Dangerous influence regarding labs and testing

[Guest guest]

> This is where gossip gets dangerous so I will try to set people

straight.

>

> The Western Blot antibody test varies in % from lab to lab because it depends

on

the quality of reagents, quality of instrumentation, how many bands they report,

how a lab tech

performs the tests, and the quality of the training they received. I

know this because I was a Distribution Supervisor for a very large

national lab. The Western Blot is not CLIA approved, at any lab; it can only be

validated. Another reason

Western Blot percentages vary, and often times are negative, when a patient is

clinically diagnosed with Lyme, is because it tests

your immune reaction to coming across Lyme. Unfortunately, Lyme does

not hang around for that pleasure. It wants to survive so it invades

your cells to cloak itself (not to be recognized by your immune as

foreign).

Most of you may know the microbiology, but if you don't, you need to

read whatever you can from Alan Mac at St. 's in New

York. Google search him. You can't be making informed decisions if

you don't know the microbiology. The decisions people make now will

substantially affect getting well, and their finances, in the future.

>

> It is possible the reason your doctors don't like the lab is

because a competing lab tried to shut them down. Yes, it's true, it's

not just mainstream medicine you have to worry about in the Lyme

world. So...perhaps your doctors were influenced by the deliberate

misinformation that was put out in

the Lyme medical community.

>

> Now...back to the tests. The Central Florida Research Lab's Lyme

test is the only antigen CLIA validated test for Lyme with an 88% accuracy. CFR

is a relatively new lab and the CLIA certification for the lab pended on the

results of this Flow Cytometry test as well as the other tests they offered at

the time of their initial certification. Other competing labs say they are CLIA

approved, but what they need to clarify is their

lab may be CLIA approved, but their Lyme test is not, it is validated.

> The CLIA approval process is very stringent and it has CDC

oversight. You can't get this approval unless you can back up your

results (percentages) with in-depth proof. During the validation process it is

rigorous and testing needs to follow within strict parameters of false negatives

and false positives.

The lab at Central FL Research reports their test is 88% accurate, and that

was established

by comparing it to the Western Blot, which the CLIA/CDC required. A

Western Blot comparatively can't compare with this new test, but that

does not mean you shouldn't get the Western Blot done. Being 88%

accurate does not mean that it is a slam dunk either...that is why

Lyme patients need to use all the tools of testing available. I

recommend people use all the labs, if possible. As most of you know,

a negative test does not mean a patient does not have Lyme and the

plethora of other infections that come with it. Patients, and

doctors, need to feel confidant with a clinical diagnosis when lab

results come back negative. Please share this info with your doctors.

We need to set the record straight.

>

> Personally, I had a Western Blot that was 9 out of 10, and 6 out of

10, respectively, with ++ and +++. At first the doctors told me I had

Lyme, but by the second visit, usually, they would tell me I was

false positive. My point is this...it's great to get a positive test,

but it will still create problems with the medical community. I am

not the only person who has had this experience.

>

> With regards to cost of tests...the Central FL Research Lab is

covered by most insurance and Medicare. My Western Blot done at

IGenex was not covered by insurance, but that may have changed since

I had it done. I had tests done at MDL also, and I do not believe my

insurance covered it. People will need to call their insurance carrier to

see if a particular lab is in-network or not. If a patient does not have

insurance, and they have limited funds, then it seems logical to

choose an antigen test with the best percentages, with the CLIA validation.

If

the test at Central Florida Research had been available at the time

of my tests I would have chosen it also.

>

> I caution everyone, please do not try to influence people to just

one test, or just one lab. You may unintentionally be influencing a

new patient not to have a particular test, or choose a specific lab,

which could have dire affects on their health, life, and finances in

the future.

>

> Take care-

>

>

> Torrey

>

klcst@...<mailto:klcst@...<mailto:klcst@...<mailto:klcst@...>>

> Lifelyme of Texas

>

www.lifelyme.org<http://www.lifelyme.org/<http://www.lifelyme.org<http://www.lif\

elyme.org/>>

>

>

> PS- I am not associated with any lab, past or present, other than

the one I mentioned above.

