Re: Weight gain and loss

[Guest guest]

> I gained 20 lbs when I got the illness with no explanation , and now,at

> later stages I have lost 20 lbs with no explanation again.Weight gain is

> symptom of earlier stages.

> Thanks,

> Nil

Thanks for this response. My only comment further would be that I am not

convinced the " stage " concept really makes sense when you have done

something to recover. I think it is more likely that the multiple infections

improve and if your body is not too severely damaged you respond and

recover. Often following this recovery patients relapse. This is seen in

those who go off Ampligen and those who go off antibiotics - at least in

cases where they responded to either of these treatments. Personally I

gained weight three times, when I developed autoimmune thyroid disease, when

I developed cfs, and when I stopped the Zithromax for 3 months 2 yrs ago.

I guess the reason I don't care for the stage idea is that I know people who

have recovered in all three stages and after many years. Nicolson and others

say that the longer you are sick the more infections you have, probably

opportunistic, but in the case of Lyme the tick can be carrying more than

one bug.

a

[Guest guest]

Nil wrote:

> I gained 20 lbs when I got the illness with no explanation , and

> now,at

> later stages I have lost 20 lbs with no explanation again.Weight gain

> is

> symptom of earlier stages.

> Thanks,

> Nil

I didn't gain much wt the first 7 yrs of my illness, it came in the

later stages. And slowly keeps coming!

Marcia

[Guest guest]

Because I was bed ridden for 10 years while trying to get diagnosed for Late

Stage Lyme I went from a swelt 150lbs to a shall we say a rubenisque 235.

So about two or three years ago After using Rocephin 2mg IV for Five months I

lost the weight. Back down to 165 fully dressed with clothes and shoes on.

This weekend Mervyn's a local department store had one of those clearance

sales where things marked down 70% had an additional 40% taken off at the Cash

register.

My clothes have been just hanging on me. Most I had given away or thrown out.

I needed clothes. This I say to justify what I did. I bought myself four pairs

of jeans, three tops and two real cut jackets. All on my credit card.

I still have three black dresses I loved to wear at 235 obviously I will never

wear them again. I've tried taking them in, but you can only take in a dress 4

or 5 inches. I have tried to restructure these garments it just doesn't work.

I am going to have to part with them.

Why am I telling you guys this. Well I haven't given anything to Dr.

fund except to mention him in my prayers.

Feeling Sheepish,

Millie

[Guest guest]

Hi all,

I wanted to join in on this topic because we dealt w/ this issue w/ my

daughter who has late-stage chronic lyme, and she too gained over 65 lbs while

only eating about 600 calories per day (she could only eat special K cereal

because her stomach was so messed up). We found that when she was treated for

the toxins that seem to be trapped in the systems of people w/ chronic lyme,

the weight just melted off w/out her changing anything but doing the toxic

treatments.

The first toxin treatment she did was Richie Shoemakers protocal (you can do

a search w/ his name and neurotoxins to get the details. She did that for

about 4 months and then she switched to the Kane protocal which

involves detoxing w/ phosphytal choline. She did that protocal for 2-3 times a

week for about 4 months and the pounds just completely dropped, which proved

she was full of toxins and needed help in ridding her body of them.

Unfortunately, neither protocal helped w/ her lyme symptoms, but she at least

was happy

to have her " normal " weight back again.

I've learned that a large percentage of people w/ lyme have weight problems,

due to the endocrine system being affected along w/ so many other body

systems and that most people w/ lyme, when they find the correct antibiotic for

the strain or strains, plus treatment for co-infections return to their pre-lyme

weight w/out having to do any drastic dieting etc.

Just wanted to share some experience that we have in that department.

[Guest guest]

millie:

congrats on your new figure and new health.

i've been bedbound for the past 1 1/2 yr....currently on iv abx,

but haven't seen any break.

how did you get some of your health back...was it just from the

rocephin or were there other facgors.

pls share. i need some hope today.

thanks, lisa

>

> Because I was bed ridden for 10 years while trying to get

diagnosed for Late Stage Lyme I went from a swelt 150lbs to a shall

we say a rubenisque 235.

