New member

[Guest guest]

Therese..

The email from the 27th came thru fine...Welcome to the group...you will get lots of info here and get lots of support...

I am one of the moms here...my son is now 19...

hope to see more from you and please tell us a little bit more about yourself...

take care...

Luanne Ty's mom

[Guest guest]

I'm new to this also & I have no idea what wrap message means.

However, welcome on board!! Lots of luck being prednisone free, that

stuff is NASTY. Joe-Lee [AIH dx 7/96]

[Guest guest]

Dear ,

Do you have mild AIH disease? Did you do

well for most of the 15 years? How did the prednisone cause your diabetes?

I am on 15 mg prednisone and 50 mg Imuran, so far so good. I ma just worried about my future,

what it holds for me. Hope you are OK.

[ ] New

Member

Hi! I am so glad I found you. I have had AIH for

15 years now. I am

an RN and have done some research but it is good

to find others. I

am in a holding pattern now. Esophageal

varicies, enlarged spleen

from portal hypertension. Waiting until I

start to have major

bleeding problems then they might do a shunt

surgery or a tips

surgery. I don't seem to tolerate any meds

except prednisone and

aldactone. Am on 10mg Prednisone/day and

only one mg less sends my

enzymes up again. The book Hepatitis Liver

Disease by

Palmer,MD has some good info on the hereditary

part and diet too. I

was just diagnosed with Diabetes from the

Prednisone. Another

challenge. Glad you are here...

[Guest guest]

Dear ,

I don't know how mild it is. When they finally diagnosed me, I was in complete liver failure and kidney failure and having a near death experience. I was tried on Immuran but it lowered my platelets too much so they had to discontinue it. Long term prednisone use can put you into a medication induced diabetes. I have been on Prednisone for 15 years. The diabetes can still be controlled by diet and I am working at loosing weight. I am not on any diabetes medication yet. The healthier you can be the better. I am tired a lot and I'm a bit scared because now I have varicies that could start bleeding in my throat and abdomen. It just means that I'm off the Rugby team and no trips far away from a major hospital. I'm still working full time as an RN and anyone could die by car accident or a number of things. Think positive and keep your sense of humor,,,,,,,,

I've had a couple of close calls with surgery( a D & C and EGD's). Keeping my platelets up and having bad drug reactions, but on the most part, I've led a pretty normal life...kathryn

lisa m skowron <lsmaxfax@...> wrote:

Dear ,

Do you have mild AIH disease? Did you do well for most of the 15 years? How did the prednisone cause your diabetes?

I am on 15 mg prednisone and 50 mg Imuran, so far so good. I ma just worried about my future, what it holds for me. Hope you are OK.

-----Original Message-----From: katydid562002 [mailto:katydid562002@...] Sent: Saturday, March 30, 2002 7:32 AM Subject: [ ] New Member

Hi! I am so glad I found you. I have had AIH for 15 years now. I am an RN and have done some research but it is good to find others. I am in a holding pattern now. Esophageal varicies, enlarged spleen from portal hypertension. Waiting until I start to have major bleeding problems then they might do a shunt surgery or a tips surgery. I don't seem to tolerate any meds except prednisone and aldactone. Am on 10mg Prednisone/day and only one mg less sends my enzymes up again. The book Hepatitis Liver Disease by Palmer,MD has some good info on the hereditary part and diet too. I was just diagnosed with Diabetes from the Prednisone. Another challenge. Glad you are here...

[Guest guest]

Dear ,

Actually, this disease does seem to have a

positive impact on me. Now, I don’t fritter away my day, but am working

and creating all day, not sitting around. I know that my time is not unlimited

but as for how much time I have, who knows? At first I was devastated when I

was sick and the doctors were trying to figure out what was wrong besides me

contracting mono from my nephew last Sept.

I was suprised

to find out that even if you take the medications and the liver function

remains in the normal range, that there is still a chance of developing

cirrhosis, and that it had more to do with the severity of the disease than how

well the LFT’s were controlled. That doesn’t

seem fair.

I hope that you are feeling well and that

you do not have any more complications. I was amazed at what you have been

through and you survived!

Hope you have a wonderful day today!