>

>

>

>

>

>

> Heidi, you might be right. both my LLMD's don't use that lab in

florida. my maryland doc uses igenex and fry labs (fry for testing

bartonella--igenex for all other lyme testing) and my virginia lyme

doc uses igenex and mdl only. i spoke with the man who runs the

florida central lab, seems like a good guy and all but my doctors

told me his lab is not good. seems igenex is the favorite among

LLMDs. c

>

>

Ambitionn01@...<mailto:Ambitionn01@...<mailto:Ambitionn01@...<mailto\

:Ambitionn01@...>> wrote: I believe

that the Central Florida lab is not as good as some of the hype.

> They post their statistics on success rates, and by using both of

their tests

> (assay and blot), combined, in my opinion, you might get about %

70 accuracy,

> maybe. I guess it would depend upon more testing and

interpretation on

> their accuracy testing. Anyhow, I am wondering if the C6 peptide

test might be

> the most accurate. I have seen about 4 or 5 postings from people

who did both

> Florida and Igenex, and it appears that half tested positive on

the Florida

> and not Igenex, and the other half tested positive on Igenex and

not Florida.

> Thus, if you have the money, do both companies.

>

> Heidi N

>

>

>

>

>

>

[Guest guest]

Great post! I'll be using this post to assist in my Lyme test quest.

My alternative physician has received the three test kits, Central

Florida Research, Fry Laboratories, and Igenex, that I ordered. Now I

need to figure out which tests to take, then schedule an appointment.

The LLMD appt is 20 Feb 08. That doc likes Fry Laboratories.

>

>

>

> > This is where gossip gets dangerous so I will try to set people

> straight.

> >

> > The Western Blot antibody test varies in % from lab to lab because

it depends on

> the quality of reagents, quality of instrumentation, how many bands

they report, how a lab tech

> performs the tests, and the quality of the training they received. I

> know this because I was a Distribution Supervisor for a very large

> national lab. The Western Blot is not CLIA approved, at any lab; it

can only be validated. Another reason

> Western Blot percentages vary, and often times are negative, when a

patient is clinically diagnosed with Lyme, is because it tests

> your immune reaction to coming across Lyme. Unfortunately, Lyme does

> not hang around for that pleasure. It wants to survive so it invades

> your cells to cloak itself (not to be recognized by your immune as

> foreign).

> Most of you may know the microbiology, but if you don't, you need to

> read whatever you can from Alan Mac at St. 's in New

> York. Google search him. You can't be making informed decisions if

> you don't know the microbiology. The decisions people make now will

> substantially affect getting well, and their finances, in the future.

> >

> > It is possible the reason your doctors don't like the lab is

> because a competing lab tried to shut them down. Yes, it's true, it's

> not just mainstream medicine you have to worry about in the Lyme

> world. So...perhaps your doctors were influenced by the deliberate

misinformation that was put out in

> the Lyme medical community.

> >

> > Now...back to the tests. The Central Florida Research Lab's Lyme

> test is the only antigen CLIA validated test for Lyme with an 88%

accuracy. CFR is a relatively new lab and the CLIA certification for

the lab pended on the results of this Flow Cytometry test as well as

the other tests they offered at the time of their initial

certification. Other competing labs say they are CLIA approved, but

what they need to clarify is their

> lab may be CLIA approved, but their Lyme test is not, it is validated.

> > The CLIA approval process is very stringent and it has CDC

> oversight. You can't get this approval unless you can back up your

> results (percentages) with in-depth proof. During the validation

process it is rigorous and testing needs to follow within strict

parameters of false negatives and false positives.

>

[Guest guest]

>

>

>

> > With regards to cost of tests...the Central FL Research Lab is

> covered by most insurance and Medicare. My Western Blot done at

> IGenex was not covered by insurance, but that may have changed

since I had it done.