>

> So about two or three years ago After using Rocephin 2mg IV for

Five months I lost the weight. Back down to 165 fully dressed with

clothes and shoes on.

>

> This weekend Mervyn's a local department store had one of those

clearance sales where things marked down 70% had an additional 40%

taken off at the Cash register.

>

> My clothes have been just hanging on me. Most I had given away

or thrown out. I needed clothes. This I say to justify what I

did. I bought myself four pairs of jeans, three tops and two real

cut jackets. All on my credit card.

>

> I still have three black dresses I loved to wear at 235

obviously I will never wear them again. I've tried taking them in,

but you can only take in a dress 4 or 5 inches. I have tried to

restructure these garments it just doesn't work. I am going to have

to part with them.

>

> Why am I telling you guys this. Well I haven't given anything

to Dr. fund except to mention him in my prayers.

>

> Feeling Sheepish,

>

> Millie

>

>

>

[Guest guest]

Millie,

Thank you so much for sharing your story. I too have similar problem

and it is very difficult for me to talk about. Round about the time

of the first tick exposure I was having a lot of trouble breathing

and was diagnosed with asthma. I don't know if it was the Lyme or

the 2-3 months I was on prednisone, but I gained 100 lbs in 2

months! At the same time I was diagnosed with fibromyaglia and the

rheumatologist was screaming at me over the weight gain. I was

active in taekwondo at the time and worked out 15 hrs a week between

classes and teaching the 2-3 yr group. So I went from 135 to 235 in

2 months.. I literally hate myself because I hate being fat, I hate

the way people treat me now and the way a number of responders to

personal ads have not wanted a 2nd date after meeting me or getting

a picture. Some have even said they didn't want to be seen with me.

Its so hard to find clothes, none of which are in fashion and the

larger sizes cost more. I experience so much pain when I exercise

and even when I do manage to I don't lose weight more than 5 lbs. I

don't eat near as much as the people at work who munch on junk food

and fast food all day at their desks, yet I am the one overweight.

I have heard Lyme can cause weight gain, but I don't know if that's

really true other than in the sense of making people exercise less.

I feel like I would be treated so much better if I was small again

and maybe would even have been married by now. Old maid at 36!

How do you attribute your weight loss to rocephin? I have heard tell

of that before but can't remember in what context I heard it. Did

rocephin cause your to vomit or have stomach pain and that caused

the weight loss?? I noticed since going on Cipro it is like it an

appetitite suppressant. I haven't read that anywhere, but that is

the only thing that has changed. I only eat 2 meals a day most days

since being on it because I just don't feel hungry. However I

haven't lost any weight on it which makes me wonder what is going on

here. Sure exercise and diet are both needed to lose weight, but

eating less alone will normally make a person loose a few pounds.

Thanks for sharing your story. I hope you can keep the weight off

and can enjoy wearing lots of nice new clothes!

>

> Because I was bed ridden for 10 years while trying to get

diagnosed for Late Stage Lyme I went from a swelt 150lbs to a shall

we say a rubenisque 235.

>

> So about two or three years ago After using Rocephin 2mg IV for

Five months I lost the weight. Back down to 165 fully dressed with

clothes and shoes on.

>

> This weekend Mervyn's a local department store had one of those

clearance sales where things marked down 70% had an additional 40%

taken off at the Cash register.

>

> My clothes have been just hanging on me. Most I had given away

or thrown out. I needed clothes. This I say to justify what I

did. I bought myself four pairs of jeans, three tops and two real

cut jackets. All on my credit card.

>

> I still have three black dresses I loved to wear at 235

obviously I will never wear them again. I've tried taking them in,

but you can only take in a dress 4 or 5 inches. I have tried to

restructure these garments it just doesn't work. I am going to have

to part with them.

>

> Why am I telling you guys this. Well I haven't given anything

to Dr. fund except to mention him in my prayers.

>

> Feeling Sheepish,

>

> Millie

>

>

>

[Guest guest]

Hi. Thanks for sharing. Sorry I don't know your name. This is very

interesting about phosphytal choline as on another board it was

mentioned that until it is put back in balance along with magnesium

Lyme patients would continue to have symptoms even after getting rid

of the spirochetes. I'm going to have to do some reading on this. I

have not heard of either of the protocals you mentioned.