[ ] New

Member

Hi! I am so glad I found you. I have had AIH for

15 years now. I am

an RN and have done some research but it is good

to find others. I

am in a holding pattern now. Esophageal

varicies, enlarged spleen

from portal hypertension. Waiting until I

start to have major

bleeding problems then they might do a shunt

surgery or a tips

surgery. I don't seem to tolerate any meds

except prednisone and

aldactone. Am on 10mg Prednisone/day and

only one mg less sends my

enzymes up again. The book Hepatitis Liver

Disease by

Palmer,MD has some good info on the hereditary

part and diet too. I

was just diagnosed with Diabetes from the

Prednisone. Another

challenge. Glad you are here...

[Guest guest]

Hi Jo, seems like you are on the right path. Educating yourself

will give you power and also those around you really need to

understand what you are going through. Best wished, Kathy

> Hi Everyone.

> I am new to this group. I was diagnosed with Lupoid

> Hepatitis 18 months ago. I have been taking both

> prednisone and imuran for that entire time period.

> Since my diagnosis, I have been in serious denial about

> my disease and consequences of it and taking these two

> drugs. I tried to forget anything was wrong with me and

> pretended that everything would be fine as long as I

> took these " mircle " pills like vitimins. Every time I had

> abdominal pain, I blamed it on something I ate or the stress

> in my life from work. For a long time now I have felt like

> I am slowly going crazy. I can't focus, I am always depressed,

> my stomach always aches - I can't explain it to my family

> because none of it made sense to me - so I tried to ignore it.

>

> Well - I am done ignoring it and I am in search of answers and

> any type of remedies for these problems that I can find. I

> have finally accepted that I am going to be dealing with this

> for the rest of my life and need to find a way to deal with these

> symptoms and live a more normal life.

>

> I am so glad to have found this group. My family tries to be

> supportive but it will really help to talk to people who know

> exactly what I am talking about because they may have experienced

> it.

>

> I look forward to corresponding with you and gettin to know you.

>

> Jo

[Guest guest]

Just wanted to say hi janet, and welcome to the group. Glad your still here, just shows how wrong doctors can be. My mother suffers from PBC, and i was diagnosed with auto immune hep. 3 years ago. All the best. jackie

>From: "jjenks64"

>Reply- > >Subject: [ ] new member >Date: Tue, 24 Sep 2002 17:44:41 -0000 > > I am a new member to this group. My name is Janet and I was >diagnosed with idiopathic cirrhosis in Feb.1997. Doctors told me it >was developing so fast that I would be lucky if I lived 3 months. >Surprise I'm still here by the grace of god. I had to look up some >words you guys use. I've been down varices road 2 yr ago. Started >bleeding from esophagus and spent 3 days in coma. They did rubber >band thing. So far so good. Hope the best to all of you. It's not an >easy road. > Janet > In Ohio > Join the world’s largest e-mail service with MSN Hotmail. Click Here

[Guest guest]

jackie paterson wrote:

Just wanted to say hi janet, and welcome to the group. Glad your still here, just shows how wrong doctors can be. My mother suffers from PBC, and i was diagnosed with auto immune hep. 3 years ago. All the best. jackie

>From: "jjenks64"

>Reply- > >Subject: [ ] new member >Date: Tue, 24 Sep 2002 17:44:41 -0000 > > I am a new member to this group. My name is Janet and I was >diagnosed with idiopathic cirrhosis in Feb.1997. Doctors told me it >was developing so fast that I would be lucky if I lived 3 months. >Surprise I'm still here by the grace of god. I had to look up some >words you guys use. I've been down varices road 2 yr ago. Started >bleeding from esophagus and spent 3 days in coma. They did rubber >band thing. So far so good. Hope the best to all of you. It's not an >easy road. > Janet > In Ohio > thank you jackie

Join the world’s largest e-mail service with MSN Hotmail. Click Here

[Guest guest]

Dear Isabella,

Welcome!

Maybe there is a reason you "chickened out" from going to the clinic...follow your instincts.

There are safer, more effective treaments than your clinic can offer. Do your own research before you make any decisions. Your body is designed ot heal itself provided the proper nutritional tools for the job. Intereferon treatments are desgined to destroy virus, but they damage everything in their path, permanantly. This stuff is not to be taken lightly. Some get through it fine...most do not.

You can get rid of the virus and heal the damage safely. We are happy to help, anytime.

We wish you well.