Hi :

Yes it has changed. All of my IgeneX tests (Lyme WB & PCR, Ehrlichia

(IgG/IgM), Babesia (FISH) and *(1) Bartonella were covered by

Medicare.

Note: *1 (Medicare covered all but $22.00 of Bartonella test).

is

[Guest guest]

According to my Lyme doctors, Igenex is an excellent lab and Fry lab is great

for Bartonella testing as one of my doctors uses Fry Lab for that purpose. My

other doctor uses Medical Diagnostic Labs and Igenex. Both for whatever reasons

don't like the lab in Florida when I asked if I could use that lab because they

take my insurance.They informed me they do not use this lab or trust the testing

methods used and there was no misunderstanding on my part. That's too bad

because central florida lab takes insurance, but since my doctors don't like

that lab, i figure they must have a reason. I wish more good labs had taken

insurance!

CHELSEA

alrightguy123 <alrightguy123@...> wrote:

Great post! I'll be using this post to assist in my Lyme test quest.

My alternative physician has received the three test kits, Central

Florida Research, Fry Laboratories, and Igenex, that I ordered. Now I

need to figure out which tests to take, then schedule an appointment.

The LLMD appt is 20 Feb 08. That doc likes Fry Laboratories.

[Guest guest]

My Blue Cross PPO covered all of my Igenex testing as well as MDL. I had to

submit the claim for the Igenex testing of course, but I quickly received

reimbursement from BC. I have also found that they have covered a couple Rx's

when I have submitted claims myself, but they previously refused to cover when

the pharmacy submitted claims for the same Rx (unrelated to Lyme). I'm not sure

what to make of that, just thought I'd share.

Tiff

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

what state do you live in?

we have bc/pc PPO, and they won't approve or pay for

Igenex. and i almost died because by 1998, when i had

too MAJOR infections from our vacations in Nantucket

Island - whatever lyme variation they have there, it's

a killer. i know i got hit with babesia too. what

did me in.

we were a happy, youthful energetic couple of

two-three!?! we now had our first born baby girl! we

were all so in love.

i was a stay at home mom ( but with full intentions of

doing at first part time and then full time buisiness

at home. and there was always the option of me going

back fulltime to my old career if i had too. i would

always have somethning i could now be paid well and

return to it if i needed. early on, was no longer

possible.) in a neighborhood of mostly original owners

who were now quite elderly. walkers, or, ......

i had this great Emmyljunga ( i know, i messed up the

spelling bigtime, i can't spell anymore was many

infections ago. ) carraige converted into a comfy

stroller. i used to go on 5+ stroller miles every

afternoon to get my babygirl to sleep.

but i could sleep at nite. she got her nap for a

couple of hours during the walk , and i got such

freash air, beautiful trees, and just happy on life!

i could lay her on back - the way she wanted to sleep.

we were told by our then pediatrition who did at some

point write an article in a parents magazine on Lyme (

no coinfections mentioned at all such at what one of

her patients familie's after getting multiple

infections at where we lived and where we vacationed,

she had no idea) that by laying her on her back, we

were putting her at risk for SIDs.

i strongly believe, that most SIDs babys are baby's

with un-dx lyme /co-infections. by son, obviously

born with lyme, his eyes were swollen with edema,for

the first few weeks, i did not know what color his

eyes were.

i have dark green hazel that started out blue, my

husband has light brown eyes but one has a large slot

of green, so by that ,and sheer intuition , i knew

both my children would have bright blue eyes. seems

unlikely.

but that this horror of a life changing disease that

IS treatable, and is the great imatator, but so many

or us have the usual tell tale sypmtoms, and to leave

lyme patients old and young without treatment. that

is crimimal.

upenn dr in '98 laughed at me. thier " upenn best "

tests indicated i no longer had lyme/

tim, tim is dead now. my husband knew him from

buisiness. my husband, a private person like me, did

not talk much about private stuff, but my extreme

conditon was worrying him.

