Jump to content
RemedySpot.com

Re: Call to Action from Pat

Rate this topic


Guest guest

Recommended Posts

Thank you for providing this information. I have a SERIOUS RESERVATION about

this legislation. It involves the use of this research money.

WHAT GUARANTEE DO WE HAVE THAT THIS $100 MILLION IS GOING TO BE GRANTED TO

ANYONE BESIDES THE LYME SLUGS WITH DEEP RESEARCH GRANT POCKETS?

WHAT GUARANTEE DO WE HAVE THAT THIS $100 MILLION WILL BE USED FOR RESEARCH

THAT WILL BENEFIT LYME PATIENTS, SUCH AS THE BENEFITS OF PARTICULAR ANTIBIOTIC

LONG-TERM USE AND THE UTILIZATION OF ANY OTHER EXISTING TESTS OTHER THAN AN

INSENSITIVE ELISA TO DIAGNOSE BB?

WHAT GUARANTEE DO WE HAVE THAT THE IDSA AND CDC WILL NOT BE ABLE TO CONTROL

WHICH INDIVIDUALS WILL SERVE AS MEMBERS OF THE TASK FORCE OR ADVISORY

COMMITTEE? THE IDSA HAS AN ONGOING LOBBYING CAMPAIGN TO ENSURE THAT THE IDSA

GUIDELINE AUTHORS MAINTAIN THEIR POSITIONS AS " LYME EXPERTS " ON THESE PANELS AND

COMMITTEES.

These are valid questions, and if they cannot be answered adequately, then I

DO NOT support ONE MORE DOLLAR OF TAXPAYER FUNDS to go into the deep pockets of

individuals such as Wormser, Steere, Eugene Shapiro, etc. etc.

etc.!!!!!!!

Millions of dollars have already funded these individuals for years now and

they are still controlling and preventing our diagnosis and treatment. I urge

all of you to ask these questions, also, and expect adequate answers before

making your decision to blindly support a bill just because it has the words

LYME DISEASE in it.

In Sincerity,

Tina J.

ellenluba <ellenluba@...> wrote:

CALL TO ACTION 2007 #1 (Feb.19)

from Pat , President, Lyme Disease Association, Inc. (LDA)

NEW! ACTION NEEDED

Go to LDA homepage for complete details www.LymeDiseaseAsso ciation.org

FACTS

a.. End of 2006, the 109th Congress ended. All bills not acted upon died

including the

Lyme bill (HR 3427).

· The 110th Congress convened & on January 31, 2007, an identical* Lyme bill, HR

741,

was introduced.

o by US Representative of New Jersey (for himself, Mr. Stupak,

Mr.

Holden, Mr. Gilchrest, Mr. Shays, Mrs. Lowey, Ms. Delauro, Ms. Bean, Mr.

Langevin, Mr.

Baird, Mr. Kirk, Mr. Ackerman, Mr. Grijalva, and Mr. McHugh). Mr. Cummings, Mr.

M.

, Mr. Wynn, Mr. McNulty, Mr. Ruppersberger, and Mr. Ferguson have since

signed on to the bill.

Link to comment
Share on other sites

BRAVO Tina.....I agree and quiet frankly am sick and tired of all the BS

that goes along with legislation such as this....There is always someone with

their hands in the pot. Do we look like we just fell off the " turnip

truck " ????????? I'm disappointed that the LDA and would support

such

legislation? If anyone knows how many Lymies have been screwed by the likes

of these DWEEBS, it is Pat . I personally will fight against giving one

more dime to these DWEEBS.....

Angel Huggzz

or Angel

www.lymecommunity.com

<BR><BR><BR>**************************************<BR> Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across the

web, free AOL Mail and much more.

Link to comment
Share on other sites

Good For you Tina..........I agree wholeheartedly. We don't need another

study regarding chronic lyme......................there are thousands and

all say the same thing NO...........that would be a waste of money. We need

good testing research done by people who believe lyme is a serious problem.

True testing will help people avoid years of illness and despair and money

that they use to see 50 doctors who quote those awful studies. I also

believe all that money will be used by a " stacked deck " of people. I also

agree that we shouldn't support a bill just because " LYME " is in it. Write

your legislators and tell them NOT to support this bill until it is changed

in OUR favor. We don't need another " BILL " that harms us.

Regards,

Connie

> Thank you for providing this information. I have a SERIOUS RESERVATION

> about this legislation. It involves the use of this research money.