Peace, Jeanine

http://hepchelp.homestead.com

>From: "isa. [ isabella ] "

>Reply- > >Subject: [ ] New member >Date: Wed, 16 Oct 2002 17:01:59 -0000 >MIME-Version: 1.0 >X-Originating-IP: 62.252.160.5 >Received: from n9.grp.scd. ([66.218.66.93]) by mc2-f35.law16.hotmail.com with Microsoft SMTPSVC(5.0.2195.4905); Wed, 16 Oct 2002 10:03:29 -0700 >Received: from [66.218.67.192] by n9.grp.scd. with NNFMP; 16 Oct 2002 17:02:07 -0000 >Received: (EGP: mail-8_2_2_1); 16 Oct 2002 17:02:06 -0000 >Received: (qmail 71696 invoked from network); 16 Oct 2002 17:02:04 -0000 >Received: from unknown (66.218.66.218) by m10.grp.scd. with QMQP; 16 Oct 2002 17:02:04 -0000 >Received: from unknown (HELO n13.grp.scd.) (66.218.66.68) by mta3.grp.scd. with SMTP; 16 Oct 2002 17:02:04 -0000 >Received: from [66.218.67.147] by n13.grp.scd. with NNFMP; 16 Oct 2002 17:02:00 -0000 >X-eGroups-Return: sentto-2436732-3071-1034787727-hepc=hotmail.com@... >X-Sender: isablue_uk@... >X-Apparently- >Message-ID:

>User-Agent: eGroups-EW/0.82 >X-Mailer: Message Poster >X--Profile: isablue_uk >Mailing-List: list ; contact -owner >Delivered-mailing list >Precedence: bulk >List-Unsubscribe:

>Return-Path: sentto-2436732-3071-1034787727-hepc=hotmail.com@... >X-OriginalArrivalTime: 16 Oct 2002 17:03:29.0342 (UTC) FILETIME=[F32E75E0:01C27535] > > Hi, i will try again. i have wriiten i twice just to say hi to >everyonr but havent got through,before. >So Here Goes again, > Hi wishing you all the very best and that things have not been too >bad for you? > I live in england and i Only found out i am hep C positive in July >and been waiting to go to Hep C Clinic, they are once a month [clinic >sessions] i chickened out a couple times. >Altho i have had Hep B[ now clear] i should have expected the result >i got. with Hep C.[but theres no cure for this one eh/] after all i >was a heavy iv drug user over 20years ago,up to 30yrs ago.Hope that >hasnt put you off me,i dont inject now, or for years.but there ya go. >i feel sad for all you guys who are having a real bad time,but this >site and Pathlights are the greatest with lots of good information >and great people. >I had been going to Dr with pains and aches and fatigue but was all >in my mind , huh! >Take care, love, always. > Isa xxx > Unlimited Internet access for only $21.95/month.  Try MSN! Click Here

[Guest guest]

Hi Isa and Welcome to our group! It doesn't matter how we got here

(although my path was the same as yours), we're all in the same boat!

We are all learning together but are individuals and have have our

own separate paths. You will hear different people speak of different

regimens, herbs and supplements and treatments. It's your body, and

it's up to you to make informed decisions regarding how you treat it.

The internet is a wealth of information. I credit God and the

internet with my success so far, and the sky's the limit! Love.

Karolyn

> Hi, i will try again. i have wriiten i twice just to say hi to

> everyonr but havent got through,before.

> So Here Goes again,

> Hi wishing you all the very best and that things have not been

too

> bad for you?

> I live in england and i Only found out i am hep C positive in July

> and been waiting to go to Hep C Clinic, they are once a month

[clinic

> sessions] i chickened out a couple times.

> Altho i have had Hep B[ now clear] i should have expected the

result

> i got. with Hep C.[but theres no cure for this one eh/] after all

i

> was a heavy iv drug user over 20years ago,up to 30yrs ago.Hope

that

> hasnt put you off me,i dont inject now, or for years.but there ya

go.

> i feel sad for all you guys who are having a real bad time,but this

> site and Pathlights are the greatest with lots of good information

> and great people.

> I had been going to Dr with pains and aches and fatigue but was all

> in my mind , huh!

> Take care, love, always.

> Isa xxx

[Guest guest]

isabella: nothing puts me off.. welcome. P.s i love will you marry me? Pumpboz

[Guest guest]

>isabella: nothing puts me off.. welcome. P.s i love will you marry me?