How long has your daughter been maintaining the new lower weight? Is

she able to eat more foods than just Special K?

Can you explain the Patrica Kane protocol that she did?

Thanks!

>

> Hi all,

>

> I wanted to join in on this topic because we dealt w/ this issue

w/ my

> daughter who has late-stage chronic lyme, and she too gained over

65 lbs while

> only eating about 600 calories per day (she could only eat special

K cereal

> because her stomach was so messed up). We found that when she was

treated for

> the toxins that seem to be trapped in the systems of people w/

chronic lyme,

> the weight just melted off w/out her changing anything but doing

the toxic

> treatments.

>

> The first toxin treatment she did was Richie Shoemakers protocal

(you can do

> a search w/ his name and neurotoxins to get the details. She did

that for

> about 4 months and then she switched to the Kane protocal

which

> involves detoxing w/ phosphytal choline. She did that protocal

for 2-3 times a

> week for about 4 months and the pounds just completely dropped,

which proved

> she was full of toxins and needed help in ridding her body of

them.

> Unfortunately, neither protocal helped w/ her lyme symptoms, but

she at least was happy

> to have her " normal " weight back again.

>

> I've learned that a large percentage of people w/ lyme have

weight problems,

> due to the endocrine system being affected along w/ so many other

body

> systems and that most people w/ lyme, when they find the correct

antibiotic for

> the strain or strains, plus treatment for co-infections return to

their pre-lyme

> weight w/out having to do any drastic dieting etc.

>

> Just wanted to share some experience that we have in that

department.

>

>

>

>

>

[Guest guest]

Well as soon as I started feeling like moving around I went to a junk store and

bought a wheel chair. I would take that wheel chair and walk as far as I could

walk. I had myself on a 1500 calorie diet for the whole 15years I was sick. So

getting out of bed and adding that calorie burn started the drop. It went

relatively fast. I was surprised.

Mind you that would be just to the end of my block. At first. Very short city

blocks. But mentally I was game and so I would do it.

Then when I had gone only maybe four or five houses I would sit down in that

wheel chair and my arms were the strongest part of me so I would push myself a

little further. Then come home. After a few months I started what I called

taking my wheelchair for a walk. I got further and further away from home.

When I could go no farther and often I would have pushed myself way too far and

I would literally be afraid I would not make it home. But obviously I made it.

I was so Thankful I had that ridiculous wheelchair. I still have it because I

have been sick enough again and again that I have gotten it out and used it. It

is in my trunk and when I have pushed myself too far but I still need some

groceries or something like that I will get it out and use it. It was

embarrassing to me. I found people do not see people in wheelchairs. I mean

they look everywhere so they don't have to make eye contact. I also found most

stores and streets are not made for handicapped people.

I was so weak every time I would come to a driveway I would be fighting to

keep from rolling out into the street. It was a trip but I stuck with it.

Several times I dumped myself over backwards. I just had to laugh at myself.

That is all I could do.

But that first major energy jump was brought on by 2gms of IV Rocephin, with a

port, right into my Aorta that gave me the biggest burst of energy. We

through in 500mg Flagyl and that took me out with the worst case of Candida you

can Imagine. A real bad case of Candida which went on for several more years

undiagnosed and caused me much more trouble over the next few years.

I have things about my life I wish I could share on this site. You folks are

my only family. Friends. But I don't think I can talk about the Awful things

I have had to endure over the 15 years I have been sick with Late Stage Lyme, on

this site.

Maybe I can tell this. I was rapped by a Home Health Care provider so I got a

bad taste for those people and became very independent, and strong. I already

was but it added an edge to say the least.

It was a home health care provider that walked off with my Day-planner pill

box full of Flagyl (Abx) thinking they had gotten off with about 50 Hydrocodine.

That was a good chuckle as it came back in about two days. No I did not just

misplace it. It is the largest one they make. It is large so you can put A

days worth of vitamins and all, in for a week at a time.

I am organized and pretty much know where things are in my apartment. I have

Migraine Headaches often so I have blackout curtains and I often walk around in

the dark and so I keep things organized.

