Re: i have one more question.. ear ringing and pain

[Guest guest]

Regarding your ear pain and ringing in the ears I can just tell you my

experience.  I hope you are under the care of a good LLMD.  It is very important

to start and to CONTINUE antibiotic treatment under the care of an LLMD as soon

as possible.

In January of 2003 I posted my first question on an online discussion group

about experiencing ringing in the ears and ear pain.

I received a lot of good responses at that time but none really addressed it.

However, over the past 6 years the ringing progressed and has affected

my balance. I had to give up my pilot's license and stop driving a car 5 years

ago.

From 2006 to early 2009 I stopped antibiotic treatment and relied on alternative

methods.

I started hearing my own heartbeat in my ear and I started to notice that loud

sounds affected my vision and balance.  It seemed to be getting worse every

month.

Due to this and other, life threatening (heart), worsening symptoms, I started

back on antibiotics in February, 2009.  The other problems cleared up almost

immediately and the ear thing has not gotten any worse.  It may even be a little

better.

Here is what I finally found out about the ear pain and ringing. 

After 6 years and 4 Ear, Nose and Throat (ENT) specialists I finally got an

answer last May.

It is called Superior Canal Dehiscence (SCD) and one of the known causes is

spirochete infections such as Lyme disease.

http://archotol. ama-assn. org/cgi/content/ full/124/ 3/249

The condition exists when part of the bone around the inner ear is

eroded away from disease. It is my belief that during the time I stopped

antibiotics I let the spiroquets cause more damage.

The only treatment for SCD after the erosion has happened is to have brain

surgery

where they go in and lift the brain up and apply cement to the effected

bone but, I believe that by taking my antibiotic treatment I am stopping, or at

least slowing down, any further erosion of the bone.

Superior Canal Dehiscence (SCD) was identified in 1998 by Dr. Lloyd

Minor of s Hopkins University Hospital, Baltimore, MD. See

http://en.wikipedia .org/wiki/ Superior_ canal_dehiscence .

Most ENT specialists and even LLMDs are not aware of it and do not recognize the

group

of symptoms. They are especially unaware of the connection to people

who have had Lyme disease.

My next to last ENT simply said, " I don't know anything about that. "

when I asked him, point blank, about the heart in the ear and the loud

sounds causing my vision to shake.

I have had ENT specialist attribute the symptoms to taking too many

antibiotics, Meniere's Syndrome, and the above " I don't know " .

Up until recently the only way to confirm a diagnosis of SCD was through autopsy

but now there is an easy and painless test to identify SCD and I am just glad to

have a diagnosis that confirms the symptoms I know I am feeling.

I just wish I had not listened to all the alternative treatment people and

stopped the antibiotics for all those years.

From: CR <rausch_cynthia@...>

Subject: [ ] i have one more question....

Date: Sunday, September 27, 2009, 11:25 AM

 

does anyone suffer severe ear and jaw pain right by left

ear..im concerned cause when i touch the bone joint right by the whole near my

left ear it hurts severely...and also right at the bend in my left arm hurts so

bad...and tight feeling on left side in my neck...and so much pain in my lower

pelvic area and lower back...and so many other symptoms...would the lyme cause

all these or maybe the parasites??and my bones and joints hurt so severe...cant

even lean my arms on the desk to type without bad pain in bones...extreme nausea

and acid ...its miserable everyday...sufferin g agony been suffering for 2 years

straight but symptoms have increase with time..and and also blurred vision

getting so much worse...and the constant humming and ringing sound are driving

me crazy...no relief ever