>Pumpboz

Pump! What happened? I though WE were getting married!

Peace, Jeanine

http://hepchelp.homestead.com

>From: pumpboz@... >Reply- > >Subject: Re: [ ] New member >Date: Wed, 16 Oct 2002 23:15:33 EDT >MIME-Version: 1.0 >Received: from n31.grp.scd. ([66.218.66.99]) by mc8-f10.law1.hotmail.com with Microsoft SMTPSVC(5.0.2195.4905); Wed, 16 Oct 2002 20:15:56 -0700 >Received: from [66.218.66.98] by n31.grp.scd. with NNFMP; 17 Oct 2002 03:15:41 -0000 >Received: (EGP: mail-8_2_2_1); 17 Oct 2002 03:15:40 -0000 >Received: (qmail 10252 invoked from network); 17 Oct 2002 03:15:40 -0000 >Received: from unknown (66.218.66.216) by m15.grp.scd. with QMQP; 17 Oct 2002 03:15:40 -0000 >Received: from unknown (HELO imo-d05.mx.aol.com) (205.188.157.37) by mta1.grp.scd. with SMTP; 17 Oct 2002 03:15:40 -0000 >Received: from Pumpboz@... imo-d05.mx.aol.com (mail_out_v34.13.) id r.1c0.345783 (3996) for ; Wed, 16 Oct 2002 23:15:33 -0400 (EDT) >X-eGroups-Return: sentto-2436732-3082-1034824540-hepc=hotmail.com@... >X-Sender: Pumpboz@... >X-Apparently- >Message-ID: <1c0.345783.2adf8555@...> >X-Mailer: AOL 6.0 for Windows US sub 10578 >Mailing-List: list ; contact -owner >Delivered-mailing list >Precedence: bulk >List-Unsubscribe:

>Return-Path: sentto-2436732-3082-1034824540-hepc=hotmail.com@... >X-OriginalArrivalTime: 17 Oct 2002 03:15:56.0768 (UTC) FILETIME=[825AAE00:01C2758B] > >isabella: nothing puts me off.. welcome. P.s i love will you marry me? >Pumpboz Surf the Web without missing calls! Get MSN Broadband. Click Here

[Guest guest]

Chris:

WOW!!! So sorry to hear all that you've been going through. Welcome to the

group!!!!!!!

Please tell me you don't live in Los Angeles LOL. And if you do, who the heck

are those awful docs? You clearly need a second opinion (doctor) and quickly.

What does your trust PT say?

Been going through the back hell now for over 10 years. I haven't had surgery

yet. Probably early next year. Hoping to avoid spinal fusion by having

artifical disc surgery. Have consultations set up for December with

Neurosurgeon and Orthopedist who are doing the trials. Pain has been all

consuming for years now. Can't sit. Have only recently begun to have some

numbness. Just started taking Topamax. Took Neurontin years ago (for Reflex

Sympathetic Dystrophy, which I had in my leg). It's good stuff. Topamax is a

little newer (same category as Neurontin). Hang in there.

There are lots of people in our support group who've had surgery and who I'm

sure are better qualified (as they've had surgery) to help with your

questions (and will). Glad you're part of the group.

Robin

[Guest guest]

>

>Welcome! Wow, your story sounds very painful! Is it possible you might

>have bone spurs or scar tissue that was missed? >>

Hi Jan!