So Losing 80lbs how did I do it. It was not hard. Like I said I was already

on a low calorie diet. So the added activity just melted the pounds away.

I really keep thinking it will come back but I think I have managed to beat

it. I'll probably jinx myself telling this story.

I would send you lots of hope especially if you are or IV it is a personal

opinion but I believe IV is the only way to go to get a major jump on this

disease.

I was on Rocephin. That is the Abx Dr. Fallon used in his double blind

study. I found it miraculous. Again my opinion. It took two or three months

and I began talking a lot and I would get up in the middle of a treatment and

head across the floor to go get something and be dragging the infusion machine.

Its a wonder I did not pull the darn thing out.

I was very healthy when I got Late Stage Lyme so I feel that played a big part

in my recovery.

Recovery? I am on Zithromax and Diflucan right now and five months ago I

could not do my laundry without thinking I was going to die. I still have so

much pain I think I will just die. So what am I saying recovery.

What I mean is I am not bed ridden. I stay out of bed for about twelve hours.

I am hurting so bad my body is screaming but I have my computer and several TV

shows I watch and a DVD player so I rent movies from Netflix. I also have been

studying the bible for at least 10 years on the Internet. I can't believe it's

been ten years but it has.

When I first got put on IV I had a sore on the bone of each hip. The local

Dr. said she did not know how or why. Well I knew I had worked in medical

records at the local hospital and I knew what they look like it was bed sores.

Doctors don't get it. You tell them you have been in bed for 10, 15 years and

they just don't get it. It just doesn't register is all I can think. Or they

just don't listen.

How I am doing and what i am doing changes daily. So don't take any of this

as gospel. Right now I feel a Migrane coming and I know what that means I am

going to be one sick puppy for a couple days.

I am still so surprised when I reach for a 3x and a small/medium and the

latter fits like the first used to. It just hasn't registered.

So I yak on.

Glad to hear you are doing IV.

Millie

acheytiredmom <lgrasso_hawaii@...> wrote:

millie:

congrats on your new figure and new health.

i've been bedbound for the past 1 1/2 yr....currently on iv abx,

but haven't seen any break.

how did you get some of your health back...was it just from the

rocephin or were there other facgors.

pls share. i need some hope today.

thanks, lisa

[Guest guest]

Hi,

The weight has been off for two years so I am hoping it is gone for good. The

Late Stage Lyme definately isn't.

I sure don't want the lbs. back.

Keeping an eye on the scale.

Millie

wtptoo <wtptoo@...> wrote:

Hi. Thanks for sharing. Sorry I don't know your name. This is very

interesting about phosphytal choline as on another board it was

mentioned that until it is put back in balance along with magnesium

Lyme patients would continue to have symptoms even after getting rid

of the spirochetes. I'm going to have to do some reading on this. I

have not heard of either of the protocals you mentioned.

How long has your daughter been maintaining the new lower weight? Is

she able to eat more foods than just Special K?

Can you explain the Patrica Kane protocol that she did?

Thanks!

[Guest guest]

I have this exercise machine I bought 15 years ago off home shopping called a

HealthRider. I was working out on it everyday faithfully all the years I was

undiagnosed with Late Stage Lyme.

It has a calorie counter on it along with how many reps and how long you have

been on the machine. I kept using it. And the weight just kept coming anyway.

I would get on it and do enough reps to add up to 100 calories. That was how

I did it. When I was so sick I did nothing else. I would get on that machine.

It is sitting here right beside me by my computer desk.

Haven't been on it in weeks. It makes a great clothes hanger.

I don't know about the weight loss. I attribute the IV Rocephin as being able

to get out of bed and figured because I was up walking around the weight just

started to come off.

The more I hear from you guys about it I don't know anymore.

Hanging on to my 3x's. Just in case.

