Re: Symptoms after Doxy treament

[Guest guest]

Hi, Bree,

It sounds like Lyme, rather than a herx. Herxes usually happen when you first

start an antibiotic, or when you change antibiotics, or change the dosage. It

is due to toxins being released by killing off bacteria. If you are not

currently taking antibiotics, or doing any other sort of therapy (heat,

hyperbaric oxygen, herbal antibiotics, etc), then you are not likely to be

killing bacteria and not likely to be experiencing a herx.

Was this a new, recent case of Lyme? Or, if longer-term, were you symptom-free

for 8 weeks before stopping the doxy? That is the accepted protocol among

LLMDs. Other infectious disease specialists who consider themselves Lyme

experts use much shorter courses of antibiotics at lower doses. These

treatments often fail, and in fact make the disease harder to treat in the long

run.

Good luck.

D.

Bree <bree60@...> wrote: Hi All:

I finished my first anti-b (Doxy) treatment about 2 weeks ago. Within

the past week, I've noticed weakness in my arms and tingling in my

fingers. Is this a herx reaction, maybe? Or is it progession of the

Lyme? I didn't have these symptoms to this extreme before the Doxy.

I go back to see my LLMD soon, anyway.

Thanks,

Bree

For free up to date information about Lyme disease and the known

co-infections delivered to your email address see:

Robynns_Lyme_List/

[Guest guest]

i agree with ponyrubs.. probably not a herx for reasons she cited.

if you need to get back on antibiotics, the longer you wait, the

more the lymes has a chance to advance. id call ur llmd (ie not wait

til ur appointment) and let them know about your recurrance of

symptoms. that gives them the option of restarting any antibiotics

over the phone, giving you an earlier appointment, and/or ensuring

it isnt something other than the lyme.

just my opinion,

cfsguy

Hi All:

>

> I finished my first anti-b (Doxy) treatment about 2 weeks ago.

Within

> the past week, I've noticed weakness in my arms and tingling in my

> fingers. Is this a herx reaction, maybe? Or is it progession of the

> Lyme? I didn't have these symptoms to this extreme before the Doxy.

>

> I go back to see my LLMD soon, anyway.

>

> Thanks,

>

> Bree

>

>

>

> For free up to date information about Lyme disease and the known

> co-infections delivered to your email address see:

> Robynns_Lyme_List/

>

>

[Guest guest]

Thanks ponyrubs & cfsguy. Hopefully I can get in to see my LLMD next

week. I'm not clear about whether this is an old or new case of

Lyme, and not sure how I can figure that out. My test was negative,

but my symptoms have been going on for at least a year, probably

longer. (What qualifies as new?) This feeling in my arms has taken

front row now, after the Doxy...symptoms used to be cluster headaches

& debilitating fatigue, & occasional shooting pains in my arms. Now

just faint tingles when I stop to think about it, and a feeling

similar to the one you get after you lift something heavy. Like, a

weak feeling in the muscles.

The symptoms are playing musical chairs!

>

>

> i agree with ponyrubs.. probably not a herx for reasons she cited.

> if you need to get back on antibiotics, the longer you wait, the

> more the lymes has a chance to advance. id call ur llmd (ie not wait

> til ur appointment) and let them know about your recurrance of

> symptoms. that gives them the option of restarting any antibiotics

> over the phone, giving you an earlier appointment, and/or ensuring

> it isnt something other than the lyme.

>

> just my opinion,

> cfsguy

>

[Guest guest]

Hi, Bree,

I like the musical chairs analogy - very true.

Yours would not be a new case. By new, I would mean that you recently were

bitten by a tick, or recently developed flu-like symptoms with a rash, or

something along those lines. Over a year is in the chronic realm.

Can I ask how much doxy you were given, and for how long? And was this your

first treatment for Lyme Disease?

I sure do identify with the muscle weakness. Some days, I am very strong.

Other days, I start to work (I'm a massage therapist), and my arms just sort of

quietly die. I press into my client's tissue, and my arms fade into nothingness

with that lactic acid burn that you usually get after doing something serious.

Oddly, I can get myself functioning for a massage by doing some quick

meditation, clearing and aligning exercises that I was taught back in Polarity

school. Energy system over mind over matter. Even then I'll get bouts of

sweats and weakness, but I can get through it by sort of disassociating, or by

pretending to feel wonderful.

A couple weeks ago, I had an entire week nearly symptom-free. Gawd, that was

heavenly. Can't wait for the next one.

All the best for your continued healing in the New Year.

D.