>

> WHAT GUARANTEE DO WE HAVE THAT THIS $100 MILLION IS GOING TO BE GRANTED

> TO ANYONE BESIDES THE LYME SLUGS WITH DEEP RESEARCH GRANT POCKETS?

>

> WHAT GUARANTEE DO WE HAVE THAT THIS $100 MILLION WILL BE USED FOR

> RESEARCH THAT WILL BENEFIT LYME PATIENTS, SUCH AS THE BENEFITS OF

> PARTICULAR ANTIBIOTIC LONG-TERM USE AND THE UTILIZATION OF ANY OTHER

> EXISTING TESTS OTHER THAN AN INSENSITIVE ELISA TO DIAGNOSE BB?

>

> WHAT GUARANTEE DO WE HAVE THAT THE IDSA AND CDC WILL NOT BE ABLE TO

> CONTROL WHICH INDIVIDUALS WILL SERVE AS MEMBERS OF THE TASK FORCE OR

> ADVISORY COMMITTEE? THE IDSA HAS AN ONGOING LOBBYING CAMPAIGN TO ENSURE

> THAT THE IDSA GUIDELINE AUTHORS MAINTAIN THEIR POSITIONS AS " LYME EXPERTS "

> ON THESE PANELS AND COMMITTEES.

>

> These are valid questions, and if they cannot be answered adequately,

> then I DO NOT support ONE MORE DOLLAR OF TAXPAYER FUNDS to go into the

> deep pockets of individuals such as Wormser, Steere, Eugene

> Shapiro, etc. etc. etc.!!!!!!!

>

> Millions of dollars have already funded these individuals for years now

> and they are still controlling and preventing our diagnosis and treatment.

> I urge all of you to ask these questions, also, and expect adequate

> answers before making your decision to blindly support a bill just because

> it has the words LYME DISEASE in it.

>

> In Sincerity,

>

> Tina J.

>

> ellenluba <ellenluba@...> wrote:

> CALL TO ACTION 2007 #1 (Feb.19)

>

> from Pat , President, Lyme Disease Association, Inc. (LDA)

>

> NEW! ACTION NEEDED

>

> Go to LDA homepage for complete details www.LymeDiseaseAsso ciation.org

>

> FACTS

>

> a.. End of 2006, the 109th Congress ended. All bills not acted upon died

> including the

> Lyme bill (HR 3427).

> · The 110th Congress convened & on January 31, 2007, an identical* Lyme

> bill, HR 741,

> was introduced.

>

> o by US Representative of New Jersey (for himself, Mr.

> Stupak, Mr.

> Holden, Mr. Gilchrest, Mr. Shays, Mrs. Lowey, Ms. Delauro, Ms. Bean, Mr.

> Langevin, Mr.

> Baird, Mr. Kirk, Mr. Ackerman, Mr. Grijalva, and Mr. McHugh). Mr.

> Cummings, Mr. M.

> , Mr. Wynn, Mr. McNulty, Mr. Ruppersberger, and Mr. Ferguson have

> since

> signed on to the bill.

>

>

> For free up to date information about Lyme disease and the known

> co-infections delivered to your email address see:

> Robynns_Lyme_List/

>

>

Link to comment
Share on other sites

Well, , you're absolutely right. We've been saying this for a long time

now, that if the patients don't start empowering themselves by making informed

decisions instead of acting in blind submission, we turnips will not only falll

off the truck, but we'll be squashed by an oncoming vehicle driven by the Lyme

Slugs.

Why do we need $100 million more dollars for more research that is being used

against us? Why do we need an advisory committee or a task force? What exactly

is the task force going to be able to accomplish for us?

Let's be realistic here. Connie hit it right on the head. Millions and

millions of dollars have already been allocated to the WRONG agencies, the

agencies that are supposed to care about our wellbeing. Time to take off the

rose-colored glasses and see the horrid truth as painful as it is.

Patients simply don't matter except for one purpose. That is to justify the

Lyme Slugs' need for more research grant funds. And then like idiots, we pass

legislation that will directly benefit the Lyme Slugs!!! They must be laughing

at us all the way to the bank!!!

Let's think this through carefully and demand some answers. Perhaps Pat

can supply them, and not just with weak lip service, but with more specific

language in the legislation.