Millie

wtptoo <wtptoo@...> wrote:

Millie,

Thank you so much for sharing your story. I too have similar problem

and it is very difficult for me to talk about. Round about the time

of the first tick exposure I was having a lot of trouble breathing

and was diagnosed with asthma. I don't know if it was the Lyme or

the 2-3 months I was on prednisone, but I gained 100 lbs in 2

months! At the same time I was diagnosed with fibromyaglia and the

rheumatologist was screaming at me over the weight gain. I was

active in taekwondo at the time and worked out 15 hrs a week between

classes and teaching the 2-3 yr group. So I went from 135 to 235 in

2 months.. I literally hate myself because I hate being fat, I hate

the way people treat me now and the way a number of responders to

personal ads have not wanted a 2nd date after meeting me or getting

a picture. Some have even said they didn't want to be seen with me.

Its so hard to find clothes, none of which are in fashion and the

larger sizes cost more. I experience so much pain when I exercise

and even when I do manage to I don't lose weight more than 5 lbs. I

don't eat near as much as the people at work who munch on junk food

and fast food all day at their desks, yet I am the one overweight.

I have heard Lyme can cause weight gain, but I don't know if that's

really true other than in the sense of making people exercise less.

I feel like I would be treated so much better if I was small again

and maybe would even have been married by now. Old maid at 36!

How do you attribute your weight loss to rocephin? I have heard tell

of that before but can't remember in what context I heard it. Did

rocephin cause your to vomit or have stomach pain and that caused

the weight loss?? I noticed since going on Cipro it is like it an

appetitite suppressant. I haven't read that anywhere, but that is

the only thing that has changed. I only eat 2 meals a day most days

since being on it because I just don't feel hungry. However I

haven't lost any weight on it which makes me wonder what is going on

here. Sure exercise and diet are both needed to lose weight, but

eating less alone will normally make a person loose a few pounds.

Thanks for sharing your story. I hope you can keep the weight off

and can enjoy wearing lots of nice new clothes!

[Guest guest]

,

The Kane protocol consisted of the phos-cal (a lipid, which was

ordered from Sweden thru her office) that was injected into her portocath (an iv

line via her chest) and then it was followed by a glutathione push. We only

lived about an hour from her office which is in Haverford, PA and so the

nurses trained me how to do this at home and we did the " pushes " 2-3 times a

week for 4 or so months. You can read all about the phos-cal and how it

detoxes

the liver etc if you do a search for Haverford Wellness Center or

Kane protocol, I think it explains in depth all the details. We had learned

about it from some research I had done and how a gentleman w/ late-stage lyme

felt that this was his " magic bullet " that cleared his mind and most of his

lyme symptoms. Like I stated in the previous post, her lyme symptoms did not

improve, only the puffiness and swelling and the weight loss of almost 60 lbs

in just about 4 months w/ no diet change.

She has maintained her " normal " weight for over a year now and once she got

treated for babesia (never tested positive, but had many symptoms) she started

being able to eat much more of a variety of foods, like chicken and veggies

etc, that her stomach just could not handle in the past, and she actually has

dropped even more weight because she is a little more active. Babesia can

really play havoc on the stomach and we learned that most of her stomach

problems were due to the untreated co-infections that just were not showing up

on

even Igenex testing.

We have not done any aggressive toxin removal for a while now and since she

has reached a plateau, I was thinking that possibly the trapped toxins could

be keeping her from any noticeable improvements again, so we may do the

phos-cal treatment again or the Ritchie Shoemaker one and see if that doesn't

help

the stalemate. Many doctors had learned how to do these protocols so you

wouldn't necessarily have to see the particular doctors who are in this area

in order to try them. Many LLMD's will gladly read your copies of research

and do what they can to help beat this evil organism.

Hope this helps

~Janet

[Guest guest]

I noticed when I started taking digestive enzymes I lost some and

also when I began the probiotics. I stay right around 140-150,so

weight isn't something that I've had to worry about.

My son is very overweight, diag with Lyme, has fatty liver also and

one liver enzyme is up. LLMD is thinking part of it is hormonal and

also he had a 24 hr urine done for cortisol. Haven't gotten the

results back yet.

I also understand that Lyme can mess up the hypothalamus,thyroid,

digestive system and etc, so imagine that's where part of the

problem lies also.

And yes it makes me just sick- the comments, looks and attitude that

others have about overweight- there's so many variables than can

cause it.