Well, given the way my Ortho did me the first time, it wouldn't surprise me

if he did leave in other stuff! Actually, when I had my staples removed, I

asked him how this chunk of disc laying up against my nerve could cause so

much excruciating pain. I KNOW that he told me that he thought a couple of

things were going on in my back...the chunk of disc and some bone.....and I

couldn't remember the exact words he used...so on my next visit, I asked

him about it again. He informed me that I was nuts....that he had never

said that my pain may have something to do with bones being left in. So,

who knows. *I* think that it had to be something more drastic, but can't

get him to admit it

>Excuse my ignorance..but what is MSM?>>

Your not ignorant! it is a fairly *new* thing, tho I am sure that it has

been available for a long time. MS is a natural sulfur that our bodies

need in able to heal ourselves. It is found in lots of things that we eat,

but with all of the processed foods that we eat nowdays.....we never get

enough of it. Here is a good site that gives some info www.msm.com They

have been selling it with Glucosamine and Chondroiton (sp?) included for

bones & joint health. I took the pills for a while, but ddin't really

notice any difference. then I formulated my lotion with MSM in it....it is

basically like Super Blue.....but theirs has maybe 3 essential oils where

mine has 18! LOL Overkill??? It sure does work tho! I am next door to a

hair salon....and 80% of her customers are the little ladies that still get

their hair done every week. I left some samples over there for her to give

out, and these lovely little ladies come in & just thank me profusely for

helping them with their backs, arthritis etc. I have a *thing* for little

old ladies Plus, mine isn't as expensive as the other stuff....and with

these folks being on a limited income, every little bit helps. I think I

missed my calling....I love to help people with their skin problems and now

with their pain. Maybe I should have been a nurse! LOL

> I would definitly research into finding a nerosurgeon that comes with

> good recommendations, has much experience in spinal surgery and one that

> you feel comfortable with. Keep your nerosurgeon that you have now but I

> would try to find another one and when you do make the earliest possible

> appointment. I know it is a hassel. I went through the same thing with

> doctors untill I finally found one that I felt good about. At one point

> I had two orthosurgeons and two neurosurgeons. (herniated C5-6).>>

Oh my! that brings up a question that I have often wondered about. AFTER

my surgeries, I had tons of folks wondering why I only had 2 Othro's and no

Neuro in there with me. Heck, I didn't know that I should have! But

everyone that I've talked with that has had a good outcome on their

surgeries....there was an Ortho & Neuro both. I've been given a name of

another Ortho who ALWAYS uses a Neuro in his spine surgeries. The gal that

I met that used this Dr is playing softball again! It hurts me to just

walk, let alone dive after balls! So, I may check him out. I am trying to

get the instrumentation out before the end of this year for monetary

reasons. Guess I better get in gear then eh? LOL

Thanks again for the warm welcome!

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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[Guest guest]

>Chris:

>WOW!!! So sorry to hear all that you've been going through. Welcome to the

>group!!!!!!!>>

Thank you! I tell ya, this has been THE worst year of my life because of

this! They had me on Celebrex before the surgery...and I was amazed at how

well it took care of my aches/pains. The main reason had the surgery was

so that I didn't have to take pills the rest of my life...boy was I wrong! LOL

>Please tell me you don't live in Los Angeles LOL. And if you do, who the heck

>are those awful docs? You clearly need a second opinion (doctor) and

>quickly. >>

LOL Nope...don't live there, I am in OK. I think that there are quacks

everywhere tho! LOL My landlady, who also owns the salon next door

reminded me that 50% of the med students finish at the lower 50% of their

class....and are Doctors now! I personally think that all of them are just

practicing! <G>

>What does your trust PT say?>>

This is the hard part! My PT is the one that recommended the current

Neuro! I stopped in there yesterday to give him a copy of my EMG and let

him know where I am at etc. He is just as puzzled as I am about why my EMG

is showing that I am in worse shape than I was before the 2nd surgery. The

Neuro isn't sure either.....which means I still have no answers. If my

puter will cooperate, I hope to do some digging on the subject. Everyone

thoguth I was nuts when I would ask this.....but I have to wonder. I have

a bone stimulator in my back, because I smoke, and that makes it harder for

the bones to fuse. Thru this whole thing, I do OK thru the day.....but

boy, at night, it is terrible! When I try to relax my muscles, I get this

*zing* in my back. It feels like a cattle prod! LOL Everyone has assured

me that the voltage in the stimulator is not enough to cause these

zings. But, I still wonder, as that has not gone away...and it has been 6

months now since the 2nd surgery. It would be my luck to be the first

person to have a malfunctioned stimulator! <G>

>Been going through the back hell now for over 10 years. I haven't had surgery

>yet. Probably early next year. Hoping to avoid spinal fusion by having

>artifical disc surgery. Have consultations set up for December with

>Neurosurgeon and Orthopedist who are doing the trials. Pain has been all

>consuming for years now. Can't sit.>>

I've read about this procedure. I know of a gal in TX that will have to

have her entire back redone with this by I think 2005? I can only say,

take it slow! As hard as that may be! I *thought* that the surgeon I had

picked was going to be great, he was a Fellows in Med School, he had this 3

page spread on his walls about how he had basically saved this woman's life

etc. And then for him to mess up on something so simple really blows my

mind. I too couldn't set for longer than a couple of minutes. My

wonderful hubby did all the cooking, cleaning etc and I will never forget

him making a good dinner for me, I tried with all my mightto set down & eat

dinner with my family. I took about 2 bites and tears just welled up in my

eyes....I just couldn't set there & eat, so had to stand up at teh bar. My

poor little 11 YO son was a trouper thru all of this was well. He was my

*butler* He asked me one morning " Mom, when do you think you will quit

crying " ? Bless his heart, he has been used to his Mom never being sick

etc, to crying allll the time!