Blessings, Tina

LymeAngl@... wrote:

BRAVO Tina.....I agree and quiet frankly am sick and tired of all the

BS

that goes along with legislation such as this....There is always someone with

their hands in the pot. Do we look like we just fell off the " turnip

truck " ????????? I'm disappointed that the LDA and would support

such

legislation? If anyone knows how many Lymies have been screwed by the likes

of these DWEEBS, it is Pat . I personally will fight against giving one

more dime to these DWEEBS.....

Angel Huggzz

or Angel

www.lymecommunity.com

<BR><BR><BR>**************************************<BR> Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across the

web, free AOL Mail and much more.

Link to comment
Share on other sites

Thank you for your thoughts and comments on this, Connie! You hit the nail

right on the head!

Blind submission is what is costing us. We blindly think that " these folks "

have our best interests in mind, but in actuality, it is their own desire to

obtain funds that is of the most interest to them.

I know we all need meds, but we don't need arsenic.

Best Wishes, Tina

Connie Siese <Cslyme@...> wrote:

Good For you Tina..........I agree wholeheartedly. We don't need

another

study regarding chronic lyme......................there are thousands and

all say the same thing NO...........that would be a waste of money. We need

good testing research done by people who believe lyme is a serious problem.

True testing will help people avoid years of illness and despair and money

that they use to see 50 doctors who quote those awful studies. I also

believe all that money will be used by a " stacked deck " of people. I also

agree that we shouldn't support a bill just because " LYME " is in it. Write

your legislators and tell them NOT to support this bill until it is changed

in OUR favor. We don't need another " BILL " that harms us.

Regards,

Connie

> Thank you for providing this information. I have a SERIOUS RESERVATION

> about this legislation. It involves the use of this research money.

>

Link to comment
Share on other sites

I thought maybe reading the bill might help with some questions. I'm

not familiar with all that has been going on like many of you. I am

fairly new and just learning (mostly scratching my head trying to figure

out what is going on).

jan

Lyme and Tick-borne Disease Prevention, Education, and Research Act of

2005 (Introduced in House)

HR 3427 IH

109th CONGRESS

1st Session

H. R. 3427

To provide for the expansion of Federal efforts concerning the

prevention, education, treatment, and research activities related to

Lyme and other tick-borne diseases, including the establishment of a

Tick-Borne Diseases Advisory Committee.

IN THE HOUSE OF REPRESENTATIVES

July 26, 2005

Mr. SMITH of New Jersey (for himself and Mrs. KELLY) introduced the

following bill; which was referred to the Committee on Energy and

Commerce

A BILL

To provide for the expansion of Federal efforts concerning the

prevention, education, treatment, and research activities related to

Lyme and other tick-borne diseases, including the establishment of a

Tick-Borne Diseases Advisory Committee.

Be it enacted by the Senate and House of Representatives of the United

States of America in Congress assembled,

SECTION 1. SHORT TITLE.

This Act may be cited as the `Lyme and Tick-borne Disease Prevention,

Education, and Research Act of 2005'.

SEC. 2. FINDINGS.

Congress makes the following findings:

(1) Lyme disease is a common but frequently misunderstood illness that,

if not caught early and treated properly, can cause serious health

problems.

(2) Lyme disease is a bacterial infection that is transmitted by a tick

bite. Early signs of infection may include a rash and flu-like symptoms

such as fever, muscle aches, headaches, and fatigue.

(3) Although Lyme disease can be treated with antibiotics if caught

early, the disease often goes undetected because it mimics other

illnesses or may be misdiagnosed. Untreated, Lyme disease can lead to

severe heart, neurological, eye, and joint problems because the bacteria

can affect many different organs and organ systems.

(4) If an individual with Lyme disease does not receive treatment, such

individual can develop severe heart, neurological, eye, and joint

problems.

(5) Although Lyme disease accounts for 90 percent of all vector-borne

infections in the United States, the ticks that spread Lyme disease also

spread other diseases, such as ehrlichiosis, babesiosis, and other

strains of Borrelia. All of these diseases in 1 patient makes diagnosis

and treatment more difficult.

(6) Studies indicate that the actual number of tick-borne disease cases

are approximately 10 times the amount reported.

(7) Persistence of symptomatology in many patients without reliable

testing makes treatment of patients more difficult.

SEC. 3. ESTABLISHMENT OF A TICK-BORNE DISEASES ADVISORY COMMITTEE.

(a) Establishment- Not later than 180 days after the date of the

enactment of this Act, the Secretary of Health and Human Services

(referred to in this Act as the `Secretary') shall establish within the

Office of the Secretary an advisory committee to be known as the

Tick-Borne Diseases Advisory Committee (referred to in this section as

the `Committee').

(B) Duties- The Committee shall advise the Secretary and the Assistant

Secretary for Health regarding the manner in which such officials can--

(1) ensure interagency coordination and communication and minimize

overlap regarding efforts to address tick-borne diseases;

(2) identify opportunities to coordinate efforts with other Federal

agencies and private organizations addressing such diseases;

(3) ensure interagency coordination and communication with constituency

groups;

(4) ensure that a broad spectrum of scientific viewpoints are

represented in public health policy decisions and that information

disseminated to the public and physicians is balanced; and

(5) advise relevant Federal agencies on priorities related to the Lyme

and tick-borne diseases.

© Membership-

(1) APPOINTED MEMBERS-

(A) IN GENERAL- From among individuals who are not officers or employees

of the Federal Government, the Secretary shall appoint to the Committee,

as voting members, an equal number of individuals from each of the

groups described in clauses (i) through (v) of subparagraph (B).

(B) GROUPS- The groups described in this subparagraph include the

following:

(i) Scientific community members representing the broad spectrum of

viewpoints held within the scientific community related to Lyme and

other tick-borne diseases.

(ii) Representatives of tick-borne disease voluntary organizations.

(iii) Health care providers, including at least 1 full-time practicing

physician, with relevant experience providing care for individuals with

a broad range of acute and chronic tick-borne diseases.

(iv) Patient representatives who are individuals who have been diagnosed

with a tick-borne disease or who have had an immediate family member

diagnosed with such a disease.

(v) Representatives of State and local health departments and national

organizations that represent State and local health professionals.

© DIVERSITY- In appointing members under this paragraph, the Secretary

shall ensure that such members, as a group, represent a diversity of

scientific perspectives relevant to the duties of the Committee.

(2) EX OFFICIO MEMBERS- The Secretary shall designate, as nonvoting, ex

officio members of the Committee, representatives overseeing tick-borne

disease activities from each of the following Federal agencies:

(A) The Centers for Disease Control and Prevention.

(B) The National Institutes of Health.

© The Agency for Healthcare Research and Quality.

(D) The Food and Drug Administration.

(E) The Office of the Assistant Secretary for Health.

(F) Such additional Federal agencies as the Secretary determines to be

appropriate.

(3) CO-CHAIRPERSONS- The Secretary shall designate the Assistant

Secretary of Health as the co-chairperson of the Committee. The

appointed members of the Committee shall also elect a public

co-chairperson. The public co-chairperson shall serve a 2-year term.

(4) TERM OF APPOINTMENT- The term of service for each member of the

Committee appointed under paragraph (1) shall be 4 years.

(5) VACANCY- A vacancy in the membership of the Committee shall be

filled in the same manner as the original appointment. Any member

appointed to fill a vacancy for an unexpired term shall be appointed for

the remainder of that term. Members may serve after the expiration of

their terms until their successors have taken office.

(d) Meetings- The Committee shall hold public meetings, except as

otherwise determined by the Secretary, after providing notice to the

public of such meetings, and shall meet at least twice a year with

additional meetings subject to the call of the co-chairpersons. Agenda

items with respect to such meetings may be added at the request of the

members of the Committee, including the co-chairpersons. Meetings shall

be conducted, and records of the proceedings shall be maintained, as

required by applicable law and by regulations of the Secretary.

(e) Authorization of Appropriations- For the purpose of carrying out

this section, there is authorized to be appropriated $250,000 for each

of the fiscal years 2006 through 2009. Amounts appropriated under the

preceding sentence shall be used for the expenses and per diem costs

incurred by the Committee under this section in accordance with the

Federal Advisory Committee Act, except that no voting member of the

Committee shall be a permanent salaried employee.

SEC. 4. FEDERAL ACTIVITIES RELATED TO THE DIAGNOSIS, SURVEILLANCE,

PREVENTION, AND RESEARCH OF LYME AND OTHER TICK-BORNE DISEASES.

(a) In General- The Secretary, acting as appropriate through the

Director of the Centers for Disease Control and Prevention, the Director

of the National Institutes of Health, the Commissioner of Food and

Drugs, and the Director of the Agency for Healthcare Research and

Quality, as well as additional Federal agencies as the Secretary

determines to be appropriate, and in consultation with the Tick-Borne

Diseases Advisory Committee, shall provide for the coordination of all

Federal programs and activities related to Lyme and other tick-borne

diseases, including the activities described in paragraphs (1) through

(4) of subsection (B).