Rose Marie

> >

> > Because I was bed ridden for 10 years while trying to get

> diagnosed for Late Stage Lyme I went from a swelt 150lbs to a

shall

> we say a rubenisque 235.

> >

> > So about two or three years ago After using Rocephin 2mg IV

for

> Five months I lost the weight. Back down to 165 fully dressed

with

> clothes and shoes on.

> >

> > This weekend Mervyn's a local department store had one of

those

> clearance sales where things marked down 70% had an additional 40%

> taken off at the Cash register.

> >

> > My clothes have been just hanging on me. Most I had given

away

> or thrown out. I needed clothes. This I say to justify what I

> did. I bought myself four pairs of jeans, three tops and two real

> cut jackets. All on my credit card.

> >

> > I still have three black dresses I loved to wear at 235

> obviously I will never wear them again. I've tried taking them

in,

> but you can only take in a dress 4 or 5 inches. I have tried to

> restructure these garments it just doesn't work. I am going to

have

> to part with them.

> >

> > Why am I telling you guys this. Well I haven't given anything

> to Dr. fund except to mention him in my prayers.

> >

> > Feeling Sheepish,

> >

> > Millie

> >

> >

> >

[Guest guest]

Yeah I went thru the personals rejection thing. I did not know why. Too old,

too fat, who knows. The good thing about it was I got my sweet revenge when two

of these guys who rejected me for whatever reason. Each one showed up in a

different newspaper article. Different things different stories. But both of

them looked as old and haggered as they had appeared to me on our one date,

dates.

fancy1413 <fancy1413@...> wrote: I noticed when I started taking

digestive enzymes I lost some and

also when I began the probiotics. I stay right around 140-150,so

weight isn't something that I've had to worry about.

My son is very overweight, diag with Lyme, has fatty liver also and

one liver enzyme is up. LLMD is thinking part of it is hormonal and

also he had a 24 hr urine done for cortisol. Haven't gotten the

results back yet.

I also understand that Lyme can mess up the hypothalamus,thyroid,

digestive system and etc, so imagine that's where part of the

problem lies also.

And yes it makes me just sick- the comments, looks and attitude that

others have about overweight- there's so many variables than can

cause it.

Rose Marie

>

> Millie,

>

> Thank you so much for sharing your story. I too have similar

problem

> and it is very difficult for me to talk about. Round about the

time

> of the first tick exposure I was having a lot of trouble breathing

> and was diagnosed with asthma. I don't know if it was the Lyme or

> the 2-3 months I was on prednisone, but I gained 100 lbs in 2

> months! At the same time I was diagnosed with fibromyaglia and the

> rheumatologist was screaming at me over the weight gain. I was

> active in taekwondo at the time and worked out 15 hrs a week

between

> classes and teaching the 2-3 yr group. So I went from 135 to 235

in

> 2 months.. I literally hate myself because I hate being fat, I

hate

> the way people treat me now and the way a number of responders to

> personal ads have not wanted a 2nd date after meeting me or

getting

> a picture. Some have even said they didn't want to be seen with

me.

> Its so hard to find clothes, none of which are in fashion and the

> larger sizes cost more. I experience so much pain when I exercise

> and even when I do manage to I don't lose weight more than 5 lbs.

I

> don't eat near as much as the people at work who munch on junk

food

> and fast food all day at their desks, yet I am the one

overweight.

> I have heard Lyme can cause weight gain, but I don't know if

that's

> really true other than in the sense of making people exercise

less.

> I feel like I would be treated so much better if I was small again

> and maybe would even have been married by now. Old maid at 36!

>

> How do you attribute your weight loss to rocephin? I have heard

tell

> of that before but can't remember in what context I heard it. Did

> rocephin cause your to vomit or have stomach pain and that caused

> the weight loss?? I noticed since going on Cipro it is like it an

> appetitite suppressant. I haven't read that anywhere, but that is

> the only thing that has changed. I only eat 2 meals a day most

days

> since being on it because I just don't feel hungry. However I

> haven't lost any weight on it which makes me wonder what is going

on

> here. Sure exercise and diet are both needed to lose weight, but

> eating less alone will normally make a person loose a few pounds.

