheter ablation

procedure to correct tachycardia done at Children's hospital in san

diego. He also has an enlarged aorta which we monitor with annual

echoes. They found a number of cysts on the cerebellum which they say

are asymptomatic so nothing has been done. His doctors say this is

all connected somehow; that he has some sort of neuromuscular disorder

so we did ALL the testing; they determined it is

mitochondrial/metabolic in nature but have not been able to put a name

on it.

It looks like I have had LD (bitten during my childhood numerous times

in Lyme, CT where I grew up) long before my son was born but was not

diagnosed until 8 years ago. I went to my son's dr and he listened

enough to order an ELISA on him which of course was negative. What

can I do from here? I don't know what to think; whether or not LD

could be the answer or not; nobody wants that diagnosis for their

child but he has been tested for everything else (Children's Hospital

said they have run out of tests and don't know what to think) Does

anyone know if a test would show positive in a transplacental

transmission? The information I have seen on congenital LD is very

basic; does anyone know of any good articles/books on the subject? I

would appreciate any input anyone would like to share. Thanks for

your help and support.

Robin

>

> From: dkbmama <dkbmama@...>

> Subject: [ ] Re: Please help with results! Does my son have

IT????

>

> Date: Thursday, October 30, 2008, 9:05 PM

>

> -

> I can not help you with your questions but - I contacted lyme in 1987

> and I gave all my three girls lyme - it is true. I am the beginning

> of our treatment and know we have a long road but are so willing to

> travel it - good luck with your son and never stop pushing to find

> out. My heart goes out to you -

> Diane

>

[Guest guest]

You would still want to use the IGeneX Western Blot IgG and IGM Lyme labs

for congenital cases. However, congenital cases are more likely to not show

anything than non-congenital cases. My three kids did show positive

Lyme-specific bands, though. So you really should try.

Since you had Lyme when you were pregnant with your son, your son most

likely does have congenital Lyme and his medical problems are most likely

related to congenital Lyme. You really should see a LLMD as soon as

possible for diagnosis and treatment for your son.

On Sat, Nov 1, 2008 at 1:06 PM, Robin <robinlcurran@...> wrote:

> hi everyone- reading these posts sparked my curiosity regarding my own

> 14year old son. He was born with severe foot deformities (surgery #6

> upcoming this summer). He has already had cardiac catheter ablation

> procedure to correct tachycardia done at Children's hospital in san

> diego. He also has an enlarged aorta which we monitor with annual

> echoes. They found a number of cysts on the cerebellum which they say

> are asymptomatic so nothing has been done. His doctors say this is

> all connected somehow; that he has some sort of neuromuscular disorder

> so we did ALL the testing; they determined it is

> mitochondrial/metabolic in nature but have not been able to put a name

> on it.

>

> It looks like I have had LD (bitten during my childhood numerous times

> in Lyme, CT where I grew up) long before my son was born but was not

> diagnosed until 8 years ago. I went to my son's dr and he listened

> enough to order an ELISA on him which of course was negative. What

> can I do from here? I don't know what to think; whether or not LD

> could be the answer or not; nobody wants that diagnosis for their

> child but he has been tested for everything else (Children's Hospital

> said they have run out of tests and don't know what to think) Does

> anyone know if a test would show positive in a transplacental

> transmission? The information I have seen on congenital LD is very

> basic; does anyone know of any good articles/books on the subject? I

> would appreciate any input anyone would like to share. Thanks for

> your help and support.

>

> Robin

>