(B) Activities- The activities described in this subsection are the

following:

(1) DEVELOPMENT OF DIAGNOSTIC TESTS- Such activities include--

(A) the development of sensitive and more accurate diagnostic tools and

tests, including a direct detection test for Lyme disease capable of

distinguishing active infection from past infection;

(B) improving the efficient utilization of diagnostic testing currently

available to account for the multiple clinical manifestations of both

acute and chronic Lyme disease; and

© providing for the timely evaluation of promising emerging diagnostic

methods.

(2) SURVEILLANCE AND REPORTING- Such activities include surveillance and

reporting of Lyme and other tick-borne diseases--

(A) to accurately determine the prevalence of Lyme and other tick-borne

disease;

(B) to evaluate the feasibility of developing a reporting system for the

collection of data on physician-diagnosed cases of Lyme disease that do

not meet the surveillance criteria of the Centers for Disease Control

and Prevention in order to more accurately gauge disease incidence; and

© to evaluate the feasibility of creating a national uniform reporting

system including required reporting by laboratories in each State.

(3) PREVENTION- Such activities include--

(A) the provision and promotion of access to a comprehensive, up-to-date

clearinghouse of peer-reviewed information on Lyme and other tick-borne

disease;

(B) increased public education related to Lyme and other tick-borne

diseases through the expansion of the Community Based Education Programs

of the Centers for Disease Control and Prevention to include expansion

of information access points to the public;

© the creation of a physician education program that includes the full

spectrum of scientific research related to Lyme and other tick-borne

diseases; and

(D) the sponsoring of scientific conferences on Lyme and other

tick-borne diseases, including reporting and consideration of the full

spectrum of clinically-based knowledge, with the first of such

conferences to be held not later than 24 months after the date of

enactment of this Act.

(4) CLINICAL OUTCOMES RESEARCH- Such activities include--

(A) the establishment of epidemiological research objectives to

determine the long term course of illness for Lyme disease; and

(B) determination of the effectiveness of different treatment modalities

by establishing treatment outcome objectives.

© Authorization of Appropriations- For the purposes of carrying out

this section, and for the purposes of providing for additional research,

prevention, and educational activities for Lyme and other tick-borne

diseases, there is authorized to be appropriated $20,000,000 for each of

the fiscal years 2006 through 2010. Such authorization is in addition to

any other authorization of appropriations available for such purpose.

SEC. 5. REPORTS ON LYME AND OTHER TICK-BORNE DISEASES .

(a) In General- Not later than 18 months after the date of enactment of

this Act, and annually thereafter, the Secretary shall submit to

Congress a report on the activities carried out under this Act.

(B) Content- Reports under subsection (a) shall contain--

(1) significant activities or developments related to the surveillance,

diagnosis, treatment, education, or prevention of Lyme or other

tick-borne diseases, including suggestions for further research and

education;

(2) a scientifically qualified assessment of Lyme and other tick-borne

diseases, including both acute and chronic instances, related to the

broad spectrum of empirical evidence of treating physicians, as well as

published peer reviewed data, that shall include recommendations for

addressing research gaps in diagnosis and treatment of Lyme and other

tick-borne diseases and an evaluation of treatment guidelines and their

utilization;

(3) progress in the development of accurate diagnostic tools that are

more useful in the clinical setting for both acute and chronic disease;

and

(4) the promotion of public awareness and physician education

initiatives to improve the knowledge of health care providers and the

public regarding clinical and surveillance practices for Lyme disease

and other tick-borne diseases.

Link to comment
Share on other sites

Well, that didn't come out right, so I better clarify. Dumb ole Lyme

brain! LOL

Many of you are familiar with the politics of it all, I am not. (Poor

ole brain really struggled with that one. *rolls eyes*

>

>

I'm

> not familiar with all that has been going on like many of you. >

> jan

Link to comment
Share on other sites

Thank you, Jan, for supplying the language of the bill. I will go over it,

discuss it with others and see if there are any points that we think need to be

addressed.

