Re: Bizarre sleep, bizarre dreams?

November 28, 2005

In a message dated 11/28/2005 4:49:16 P.M. Eastern Standard Time,

anne@... writes:

I'm wondering if this is a symptom of lyme or not? I find that I am

able to fall into these deep, extremely deep sleeps that more resemble

unconsciousness than sleep. When I wake up I feel like I've just gotten

back from a trip to China. And during these sleep times, I have

extremely strange and vivid dreams - more so than in " normal " sleep.

It's kind of scary, this unconsciousness thing - and sometimes I can

hear things going on outside, phone ringing, dogs barking, but it's like

I'm paralyzed and can't get out of the stupor. Does any of this sound

familiar to anyone? Or maybe it's just me

Anne

Hi Anne ;-)

If you'd like to email or throw it out here on the board (up to you) I am

thinking maybe you are having a reaction to a med ...?? I take many different

meds and this sounds familiar to me. I never ever wake feeling rested ...I do

at times have vivid dreams etc..but I tend to think it may be from an

antidepressant or something else that I may take. If you have fibromyalgia you

will

never reach the healing part of sleep...I talked about that the other day

.....and that is why you wake up feeling as if you dug a ditch all night instead

of sleeping. Please feel free to email me or whatever ...but until I know what

you take and if its a side effect I can't really say ...except to empathize

with you and to tell you that although I CRAVE sleep , I never , ever feel

'rested' ....Kat

November 28, 2005

In a message dated 11/28/2005 6:35:55 P.M. Eastern Standard Time,

mac_mcd@... writes:

3) Paralyzed

I have episodes where I feel like I am paralyzed and just cannot move. I

have used terms like, " I know what is going on around me but I am trapped

inside my body and can't communicate. "

4) Dreams

And then when I completely pass out it is the DREAMS! Vivid, extremely real

and upon waking it is obvious did not get any rest.

5) Numbness

In conjunction with these episodes I have extreme numbness of the hands and

feet. It moves around and varies in intensity sometimes going all the way up

the arms or legs. At times it is so bad on waking that I cannot even move

my hands or grip anything and I have to look at my feet to make sure they are

pointing down before trying to get up.

6) Frequency and Duration

It happens a few times a day and lasts from 30 minutes to an hour or two.

The brain dullness will last longer but I am able to move and partially

interact with people but I'm a little slow talking and have a problem keeping

track

of ideas.

Hi Mac !

I also have ,5 and 6 ..especially the numbness in my hands and feet

....though for me its also VERY painful !!! Usually its my legs and feet ..now

moving

to my fingers. The joint in my thumb feels swollen and painful ..but its NUMB

also if that makes any sense ? I USED to have the dreams ...very real and

very strange and repetitive (which has never happened to me before) for about a

month I would dream the same things (different situations but same people)

in my dreams for about a month ..but I am trying to figure out if I started a

new med then ....I have 6 a great deal of the time. I almost feel dyslexic

....I can't get my words out properly , I forget what I am saying mid sentence

....totally FORGET ....I get very confused in places where there are a lot of

people ..ie:grocery store etc ....then I can't get it done ..because I am so

confused , I forget 1/2 of the things that I need if I don't have a list

....and I usually FORGET the list ! I have a hard time with organization ,

sitting

down to pay bills , etc ...I do a load of wash , put in dryer , dry and

forget about it until I am looking for that one shirt ! I surely can relate

....now

...number 3 . I have not had that ..but it definatly sounds neurological.

Almost sounds to me as if you are having petit mal seizures ? Have you been to a

neurologist (who is LLMD) not some jerk who hands out ritalin to kids ...but

one who knows lyme and what it does to your brain ? I am wondering what a few

weeks of an anti seizure medication would do ? Are you still seeing your

LLMD ? Maybe a small dose of something and that symptom would go away ? I am

not

a doctor and I don't even want to tell you WHAT I think it may be ...but

....when a person can't move, knows what is going on ,and sort of freezes for a

few minutes ..etc ...sounds like a small (petit) mal seizure ..no skaking or

anything like that ..just the inability to communicate ..on ending ..I would

like to say that it has been my experiencing both professionally and

personally that when a doctor is too stupid to know what is wrong with you or

unwilling to investigate ...he will usually SAY YOU ARE CRAZY OR FAKING ! Don't

let

it go Mac ....can I ask you if you stopped your abx because you wanted to ?

