Re: Re: Intro... with questions, of course!

[Guest guest]

Some people think the WB is actually *more* likely to be positive after a few

weeks of doxy, since it moves antibodies into the bloodstream.

Sara

On Jan 13, 2010, at 7:30 33PM, sayheysharon wrote:

> Thank you very much for all the replies. I gather that the consensus is that

I take the doxy ASAP. If I were to get the western blot later, would it still

be positive after taking the doxy?

>

> I live in Columbia, land, and I would appreciate a referral to a lyme

literate doc. I had read about lyme and it's controversy a few years back.

Very discouraging to have to fight an illness and battle a system as well.

>

> Sharon

>

>

>

> ------------------------------------

>

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[Guest guest]

Sharon, I missed the beginnings of your posts and if you've just been bitten

(within first 2-3 weeks of the first bite), it's recommended to take 400-600 mg

doxy for 6 weeks (not 4, so it goes through the first reproductive cycle). It's

a lot and can sometimes do some gut damage and is worth it if the lyme doesn't

become disseminated. This is a huge problem that many of the rest of us are

dealing with. I'm in Baltimore, if you want to give a call. I know how scary

this can be.

Cindi

Cindi Callanan, MsT, CST, BEC, Teasel Practitioner

[ ] Re: Intro... with questions, of course!

Hi there, welcome! Hopefully you get the support and positive advice that I

have gotten from everyone here! I was on doxy for a month before I got my Igenex

test, and it came back positive, so I wouldn't worry about it, start it and

start killing those bugs!

good luck

Bridget

[Guest guest]

Hi Sharon,

I also live in Columbia, MD and have a son who is very ill with lyme.  Have a

couple of LLMDs for you

 but did not get your email.

I would be happy to talk to you.  Kathy

________________________________

From: mammamia3x <lhkenkel@...>

Sent: Thu, January 14, 2010 5:27:22 AM

Subject: [ ] Re: Intro... with questions, of course!

 

Hi Sharon,

I am a 39 year old mom of 3 little ones and I have been battling Lyme Disease

for about 2 years. I am currently on hold with all meds after having abnormal

labwork come back, but I was on IV Levaquin and Mepron prior to this setback. I

have multiple co-infections including Babesia, Erlichia, and Bartonella ( I

think those are the right names), that we know of. I live in Northern Virginia

and I see a wonderful doctor in Reston. I know that is a hike for you, but would

you travel to DC to see a doctor? I know that there are some great ones out

there. My best piece of advice I can give you is to stay away from the

Infectious Disease specialists. They will beat you down emotionally and make you

think yourself crazy. Follow the advice on the board and get to an LLMD.

Remember, this is going to be a marathon, not a sprint and there will be

advances and setbacks, be prepared and be honest with your children about what

is going on. I tell my children that mommy

is sick, but that I will get better and some days I just don't feel well. They

understand and are incredibly compassionate and accepting. Mind you, I have not

laid down to die. I am still out there doing the mommy thing and some days its

hard and I have to slow down, but I think my kids know that I am doing the best

that I possibly can to give them a great life.

Take Care,

Lissa

>

> Thank you very much for all the replies. I gather that the consensus is that I

take the doxy ASAP. If I were to get the western blot later, would it still be

positive after taking the doxy?

>

> I live in Columbia, land, and I would appreciate a referral to a lyme

literate doc. I had read about lyme and it's controversy a few years back. Very

discouraging to have to fight an illness and battle a system as well.

>

> Sharon

>

[Guest guest]

Hi -

Thanks for adding that. Yes, I agree, no 2 lyme cases seem to be the same.

Don

mamawolf33 wrote:

>

>

> One good way to indicate if your symptoms are caused by Lyme is to see

> if you have a Herx reaction after starting the Doxy. A herx is

> indicated by a sudden worsening of your symptoms (and in my case a bunch

> of new lyme symptoms) as the anti-biotics start to kill the bacteria.

> My herx's have usually only lasted about a week, but everybody is

> different. After the herx you will gradually start to feel better.

>

>

> I would take exception with the " you Herx if you have Lyme " theory. I was

positive on every test taken (inc. spinal fluid & CDC's tests) and at more than

one lab, and did NOT Herx at all... ever. There was a bit of stomach upset from

the antibiotics, but nothing at all like the poor folks I hear talking about

herxing. I never even heard of Herxing until I joined online groups (years after

treatment).

>

> I'm not saying that most people don't Herx, not at all! I'm just saying that

you can positively have Lyme even if you don't. I think new-to-Lyme folks need

to hear that too.

>

> Now I'll butt my nose back out...

>

>

>