Thanks again. What a help this is to have the bill provided to us. Best

wishes, Tina

jan <jpos123@...> wrote:

Well, that didn't come out right, so I better clarify. Dumb ole Lyme

brain! LOL

Many of you are familiar with the politics of it all, I am not. (Poor

ole brain really struggled with that one. *rolls eyes*

>

>

I'm

> not familiar with all that has been going on like many of you. >

> jan

---------------------------------

Be a PS3 game guru.

Get your game face on with the latest PS3 news and previews at Games.

Link to comment
Share on other sites

Connie

You are absolutely right on all points. We need to be careful and be sure

our REAL NEEDS are being met. Always read and then look for all the

loopholes that are in these bills. We need something that gives us a better

test

for sure.

Bev

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

Link to comment
Share on other sites

Hey Tina,

I am so glad someone ( a few of us) are speaking our mind. I am so tired

of those that seek the Lymelight (pun intended) can't see the forest through

the trees. It seems they get all the " important " people, but it goes

nowhere but for publicity stunts. We need better testing and our doctors

need to be free to help us. Not some stupid law on each state books that

the insurance finds a way to get around. People need to be their own

advocate.........please read things yourselves and really ask questions.

Don't just be a follower. Just because " someone " knows a legislator doesn't

mean they will do good for you. Call yourselves and see if your legislator

really understands the real problem.

Hugs and Blesses,

Connie

> Well, , you're absolutely right. We've been saying this for a long

> time now, that if the patients don't start empowering themselves by making

> informed decisions instead of acting in blind submission, we turnips will

> not only falll off the truck, but we'll be squashed by an oncoming vehicle

> driven by the Lyme Slugs.

>

> Why do we need $100 million more dollars for more research that is being

> used against us? Why do we need an advisory committee or a task force?

> What exactly is the task force going to be able to accomplish for us?

>

> Let's be realistic here. Connie hit it right on the head. Millions and

> millions of dollars have already been allocated to the WRONG agencies, the

> agencies that are supposed to care about our wellbeing. Time to take off

> the rose-colored glasses and see the horrid truth as painful as it is.

>

> Patients simply don't matter except for one purpose. That is to justify

> the Lyme Slugs' need for more research grant funds. And then like idiots,

> we pass legislation that will directly benefit the Lyme Slugs!!! They

> must be laughing at us all the way to the bank!!!

>

> Let's think this through carefully and demand some answers. Perhaps Pat

> can supply them, and not just with weak lip service, but with more

> specific language in the legislation.

>

> Blessings, Tina

>

> LymeAngl@... wrote:

> BRAVO Tina.....I agree and quiet frankly am sick and tired of all

> the BS

> that goes along with legislation such as this....There is always someone

> with

> their hands in the pot. Do we look like we just fell off the " turnip

> truck " ????????? I'm disappointed that the LDA and would

> support such

> legislation? If anyone knows how many Lymies have been screwed by the

> likes

> of these DWEEBS, it is Pat . I personally will fight against giving

> one

> more dime to these DWEEBS.....

>

> Angel Huggzz

> or Angel

> www.lymecommunity.com

> <BR><BR><BR>**************************************<BR> Check out free AOL

> at

> http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

> safety and security tools, millions of free high-quality videos from

> across the

> web, free AOL Mail and much more.

>

>

Link to comment
Share on other sites

Hey Bev! Great points! So glad to hear from others who are wondering.

Although we are an online Lyme family, we are still alone at our computers. We

are many times alone with our thoughts. I wonder how many patients do have

questions. I sure would like to see more political discussion, because there

are a lot of really intelligent people on this forum. the Lyme patient needs to

empower themselves to take the reins. That's really what I'd like to see,

instead of the same repetitive actions by the same individuals time and time

again.

Best Wishes, Tina

B56G@... wrote:

Connie

You are absolutely right on all points. We need to be careful and be sure

our REAL NEEDS are being met. Always read and then look for all the

loopholes that are in these bills. We need something that gives us a better test

for sure.

Bev

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

Link to comment
Share on other sites

Tina,

Thank you for your response. No one walks on water but God. This is a

Democracy and all voices need to question the end result.

God Bless,

Bev

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

Link to comment
Share on other sites

>

> Hey Tina,

> I am so glad someone ( a few of us) are speaking our mind. I am

so tired

> of those that seek the Lymelight (pun intended) can't see the

forest through

> the trees. It seems they get all the " important " people, but it

goes

> nowhere but for publicity stunts.

i believe pat smith is one of the problems

lymediva@... aka jdileo2233@...

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...