Bree <bree60@...> wrote: Thanks ponyrubs & cfsguy. Hopefully I can get in to

see my LLMD next

week. I'm not clear about whether this is an old or new case of

Lyme, and not sure how I can figure that out. My test was negative,

but my symptoms have been going on for at least a year, probably

longer. (What qualifies as new?) This feeling in my arms has taken

front row now, after the Doxy...symptoms used to be cluster headaches

& debilitating fatigue, & occasional shooting pains in my arms. Now

just faint tingles when I stop to think about it, and a feeling

similar to the one you get after you lift something heavy. Like, a

weak feeling in the muscles.

The symptoms are playing musical chairs!

>

>

> i agree with ponyrubs.. probably not a herx for reasons she cited.

> if you need to get back on antibiotics, the longer you wait, the

> more the lymes has a chance to advance. id call ur llmd (ie not wait

> til ur appointment) and let them know about your recurrance of

> symptoms. that gives them the option of restarting any antibiotics

> over the phone, giving you an earlier appointment, and/or ensuring

> it isnt something other than the lyme.

>

> just my opinion,

> cfsguy

>

For free up to date information about Lyme disease and the known

co-infections delivered to your email address see:

Robynns_Lyme_List/

[Guest guest]

Hi D.

Thanks for the best wishes...I wish you the same for continued

recovery. It sounds like you've got great perspective and coping

tools: one second/one minute/one hour/one day at at time! It works.

This was my first treatment for Lyme. I went to an LLMD in October

after pulling a tick out of my shoulder. A friend of mine who's been

treated 2x for Lyme told me not to mess around, since the bite looked

" funny, " and sent me to her LLMD. I'm starting to think of that bite

as divine intervention; whether the tick carried Lyme or not, I'd been

feeling terrible (excruciating headaches, fatigue, weird shooting

pains, etc., etc.) for at least a year. The LLMD thinks I probably had

Lyme already. (We live in the tick-infested Hudson Valley, NY, with 6

dogs & many, many cats. Maybe it'd actually be a miracle if I didn't

have Lyme.) I'm battling a bit of denial, however, since the test was

negative. I know tests don't mean anything, but it is something

tangible in terms of " evidence. "

The doc put me on Doxy for 30 days, since I had a penicillin allergy

as a child. I felt much better after treatment, and continue to feel

better by comparison. However, I do have these weird

arm-tingle-weakness feelings, and now an occassional shooting pain in

my right big toe! What next, I ask you?!

Time for a follow up with LLMD. I hate what the Doxy did to my guts,

but if I have to go back on for another round -- it beats the alternative.

Bree

>

> Hi, Bree,

>

> I like the musical chairs analogy - very true.

>

> Yours would not be a new case. By new, I would mean that you

recently were bitten by a tick, or recently developed flu-like

symptoms with a rash, or something along those lines. Over a year is

in the chronic realm.

>

> Can I ask how much doxy you were given, and for how long? And was

this your first treatment for Lyme Disease?

>

> I sure do identify with the muscle weakness. Some days, I am very

strong. Other days, I start to work (I'm a massage therapist), and my

arms just sort of quietly die. I press into my client's tissue, and

my arms fade into nothingness with that lactic acid burn that you

usually get after doing something serious.

>

> Oddly, I can get myself functioning for a massage by doing some

quick meditation, clearing and aligning exercises that I was taught

back in Polarity school. Energy system over mind over matter.

Even then I'll get bouts of sweats and weakness, but I can get through

it by sort of disassociating, or by pretending to feel wonderful.

>

> A couple weeks ago, I had an entire week nearly symptom-free. Gawd,

that was heavenly. Can't wait for the next one.

>

> All the best for your continued healing in the New Year.

>

> D.

>

>

[Guest guest]

Bree,

Were you tested by IGeneX and did you get a copy of the results?

They're negatives aren't always negative if you read the tests

notes. My PCP told me it was neg, but I knew to get copies. I had

the rash about 10 yrs. ago and the reg labs kept giving neg. results,

then I tested with IGeneX.

You should take a probiotic when taking antibiotics, not a the same

time, but in between doses. This will keep you from getting diarrhea

by keeping the healthy flora in your gut.

jan

>

> Hi D.

>

> The LLMD thinks I probably had

> Lyme already... I'm battling a bit of denial, however, since the

test was

> negative. I know tests don't mean anything, but it is something

> tangible in terms of " evidence. "

>

> Time for a follow up with LLMD. I hate what the Doxy did to my guts,

> but if I have to go back on for another round -- it beats the

alternative.

>

> Bree