tim told my husband i had lyme disease. told us of a

dr in bucks co. he had been seeing. ( but later

talking to his wife, she did not understand why people

sick from lyme went to this dr , got prolonged i.v.

treatment and got better. he did not get prolonged

i.v. died of complications. nov. )

i did know that tim used valium to help him sleep. i

was very " natural remedies " anti chem drugs that ,

well now i need to live each day to take

pharmaceuticals. left untreated too many yrs. and

likely to have been born with some borreliaosis.

well since then, just one week after seeing Mister

E Niemans alleged infectious disease specialist

at abington hospital. he saw me when i was gravely

ill with at least lyme and babeisa and since we know

by the photographs and other evedence we recovered

and neighboring - across the thru road - a more cookie

cutter - though late 50's early 60's - and all the big

trees and some of the houses bordered the canal, and

in this case should never, especially then, be built

so close to the canal , and so shortly after the '55

flood where the river and canal flooded the whole

neighborhood.

i'm tired now.

but too many here getting sick.

--- Tiff <bestel63@...> wrote:

> My Blue Cross PPO covered all of my Igenex testing

> as well as MDL. I had to submit the claim for the

> Igenex testing of course, but I quickly received

> reimbursement from BC. I have also found that they

> have covered a couple Rx's when I have submitted

> claims myself, but they previously refused to cover

> when the pharmacy submitted claims for the same Rx

> (unrelated to Lyme). I'm not sure what to make of

> that, just thought I'd share.

>

> Tiff

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Search.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Hi Caryn,

I live in California & have Blue Cross Prudent Byuer PPO. I was surprised they

covered their share of Igenex, but they did and very quickly reimbursed me. Did

you try submitting the claim yourself? And maybe try appealing if they refuse

the first time? Of course, if it's been several years it's probably too late now

for reimbursement.

I'm so sorry to hear your world has been turned upside down, like so many of

us. It just makes me sick that so many of us, damn near all, have to go through

so much just to be heard, or listened to, let alone get treated.

I personally am walking a thin line at work just trying to keep my job which I

desperately need to keep. The pain just seems to be getting worse by the day. I

see a long downward spiral ahead of me while I wait to see an LLMD. Sure hope

they call me soon.

Get some rest - hope you're feeling well. Did you say you are 'recovered' or

still quite sick?

I do hope you have found some relief.

Tiff

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

reply : still quite sick. but so are the rest of my

family. we all have it. many infections. photos of

me on nantucket island, textbook rash on my calf

w/textbook bullseye rash. '90 when my first born was

only 9 months old and a nursing child, and '93 when

just a month later i got pregnant with my son, born

witn lyme.

i need to add that because my daughter had a difficult

birth ( nazareth hospetal ) and i was sent home to

scream thru the contractions ...long story...first dr

said i was in labor just not progressing...he was

right..

kitten was delivered thru first forseps then suction.

drs screw up all the time. their are many good drs.

dr charles ray jones. then the nazareth hospetal dr

who said i was not in true labor only to do an

emergency delevery they usually don't do anymore.

and followed by a temperature of 102, well first i was

telled at by the nurse laday - oh, other stuff i

skipped - " diddn't you take a shower? " after taking my

temp and it was elevated.

of course i did. and gross, what came out of my when

i showered.

well, the high temp continued for a couple of weeks

after the birth of my child to the delight of an old

person relative.

i'm tired.

i very likely was born with lyme. i have an older

brother - what they said back then about autistic

children was not really true. my brother was an

afectionate child who did care greatly about the ones

closest to him. just - you had to know him.

but we don't know if i was born with lyme. we do know

my parents lived and vacationed in lyme endemic areas.

and it is not only lyme. my son tested pos recently

for bartonella. a few yrs ago, mycoplasma fermentans.

his emergening symptoms blaimed on me by the school

nurse who has no interest in learning about my son's

chronic illness. and could care less that i was in

more pain than you would leave an animal.

we live in an upscale area and our initial

pediatrition had sent her kids to the local public

elementary school we sent our kids to eventuallly.