>

> Thanks for sharing your story. I hope you can keep the weight off

> and can enjoy wearing lots of nice new clothes!

>

>

>

[Guest guest]

Rosemarie,

I had the reverse happen. I gained 10 lbs in 2 months after starting

probiotics. I wasn't ever good about taking probiotics regularly

until I was put on antibiotics and realized I had to take them. I

had chronic diarrhea for years which the probiotics stopped and

apparently that is how the weight gain started.

I have a friend who has taken probiotics for years yet still has

chronic diarrhea, she is very skinny and has lost 20 more lbs since

starting Lyme treatment. She only weighs about 80 lbs now! Its weird

how it affects people differently.

>

> I noticed when I started taking digestive enzymes I lost some and

> also when I began the probiotics. I stay right around 140-150,so

> weight isn't something that I've had to worry about.

> My son is very overweight, diag with Lyme, has fatty liver also

and

> one liver enzyme is up. LLMD is thinking part of it is hormonal

and

> also he had a 24 hr urine done for cortisol. Haven't gotten the

> results back yet.

> I also understand that Lyme can mess up the hypothalamus,thyroid,

> digestive system and etc, so imagine that's where part of the

> problem lies also.

> And yes it makes me just sick- the comments, looks and attitude

that

> others have about overweight- there's so many variables than can

> cause it.

> Rose Marie

>

>

[Guest guest]

I wonder if the diarrehea was possibly due to the probiotics helping

to get rid of yeast, or displacing some " bad " bacteria. My daughter

has said she felt worse after taking digestive enzymes (maybe it's

helping to heal the gut by digesting the protein coating of either

yeast or again " bad bacteria) and the probiotics. She is eating

better now, and is taking Diflucan. Am hoping to encourage her to

retry them at some point in time as I've seen so many positives with

them with my husband and myself.

Maybe the weight gain was due to you absorbing and utililizing the

nutrients better? DOn't know, it's such a guessing game sometimes.

Son's stools have gotten better with time with the digestive enzymes

and the probiotics (from much reading and etc I feel that Leaky gut

syndrome is a big problem for him). He also has to be full of yeast-

when he took Nystatin (used for intestinal yeast) he had shortness

of breath, enough to have to use his inhaler which he hadn't had to

use for a long time. With the Diflucan (used for systemic yeast)

he's not had this at all.

Am hoping to get him back on antibiotic and eventually the Nystatin,

but we're working on hormone replacement and trying to get his sleep

patterns back to " normal " , so don't want to upset the apple cart as

he's tolerating things right now and is beginning to eat better.

(Thank God!!)

Take care

Rose Marie

>

> Rosemarie,

>

> I had the reverse happen. I gained 10 lbs in 2 months after

starting

> probiotics. I wasn't ever good about taking probiotics regularly

> until I was put on antibiotics and realized I had to take them. I

> had chronic diarrhea for years which the probiotics stopped and

> apparently that is how the weight gain started.

>

> I have a friend who has taken probiotics for years yet still has

> chronic diarrhea, she is very skinny and has lost 20 more lbs

since

> starting Lyme treatment. She only weighs about 80 lbs now! Its

weird

> how it affects people differently.

>

>

[Guest guest]

,

Not only does it affect people different it also effects each of us

differently at different times. I originally lost 20lbs and have

since gained 50lbs. Same diet and exercise routine.

Go figure... another weird thing about Lyme.

Be well,

> >

> > I noticed when I started taking digestive enzymes I lost some

and

> > also when I began the probiotics. I stay right around 140-150,so

> > weight isn't something that I've had to worry about.

> > My son is very overweight, diag with Lyme, has fatty liver also

> and

> > one liver enzyme is up. LLMD is thinking part of it is hormonal

> and

> > also he had a 24 hr urine done for cortisol. Haven't gotten the

> > results back yet.

> > I also understand that Lyme can mess up the

hypothalamus,thyroid,

> > digestive system and etc, so imagine that's where part of the

> > problem lies also.

> > And yes it makes me just sick- the comments, looks and attitude

> that

> > others have about overweight- there's so many variables than can

> > cause it.

> > Rose Marie

> >

> >

>