> Have only recently begun to have some

>numbness. Just started taking Topamax. Took Neurontin years ago (for Reflex

>Sympathetic Dystrophy, which I had in my leg). It's good stuff. Topamax is a

>little newer (same category as Neurontin). Hang in there.>>

Neuro did mention Neurontin...and I had taken that earlier on before the

2nd surgery. I am having to go to my family doctor to get my prescriptions

filled, because Ortho would only write me 60 Lortab's at a time, meaning I

had to pay double co-pays. So, I talked to my Family Doc about the fact

that I don't sleep for more than 2 hours at a time, so he put me on

Ellavil. Apparently, that is not only to help you sleep, but also helps

with nerves. I took my first 75mgh one last night, and WOOOHOOOO I slept

for 4 hours at a time! I know that my body can't even attempt to heal

itself if I never get any *good* sleep, so maybe this will help. I am

headed to Google to check out this syndrome!

>There are lots of people in our support group who've had surgery and who I'm

>sure are better qualified (as they've had surgery) to help with your

>questions (and will). Glad you're part of the group.

>

>Robin>>

Thanks again for the warm welcome Robin! Hope I can give something back to

the group as well

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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[Guest guest]

Chris:

You know a person in Texas who's had the Artificial disc surgery and has to

have it redone in 2005??????? That doesn't sound good. It's just now in

clinical trials here in the U.S., although it's been in France for nearly

seven years (and in Germany).

Elevil is an older antidepressent (also now given for pain). Glad it's

working for you. I didn't tolerate it, but it's amazing how these meds are

prescribed for various usages and are so miraculous. Neurontin, for example,

is a seizure medication that was previously only prescribed for epilipsy and

now is prescribed for pain mgmt and also for anxiety and depression.

The stimulater sounds facinating. Did you see Jerry on Larry King a

month or so ago? He has some kind of experimental stimulator implanted in his

back (for pain). He swears by it.

Robin

[Guest guest]

> LOL Nope...don't live there, I am in OK. <

What part of OK?

I lived in the Lawton area (Lawton, Cyril, Geronimo, Duncan)for 11 years...from

1985 to 1997

[Guest guest]

>What part of OK?

>I lived in the Lawton area (Lawton, Cyril, Geronimo, Duncan)for 11

>years...from 1985 to 1997>>

Hi,

I am in Claremore.......about 30 min East of Tulsa. I don't venture out

much, but I *think* that Lawton is a ways away

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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[Guest guest]

>Chris:

>You know a person in Texas who's had the Artificial disc surgery and has to

>have it redone in 2005??????? That doesn't sound good. It's just now in

>clinical trials here in the U.S., although it's been in France for nearly

>seven years (and in Germany).>>

Ack! Sorry if I made it sound like that. I think that she can't get the

whole thing done until 2005. Maybe that is when trials are over with?

>Elevil is an older antidepressent (also now given for pain). Glad it's

>working for you. I didn't tolerate it, but it's amazing how these meds are

>prescribed for various usages and are so miraculous. Neurontin, for example,

>is a seizure medication that was previously only prescribed for epilipsy and

>now is prescribed for pain mgmt and also for anxiety and depression.>>

I too think it is kind of odd that so many drugs that were made for one

thing, end up helping with quite a few others. Just out of curiosity, what

was it about the Elavil that you couldn't tolerate? I've only taken them

for a short while. I did try to quit smoking with the help of

Welbutrin....but it just didn't work that well for me ')

>The stimulater sounds facinating. Did you see Jerry on Larry King a

>month or so ago? He has some kind of experimental stimulator implanted in his

>back (for pain). He swears by it.>>

No, I missed it! I know that when I saw him on his telethon, I was shocked

at how much he had changed since the last time I had seen him!

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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[Guest guest]

In a message dated 11/1/02 11:39:29 AM, Ckelly@... writes:

<< I too think it is kind of odd that so many drugs that were made for one

thing, end up helping with quite a few others. Just out of curiosity, what

was it about the Elavil that you couldn't tolerate? I've only taken them

for a short while. I did try to quit smoking with the help of

Welbutrin....but it just didn't work that well for me ')

>>

I just had a really bad reaction to that specific medication. After less than

a day of taking it (and this was many years ago), I felt like I was having a

breakdown, very confused. Don't remember all the horrible specifics just

remember It was awful. Welbutrin (which I took for two years--which wasn't

prescribed to me for smoking) didn't help me quit either (darnit LOL). It's

terrific that these meds are helping so many different things.

Robin

Jerry gained 50+ pounds due to some medication (steroid?) after medical

problems (not back related). His stimulator, he says, has ended all his back

pain.

[Guest guest]

>I just had a really bad reaction to that specific medication. After less than

>a day of taking it (and this was many years ago), I felt like I was having a

>breakdown, very confused. Don't remember all the horrible specifics just

>remember It was awful.>>

Eeks, I had this from thee first surgery, after the morphine. Second

surgery, I had to have them take the pump out, I was getting a quite

different reaction and one I sure didn't like.

>Jerry gained 50+ pounds due to some medication (steroid?) after medical

>problems (not back related). His stimulator, he says, has ended all his back

>pain.>>

Wow! I knew that he had gained some weight! Hmmm, this doesn't sound like

my stimulator...or maybe they just didn't hook it up right! LOL Wouldn't

that be nice??? End all your back pain.

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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[Guest guest]

In a message dated 11/2/02 6:56:33 PM, Ckelly@... writes:

<< Wow! I knew that he had gained some weight! Hmmm, this doesn't sound

like

my stimulator...or maybe they just didn't hook it up right! LOL Wouldn't

that be nice??? End all your back pain.

>>

No no. Jerry said that this stimulator (which has a remote control) is brand

new and not on the market yet. He turns it on in the morning. He even joked

about the remote even working on the garage door. LOL

[Guest guest]

>No no. Jerry said that this stimulator (which has a remote control) is brand

>new and not on the market yet. He turns it on in the morning. He even joked

>about the remote even working on the garage door. LOL>>

Oh wow! LOL Now that would be nice! Wonder why it isn't on the market

just yet? BTW, someone told me the other day that the pedicle screws are

still not approved by the FDA....is that true? If so, then WHY are all the

Ortho's/Neuro's using them even after that huge class action? Just curious

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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[Guest guest]

In a message dated 11/4/02 4:52:37 PM, Ckelly@... writes:

<< Oh wow! LOL Now that would be nice! Wonder why it isn't on the market

just yet? BTW, someone told me the other day that the pedicle screws are

still not approved by the FDA....is that true? If so, then WHY are all the

Ortho's/Neuro's using them even after that huge class action? Just curious

>>

Don't know about that. While I am a spinal fusion candidate, I'm meeting in

December with Orthopedist and Neurosurgeon about Artificial Disc surgery

(both are conducting the clinical trials here in Los Angeles, each

independent of one another and have told me that I'm a great candidate for

the surgery which I'm kinda excited about as a an alternative) as I'm trying

to avoid spinal fusion. Haven't found out the details of either surgery yet.

I'm sure one of our other support group roommates will know though as they

are a pretty knowledgable group.

Robin

[Guest guest]

>Don't know about that. While I am a spinal fusion candidate, I'm meeting in

>December with Orthopedist and Neurosurgeon about Artificial Disc surgery

>(both are conducting the clinical trials here in Los Angeles, each

>independent of one another and have told me that I'm a great candidate for

>the surgery which I'm kinda excited about as a an alternative) as I'm trying

>to avoid spinal fusion. Haven't found out the details of either surgery

>yet. >>

I think that I have come to the conclusion that your outcome will depend on

WHO is doing it! LOL Knowing what has happened to my nerve really makes me

wish I had demanded a Neuro in with the Ortho. Sigh.....love that

hindsight I wish you luck in this, let's hope that they have been

making some progress in this area

>I'm sure one of our other support group roommates will know though as they

>are a pretty knowledgable group.>>

And I just love this group! the warmness and genuine care I have already

seen in the emails have convinced me that I am in a great place!

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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