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Re: Odd Symptoms

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Rebif is an MS drug, right? My husband has MS and injects Betaseron

(another interferon drug) every other night. Some nights he has

trouble walking afterwards. Some nights he has a flu-like reaction.

Most nights, though, he's fine.

I think it's entirely possible that the Rebif is making your walking

worse the morning after. Have you read the patient & prescribing info

that comes with Rebif? Your symptoms may be described there. Also,

does your neurologist specialize in MS? If not, you might want to have

a consult with a neurologist who does.

As for what restaurants use to sanitize glassware, I can't be of any

help there, except to say that if you notice that not drinking from

glasses in restaurants causes you no problems -- keep doing it! It

sounds like you might have an allergy to the sanitizer.

With a disease like Lyme we have a tendency to attribute every odd

symptom to it -- or at least we want to!

Jessie

>

> I've had some odd symptoms that my neurologist(s) claim that I don't

> have.

>

> 1) when I took Rebif my walking was measurably worse after taking the

> drug. Every Monday morning I was able to walk into work just fine.

> Tuesday mornings, after the Monday evening injection, walking the 0.25

> miles from the car to the office was difficult.

>

> This prompted me to take a one week vacation from the drug. Sunday

> morning at dawn I walked around the block, carrying my GPS, until

> failure. I was able to walk 0.8 miles. I went back on the drug for a

> week and redid the test. This time I was able to walk about 0.4 miles

> till failure.

>

> I told this to my neurologist. He said that he had never heard of

> that before and told me to keep taking the drug.

>

> 2) Sanitizing solutions that restaurants use to sanitize drinking

> glasses bind my bladder up and I can't urinate for 12-14 hours. When

> I go out I ask for " to go " cups or drink beer from bottles and there

> are no problems.

>

> Are these symptoms common to / has any one heard of these problems

> being associated with Lyme disease?

>

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  • 2 years later...
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I don't know what the reference ranges are for your lab tests, and if your

numbers are correct, the change in the TSH is huge. My suggestion, consult with

your prescribing physician right away.

K

>

> My daughter and I have Hashis. Started iodine 5 months ago and swictched to

Armour 2 months ago. Had to find new doc to change from Synthroid. Daughters

first labs after iodine were Ft3 3.5, Ft4 0.3, and Tsh 19.81. ATA 165. New

labs at Ft3 3.0, Ft4 0.6 and Tsh at 0.11. Started having heart racing 4 days

ago. Had been on 2 grains Armour 2 months and 25mg iodoral for 3 weeks after

slowly raising iodine. Is it the iodine or too much Armour causing heart race?

Also tingly feet now and then. No other notice symptoms. Basal temp is still

97. Any ideas? Thanks

> na

>

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