New to you but not LD

[Guest guest]

Hi guys! I am a newbie to this group & your probably going to be the

best thing going for me.

You see, in spring 1987 I was infected w/ LD, but not diagnosed or

any treatment until 1991. Thank God I had had 2 ECMs & then textbook

symptoms until diagnosis in '91. There were medical notes about the

ECMs & then all the rest. 1st you have to understand that LD is not

an accepted diagnosis here deep in South Texas where I live. You're

not going to believe me but the regional Infectious Disease

specialist made a public (newspaper) statement that LD in Texas was a

myth. Thankfully in '91 I found a wonderful lady at TX Dept. of

Health who confirmed my diagnosis & collaborated w/ my rural GP on

treatment regimens. Apparently by those years standards the treatment

had not been long enough. 6 mos ago, after years of serious health

probs (more on that shortly) my rheumatologist, knowing of LD,

thought I had been left w/ a raging auto-immune disorder. She flooded

me w/ immuno-suppressants & strong steroids. My knees exploded in

swelling & pain. I became very ill & my whole body was wracked w/

pain. And believe it or 1 of my original ECMs reappeared. The drug

combination was like gas on a fire. My system flooded w/ spirochetes.

I've been on doxicycline since then.

A short list of my health battles since '91; degenarative disc

disease - lumbar= 2 fused, 1 unstable. thorasic= 1 vertebre

inmpinging nerve. Cervical is a wreck= 3 serious damge vertebrae 4

nerves impinged (EMG), numbness in both arms. Major arthriric changes

in every major joint. Left shoulder rebuilt. Surgery both wrists.

Fibromyalgia, MFS, CFS. Major depresion & cognitive disorders.

Osteonecrosis in both knees ....(there's more).

My ? is what heppens to a person that's been LD active 20 years. I'm

sure you all know there's almost no substantive info out there about

Chronic LD. Searches come up w/ plenty of info about the 1st 2 stages

of LD. But 3rd stage or Chronic - 0, nothing.

Can anybody out there help me? I have no idea where it goes from here.