Just plain sick of it all ? or ..did your LLMD want you to take a break ? If

that is too personal I am so sorry ...I don't want to pry ...I am just trying

to help , I hope you know that ! If you want to talk more about it ...email

....I can definatly relate to lots of your symptoms , but of course not all ...I

think we all get bits and pieces of each others things ..depending on what

we have going on in our bodies ....hang in there and God Bless ...Kat

November 28, 2005

In a message dated 11/28/2005 6:57:37 P.M. Eastern Standard Time,

dona@... writes:

natural pain patch " on my temples overnight

Hi Dona

I have never heard of a natural pain patch ? Do you know what is in them ? I

have neuralgia in other places , do they help ? I understand about the side

effect but I was just wondering did it help you ?

I was just thinking ...Anne also , that if I fall into a deep sleep after a

pain med or anti anxiety I will ALSO have a very difficult time waking up

fully . It takes coffee ....(I am quitting it ) to wake me up to be functional.

ALSO ....the numbness in my body especially my fingers lasts a good while

AFTER I do wake. I seem to do this more during a herxheimer reaction which I am

having now. I just can't get LIMBER ....I can't stretch out properly ..feels

like my hamstrings are tightening up on me ....and I can't touch my toes like

I could ..things like that ....Kat ...ps ..dona ..have you seen outback jack

? I've been looking high and low for that guy ? ;-) I also need a new pair

of uggs size 8 ...just trying to put a smile on your face .....nice to see

someone from so far away ! WOW ! Take care !

November 28, 2005

In a message dated 11/28/2005 9:33:57 P.M. Eastern Standard Time,

dona@... writes:

Oh Outback Jack.. he got married to the girl he picked on the show.. they

made a really great match.

Hi Dona !

He would have made a much better match with me although the one he picked

was the one I would have picked for him ..she was adorable !

I also have many pairs of uggs ....but since Oprah started giving them to

people they are so difficult to get and so expensive here in the states ~!

Just ridiculous but I get them anyway ..sometimes from ebay .

Anyway ...that patch sounds almost like our 'lidocaine' patch ..does nothing

for me either ! I would be afraid to put something like that on my face ?

Does your face hurt ? At times I have had 'skin' pain on my cheeks. Very

strange and I always thought it was allergy or sinus infection or something.

Never

thought about it being lyme. It feels as though it is numb , but when you

touch it really hurts ! I'm tellin you , there is not many spots on me that

don't hurt ! Now ..from sitting here ..my bottom hurts ! but that's just the

chair ;-) ! Take care ..nice to talk to you also ! Is there a great deal of

lyme

in Australia ?

Kat

November 28, 2005

This is exactly what I have been experiencing for the past year.

1) Lyme duration

I was bitten 13 years ago with a reinfection 8 years ago

2) Stopped abx

I have been untreated by abx for a year and a half and it started about 3

months after I stopped the abx.

3) Paralyzed

I have episodes where I feel like I am paralyzed and just cannot move. I have

used terms like, " I know what is going on around me but I am trapped inside my

body and can't communicate. "

4) Dreams

And then when I completely pass out it is the DREAMS! Vivid, extremely real

and upon waking it is obvious did not get any rest.

5) Numbness

In conjunction with these episodes I have extreme numbness of the hands and

feet. It moves around and varies in intensity sometimes going all the way up

the arms or legs. At times it is so bad on waking that I cannot even move my

hands or grip anything and I have to look at my feet to make sure they are

pointing down before trying to get up.

6) Frequency and Duration

It happens a few times a day and lasts from 30 minutes to an hour or two. The

brain dullness will last longer but I am able to move and partially interact

with people but I'm a little slow talking and have a problem keeping track of

ideas.

7) Medical Opinions

Columbia University references something like this in their neurological

symptoms. As with a lot of things to do with Lyme my LLMD just nodded her head

and said nothing about it and one regular medical professional working for my

insurance company said that I was faking it. he said in his report that there

was nothing that that could cause these kind of episodes.

So it looks like its is you and I that have these symptoms.

Anne Shroeder <anne@...> wrote: