Re: I have VERY good news!

[Guest guest]

Kay or anyone else,

Can you share what goes on with this hearing? Do the attendees from the

public like us get to hear everything? Is a sign up sheet done so that

someone knows all these supporters have come out to show support? Do you get

to talk or say anything on Dr. Jone's behalf? I am curious about this as I

contemplated going to the hearing but am not sure what to expect exactly, or

if anyone will know that I am even there as a supporter.

I will have to rearrange my plans, get a babysitter, etc. so to just go is

not so easy even though I live in the same state.

I am not Dr. Jone's patient but I am grateful for what he has done.

Thanks.

from CT

[Guest guest]

Hello ,

There is info about the hearings here:

http://www.lymesite.com/drjones.htm

Yes, you can hear the entire proceedings. Sandy has written a synopsis of each

of the first 4 hearings. You will find them at the link above.

The attendees must sit quietly during the hearing. You do not have any

opportunity to speak. You do not sign in or up. Dr. and the medical board

notice how many seats are empty or filled and the more seats filled the better

for Dr. . A full, or overflowing, room sends a message that people are

interested and watching to the board, and it lets Dr. know people

appreciate what he is doing.

We need to all support Dr. . Here are some reasons you can find on the site

linked above:

Dr. Ray is, for all intents and purposes , the ONLY Lyme literate

pediatrician in the country, maybe the world.

For a biographical picture of Dr. , please see Pam Weintraub's article from

the Lyme Times at

http://lymetimes.org/archives/LT32.PDF and click on Page 5.

Also: http://www.wildernetwork.org/LDpediatricfund.html#drJundx

1.Dr. helps thousands (8000+) of kids from all over the world that have no

where else to get help.

2.He does it at great personal sacrifice working 6 or 7 days a week, 10 to 12

hours a day.

3.He doesn't turn away children, even if the family can not afford to pay.

4.Hundreds, maybe thousands, of families believe their children would have

literally died or become incapacitated if Dr. had not helped them.

5. If he loses his license, the vested interests who

claim that TBDs are easy to treat, easy to diagnose and hard to get will be

emboldened to target other docs who are helping people with TBDs, leaving

thousands of people without any hope or chance of getting the medical care they

need to live any kind of decent quality of life.

To support Dr. is to support medical care for all children, everywhere.

Show the global community you care about children's healthcare and each and

every child's right to exercise the freedom to access the healthcare they need

and deserve by supporting Dr. Ray .

Hope to see you at the hearings,

Kay

RE: [ ] I have VERY good news!

Kay or anyone else,

Can you share what goes on with this hearing? Do the attendees from the

public like us get to hear everything? Is a sign up sheet done so that

someone knows all these supporters have come out to show support? Do you get

to talk or say anything on Dr. Jone's behalf? I am curious about this as I

contemplated going to the hearing but am not sure what to expect exactly, or

if anyone will know that I am even there as a supporter.

I will have to rearrange my plans, get a babysitter, etc. so to just go is

not so easy even though I live in the same state.

I am not Dr. Jone's patient but I am grateful for what he has done.

Thanks.

from CT

[Guest guest]

I just read these hearings and can not beleive it. And why are they

saying that Igenex is not reliable??? Why are Igenex results and

Bowen results not accepted by the CDC?? (sorry, I read that on the

CDC website). The Courts are taking away our experts and leaving us

with the idiots that refuse to ackowledge that LD is a problem. I

wish I could send some money, but right now I am having problems

paying my own bills. I have been waiting on the other disability

backpay check and just found out that it will be at least another 2

months.

I wish the President, Congress, the Senate, everyone in power would

get this awful disease, then maybe something would be done.

>

> Hello ,

>

> There is info about the hearings here:

> http://www.lymesite.com/drjones.htm

>

> Yes, you can hear the entire proceedings. Sandy has written a

synopsis of each of the first 4 hearings. You will find them at the

link above.

>

> The attendees must sit quietly during the hearing. You do not have

any opportunity to speak. You do not sign in or up. Dr. and

the medical board notice how many seats are empty or filled and the

more seats filled the better for Dr. . A full, or overflowing,

room sends a message that people are interested and watching to the

board, and it lets Dr. know people appreciate what he is

doing.

>

> We need to all support Dr. . Here are some reasons you can

find on the site linked above:

>

> Dr. Ray is, for all intents and purposes , the ONLY

Lyme literate pediatrician in the country, maybe the world.

>

> For a biographical picture of Dr. , please see Pam

Weintraub's article from the Lyme Times at

> http://lymetimes.org/archives/LT32.PDF and click on Page 5.

> Also: http://www.wildernetwork.org/LDpediatricfund.html#drJundx

>

> 1.Dr. helps thousands (8000+) of kids from all over the

world that have no where else to get help.

> 2.He does it at great personal sacrifice working 6 or 7 days a

week, 10 to 12 hours a day.

> 3.He doesn't turn away children, even if the family can not afford

to pay.

> 4.Hundreds, maybe thousands, of families believe their children

would have literally died or become incapacitated if Dr. had

not helped them.

> 5. If he loses his license, the vested interests who

> claim that TBDs are easy to treat, easy to diagnose and hard to

get will be emboldened to target other docs who are helping people

with TBDs, leaving thousands of people without any hope or chance of

getting the medical care they need to live any kind of decent

quality of life.

>

> To support Dr. is to support medical care for all children,

everywhere. Show the global community you care about children's

healthcare and each and every child's right to exercise the freedom

to access the healthcare they need and deserve by supporting Dr.

Ray .

>

> Hope to see you at the hearings,

> Kay

>

> RE: [ ] I have VERY good news!

>

>

> Kay or anyone else,

>

> Can you share what goes on with this hearing? Do the attendees

from the

> public like us get to hear everything? Is a sign up sheet done

so that

> someone knows all these supporters have come out to show

support? Do you get

> to talk or say anything on Dr. Jone's behalf? I am curious about

this as I

> contemplated going to the hearing but am not sure what to expect

exactly, or

> if anyone will know that I am even there as a supporter.

>

> I will have to rearrange my plans, get a babysitter, etc. so to

just go is

> not so easy even though I live in the same state.

>

> I am not Dr. Jone's patient but I am grateful for what he has

done.

>

> Thanks.

>

> from CT

>

>

[Guest guest]

> I wish the President, Congress, the Senate, everyone in power would

> get this awful disease, then maybe something would be done.

>

I know how you feel, but doubt you really mean to wish this crud on

anyone else!

[Guest guest]

Theresa, maybe I am in an exceptionally nasty mood, but I think I WOULD

wish this crud on the corrupt snots in office who don't even pretend

they

are doing something good for their constituents. As I have learned

compassion

for other sick people who are suffering, maybe they would start

thinking of others

and using their positions to help, instead of padding their pockets.

Cheryll

> I wish the President, Congress, the Senate, everyone in

power would get this awful disease, then maybe something would be

done.

I know how you feel, but doubt you really mean to wish this crud

on anyone else!

[Guest guest]

I get you... I was just being " moralistic " . That's not to say I

haven't had those thoughts before, especially about the " doctors " I

had who didn't lift a finger to try to help me before I was chronic

and permanently damaged.

> I wish the President, Congress, the Senate, everyone in

> power would get this awful disease, then maybe something would be

> done.

> I know how you feel, but doubt you really mean to wish this crud

> on anyone else!

>

>

[Guest guest]

Theresa,

I can understand what you were saying. I just get so mad at the world. That

this is a conspiracy

for whatever reason is undisputable. With the upcoming election, I think, who

would I vote for?

No one seems to care about people anymore. I used to think my pcp was a great

guy, but now I see

he is just another pawn in the medical game. I have to see an LLMD who is very

elderly (84) to get treatment within driveable distance and should consider

myself lucky I have one at all. But where will we be when he

cannot work or passes on?

I will most likely be alright, I caught the disease right away. But I think

about the people who weren't or will not be so lucky in the future. Who is

watching out for them? Our doctors are supposed to be helping, but won't and

our elected or otherwise appointed public servants aren't.

We need to be more political ourselves. Maybe the anger I feel can be harnessed

somehow.

Cheryll

[ ] Re: I have VERY good news!

I get you... I was just being " moralistic " . That's not to say I

haven't had those thoughts before, especially about the " doctors " I

had who didn't lift a finger to try to help me before I was chronic

and permanently damaged.

> I wish the President, Congress, the Senate, everyone in

> power would get this awful disease, then maybe something would be

> done.

> I know how you feel, but doubt you really mean to wish this crud

> on anyone else!

>

>

[Guest guest]

Cheryll,

You *can* be more political without going to a whole lot of trouble. It is

election time. Contact the candidates in your district, especially

Congressional candidates, and ask them where they stand on the Lyme Disease

issue. Use phone, snail mail, or email. Provide information.

The Courant article is an excellent summation of the current situation. Send

them a link.

http://www.courant.com/news/local/northeast/hc-lymedoc3.artsep17,0,3729082.story

Ask them if they support funding for Lyme Disease research. Ask them if they

support legislation to protect the doctors who treat Lyme Disease outside the

IDSA treatment guidelines. Ask them if they support legislation to require

insurance companies to pay for treatment of chronic Lyme Disease. Let them know

that their answers will decide your vote.

This action, taken by enough people, will not result in immediate change. But

it will plant a seed. However buried, the issue will be in that politician's

mind, so that the next time he/she hears it, it will be more likely to be heard.

If we all do it, we will reach a huge percentage of our Congressmen/women.

Repetition, repetition, repetition. Eventually it will sink in.

Cheryll <literacyandslp@...> wrote: Theresa,

I can understand what you were saying. I just get so mad at the world. That

this is a conspiracy

for whatever reason is undisputable. With the upcoming election, I think, who

would I vote for?

No one seems to care about people anymore. I used to think my pcp was a great

guy, but now I see

he is just another pawn in the medical game. I have to see an LLMD who is very

elderly (84) to get treatment within driveable distance and should consider

myself lucky I have one at all. But where will we be when he

cannot work or passes on?

I will most likely be alright, I caught the disease right away. But I think

about the people who weren't or will not be so lucky in the future. Who is

watching out for them? Our doctors are supposed to be helping, but won't and

our elected or otherwise appointed public servants aren't.

We need to be more political ourselves. Maybe the anger I feel can be harnessed

somehow.

Cheryll

[ ] Re: I have VERY good news!

I get you... I was just being " moralistic " . That's not to say I

haven't had those thoughts before, especially about the " doctors " I

had who didn't lift a finger to try to help me before I was chronic

and permanently damaged.

> I wish the President, Congress, the Senate, everyone in

> power would get this awful disease, then maybe something would be

> done.

> I know how you feel, but doubt you really mean to wish this crud

> on anyone else!

>

>