she got there first. and she is quite possesive to

her lifestyle and how she is persived. sp? so she

does not want to be exposed for disinterest in what

lyme and coinfections really are and her " assurring "

me that she sees lot's of children just like my

children and they are normal - not normal. not at

all. how did she get let into med school?

i am heartsick. i can't believe the cruelty we have

had to endure. bucks co. is gone. yeah, i grew up

here, but most of the woods and farmlands are gone.

quaker schools are not really quaker schools. it's

all a money thing.

anat raechal feingold - pediatric infectious diseasse

specialist, cooper hospital camden.

she did? or didn't? realize by the yrs she knew us.

and her website - since changec - ? 10 days of

antibiotics are all that is needed to treat lyme

disesas and the outcome for post-lyme disease is

excellent "

this is a mother. or " so called mother " . and she and

her special someone thought me pressing my hand so

hard against my head - encephalitis headaches - was so

funny?

my daughter, until 4rth grade getting better grades

than her daughter. anat was a bragadoousious. and

not easy to look at.

but i could see my kids getting sicker and sicker and

no answer and too sick to fight for them. too sick to

care for myself let alone my children. but i had to.

i have drs " reknowned drs " like " best of " infectious

disease speceialists mister roger e. niemans, fat,

annoying ugly " entitled " - for what? infectious

disease guy at abintingon hospital.

this was in 1999. relatives who thought he was great

dr according to thier dr friend reccomeended him. i ,

well we did not have any money. so, i did not carry a

credit or bank card so the you have to pay to park in

abington memorial hospital parking garage was a

suprise. i was very isolated for so many yrs.

so, so cold, i parked on a residential street. my

heart was beating hard and abnormaly when i got to

nieman's office. got wierd looks by niemans

over-made-up office staff. i was not breathing well.

and not looking well. and did not carry a prada bag.

iwas the walkng dead for too many yrs. my insurence

co knows this and is taking advantage of the. my

husband had to be almost reduced in tears in 1999 when

i actually had the very rare pos PCR of my spinal

fluid from bbi labs when no one was getting pos from

them, but i did. kinda like lots of people are not

getting or more acuaritly MDL - getting false neg. i

even got pos from quest! like not having the test

done, and i was still pos. but when i was in my

thirties, husband sick for yrs, and how he managed -

how did we all manage? - i was like an alzhiemer

paitient, i more pain then you would leave an animal

in , and our brilliean children were left without a

mother, left to get sicker.......and we are all still

sick......

anat raechael feingold though my encephalitis

headaches in '96 were funny. i do not think anat is

funny. and, well, i nursed both of my children until

they were about 2 yrs old and gave it up by

themselves. i did not know i was passing on lyme

spirochetes ( and infected with babesea - erlichia,

bartonella, mycoplasma fermentans - just gave every

inch of me to my family. i now know a mistake.

does anat not know what this is? ask her.

i'm very willing to go forward with my family photos,

including the incriminating ones of our two trips to

nantucket island 90 and 93 and our other photos thru

the yrs documenting the stuff unwittingly and my med

records. angry st mary's dr emil and the nasty,

angry, totally not true ( i was suggesting the dr i

was then seeing to his patients in the waiting room.

set him off into a rage ) - and i would not suggest

that dr now. he took insurence.

we need an SPCA for people. " friends " and family

that should have been there for us were allowed to

maked fun of me, call me lazy, ignore my eyes were not

even moving in alignment when my nickname was " eagle

eyes " and i always had better than 20/15 vision.

hmmmmm?

anat rachael feingold and her offspring - ok this is

heresay, but when i asked my daughter about ....no ,

i'll be quiet.r

but i would never think to ask anyone how dr jones

raised his own children/grandchildren.

i am sure he never deprived a child breakfast until

they could answer a certain number of math questions

correctly.

and my own maternal insticks was just to nourish them

well - breastfeed until they gave it up on thier own -

feed them wholegrains, freash vegies, friuts, sweeten

with natural stuff, like the non-bitter grade of

stevia.

got such a hard time from anat and her girlfriend and

followers and

newtown friends. i do not reccomend.

i'm tired now.

--- Tiff <bestel63@...> wrote:

> Hi Caryn,

> I live in California & have Blue Cross Prudent

> Byuer PPO. I was surprised they covered their share

> of Igenex, but they did and very quickly reimbursed

> me. Did you try submitting the claim yourself? And

> maybe try appealing if they refuse the first time?

> Of course, if it's been several years it's probably

> too late now for reimbursement.

>

> I'm so sorry to hear your world has been turned

> upside down, like so many of us. It just makes me

> sick that so many of us, damn near all, have to go

> through so much just to be heard, or listened to,

> let alone get treated.

>

> I personally am walking a thin line at work just

> trying to keep my job which I desperately need to

> keep. The pain just seems to be getting worse by the

> day. I see a long downward spiral ahead of me while

> I wait to see an LLMD. Sure hope they call me soon.

>

> Get some rest - hope you're feeling well. Did you

> say you are 'recovered' or still quite sick?

> I do hope you have found some relief.

> Tiff

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

[Guest guest]

reply : still quite sick. but so are the rest of my

family. we all have it. many infections. photos of

me on nantucket island, textbook rash on my calf

w/textbook bullseye rash. '90 when my first born was

only 9 months old and a nursing child, and '93 when

just a month later i got pregnant with my son, born

witn lyme.

i need to add that because my daughter had a difficult

birth ( nazareth hospetal ) and i was sent home to

scream thru the contractions ...long story...first dr

said i was in labor just not progressing...he was

right..

kitten was delivered thru first forseps then suction.

drs screw up all the time. their are many good drs.

dr charles ray jones. then the nazareth hospetal dr

who said i was not in true labor only to do an

emergency delevery they usually don't do anymore.

and followed by a temperature of 102, well first i was

telled at by the nurse laday - oh, other stuff i

skipped - " diddn't you take a shower? " after taking my

temp and it was elevated.

of course i did. and gross, what came out of my when

i showered.

well, the high temp continued for a couple of weeks

after the birth of my child to the delight of an old

person relative.

i'm tired.

i very likely was born with lyme. i have an older

brother - what they said back then about autistic

children was not really true. my brother was an

afectionate child who did care greatly about the ones

closest to him. just - you had to know him.

but we don't know if i was born with lyme. we do know

my parents lived and vacationed in lyme endemic areas.

and it is not only lyme. my son tested pos recently

for bartonella. a few yrs ago, mycoplasma fermentans.

his emergening symptoms blaimed on me by the school

nurse who has no interest in learning about my son's

chronic illness. and could care less that i was in

more pain than you would leave an animal.

we live in an upscale area and our initial

pediatrition had sent her kids to the local public

elementary school we sent our kids to eventuallly.

she got there first. and she is quite possesive to

her lifestyle and how she is persived. sp? so she

does not want to be exposed for disinterest in what

lyme and coinfections really are and her " assurring "

me that she sees lot's of children just like my

children and they are normal - not normal. not at

all. how did she get let into med school?

i am heartsick. i can't believe the cruelty we have

had to endure. bucks co. is gone. yeah, i grew up

here, but most of the woods and farmlands are gone.

quaker schools are not really quaker schools. it's

all a money thing.

anat raechal feingold - pediatric infectious diseasse

specialist, cooper hospital camden.

she did? or didn't? realize by the yrs she knew us.

and her website - since changec - ? 10 days of

antibiotics are all that is needed to treat lyme

disesas and the outcome for post-lyme disease is

excellent "

this is a mother. or " so called mother " . and she and

her special someone thought me pressing my hand so

hard against my head - encephalitis headaches - was so

funny?

my daughter, until 4rth grade getting better grades

than her daughter. anat was a bragadoousious. and

not easy to look at.

but i could see my kids getting sicker and sicker and

no answer and too sick to fight for them. too sick to

care for myself let alone my children. but i had to.

i have drs " reknowned drs " like " best of " infectious

disease speceialists mister roger e. niemans, fat,

annoying ugly " entitled " - for what? infectious

disease guy at abintingon hospital.

this was in 1999. relatives who thought he was great

dr according to thier dr friend reccomeended him. i ,

well we did not have any money. so, i did not carry a

credit or bank card so the you have to pay to park in

abington memorial hospital parking garage was a

suprise. i was very isolated for so many yrs.

so, so cold, i parked on a residential street. my

heart was beating hard and abnormaly when i got to

nieman's office. got wierd looks by niemans

over-made-up office staff. i was not breathing well.

and not looking well. and did not carry a prada bag.

iwas the walkng dead for too many yrs. my insurence

co knows this and is taking advantage of the. my

husband had to be almost reduced in tears in 1999 when

i actually had the very rare pos PCR of my spinal

fluid from bbi labs when no one was getting pos from

them, but i did. kinda like lots of people are not

getting or more acuaritly MDL - getting false neg. i

even got pos from quest! like not having the test

done, and i was still pos. but when i was in my

thirties, husband sick for yrs, and how he managed -

how did we all manage? - i was like an alzhiemer

paitient, i more pain then you would leave an animal

in , and our brilliean children were left without a

mother, left to get sicker.......and we are all still

sick......

anat raechael feingold though my encephalitis

headaches in '96 were funny. i do not think anat is

funny. and, well, i nursed both of my children until

they were about 2 yrs old and gave it up by

themselves. i did not know i was passing on lyme

spirochetes ( and infected with babesea - erlichia,

bartonella, mycoplasma fermentans - just gave every

inch of me to my family. i now know a mistake.

does anat not know what this is? ask her.

i'm very willing to go forward with my family photos,

including the incriminating ones of our two trips to

nantucket island 90 and 93 and our other photos thru

the yrs documenting the stuff unwittingly and my med

records. angry st mary's dr emil and the nasty,

angry, totally not true ( i was suggesting the dr i

was then seeing to his patients in the waiting room.

set him off into a rage ) - and i would not suggest

that dr now. he took insurence.

we need an SPCA for people. " friends " and family

that should have been there for us were allowed to

maked fun of me, call me lazy, ignore my eyes were not

even moving in alignment when my nickname was " eagle

eyes " and i always had better than 20/15 vision.

hmmmmm?

anat rachael feingold and her offspring - ok this is

heresay, but when i asked my daughter about ....no ,

i'll be quiet.r

but i would never think to ask anyone how dr jones

raised his own children/grandchildren.

i am sure he never deprived a child breakfast until

they could answer a certain number of math questions

correctly.

and my own maternal insticks was just to nourish them

well - breastfeed until they gave it up on thier own -

feed them wholegrains, freash vegies, friuts, sweeten

with natural stuff, like the non-bitter grade of

stevia.

got such a hard time from anat and her girlfriend and

followers and

newtown friends. i do not reccomend.

i'm tired now.

--- Tiff <bestel63@...> wrote:

> Hi Caryn,

> I live in California & have Blue Cross Prudent

> Byuer PPO. I was surprised they covered their share

> of Igenex, but they did and very quickly reimbursed

> me. Did you try submitting the claim yourself? And

> maybe try appealing if they refuse the first time?

> Of course, if it's been several years it's probably

> too late now for reimbursement.

>

> I'm so sorry to hear your world has been turned

> upside down, like so many of us. It just makes me

> sick that so many of us, damn near all, have to go

> through so much just to be heard, or listened to,

> let alone get treated.

>

> I personally am walking a thin line at work just

> trying to keep my job which I desperately need to

> keep. The pain just seems to be getting worse by the

> day. I see a long downward spiral ahead of me while

> I wait to see an LLMD. Sure hope they call me soon.

>

> Get some rest - hope you're feeling well. Did you

> say you are 'recovered' or still quite sick?

> I do hope you have found some relief.

> Tiff

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